ME/CFS Research Roadmap Approved by the NIH NANDS Council

In an effort to move the ME/CFS field toward translational studies and clinical trials, the National Institute of Neurological Disorders and Stroke (NINDS) ME/CFS Research Roadmap was approved this week […]

ME/CFS RESEARCH ROADMAP WEBINAR SERIES

Tomorrow’s NINDS ME/CFS Research Roadmap webinar at 11AM ET will focus on how ME/CFS impacts the immune system, current research, knowledge gaps, and future research opportunities.   Register here.   […]

RECOVER Study of Paxlovid to Treat Long Covid Begins January 2023, Has Implications for ME/CFS

The National Institutes of Health (NIH) announced that the use of Paxlovid to treat Long Covid will be the first treatment to be studied by its $1 billion RECOVER Initiative. […]

NIH launches database to track neurological symptoms associated with COVID-19

A new database will collect information from clinicians about COVID-19-related neurological symptoms, complications, and outcomes as well as COVID-19 effects on pre-existing neurological conditions. The COVID-19 Neuro Databank/Biobank (NeuroCOVID), which […]

Solve M.E. at the Patient-Centered Outcomes Research Institute (PCORI) Annual Meeting in Washington, D.C.

Allison Ramiller (left) before attending the breakout session Patient Perspective: Learnings and Strategies for Partnership in Research (right) that featured PCORI patient partners Sonya Ballentine and Martie Carnie, Al Richmond from Community-Campus Partnerships for […]

Dr. Sadie Whittaker on the NANDS Working Group’s Strategic, Coordinated Approach to ME/CFS

Within any large organization is a system of operating that is best navigated by those who work within it. That’s why the ME/CFS community is lucky to have among its […]