We are thrilled to announce our involvement in a new coalition of more than 20 ME/CFS advocates, who have begun working together to share ideas, leverage resources and implement tactics as a single dynamic and powerful community that will bring the greatest benefit to ME/CFS patients. Read More…
Guest Blog: Making Reasonable Accommodations for ME/CFS Students
Guest blogger Michael Ottlinger, PhD, addresses the reasonable accommodations that must be made for students with ME/CFS. Read More…
Solve ME/CFS Initiative Calls for Review of PACE Trial
The Solve ME/CFS Initiative is one of 12 organizations that have signed a letter asking the heads of the Centers for Disease Control (CDC) and the Agency for Healthcare Research and Quality (AHRQ) to examine the issues raised by journalist David Tuller’s analysis of the U.K.’s £5 million PACE trial for ME/CFS. Read More…
Going the Extra Mile for ME/CFS
Strong support from family and friends is essential to people with a debilitating and poorly understood illness like ME/CFS. As patients work to integrate the challenges of ME/CFS into their daily lives, loved ones can often feel powerless to help them. Read More…
I Thought It Was a Typo…
During the course of interviewing for this position, I was reviewing the amount of government spending on ME/CFS. I came across a figure of $5.4 million in one article. I assumed the number must have been a typo. Read More…
Peter Rowe – Part Four
In the fourth and final installment of his follow-up to our July 16 webinar, Dr. Peter Rowe, director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, responds to patients’ questions on the intersection of PEM and OI and exercise intolerance with OI. Read More…
Peter Rowe – Part Three
In Part Three of his follow-up to our July 16 webinar, Dr. Peter Rowe, director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, responds to patients’ questions on the intersection of PEM and OI and exercise intolerance with OI. Read More…
Peter Rowe – Part Two
In Part Two of his follow-up to our July 16 webinar, Dr. Peter Rowe, director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, responds to patients’ questions on orthostatic intolerance, methylation, beta blockers and the effects of talking during tilt table testing. Read More…
Dr. Peter Rowe’s Responses to Follow-Up Webinar Questions
On July 16, the Solve ME/CFS Initiative hosted a webinar with Dr. Peter Rowe, director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, called, “Inducing Post-Exertional Malaise in ME/CFS: A Look at the Research Evidence. Read More…
Dr. Lily Chu Q&A Follow-Up to June 18 Webinar
The Solve ME/CFS Initiative hosted a webinar with Dr. Lily Chu June 18 called, “Post-Exertional Malaise: History, Characteristics, Evidence.” Dr. Chu has followed up with her responses to questions that were unable to be answered during the webinar due to time limitations. Read More…