{"id":17790,"date":"2020-04-14T09:38:18","date_gmt":"2020-04-14T16:38:18","guid":{"rendered":"https:\/\/solvecfs.org\/?p=17790"},"modified":"2021-12-16T04:47:28","modified_gmt":"2021-12-16T04:47:28","slug":"leveraging-the-you-m-e-registry-to-study-covid-19","status":"publish","type":"post","link":"https:\/\/solvecfs.org\/leveraging-the-you-m-e-registry-to-study-covid-19\/","title":{"rendered":"Leveraging the You + M.E. Registry to Study COVID-19"},"content":{"rendered":"

While COVID-19 has changed where we work, it has not stopped how hard we work on behalf of the ME\/CFS community. Following several months of development, user testing and partnership with the community, we are fast approaching the launch of the You + M.E. Registry<\/a>!<\/p>\n

We’ve received several inquiries and thoughts regarding approaches to track both the impact of COVID-19 on people with ME\/CFS and the development of ME\/CFS-like symptoms following\u00a0 COVID-19 exposure. We believe the You + M.E. Registry is well-suited to be leveraged in this effort. Here\u2019s what we\u2019re planning:<\/p>\n

1.\u00a0We\u2019ve integrated a COVID-19 questionnaire in the You + M.E. survey dashboard so that we can track the impact of COVID-19 on the health of people with pre-existing ME\/CFS<\/p>\n

\"\"<\/a><\/p>\n

2. We\u2019ve initiated partnerships with established COVID-19 registries and apps to include questions that ask participants whether they have developed post-viral ME\/CFS-like symptoms. If they answer yes, they will be referred to You + M.E. so they can provide more comprehensive information.<\/p>\n

We believe the combination of these two actions will enhance our collective understanding of the short and long-term impacts of COVID-19.<\/p>\n

You can learn more at You + M.E. Registry<\/a> and stay tuned for our official launch later this month!<\/p>\n","protected":false},"excerpt":{"rendered":"

While COVID-19 has changed where we work, it has not stopped how hard we work on behalf of the ME\/CFS community. Following several months of development, user testing and partnership […]<\/p>\n","protected":false},"author":1,"featured_media":25551,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"sfsi_plus_gutenberg_text_before_share":"","sfsi_plus_gutenberg_show_text_before_share":"","sfsi_plus_gutenberg_icon_type":"","sfsi_plus_gutenberg_icon_alignemt":"","sfsi_plus_gutenburg_max_per_row":"","footnotes":""},"categories":[41,34,37,40],"tags":[156,153,157,91,158],"yoast_head":"\nLeveraging the You + M.E. 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