{"id":38552,"date":"2023-05-24T22:03:35","date_gmt":"2023-05-24T22:03:35","guid":{"rendered":"https:\/\/solvecfs.org\/?p=38552"},"modified":"2023-06-14T21:37:23","modified_gmt":"2023-06-14T21:37:23","slug":"long-covid-alliance-announces-project-to-advance-partnerships-to-address-infection-associated-chronic-conditions","status":"publish","type":"post","link":"https:\/\/solvecfs.org\/long-covid-alliance-announces-project-to-advance-partnerships-to-address-infection-associated-chronic-conditions\/","title":{"rendered":"Long Covid Alliance, Solve M.E. Secure $77k CDC Foundation Grant to Form New Patient Advocacy Coalition"},"content":{"rendered":"

Today, <\/span>Long COVID Alliance<\/span><\/a> proudly announced it will begin establishing a new Infection Associated Chronic Conditions Patient Advocacy Coalition (IACC PAC)\u00a0 using $77,000 in grant funding through the <\/span>CDC Foundation\u2019s Infection-Associated Chronic Conditions Understanding and Engagement (ICUE) program<\/span><\/a>. The project will bring together diverse disease groups and patient organizations to promote collaboration to address those challenges faced by people living with Long COVID and associated conditions, myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS), postural orthostatic tachycardia syndrome (POTS) and other forms of dysautonomia, mast-cell activation syndrome (MCAS), Ehlers-Danlos syndrome (EDS), Lyme disease and other post-viral or infection-associated conditions.<\/span><\/p>\n

Through the ICUE Program, the <\/span>CDC Foundation<\/span><\/a> is providing more than $150,000 to two organizations, Long COVID Alliance through <\/span>Solve ME\/CFS Initiative (Solve M.E.)<\/span><\/a> and social impact firm <\/span>Commonality, Inc.<\/span><\/a>, to help patients with Long COVID and infection-associated chronic conditions. The effort seeks to strengthen cross-sector partnerships among disease groups, to identify common objectives and actionable steps for this community.\u00a0<\/span><\/p>\n

Solve co-founded the Long COVID Alliance to use the collective influence and resources of over hundreds of organizations, companies, and individuals to transform our understanding of \u201clong haul\u201d diseases, including ME\/CFS, Long Covid, and other post-infectious chronic diseases. The Long COVID Alliance is a global network of patient-advocates, clinicians, disease experts, and drug developers leveraging their collective knowledge and resources to educate policy makers, accelerate research, and transform the broader understanding of post-viral illness.<\/p>\n

\u201cIt has become clear that collaboration among various stakeholders \u2013 patient organizations, healthcare practitioners, researchers, and government agencies \u2013 is necessary to improve care and outcomes across these broader patient populations,\u201d said Oved Amitay, President and CEO of Solve M.E. \u201cWe are very excited that the CDC Foundation has selected the Long COVID Alliance to lay the foundation for a broader coalition of organizations to make progress in addressing the needs of the millions living with chronic infection-associated diseases.\u201d<\/span><\/p>\n

Read the full press release here<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

Today, Long COVID Alliance proudly announced it will begin establishing a new Infection Associated Chronic Conditions Patient Advocacy Coalition (IACC PAC)\u00a0 using $77,000 in grant funding through the CDC Foundation\u2019s […]<\/p>\n","protected":false},"author":10,"featured_media":26593,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"sfsi_plus_gutenberg_text_before_share":"","sfsi_plus_gutenberg_show_text_before_share":"","sfsi_plus_gutenberg_icon_type":"","sfsi_plus_gutenberg_icon_alignemt":"","sfsi_plus_gutenburg_max_per_row":"","footnotes":""},"categories":[492,245,176,34,38],"tags":[1029,882,1028,1031,1027,1030,244],"yoast_head":"\nLong Covid Alliance, Solve M.E. 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