Eight years after joining the Solve ME/CFS Initiative (SMCI), Suzanne D. Vernon, PhD, will be stepping down as Scientific Director in late June. She will continue with the organization in a consultancy role. SMCI has begun an international search for a Research Director. Read More…
Guest Blog: Dr. Lucinda Bateman on the Discussion Surrounding the IOM Report
Lucinda Bateman, MD, specializes in the diagnosis and management of unexplained chronic fatigue, ME/CFS and fibromyalgia. Having served on the IOM committee that produced the recent report, Beyond ME/CFS: Redefining an Illness, she brings an in-depth, well-informed opinion to the conversation surrounding the IOM report on ME/CFS, the new diagnostic criteria and the proposed name, Systemic Exertion Intolerance Disease (SEID). READ MORE…
Guest Blog: Armin Alaedini, PhD – The Search for Food Sensitivity Biomarkers in ME/CFS
Often those with ME/CFS experience gastrointestinal symptoms. Biomarkers of these symptoms could help to identify subtypes in ME/CFS. Dr. Armin Aledini is using samples from the SolveCFS BioBank™ to look for auto-antibodies against a range of dietary proteins. In this guest blog post he discusses Celiac disease, which is a commonly misdiagnosed condition with symptoms similar to ME/CFS. READ MORE…
$500,000 grant awarded to the Solve ME/CFS Initiative to further epigenetic research
We are thrilled to announce that the Dr. Ralph & Marian Falk Medical Research Trust has awarded $500,000 to the Solve ME/CFS Initiative to further our epigenetic research. READ MORE…
Research Digest – December 2014: 10 Important Advances in ME/CFS
While progress is still far too slow, there have been many recent interesting and important discoveries in ME/CFS. In this year-end blog post, Dr. Vernon and Dr. Komaroff summarize what they regard as the most important recent advances in our field. READ MORE…
Being “Patient-Centric”
Patients are central to a solution for ME/CFS. We have designed our SolveCFS BioBank™ to collect and manage data so that the individual is the central organizing principle. LEARN MORE…
Deciphering Post-Exertional Malaise
On September 18, 2014, Dane B. Cook, Ph.D., Associate Professor of Kinesiology at the University of Wisconsin, Madison and a Solve ME/CFS Initiative 2011 funded investigator, presented our most popular webinar of the year on the system biology approach his team is taking to provide a clear picture as to what causes post-exertional malaise. In this guest post for our blog, Dr. Cook reviews the material presented and tackles the many questions we received from webinar participants.
The Importance of a Representative Patient Population for Research
Being able to offer researchers access to ME/CFS patients with demographic and clinical characteristics that represent the full range of people affected with ME/CFS removes a significant hurdle all researchers face. With the SolveCFS BioBank™ we can make ME/CFS research more appealing and accessible. But how do we ensure our SolveCFS BioBank™ is representative of the entire patient population? READ MORE….
Breaking Down the Complexities of ME/CFS – Part 2
“Complex” is a word that is frequently used to describe the ME/CFS disease state for many reasons. One way that research deals with this type of complexity is to break it down so that the most similar people are being studied. Our SolveCFS BioBank is an important part of this process. Read more…
SolveCFS BioBank: Calling YOU to Participate in Gathering a Breadth & Depth of ME/CFS Data, Part 4 of 4
The SolveCFS BioBank allows us to seek out and attract the brightest investigators, allowing multiple research projects on participant samples where results are combined. ME/CFS is complex, like a jigsaw puzzle. When you participate in the BioBank, different research studies are brought together. READ MORE in part 4 of 4 of this series…