Advocacy Week is a nationwide advocacy effort to connect people with ME/CFS, Long Covid, and other infection-associated chronic conditions (IACCIs), scientists, clinicians and caregivers to share their unique stories with Congress. Our goal is to make ME/CFS, Long Covid and other IACCIs widely understood, diagnosable, and treatable.
Social media is a powerful tool to engage your elected representatives and online community. Download and share the images below to help #StopTheLongHaul.
Click the orange button below to use our Advocacy Week 2024 Remote Action Kit.
Tagline:
Infection-associated chronic illnesses and conditions are a Public Health crisis! Long Covid is just the most recent in a long history of IACCI’s. Please help over 73 million struggling Americans.
Suggested reading:
Complementing our Advocacy Week 2024 efforts, Solve has co-authored a new white paper, “A Home for Infection-Associated Chronic Conditions and Illnesses (IACCIs) at NIH.”
Co-written by Solve President and CEO Emily Taylor, accomplished journalist and filmmaker Ryan Prior, and science and policy researcher Melissa Smallwood, the white paper outlines the economic burden caused by IACCIs and the lack of appropriate NIH funding to meet the needs of those who suffer. The co-authors recommend possible policy solutions to this problem, which includes the establishment of a dedicated IACCI research entity at NIH.
Advocacy Week 2024 participants are encouraged to share the white paper when meeting with legislators to educate them on the emerging science and community efforts under the umbrella of IACCIs and how a dedicated NIH funding mechanism could make a difference.
Read our white paper in its entirety here.
Official Hashtag for Advocacy Week 2024:
#StoptheLongHaul
Tag us! Below are handles for Solve socials:
Sample Tweet:
73M+ Americans need a coordinating mechanism at @NIH dedicated to Infection-Associated Chronic Conditions & Illnesses (#IACCIs). [@TwitterHandle], please read our white paper: https://ow.ly/9tY250ReAve #StopTheLongHaul
Suggested Facebook Language:
I hope [@FacebookHandle] will hear our call for a coordinating mechanism at @NIH dedicated to Infection-Associated Chronic Conditions & Illnesses (#IACCIs). IACCIs like #LongCovid & #MECFS are a Public Health crisis impacting 73 million+ Americans. Please read our white paper: https://ow.ly/lTKz50ReAvf #StopTheLongHaul
Even if you didn’t participate in Advocacy Week congressional meetings, you can still get involved! Our Advocacy Week Remote Action Kit has everything you need to make the most of your advocacy experience.
This one-stop-advo-shop provides tools and templates to post to social media, send customized tweets, and engage with your members of Congress.
Check it out at https://p2a.co/Pwq593U
#StopTheLongHaul
The Adovacy Week 2024 Remote Action Kit includes:
A social action
An e-mail action
A phone action
Please take a moment to use the Remote Action Kit and share it across your networks with the hashtag #StopTheLongHaul!
Download and share the images below to help #StopTheLongHaul.
Your advocacy doesn’t end after Advocacy Month. Use our Advocacy Action Kit to stay involved year-round.
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