{"id":38071,"date":"2023-03-23T18:31:00","date_gmt":"2023-03-23T18:31:00","guid":{"rendered":"https:\/\/solvecfs.org\/?p=38071"},"modified":"2023-03-23T19:09:42","modified_gmt":"2023-03-23T19:09:42","slug":"ask-congress-to-care","status":"publish","type":"post","link":"https:\/\/solvecfs.org\/ask-congress-to-care\/","title":{"rendered":"Ask Congress to CARE!"},"content":{"rendered":"<p><span id=\"x_docs-internal-guid-f6deb98d-7fff-24bf-d35b-c3b8207d82e9\">We\u2019re excited to announce our House and Senate asks for Solve M.E.\u2019s Advocacy Week 2023!<\/span><\/p>\n<p><span id=\"x_docs-internal-guid-f6deb98d-7fff-24bf-d35b-c3b8207d82e9\">The two pieces of legislation are companion pieces to one another \u2014 we will be advocating for the recently re-introduced CARE for Long Covid Act (<a href=\"https:\/\/www.kaine.senate.gov\/press-releases\/kaine-markey-and-duckworth-reintroduce-bill-to-help-millions-of-americans-living-with-long-covid\" target=\"_blank\" rel=\"noopener\">S 801<\/a>) in the Senate and <a href=\"http:\/\/getinvolved.solvecfs.org\/site\/R?i=86lwjV9tnMftj_Dr1m5OCFV1HWcvvpVW8wCWLAPGzFtP9Xsd4X3vQw\" target=\"_blank\" rel=\"noopener noreferrer\" data-auth=\"NotApplicable\" data-safelink=\"true\" data-linkindex=\"2\">HR 1616<\/a> in the House! We\u2019ll be advocating for this legislation in both chambers of Congress.\u00a0<\/span><\/p>\n<p>We are thrilled that this will be a bipartisan House effort with both Congressmen Don Beyer (D-VA) and Jack Bergman (R-MN) co-sponsoring. Senators Tim Kaine (D-VA), Ed Markey (D-MA), and Tammy Duckworth (D-IL) reintroduced the legislation on the Senate side. This group of legislators has demonstrated they are champions of the chronic illness community.<\/p>\n<p><strong>The CARE Act will increase research and expand resources for those struggling with Long Covid and related conditions such as ME\/CFS and other infection-associated chronic illnesses by<\/strong>:<\/p>\n<ul>\n<li><strong>Accelerating Long Covid research<\/strong> by authorizing the Secretary of the Department of Health and Human Services (HHS), in coordination with the Patient-Centered Outcomes Research Institute (PCORI), to centralize and synthesize robust data-sets regarding patient experiences with Long Covid and related conditions for future research;<\/li>\n<li><strong>Improving understanding of Long Covid treatment efficacy and disparities<\/strong> by authorizing HHS to study the health care system\u2019s response to Long Covid and provide recommendations for how to improve that response;<\/li>\n<li><strong>Educating Long Covid patients and medical providers <\/strong>through efforts at the CDC to develop and disseminate information on common symptoms and treatment for Long Covid and related conditions;<\/li>\n<li><strong>Facilitating interagency coordination to educate the public, <\/strong>including employers and schools, on the impact of Long Covid and the rights associated with employment, disability status, and education for individuals with Long Covid; and<\/li>\n<li><strong>Developing partnerships<\/strong> between community-based organizations, social service providers, and legal assistance providers to help individuals with Long Covid access needed services.<\/li>\n<\/ul>\n<p>By connecting with and educating your legislators about the issues most vital to our community, you\u2019re helping to lay the foundation for a better future for people with ME\/CFS, Long Covid, and other infection-associated chronic illnesses.<\/p>\n<p>Visit <a href=\"https:\/\/urldefense.proofpoint.com\/v2\/url?u=http-3A__StopTheLongHaul.org&amp;d=DwQFaQ&amp;c=euGZstcaTDllvimEN8b7jXrwqOf-v5A_CdpgnVfiiMM&amp;r=vjz90FvumAW61tEWd-roi_gZ0_kDJAf6Mf6pby3NS8g&amp;m=8iUBCo9pGpNLkEK6XfrOx8l_yOPlrwQ_kmNiG3fzlso&amp;s=GRVOZpHxUo6OZn3H17Z27n6eMvEt8VYSmqiJjZbMDi4&amp;e=\" target=\"_blank\" rel=\"noopener noreferrer\" data-auth=\"NotApplicable\" data-safelink=\"true\" data-linkindex=\"4\">StopTheLongHaul.org<\/a> to learn more about the full calendar of Advocacy Week events. There are actions for every energy level and ability to join, from social media posts to trainings for getting involved in advocacy.<\/p>\n<p><strong>Register by March 26, 2023<\/strong>, to participate in meetings. Senate advocacy will take place in person in Washington DC, while House advocacy will take place virtually.<\/p>\n<p>Stay tuned for more information on our Advocacy Week asks!<\/p>\n","protected":false},"excerpt":{"rendered":"<p>We\u2019re excited to announce our House and Senate asks for Solve M.E.\u2019s Advocacy Week 2023! The two pieces of legislation are companion pieces to one another \u2014 we will be [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":30856,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"sfsi_plus_gutenberg_text_before_share":"","sfsi_plus_gutenberg_show_text_before_share":"","sfsi_plus_gutenberg_icon_type":"","sfsi_plus_gutenberg_icon_alignemt":"","sfsi_plus_gutenburg_max_per_row":"","footnotes":""},"categories":[492,51],"tags":[620,116,969,971,973,970,224,88,968,972,956],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Ask Congress to CARE! - Solve ME\/CFS Initiative<\/title>\n<meta name=\"description\" content=\"The Solve ME\/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS), Long Covid and other post-infection diseases.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/solvecfs.org\/ask-congress-to-care\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Ask Congress to CARE! - Solve ME\/CFS Initiative\" \/>\n<meta property=\"og:description\" content=\"The Solve ME\/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS), Long Covid and other post-infection diseases.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/solvecfs.org\/ask-congress-to-care\/\" \/>\n<meta property=\"og:site_name\" content=\"Solve ME\/CFS Initiative\" \/>\n<meta property=\"article:published_time\" content=\"2023-03-23T18:31:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-03-23T19:09:42+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/11\/10.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1080\" \/>\n\t<meta property=\"og:image:height\" content=\"1080\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Ani Vahradyan\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Ani Vahradyan\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/solvecfs.org\/ask-congress-to-care\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/solvecfs.org\/ask-congress-to-care\/\"},\"author\":{\"name\":\"Ani Vahradyan\",\"@id\":\"https:\/\/solvecfs.org\/#\/schema\/person\/11b72bcd833baf4c90428472dedfa78b\"},\"headline\":\"Ask Congress to CARE!\",\"datePublished\":\"2023-03-23T18:31:00+00:00\",\"dateModified\":\"2023-03-23T19:09:42+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/solvecfs.org\/ask-congress-to-care\/\"},\"wordCount\":414,\"publisher\":{\"@id\":\"https:\/\/solvecfs.org\/#organization\"},\"image\":{\"@id\":\"https:\/\/solvecfs.org\/ask-congress-to-care\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/11\/10.png\",\"keywords\":[\"CARE for Long Covid Act\",\"Congress\",\"Don Beyer\",\"Ed Markey\",\"infection-associated chronic conditions\",\"Jack Bergman\",\"Long COVID\",\"ME\/CFS\",\"Solve M.E. 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