Challenges in Ensuring Equity In the Study and Treatment of ME/CFS and Long Covid

Online

Co-presented by Peter Rowe, MD (Professor of Pediatrics, Director, Johns Hopkins Children’s Center Chronic Fatigue Clinic) and Camille Broussard, MD, MPH (Assistant Professor in the Division of Adolescent and Young Adult Medicine at Johns Hopkins School of Medicine), this webinar will explore the dissonant results of epidemiologic studies that suggest Latinx and Black individuals have […]

Long COVID Technology

As we approach the end of the year, we are also wrapping up a stellar, year-long webinar partnership with the Global Interdependence Center that has explored the pandemic’s long-term healthcare, policy, and economic impact, specifically the implications of Long Covid. The final installment in the series, “Long Covid Technology,” will take place on December 20. […]

CDC Update: Recent Strides in Long Covid

Online

In this webinar, Solve M.E. President Oved Amitay welcomes Dr. Elizabeth Unger, chief of Chronic Viral Diseases Branch at Centers for Disease Control and Prevention, and her CDC colleagues to share updates and progress on The School-Based Active Surveillance Project (presented by Anindita Nanda Issa, MD), the Long Covid Fatiguing Illness Recovery Program (ECHO) (presented by Jennifer […]

How to Make an Impact at the FDA’s Drug Development Meeting for Long Covid

Online

On April 25th, 2023, FDA is hosting a virtual public meeting on Patient-Focused Drug Development (PFDD) for Long Covid. This meeting will provide FDA the opportunity to obtain initial patient and patient representative input on the aspects of Long Covid, including how Long COVID affects their daily life, the symptoms that matter most to patients, […]

EmPOWER M.E. 2023: Navigating the World with Energy Limiting Disabilities

Online

Hosting EmPOWER M.E. during Advocacy Week each year is one of our favorite ways to connect with our community after a long week of congressional meetings.  This year, our Lived Experience Taskforce (LET) partners helped us choose our topic: Navigating the World with Energy Limiting Disabilities. This special event on April 21 at 10 AM […]

FDA Patient-Focused Drug Development Public Meeting for Long Covid

Online

The US Food and Drug Administration (FDA) is hosting a virtual public meeting on Patient-Focused Drug Development for Long Covid on Tuesday, April 25th, 2023, from 10 a.m. to 4:00 p.m. ET.  It will be conducted with live translation in both English and Spanish. Patient-Focused Drug Development meetings are important and infrequent opportunities for patients to provide […]

Effects of Long Covid and ME/CFS on Sleep

Online

Many individuals who have had COVID-19 experience long-term symptoms that have a major impact on their lives. One of the most common symptoms is sleep disturbance. After more than six months from the time of infection, about 60% of people self-report lingering sleep difficulties, even if they had a mild course of acute COVID-19. Unrefreshing […]

Stem Cell Therapy As a Potential Treatment for Long Covid

Online

Solve is hosting the Hope Biosciences Research Foundation (HBRF) for a webinar on Thursday, May 25 at 10AM PT. HBRF has conducted three FDA-authorized studies in mesenchymal cell therapy for COVID-19 prevention and treatment, and two studies in Long Covid.  Join Solve President Oved Amitay and HBRF founder Donna Chang for a comprehensive discussion of […]

The Future of Symptom Tracking: Exploring STAT Health’s Revolutionary In-Ear Device That Measures Blood Flow to Head

Online

Solve M.E. is excited to host STAT Health CEO Daniel Lee for a conversation about their innovative in-ear wearable device. We'll discuss how the STAT in-ear wearable measures blood flow to the head, tracks changes in heart rate and blood pressure trend when users stand up. Designed to empower individuals with ME/CFS, Long Covid, and […]

Online

Join Solve Senior Director of Research Leslie E. Phillips, PhD for a walkthrough of our new patient-centered data platform, Solve Together! In this webinar, we'll share information about joining the platform, share tips for maximizing built-in tools for participants, and answer your questions. Solve Together is fully accessible by smartphone and will allow participants to […]

The Patient-Doctor Partnership: Optimally Treating People with Long Covid and ME/CFS Across the US

Solve welcomes three medical providers who will share their experience with treating Long Covid, ME/CFS, POTS, and dysautonomia patients across rural, urban, and suburban settings. Dr. Melanie Hoppers (co-founder and Chief Medical Officer at Physicians Quality Care, in Jackson, TN), Dr. William Pittman (co-director of the UCLA Long COVID Program), and Dr. Tiffany Walker (Principal […]

Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID

Online

NIH ME/CFS Research Roadmap Webinar Series August - December 2023 This virtual webinar series is part of a larger effort to develop a Research Roadmap for ME/CFS, which will identify research priorities to move the field toward translational studies and clinical trials. Save the date for two NIH ME/CFS events in December 2023! Additional details will be […]

Symptom Management and Patient Empowerment Through The Long Covid Wearable Study

The lived experiences of people with ME and Long Covid have shown that activity management, or pacing, can be an effective method of reducing symptom severity. However, pacing is difficult to implement. Many people living with energy-limiting conditions have utilized wrist-worn wearables, or activity trackers, to help implement pacing. To validate the value of using […]

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