Strong support from family and friends is essential to people with a debilitating and poorly understood illness like ME/CFS. As patients work to integrate the challenges of ME/CFS into their daily lives, loved ones can often feel powerless to help them. Read More…
I Thought It Was a Typo…
During the course of interviewing for this position, I was reviewing the amount of government spending on ME/CFS. I came across a figure of $5.4 million in one article. I assumed the number must have been a typo. Read More…
Peter Rowe – Part Four
In the fourth and final installment of his follow-up to our July 16 webinar, Dr. Peter Rowe, director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, responds to patients’ questions on the intersection of PEM and OI and exercise intolerance with OI. Read More…
Peter Rowe – Part Three
In Part Three of his follow-up to our July 16 webinar, Dr. Peter Rowe, director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, responds to patients’ questions on the intersection of PEM and OI and exercise intolerance with OI. Read More…
Peter Rowe – Part Two
In Part Two of his follow-up to our July 16 webinar, Dr. Peter Rowe, director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, responds to patients’ questions on orthostatic intolerance, methylation, beta blockers and the effects of talking during tilt table testing. Read More…
Dr. Peter Rowe’s Responses to Follow-Up Webinar Questions
On July 16, the Solve ME/CFS Initiative hosted a webinar with Dr. Peter Rowe, director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, called, “Inducing Post-Exertional Malaise in ME/CFS: A Look at the Research Evidence. Read More…
Dr. Lily Chu Q&A Follow-Up to June 18 Webinar
The Solve ME/CFS Initiative hosted a webinar with Dr. Lily Chu June 18 called, “Post-Exertional Malaise: History, Characteristics, Evidence.” Dr. Chu has followed up with her responses to questions that were unable to be answered during the webinar due to time limitations. Read More…
SMCI Announces New VP for Research and Scientific Programs
The Solve ME/CFS Initiative is pleased to announce the appointment of Zaher Nahle, PhD, MPA, as its Vice President for Research and Scientific Programs, effective June 29. Read More…
SMCI Comment on the Institute of Medicine Report—Part 4 of 5
This is the fourth of a five-part blog series that addresses aspects of the Institute of Medicine’s recent report on myalgic encephalomyelitis/Chronic Fatigue Syndrome. In this post, author Dr. Suzanne D. Vernon, looks at the IOM’s third recommended diagnostic criteria: sleep.
SMCI Comment on the Institute of Medicine Report—Part 2 of 5
This is the second of a five-part blog series in which Dr. Suzanne Vernon, SMCI Scientific Director, breaks down the landmark IOM report piece by piece. In this post, Dr. Vernon looks at the first recommended diagnostic criteria: defiant fatigue. Read More…