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12 events found.

Advocacy

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  • April 2024

  • Mon 15

    Advocacy Week 2024

    April 15, 2024 - April 19, 2024

    Advocacy Week 2024 will take place virtually throughout the week of April 15th to April 19th, 2024. Advocacy Week is a nationwide advocacy effort to connect people with ME/CFS, Long Covid, and associated conditions; scientists; clinicians, and caregivers to share their unique stories with Congress. Our ultimate goal is to make ME/CFS, Long Covid, and […]

  • Fri 19

    EmPOWER M.E.: How to Build and Work with Your Care Team

    April 19, 2024 @ 9:00 am - 12:45 pm PDT

    As part of Advocacy Week 2024, our EmPOWER M.E. roundtable on April 19 at 9 am PT / 12 pm ET will feature panels of patient advocates, professionals, and scientists who share their expertise on topics relevant to the quality of life for people with ME/CFS, Long Covid, and their caregivers. The EmPOWER M.E. topic […]

  • May 2024

  • Fri 10

    World ME Day: Bridging Borders – Global Voices from the World ME Alliance

    May 10, 2024 @ 9:00 am - 12:00 pm PDT

    Solve is a proud co-founder of the World ME Alliance and we invite you to join us this year for the World ME Day event Bridging Borders – Global Voices from the World ME Alliance! Solve M.E. President and CEO and World ME Alliance Co-Chair Emily Taylor will represent Solve as one of the many nonprofit […]

  • October 2024

  • Wed 9

    Severe ME/CFS: Care, Rights, and Research Webinar Series — Caregiving (Pt. 1 of 4)

    October 9, 2024 @ 10:00 am - 11:00 am PDT

    ME/CFS has a broad spectrum of severity, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light, sound, and movement, and some may […]

    Free
  • Fri 11

    ICUE Webinar: Uniting Voices, Amplifying Impact: National Organizations Collaborating to Support Our IACC Communities

    October 11, 2024 @ 9:00 am - 10:00 am PDT

    Please join us for the final, culminating webinar of the Infection-Associated Chronic Conditions Understanding and Engagement (ICUE) project, where we will discuss the findings and results from the project as well as on-going efforts to collaborate across the IACC community on advancing awareness, clinical care, patient support and research. During this webinar, you will hear […]

  • November 2024

  • Wed 13

    Severe ME/CFS: Care, Rights, and Research Webinar Series — Legal Rights (Pt. 2 of 4)

    November 13, 2024 @ 10:00 am - 11:00 am PST

    ME/CFS has a broad spectrum of severity, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light, sound, and movement, and some may […]

    Free
  • December 2024

  • Wed 4

    Severe ME/CFS: Care, Rights, and Research Webinar Series — Medical Care (Pt. 3 of 4)

    December 4, 2024 @ 10:00 am - 11:00 am PST

    ME/CFS has a broad spectrum of severity, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light, sound, and movement, and some may […]

    Free
  • Wed 18

    The Future of IACCI and Long Covid Research: ME/CFS and the Unfinished work of the COPVS Task Force

    December 18, 2024 @ 10:00 am - 11:00 am PST

    **NEW TIME AND DATE!** In 2021 the National Institutes of Health (NIH) launched the RECOVER Initiative, a patient-centered, integrated, adaptive research network created to study Long Covid. Included in the RECOVER Initiative infrastructure was the Commonalities with Other Post-Viral Syndromes Task Force. The Task Force included Solve President and CEO Emily Taylor, Dr. Leonard Jason […]

    Free
  • January 2025

  • Tue 21

    Severe ME/CFS: Care, Rights, and Research Webinar Series — Research (Pt. 4 of 4)

    January 21, 2025 @ 10:00 am - 11:00 am UTC+0

    **NEW DATE: Tuesday, January 21 @ 10 am PT** ME/CFS has a broad spectrum of severity, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be […]

    Free
  • June 2025

  • Fri 27

    Pacing: Power in Slowing Down

    June 27, 2025 @ 10:00 am - 1:00 pm PDT

    One of the cornerstones of our annual Advocacy Week program is the EmPOWER M.E. roundtable. Panels of patient advocates, professionals, and scientists share their expertise on topics relevant to the quality of life for people with ME/CFS and Long Covid and their caregivers. EmPOWER M.E. is dedicated to empowering patients and caregivers in medical and […]

  • February 2026

  • Wed 11

    Protecting the Ones You Love: Legal & Insurance Tools for ME/CFS Caregivers

    February 11 @ 12:00 pm - 1:00 pm PST

     Caring for someone with ME/CFS is an act of deep love–and preparation is one of the most meaningful ways to protect their future. Hosted by Solve M.E. Director of Advocacy […]

  • August 2026

  • Wed 12

    “Coffee With a Clinician” in Recognition of Severe M.E. Awareness Month

    August 12 @ 9:00 am - 10:00 am PDT

    Solve M.E. is proud to join our hosts from the Bateman Horne Center for a special edition of their program "Coffee with a Clinician" in observance of Severe ME/CFS Awareness […]

    Free
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