In this webinar, Solve M.E. President Oved Amitay welcomes Dr. Elizabeth Unger, chief of Chronic Viral Diseases Branch at Centers for Disease Control and Prevention, and her CDC colleagues to share updates and progress on The School-Based Active Surveillance Project (presented by Anindita Nanda Issa, MD), the Long Covid Fatiguing Illness Recovery Program (ECHO) (presented by Jennifer […]
On April 25th, 2023, FDA is hosting a virtual public meeting on Patient-Focused Drug Development (PFDD) for Long Covid. This meeting will provide FDA the opportunity to obtain initial patient and patient representative input on the aspects of Long Covid, including how Long COVID affects their daily life, the symptoms that matter most to patients, […]
During Advocacy Month 2022, we premiered a new series spotlighting the voices of several standout members of our community as they inspired us with their stories, advocated for change, and answered your questions. This series — Advocacy Cafe — became a community favorite, and we’re excited to announce that we will continue hosting more throughout […]
No advocacy experience? Join our training sessions! We’re hosting three virtual training sessions — all will cover the same material, to allow multiple opportunities to register. Join our virtual Congressional Meeting Trainings on Monday, April 3rd, Thursday, April 6th, and Tuesday, April 11, 2023. We will also have an In-Person Congressional Meeting Training on April 17th, 2023, […]
Advocacy Week 2023 will take place virtually and in person throughout the week of April 17th to April 22nd, 2023! Advocacy Week is a nationwide advocacy effort to connect people with ME/CFS, Long COVID, and associated conditions; scientists; clinicians, and caregivers to share their unique stories with Congress. Our ultimate goal is to make ME/CFS, […]
Hosting EmPOWER M.E. during Advocacy Week each year is one of our favorite ways to connect with our community after a long week of congressional meetings. This year, our Lived Experience Taskforce (LET) partners helped us choose our topic: Navigating the World with Energy Limiting Disabilities. This special event on April 21 at 10 AM […]
The US Food and Drug Administration (FDA) is hosting a virtual public meeting on Patient-Focused Drug Development for Long Covid on Tuesday, April 25th, 2023, from 10 a.m. to 4:00 p.m. ET. It will be conducted with live translation in both English and Spanish. Patient-Focused Drug Development meetings are important and infrequent opportunities for patients to provide […]
Many individuals who have had COVID-19 experience long-term symptoms that have a major impact on their lives. One of the most common symptoms is sleep disturbance. After more than six months from the time of infection, about 60% of people self-report lingering sleep difficulties, even if they had a mild course of acute COVID-19. Unrefreshing […]
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