COMMUNITY ADVISORY COUNCIL (CAC)

The ME/CFS Community is powerful, smart, and resourceful. One way that Solve M.E. empowers and collaborates with the ME/CFS Community is through our Community Advisory Council (CAC).

The Solve M.E. Community Advisory Council (CAC) is a volunteer working group providing guidance and recommendations on numerous Solve M.E. programs. Members of the CAC work with Solve M.E. staff on issues related to ME/CFS advocacy, education, and engagement, in addition to reviewing applications for funding through the EmPOWER M.E. micro grant program. The CAC serves as an inclusive partner platform to facilitate the input, dialogue, and collaborations with representatives of the ME/CFS community.

 

 

**Inaugural 2020-2022 Nominations now Open**

Solve M.E. is calling for nominations for the new Community Advisory Council (CAC). The CAC will serve as a stakeholder mechanism to improve and promote communication and collaboration between Solve M.E. and the broader ME/CFS community.

CAC membership is open to anyone by nomination (including self-nomination) and is
especially encouraged for people with ME/CFS, caregivers and family, advocates, academic partners, and public health professionals.

 

What to Expect as a Member of the CAC:

  1. Participation and Accessibility

Solve M.E. is committed to making participation in the Community Advisory Council (CAC) meaningful and accessible for all members of the ME/CFS community, especially those who are severely ill or disabled. There is no mandatory participation or commitment necessary in order to be a member of the CAC for your full two-year term. All materials, communications, and meetings related to the activities of the CAC will be made available to members in multiple forms and at no cost. Solve ME especially encourages nominations from people with ME/CFS, their caregivers and family, advocates, academic partners, and public health professionals.

  1. Meetings

Solve M.E. Community Advisory Council Staff Liaison will coordinate four online-based meetings a year. The CAC may designate additional meetings, as needed. CAC meetings are non-public and members will adhere to a confidentiality agreement.

  1. Goals

The inaugural Community Advisory Council meeting goals include 1) facilitating dialogue and feedback on Solve M.E. organizational programs and activities, 2) improving and streamlining community collaboration, and 3) reviewing applications for EmPOWER M.E. Microgrants from 2020-2022.

  1. Organization Representation

Employees or representatives of other organizations may be nominated and participate with clear transparency. Organizations may nominate more than one representative. If a CAC member does represent another organization, they will not be able to participate in grant review processes for applications submitted by their organization. Solve M.E. strongly believes in transparency and Members of the CAC will be publically listed on the Solve M.E. website.

 

Download the nomination form for the inaugural class of CAC members at: https://solvecfs.org/wp-content/uploads/2019/10/20-22-Nomination-Form_CACupdated.pdf

Submit your nomination form online at: https://solvemecfs.wufoo.com/forms/z10yu2mt0ojkcvc/

Members of the 2020-2020 Solve M.E. Community Advisory Council

Members of the Community Advisory Council will be announced in January 2020.

Members of the 2020-2020 Solve M.E. Community Advisory Council

Members of the Community Advisory Council will be announced in January 2020.

Solve M.E. Staff Members

Jessie Brown-Clark is the Administrative Coordinator and Community Advisory Council Staff Liaison at Solve ME/CFS Initiative. She has a bachelor’s degree in psychology from Pepperdine University where she also studied non-profit management. Before joining SMCI, she served as an educational advocate for students with disabilities and the coordinator for a children’s literacy organization.

 

 

Emily Taylor is the Director of Advocacy and Community Relations and Community Advisory Council Staff Adviser for Solve ME/CFS Initiative. She brings to the organization over fifteen years of policy, organization, and advocacy experience in both the non-profit and government sectors. With five years’ experience on Capitol Hill, Emily contributes a keen understanding of both state and federal policy processes while cultivating strong grassroots organization and patient representation.