ME/CFS has a broad spectrum of severity, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light, sound, and movement, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many, there is a pattern of relapse and remission.
This four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals, legal experts, scientists, and care partners discussing tips for caregiving, legal perspectives on individual rights, strategies for addressing treatment challenges for medical providers, and the latest research breakthroughs impacting people with Severe ME.
While this series is focused on Severe ME, the information shared will be relevant to other severe chronic illnesses, as well as people with moderate to mild ME/CFS, Long Covid, and other infection-associated chronic conditions and illnesses (IACCIs).
Each webinar takes place from 10-11 am PT (11 am – 12 pm MT).
The second webinar in our series focuses on the multifaceted legal considerations faced by people with Severe ME and those who care for them.
A panel of legal experts will share information on the topics of guardianship, conservatorship, power of attorney, Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI), and more.
The panelists will offer practical strategies for determining which legal protections are right for you, successful application for different forms of disability benefits, and what to do if disability claims are denied.
Join Solve M.E. President and CEO Emily Taylor as she moderates a panel of attorneys with valuable insights to share with our community.
Topics and dates are:
• October 9: Caregiving
• November 13: Legal rights
• December 4: Medical care
• January 15: Research
Register for one or more of the events in the series here:
https://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw
The content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.
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