Your Story, Your Symptoms, Your Data: Discover unhide®

Living with ME/CFS, Long Covid, and related complex chronic conditions can make it difficult to explain how you’re feeling or to know whether a treatment is truly helping. Symptoms like pain, fatigue, brain fog, behavior changes, and post-exertional malaise (PEM) can fluctuate, making it especially challenging to remember and communicate what has changed between medical visits.

That’s where tracking your health over time can help.

The unhide® real-world data platform uses validated health surveys to collect detailed information about your health over time, and makes it easy to visualize a large amount of information at a glance. Using the data from unhide®, patients can better recognize patterns and trends to support conversations with healthcare providers.

In this webinar, the unhide® team will demonstrate how patients and caregivers can use this resource and its research-validated tools to track symptoms, better understand changes in symptoms and daily functioning, prepare for medical visits, and contribute valuable data that researchers can use to improve understanding and treatment. They’ll also explain what these scores can, and can’t, tell you, and how participating in unhide® can help researchers better understand complex chronic conditions.

Host Chief Scientific Officer Dr. Sadie Whittaker and panelists Dr. Sally Daganzo (Clinician, Private Practice), Deborah L. Duricka, PhD (Co-Principal Investigator), Megan L. Fitzgerald, PhD, (Scientific Director, Brain Inflammation Collaborative), Christy Jagdfeld, CPA (CEO of Brain Inflammation Collaborative), and Christina Moon (Clinical Research Associate at Brain Inflammation Collaborative) will discuss how unhide® helps patients, caregivers, and healthcare providers consistently capture, share, and learn from health data and lived experiences.