Since the beginning of the pandemic, SARS-CoV-2 has been suspected of causing chronic fatigue syndrome (ME/CFS). A well-controlled cohort study conducted by a group of researchers from Charité - Universitätsmedizin Berlin and the Max Delbrück Center for Molecular Medicine (MDC) has now shown that in the subset of patients who suffer from fatigue and exertion […]
The RECOVER Research Review (R3) Seminar Series will host a panel discussion titled, "Understanding the Biomarkers of PASC” on Tuesday, November 8th 12:00-1:30 PM EDT featuring: Michael Peluso, MD, University of California, San Francisco Mohamed Abdel-Mohsen, PhD, The Wistar Institute David R. Walt, PhD, Harvard Medical School; Brigham and Women's Hospital Grace McComsey, MD, University […]
In his new book, The Long Haul: Solving the Puzzle of the Pandemic's Long Haulers and How They Are Changing Healthcare Forever, CNN journalist and ME/CFS patient advocate Ryan Prior writes about how chronically ill communities predicted the Long Covid crisis, and how patient voices should shape the medical system of the future. In this […]
For people living with Long Covid, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long Covid are often left with more questions than answers. The Long Covid Survival Guide is the first patient-to-patient guide […]
Solve M.E. is continuing our event series with the Global Interdependence Center with a panel on November 29 10AM PT. The sixth installment of the GIC Solve Long Covid Initiative Program Series will explore the impact and coverage of Long Covid in the media. Join us virtually with speakers, Cynthia Adinig, Long Covid Advocate and […]
Co-presented by Peter Rowe, MD (Professor of Pediatrics, Director, Johns Hopkins Children’s Center Chronic Fatigue Clinic) and Camille Broussard, MD, MPH (Assistant Professor in the Division of Adolescent and Young Adult Medicine at Johns Hopkins School of Medicine), this webinar will explore the dissonant results of epidemiologic studies that suggest Latinx and Black individuals have […]
As we approach the end of the year, we are also wrapping up a stellar, year-long webinar partnership with the Global Interdependence Center that has explored the pandemic’s long-term healthcare, policy, and economic impact, specifically the implications of Long Covid. The final installment in the series, “Long Covid Technology,” will take place on December 20. […]
Meghan O’Rourke will join us on Monday, January 23, 2023 at 12 PM PT to discuss her New York Times bestseller The Invisible Kingdom: Reimagining Chronic Illness, which is a finalist for the National Book Award in nonfiction. Meghan is recipient of numerous literary awards, including a Guggenheim Fellowship, a Radcliffe Fellowship, a Lannan Literary […]
Solve M.E. and The Biotechnology Innovation Organization (BIO) will co-host a three-hour virtual event “Long Covid: What Will It Take to Accelerate Therapeutic Progress?” on Tuesday, February 21 from 10:00 AM - 1:00 PM PT (1:00 - 4:00 PM ET). Our goal is to convene stakeholders to advance research and development to diagnose and treat […]
In this webinar, Solve M.E. President Oved Amitay welcomes Dr. Elizabeth Unger, chief of Chronic Viral Diseases Branch at Centers for Disease Control and Prevention, and her CDC colleagues to share updates and progress on The School-Based Active Surveillance Project (presented by Anindita Nanda Issa, MD), the Long Covid Fatiguing Illness Recovery Program (ECHO) (presented by Jennifer […]
On April 25th, 2023, FDA is hosting a virtual public meeting on Patient-Focused Drug Development (PFDD) for Long Covid. This meeting will provide FDA the opportunity to obtain initial patient and patient representative input on the aspects of Long Covid, including how Long COVID affects their daily life, the symptoms that matter most to patients, […]
Many individuals who have had COVID-19 experience long-term symptoms that have a major impact on their lives. One of the most common symptoms is sleep disturbance. After more than six months from the time of infection, about 60% of people self-report lingering sleep difficulties, even if they had a mild course of acute COVID-19. Unrefreshing […]
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