What is Occupational Therapy? How can it help people with ME/CFS? Amy Mooney, MS OTR/L, will share her expertise and what patients should know if they are looking for an Occupational Therapist. This webinar will describe occupational therapy’s role for providing symptom management and improving the quality of life for individuals with ME/CFS. Amy will […]
Research Update Featuring: Avindra Nath, MD (Clinical Director of National Institute of Neurological Disorders and Stroke – NIH; Chief of the Section of Infections of the Nervous System – NIH; Director of the Translational Neuroscience Center – NIH) Article: https://academic.oup.com/brain/article/145/7/2555/6621999 Hector Bonilla, MD (Associate Professor of Medicine and Infectious Diseases – Stanford University Medical Director […]
Since the beginning of the pandemic, SARS-CoV-2 has been suspected of causing chronic fatigue syndrome (ME/CFS). A well-controlled cohort study conducted by a group of researchers from Charité - Universitätsmedizin Berlin and the Max Delbrück Center for Molecular Medicine (MDC) has now shown that in the subset of patients who suffer from fatigue and exertion […]
Co-presented by Peter Rowe, MD (Professor of Pediatrics, Director, Johns Hopkins Children’s Center Chronic Fatigue Clinic) and Camille Broussard, MD, MPH (Assistant Professor in the Division of Adolescent and Young Adult Medicine at Johns Hopkins School of Medicine), this webinar will explore the dissonant results of epidemiologic studies that suggest Latinx and Black individuals have […]
Many individuals who have had COVID-19 experience long-term symptoms that have a major impact on their lives. One of the most common symptoms is sleep disturbance. After more than six months from the time of infection, about 60% of people self-report lingering sleep difficulties, even if they had a mild course of acute COVID-19. Unrefreshing […]
NIH’s next ME/CFS Advocacy Call will be held on May 1, 2023 from 12:00 – 1:00 pm ET. The webinar will include updates from NIH on ME/CFS-related research activities and a scientific presentation by Avik Roy, PhD, and Gunnar Gottschalk, PhD, investigators at Simmaron Research and the University of Wisconsin-Milwaukee. Please register in advance! During the webinar, […]
2nd International Meeting of the CFC - Charité Fatigue Center ME/CFS Conference 2023 - Understand, Diagnose, Treat Date: Thursday, May 11, 2023, 9 a.m. to 6 p.m. and Friday, May 12, 2023, 9 a.m. to 2 p.m No participation fees. Register here.
Solve is hosting the Hope Biosciences Research Foundation (HBRF) for a webinar on Thursday, May 25 at 10AM PT. HBRF has conducted three FDA-authorized studies in mesenchymal cell therapy for COVID-19 prevention and treatment, and two studies in Long Covid. Join Solve President Oved Amitay and HBRF founder Donna Chang for a comprehensive discussion of […]
Solve M.E. is excited to host STAT Health CEO Daniel Lee for a conversation about their innovative in-ear wearable device. We'll discuss how the STAT in-ear wearable measures blood flow to the head, tracks changes in heart rate and blood pressure trend when users stand up. Designed to empower individuals with ME/CFS, Long Covid, and […]
Mark your calendars July 27 - 29, 2023 for the IACFS/ME's International Scientific Conference to be held at Stony Brook University in Stony Brook, New York, USA. This will be their 16th Scientific Conference! Program will include: Research presentations Innovative symposia Clinical workshops Poster sessions Suggestions on possible topics, speakers, workshops or organizations should be sent […]
Join Solve Senior Director of Research Leslie E. Phillips, PhD for a walkthrough of our new patient-centered data platform, Solve Together! In this webinar, we'll share information about joining the platform, share tips for maximizing built-in tools for participants, and answer your questions. Solve Together is fully accessible by smartphone and will allow participants to […]
Tomorrow's NINDS ME/CFS Research Roadmap webinar at 11AM ET will focus on how ME/CFS impacts the immune system, current research, knowledge gaps, and future research opportunities. Register here. A recording of the first session, focusing on the nervous system, is available here.
NIH ME/CFS Research Roadmap Webinar Series August - December 2023 This virtual webinar series is part of a larger effort to develop a Research Roadmap for ME/CFS, which will identify research priorities to move the field toward translational studies and clinical trials. Save the date for two NIH ME/CFS events in December 2023! Additional details will be […]
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