In February, the IOM released its landmark report on ME/CFS [SEID]. In this first of a five-part blog series, Dr. Suzanne D Vernon, SMCI Scientific Director breaks down the report piece by piece, beginning with making the critical distinction between a research case definition and clinical diagnostic criteria. Read More…
Guest Blog: Dr. Lucinda Bateman on the Discussion Surrounding the IOM Report
Lucinda Bateman, MD, specializes in the diagnosis and management of unexplained chronic fatigue, ME/CFS and fibromyalgia. Having served on the IOM committee that produced the recent report, Beyond ME/CFS: Redefining an Illness, she brings an in-depth, well-informed opinion to the conversation surrounding the IOM report on ME/CFS, the new diagnostic criteria and the proposed name, Systemic Exertion Intolerance Disease (SEID). READ MORE…
IOM Report Released – Recommends New Diagnostic Criteria, Calls for More Research, and Proposes New Disease Name
IOM Report Released – Recommends New Diagnostic Criteria, Calls for More Research, and Proposes New Disease Name. The report underscores the profound impact that ME/CFS has on the millions who suffer from it worldwide (est. 17 million) and the importance of getting people diagnosed; committee calls for more research funding. READ MORE…
The P2P Report – CFSAC Drafts Substantive, Expert Response
On 1/13/2015, the CFSAC met and finalized its response and feedback to the P2P draft report. SMCI participated in the process, with Carol Head, president and CEO, serving on the CFSAC working group. SMCI will endorse the CFSAC response in it’s feedback to the P2P panel concerning the report. LEARN MORE…
Being “Patient-Centric”
Patients are central to a solution for ME/CFS. We have designed our SolveCFS BioBank™ to collect and manage data so that the individual is the central organizing principle. LEARN MORE…
IOM and the Clinical Case Definition Committee – A Case for Hope
On Tuesday, December 3, the IOM announced the provisional Clinical Case Definition Committee slate. The Association has reviewed the full slate of committee members and is optimistic that this committee can be effective in fulfilling its important mandate.
HHS Responds to Questions Concerning the IOM Contract via CFSAC Listserv
After much controversy, HHS, via the Chronic Fatigue Syndrome Advisory Committee listserv, has released an FAQ about the contract with the IOM concerning clinical diagnostic criteria development…
Clearing the Air
Clearing the Air – We must galvanize around ME/CFS in order to conquer it.
The CFIDS Association Statement on the H.H.S. IOM Contract
We feel that the Canadian Clinical Consensus can be optimized as a clinical case definition by applying a standardized methodology of execution, through validation of criteria, and a nationwide dissemination to health professionals.
ME/CFS Clinical Case Definition Debate
The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of HHS.