The fourth webinar in our spring series focuses on how the Solve ME/CFS Initiative is fostering the development of safe and effective therapies for ME/CFS. Please join us!
Date/Time (Live Event): Wednesday, April 17, 2013 at 1 p.m. EDT
Speakers: Suzanne Vernon, Ph.D. (Scientific Director) and Mark Stone (Director of Development), The Solve ME/CFS Initiative
Dr. Suzanne Vernon and Mark Stone described the Association’s venture philanthropy model of being a convener, connector and collaborator to move promising discoveries through the drug development process, keeping the patient as our central focus every step of the way.
- “Discovery of Effective Treatment” (CFIDS Association brochure)
- “Top 10 Reasons to Support the Solve ME/CFS Initiative ” (Research1stblog post)
- 2012 Report to Catalyst Fund Investors (CFIDS Association report)
- “Honest Brokers: How Venture Philanthropy Groups Are Changing Medical Research” (FasterCures publication)
The first three programs in our spring webinar series provide helpful background information for this topic. Recordings are archived on the Association’s SolveCFS YouTube channel:
- “Overview of the Drug Development Landscape”
(March 28, 2013, featuring Kristin Schneeman of FasterCures)
- “Finding Your Strongest Voice for Public Testimony”
(April 4, 2013, featuring Leigh Reynolds and Kim McCleary of the Solve ME/CFS Initiative )
- “What Does the Phrase ‘Safe and Effective Treatment’ Really Mean?”
(April 11, 2013, featuring Dr. Suzanne Vernon and Kim McCleary of the Solve ME/CFS Initiative )
Learn more about other webinars in the series and our special patient-focused survey. We’ll use all the responses submitted by April 17 in the analysis for the FDA meeting; the survey will stay open indefinitely to continue collecting information from as large a group of stakeholders as possible. Thank you to 1,170+ people who have started or completed the survey so far.
We look forward to your participation!
We make every effort to record our webinar programs and post the recordings on our YouTube channel for those unable to attend the live event and for later reference.
*We use the term ME/CFS to refer to conditions also known as chronic fatigue syndrome, CFS, myalgic encephalomyelitis, myalgic encephalopathy, ME and by other names.