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Join the Fight for ME/CFS and Long Covid Funding!

Big news: The Senate Appropriations Committee is about to make some crucial decisions on the FY 2025 Labor-HHS-Education Appropriations bill. This includes funding that could be a game-changer for ME/CFS, Long Covid, and other infection-associated chronic conditions (IACCIs). Let’s make sure our voices are heard and our needs are met!

Here’s What We’re Fighting For:

  1. $10 Million for an Office of Infection-Associated Chronic Conditions and Illnesses (IACCIs) at NIH
  • Why We Need It: This office will streamline and coordinate research across NIH, making sure that funding is used efficiently and that we get the answers and treatments we desperately need.
  1. Increased Funding for Long COVID and ME/CFS Research
  • Why We Need It: More research means better understanding and treatments for ME/CFS and Long COVID. We share many symptoms and underlying issues – let’s push for the funds to find solutions!
  1. Enhanced Public Health Surveillance and Provider Education
  • Why We Need It: Collecting accurate data and educating healthcare providers will improve diagnosis and treatment for everyone dealing with these conditions. Better data = better care!

Why Your Voice Matters:

  • Economic Impact: Long Covid and ME/CFS have forced millions out of work and cost the economy trillions. Your advocacy can help turn this around.
  • Health Crisis: Many Long Covid patients now meet the criteria for ME/CFS. This is our moment to push for the recognition and resources we’ve needed for so long.
  • Quality of Life: This funding can lead to better treatments, more understanding, and a real improvement in the lives of those affected by these conditions.


How You Can Help:

Contact Your Senators: Tell them to support our funding requests for FY 2025.

Spread the Word: Share this post and let others know why this is so important.

Stay Informed: Follow Solve M.E. for updates and ways to get involved.

Watch online

 

Attend the Senate Markup Hearing In-Person:

Full Committee Markup of Energy and Water Development; Defense; Labor, Health, and Human Services; and Financial Services and General Government Appropriations Acts

    • Date: Thursday, August 1, 2024
    • Time: 09:30 AM ET
    • Location: Dirksen Senate Office Building 106
    • Presiding: Chair Murray

 

Help spread the word by downloading and sharing this Senate markup hearing informational flyer across your networks.

Print out these graphics to display at the hearing:

I Stand for ME/CFS Research! (Color)
I Stand for ME/CFS Research! (B/W)

If you choose to hold a sign, please keep in  mind the following etiquette:

–Standing, shouting, or chanting will likely result in removal from the hearing.

– Large signs (larger than 8.5 x 11) may be confiscated or result in your removal from the hearing.

If you own a Solve M.E. Advocacy Week t-shirt, please wear it to the meeting!

 

Together, We Can Make a Difference!

Even if you can’t attend, let’s rally together and show our strength. Your voice, your story, and your passion can drive the change we need.

Thank you for being a part of this fight!

 

Double your impact!

All gifts made by Nov. 30 will be matched up to $200k!

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