{"id":40040,"date":"2024-03-20T18:18:09","date_gmt":"2024-03-20T18:18:09","guid":{"rendered":"https:\/\/solvecfs.org\/?p=40040"},"modified":"2024-03-20T22:57:45","modified_gmt":"2024-03-20T22:57:45","slug":"new-study-using-solve-real-world-data-rwd-examines-joint-hypermobility-in-people-with-me-cfs","status":"publish","type":"post","link":"https:\/\/solvecfs.org\/new-study-using-solve-real-world-data-rwd-examines-joint-hypermobility-in-people-with-me-cfs\/","title":{"rendered":"New Study Using Solve Real-World Data (RWD) Examines Joint Hypermobility in People with ME\/CFS"},"content":{"rendered":"

A new study published in the Autonomic Disorders section of <\/span>Frontiers in Neurology<\/span><\/i> uses data collected by Solve to identify a possible ME\/CFS disease subgroup.<\/span><\/p>\n

\u201cDo People with ME\/CFS and Joint Hypermobility Represent a Disease Subgroup? An Analysis Using Registry Data<\/a>,\u201d by Kathleen Mudie, Allison Ramiller, Sadie Whittaker, Leslie E. Phillips is the first<\/span> publication using data from Solve’s You+ME registry.<\/span><\/p>\n

In this study of 815 individuals with ME\/CFS, Solve researchers explored the connection between ME\/CFS and joint hypermobility using Solve’s You+ME participant data platform, where patients report their health experiences. They found that some people with ME\/CFS also have joint hypermobility, a condition in which the joints easily move beyond the normal range expected for a particular joint. In multiple domains, those with joint hypermobility experienced more severe ME\/CFS symptoms, including worse physical function and more pain, highlighting a potential subgroup within ME\/CFS patients that may benefit from special attention.\u00a0<\/span><\/p>\n

The findings from this study are crucial for several reasons:<\/span><\/p>\n

Personalized Care:<\/b>
\n<\/b>Understanding that joint hypermobility may be correlated with the severity of ME\/CFS means doctors might start looking for this condition more carefully, offering more personalized and effective treatment plans.<\/span><\/p>\n

Improved Diagnosis:<\/b>
\n<\/b>This research points to the need for comprehensive assessments for ME\/CFS patients, potentially leading to quicker and more accurate diagnoses for those with joint hypermobility.<\/span><\/p>\n

Future Treatments:<\/b>
\n<\/b>By identifying subgroups within ME\/CFS patients, researchers can target these groups in future studies, potentially leading to new, more precise, and effective treatments.<\/span>
\n<\/span><\/p>\n


\n<\/span>Interestingly, the COVID Symptom Study Biobank in the UK <\/span>recently found<\/span><\/a> that individuals with hypermobile joints are 30% more likely to experience a prolonged recovery from COVID-19, highlighting an additional association of joint hypermobility with infection-associated chronic conditions and illnesses, such as Long Covid.\u00a0<\/span><\/p>\n

\u00a0<\/span><\/p>\n

Transforming Your Data Into Clinical Breakthroughs with Solve Together<\/b>
\n<\/b>
\n<\/b>Your data is a unique and powerful tool that allows researchers to uncover subtle patterns and connections, offering hope for better understanding, diagnosing, and treating conditions like ME\/CFS, Long Covid, and other infection-associated chronic conditions and illnesses.<\/span><\/p>\n

The You+ME platform has been upgraded to become the Solve Together Real-World Data (RWD) platform. Solve Together is not just a traditional registry, but a dynamic, patient-centered RWD platform that integrates multiple data sources designed to speed up the discovery of treatments and cures. We make data on infection-associated chronic conditions and illnesses accessible to researchers, expediting the identification of diagnostic and therapeutic targets. Patients can create reports for their doctors, sync health-tracking wearables, and discern their distinct symptoms and health trends. Solve Together will also enable Solve to connect researchers with individuals interested in participating in clinical research studies.<\/span><\/p>\n

Click <\/span>here<\/span><\/a> to learn more about and join Solve Together so you can contribute the RWD about yourself to help Solve drive future breakthroughs in post-infectious disease research.<\/span><\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

A new study published in the Autonomic Disorders section of Frontiers in Neurology uses data collected by Solve to identify a possible ME\/CFS disease subgroup. \u201cDo People with ME\/CFS and […]<\/p>\n","protected":false},"author":10,"featured_media":40050,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"sfsi_plus_gutenberg_text_before_share":"","sfsi_plus_gutenberg_show_text_before_share":"","sfsi_plus_gutenberg_icon_type":"","sfsi_plus_gutenberg_icon_alignemt":"","sfsi_plus_gutenburg_max_per_row":"","footnotes":""},"categories":[41,37,38,1085,40],"tags":[429,432,224],"yoast_head":"\nNew Study Using Solve Real-World Data (RWD) Examines Joint Hypermobility in People with ME\/CFS - Solve ME\/CFS Initiative<\/title>\n<meta name=\"description\" content=\"A new study published in Frontiers in Neurology, section Autonomic Disorders uses data collected by Solve to identify a possible ME\/CFS disease subgroup.\u201cDo People with ME\/CFS and Joint Hypermobility Represent a Disease Subgroup? 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