{"id":37436,"date":"2023-01-10T23:15:39","date_gmt":"2023-01-10T23:15:39","guid":{"rendered":"https:\/\/solvecfs.org\/?p=37436"},"modified":"2023-01-11T00:28:14","modified_gmt":"2023-01-11T00:28:14","slug":"thank-you-your-support-fuels-big-plans","status":"publish","type":"post","link":"https:\/\/solvecfs.org\/thank-you-your-support-fuels-big-plans\/","title":{"rendered":"Thank you! Your support fuels big plans!"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"37436\" class=\"elementor elementor-37436\">\n\t\t\t\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-3506c365 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"3506c365\" data-element_type=\"section\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-69684844\" data-id=\"69684844\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-177896cd elementor-widget elementor-widget-text-editor\" data-id=\"177896cd\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p class=\"p1\">What a way to close out 2022! We are so grateful for your generosity throughout the year, and especially during our recent year-end campaign. Thank you for helping us surpass our <b>million dollar<\/b> match total and to serve the millions of Americans afflicted with ME\/CFS, Long Covid, and other post-infection diseases!<\/p>\n<p class=\"p1\"><b>Together, we <i>are transforming <\/i>research into reality.<\/b><\/p>\n<p class=\"p1\">Your donations, alongside contributions from our incredibly committed board of directors, support our <i>relentless<\/i> efforts to discover treatments for patients as quickly as possible. In the new year, your generosity will allow us to grow and transform the following initiatives:<span class=\"Apple-converted-space\">\u00a0<\/span><\/p>\n\n<ul class=\"ul1\">\n \t<li class=\"li1\"><b>Research<\/b><b><\/b>\n<ul class=\"ul1\">\n \t<li class=\"li1\"><b><\/b>The <a href=\"https:\/\/solvecfs.org\/research-and-registry\/ramsay-research-grants\/\"><span class=\"s1\">Ramsay Research Grant Program<\/span><\/a> is a critical funding mechanism for leading-edge scientists and researchers who are either new to our field or testing new ideas- before they are eligible for other awards, such as NIH grants. Because we are committed to finding solutions, our Ramsay program will begin to fund more projects more frequently. This would not be possible without your generous support.<\/li>\n \t<li class=\"li1\">\n<\/p>\nOur ambitious <a href=\"https:\/\/youandmeregistry.com\/\" target=\"_blank\" rel=\"noopener\"><span class=\"s1\">You + ME Registry<\/span><\/a> \u2014 an ME\/CFS and Long Covid database that could help accelerate the search for a cure \u2014 has already reached nearly 7,000 participants! This year, we\u2019re excited to begin transforming the Registry into a more seamless platform for patients and researchers that could be used to recruit for clinical studies. Among the improvements will be the ability to integrate registry data with other information like smart watches and electronic medical records.<\/li>\n<\/ul>\n<\/li>\n<\/p>\n \t<li class=\"li1\"><b>Advocacy<\/b>\n<ul class=\"ul1\">\n \t<li class=\"li1\"><b><\/b>Building on our commitment to bring the crucial voices from our community into the leadership and decision-making at Solve M.E., we recently launched our new <a href=\"https:\/\/solvecfs.org\/about-us\/lived-experience-taskforce-let\/\"><span class=\"s1\">Lived Experienced Task Force (LET)<\/span><\/a>! LET will serve as leadership partners, be based on the principles of meaningful community engagement where equity is our goal and expectation. LET partners \u2014 many from historically under-engaged communities \u2014 will improve our ability to deliver responsive services, programming, training and technical assistance to organizations and other partners affected by ME\/CFS, Long Covid and other associated conditions.<\/li><\/p>\n \t<li class=\"li1\">&nbsp;This commitment to centering the voices of our community members also extends to our <a href=\"https:\/\/solvecfs.org\/solve-awarded-nearly-250k-from-chan-zuckerberg-initiative-to-fund-bold-new-program\/\"><span class=\"s1\">Long Covid Patient Leader Advancement Network (LC-PLAN)<\/span><\/a>, a groundbreaking program designed to bridge the gap between Long Covid research and patient needs.<span class=\"Apple-converted-space\">\u00a0 <\/span>Supported by a grant from Chan Zuckerberg Initiative (CZI), Solve will train a network of patient leaders, scientists and other stakeholders with diverse backgrounds to enhance patient engagement in Long Covid research \u2014 providing urgently-needed guidance on achieving patient-centered research in the Long Covid field, as well as helping to empower communities in other related fields.<span class=\"Apple-converted-space\">\u00a0<\/span><\/li>\n<\/ul>\n<\/li>\n<\/ul>\n&nbsp;\n<p class=\"p1\">Your support makes this work possible. We&#8217;re working tirelessly to leverage your investment into bigger gains in cures and treatment. With your help, we are helping those struggling with ME\/CFS, Long Covid, and other post-infection diseases find solutions.<\/p>\n<p class=\"p1\">On behalf of everyone in our community \u2014 patients, caregivers, researchers, advocates, and staff \u2014 thank you for your generous support.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>What a way to close out 2022! We are so grateful for your generosity throughout the year, and especially during our recent year-end campaign. Thank you for helping us surpass [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":37437,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"sfsi_plus_gutenberg_text_before_share":"","sfsi_plus_gutenberg_show_text_before_share":"","sfsi_plus_gutenberg_icon_type":"","sfsi_plus_gutenberg_icon_alignemt":"","sfsi_plus_gutenburg_max_per_row":"","footnotes":""},"categories":[492,36,38,40],"tags":[877,907,906,876,905,32,181,829,511],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Thank you! Your support fuels big plans! - Solve ME\/CFS Initiative<\/title>\n<meta name=\"description\" content=\"What a way to close out 2022! We are so grateful for your generosity. 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