Last week’s long-awaited briefing on the National Institute of Health’s Pathways to Prevention (P2P) report on ME/CFS failed miserably at continuing the momentum created earlier this year by the Feb. 10 Institute of Medicine publication on the disease. Read More…
The P2P Report – CFSAC Drafts Substantive, Expert Response
On 1/13/2015, the CFSAC met and finalized its response and feedback to the P2P draft report. SMCI participated in the process, with Carol Head, president and CEO, serving on the CFSAC working group. SMCI will endorse the CFSAC response in it’s feedback to the P2P panel concerning the report. LEARN MORE…
P2P Draft Report Set to be Published, 30 days for Feedback
On December 9 & 10, the Pathway to Prevention Workshop for “Advancing the Research on ME/CFS” was held. The draft report is scheduled to be posted on December 18, 2014 with a 30 day comment period. The Solve ME/CFS Initiative will work with members of its Research Advisory Council and other advisers to issue a response to the report. Access the workshop recordings a READ MORE
Two Important Federal Meetings Just 4 Days Apart
With only 4 days in between them, December offers two very important meetings to the ME/CFS community. On December 3-4, the CFSAC third and final meeting of 2014; on December 9-10, the Pathway to Prevention Workshop for Advancing Treatment in ME/CFS will occur. LEARN MORE…
P2P Draft Evidence Review
The Pathway to Prevention draft evidence review has been released. Can a process that seems inappropriate for ME/CFS help inform a path forward? SMCI has utilized the collective brainpower of our Research Advisory Council, led by our scientific director, Suzanne D Vernon, PhD, to perform a careful review and response to the Evidence-Based Practice Centers’ draft evidence-based review for ME/CFS. READ MORE…
P2P Releases Systematic Evidence Review
On Sept. 22nd, the Association for Health Research and Quality (AHRQ) released the draft systematic evidence review on the Diagnosis and Treatment of ME/CFS for the P2P workshop. The Solve ME/CFS Initiative is in the process of reviewing the draft report more thoroughly with members of its Research Advisory Council in order to provide the most informed comments prior to the deadline…
P2P Workshop – Registration Now Open
Registration is now open for the Pathways to Prevention workshop for Advancing the Research on ME/CFS. Interested individuals may register to attend live or participate via webcast. It is our hope that many stakeholders will participate in this process in order to ensure the patients have a strong presence and a voice. Read more…
Solve ME/CFS Initiative (SMCI) Position on P2P
An NIH Pathway to Prevention workshop focusing on ME/CFS is in development. Many in the ME/CFS community have concerns. The Solve ME/CFS Initiative has them as well, specifically about the evidenced-based literature review. SMCI has taken steps to urge the NIH to correct it. Read more about what is underway…
Pathways to Prevention for ME/CFS
There is a lot of activity on a federal level related to ME/CFS –including the Pathway to Prevention (P2P) initiative through the National Institutes of Health. In this post we break down the P2P program and where ME/CFS is in the approval process so far.