{"id":33954,"date":"2022-03-22T20:21:38","date_gmt":"2022-03-22T20:21:38","guid":{"rendered":"https:\/\/solvecfs.org\/?page_id=33954"},"modified":"2023-02-01T23:52:03","modified_gmt":"2023-02-01T23:52:03","slug":"long-haul-voices","status":"publish","type":"page","link":"https:\/\/solvecfs.org\/me-cfs-long-covid\/long-haul-voices\/","title":{"rendered":"Long Haul Voices"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"33954\" class=\"elementor elementor-33954\">\n\t\t\t\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-d193f41 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"d193f41\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-613e4dc\" data-id=\"613e4dc\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-d96076d elementor-widget elementor-widget-ha-breadcrumbs happy-addon ha-breadcrumbs happy-addon-pro\" data-id=\"d96076d\" data-element_type=\"widget\" data-widget_type=\"ha-breadcrumbs.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<ul class=\"ha-breadcrumbs\"><li class=\"ha-breadcrumbs-item ha-breadcrumbs-start\"><a href=\"https:\/\/solvecfs.org\/\" rel=\"home\"><span class=\"ha-breadcrumbs-text\">Home<\/span><\/a><\/li><\/ul>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-bd2df29 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"bd2df29\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-aff3ea6 animated-fast\" data-id=\"aff3ea6\" data-element_type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;none&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-d197098 elementor-widget elementor-widget-heading\" data-id=\"d197098\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Long Haul Voices: Living with Long Covid and ME\/CFS<\/h1>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c2b41d7 elementor-widget elementor-widget-image\" data-id=\"c2b41d7\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/solvecfs.org\/wp-content\/uploads\/elementor\/thumbs\/LHV_HORZ-1-ppn3bfmad72kbwpxg5jgnf2rwf4c7zsojbhh0mb00q.png\" title=\"Long Haul Voices Updated Logo\" alt=\"Long Haul Voices Updated Logo\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9afb63c elementor-widget elementor-widget-text-editor\" data-id=\"9afb63c\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Long Haul Voices is a mini-series created in partnership with <span style=\"color: var( --e-global-color-016a029 ); background-color: var( --e-global-color-96f9c92 ); font-family: var( --e-global-typography-6c6163f-font-family ), Sans-serif; font-size: var( --e-global-typography-6c6163f-font-size ); font-style: var( --e-global-typography-6c6163f-font-style ); font-weight: var( --e-global-typography-6c6163f-font-weight ); letter-spacing: var( --e-global-typography-6c6163f-letter-spacing ); word-spacing: var( --e-global-typography-6c6163f-word-spacing );\"><a href=\"https:\/\/unfixedmedia.com\/\" target=\"_blank\" rel=\"noopener\">Unfixed Media Productions <\/a><\/span>that amplifies the experiences of individuals with Long Covid and ME\/CFS, the experts devoted to improving their care, and the challenges surrounding these largely invisible, poorly-understood diseases that affect a rapidly growing population.<\/p><p>On May 5, the first episode of the three-part series premiered exclusively on the <a href=\"https:\/\/www.thedisordercollection.com\/\" target=\"_blank\" rel=\"noopener\">Disorder Channel<\/a> (available through Fire TV and Roku), broadcasting the stories of our community to a whole new audience via the rare disease community.<\/p><p>The first episode premiered worldwide on May 12 in honor of World ME Day.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-8dfcb5c elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"8dfcb5c\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-d5a5595\" data-id=\"d5a5595\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e8fb7b6 elementor-widget elementor-widget-heading\" data-id=\"e8fb7b6\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Watch the Complete Series<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2a7de02 elementor-widget elementor-widget-text-editor\" data-id=\"2a7de02\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p class=\"\">Executive Producer: <a tabindex=\"0\" href=\"https:\/\/solvecfs.org\/\">Solve M.E.<\/a><\/p><p class=\"\">Producers: <a tabindex=\"0\" href=\"https:\/\/solvecfs.org\/\">Solve M.E.<\/a>, <a tabindex=\"0\" href=\"https:\/\/unfixedmedia.com\/\">Unfixed Media<\/a><\/p><p class=\"\">Director: <a tabindex=\"0\" href=\"https:\/\/unfixedmedia.com\/the-team-1\">Kimberly Warner<\/a><\/p><p class=\"\">Editor: <a tabindex=\"0\" href=\"https:\/\/www.sanctumfilms.com\/\">Michael Wolcott<\/a><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-ab67e0d elementor-section-content-top elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"ab67e0d\" data-element_type=\"section\" data-settings=\"{&quot;_ha_eqh_enable&quot;:&quot;yes&quot;,&quot;_ha_eqh_widget&quot;:[&quot;ha-member&quot;],&quot;_ha_eqh_to&quot;:&quot;widget&quot;,&quot;_ha_eqh_disable_on_tablet&quot;:&quot;no&quot;,&quot;_ha_eqh_disable_on_mobile&quot;:&quot;yes&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-c359ac8\" data-id=\"c359ac8\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1c4b207 elementor-widget elementor-widget-video\" data-id=\"1c4b207\" data-element_type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/youtu.be\\\/U6uzB-V9mEQ&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0136ac9 elementor-widget elementor-widget-heading\" data-id=\"0136ac9\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">LONG HAUL PATIENTS<\/h4>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-05b0711 elementor-widget elementor-widget-text-editor\" data-id=\"05b0711\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Chronic diseases can profoundly impact people&#8217;s lives and identities. Individuals with ME\/CFS and Long Covid answer key questions: <br \/>How do you create a \u201cnew normal&#8221; when goals, dreams, relationships and careers are forced to change? What changes about life and relationships with chronic disease? How does your identity and your disease interact?<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-48efde9\" data-id=\"48efde9\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2c46b99 elementor-widget elementor-widget-video\" data-id=\"2c46b99\" data-element_type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/youtu.be\\\/832XrnNH3aI&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0c95007 elementor-widget elementor-widget-heading\" data-id=\"0c95007\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">LONG HAUL RESEARCH & CARE<\/h4>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ca45c37 elementor-widget elementor-widget-text-editor\" data-id=\"ca45c37\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>There are important relationships among patients, their medical teams, and the researchers trying to understand their disease. Sometimes these relationships are built on respect and care, and sometimes misunderstanding and dismissal. How these partnerships play out has an enormous impact on patient outcomes.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-c8f3301\" data-id=\"c8f3301\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-d128c23 elementor-widget elementor-widget-video\" data-id=\"d128c23\" data-element_type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/youtu.be\\\/bhasO-Gq6S8&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-829953d elementor-widget elementor-widget-heading\" data-id=\"829953d\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">LONG HAUL ADVOCATES<\/h4>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9be13d7 elementor-widget elementor-widget-text-editor\" data-id=\"9be13d7\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>In the chronic disease community, there are two types of advocacy: self advocacy and systems advocacy. Prominent community advocates help us understand how patients, scientists, clinicians, and caregivers can become empowered to become advocates who raise their voices in the halls of power.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-6598a2f elementor-widget elementor-widget-button\" data-id=\"6598a2f\" data-element_type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t<a href=\"https:\/\/www.youtube.com\/solveme\" target=\"_blank\" class=\"elementor-button-link elementor-button elementor-size-sm\" role=\"button\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t<span class=\"elementor-button-icon elementor-align-icon-right\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-chevron-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t<span class=\"elementor-button-text\">visit our youtube channel for more original content<\/span>\n\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-f3833e2 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"f3833e2\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-186f452\" data-id=\"186f452\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c15639e elementor-widget elementor-widget-text-editor\" data-id=\"c15639e\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<h2>Meet Our Long Haul Voices Cast<\/h2>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-08d4fab elementor-section-content-top elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"08d4fab\" data-element_type=\"section\" data-settings=\"{&quot;_ha_eqh_enable&quot;:&quot;yes&quot;,&quot;_ha_eqh_widget&quot;:[&quot;ha-member&quot;],&quot;_ha_eqh_to&quot;:&quot;widget&quot;,&quot;_ha_eqh_disable_on_mobile&quot;:&quot;yes&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-25 elementor-inner-column elementor-element elementor-element-773e986\" data-id=\"773e986\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2892d0d flex-card elementor-widget elementor-widget-ha-member happy-addon ha-member\" data-id=\"2892d0d\" data-element_type=\"widget\" data-widget_type=\"ha-member.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\n\t\t\t\t\t<figure class=\"ha-member-figure\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"423\" height=\"424\" src=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/SarahRamey1x1.jpeg\" class=\"elementor-animation-disable-animation attachment-large size-large wp-image-33961\" alt=\"\" srcset=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/SarahRamey1x1.jpeg 423w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/SarahRamey1x1-300x300.jpeg 300w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/SarahRamey1x1-150x150.jpeg 150w\" sizes=\"(max-width: 423px) 100vw, 423px\" \/>\t\t\t<\/figure>\n\t\t\n\t\t<div class=\"ha-member-body\">\n\t\t\t<h4 class=\"ha-member-name\">Sarah Ramey - Author\/Musician (ME\/CFS, CRPS, POTS)<\/h4>\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b530d5b flex-card elementor-widget elementor-widget-ha-member happy-addon ha-member\" data-id=\"b530d5b\" data-element_type=\"widget\" data-widget_type=\"ha-member.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\n\t\t\t\t\t<figure class=\"ha-member-figure\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"500\" height=\"499\" src=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/anthinylkomaroff_1x1.jpeg\" class=\"elementor-animation-disable-animation attachment-large size-large wp-image-33965\" alt=\"\" srcset=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/anthinylkomaroff_1x1.jpeg 500w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/anthinylkomaroff_1x1-300x300.jpeg 300w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/anthinylkomaroff_1x1-150x150.jpeg 150w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/>\t\t\t<\/figure>\n\t\t\n\t\t<div class=\"ha-member-body\">\n\t\t\t<h4 class=\"ha-member-name\">Dr. Anthony Komaroff - Professor of Medicine Harvard Medical School<\/h4>\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-25 elementor-inner-column elementor-element elementor-element-3415e2d\" data-id=\"3415e2d\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2d91d6a flex-card elementor-widget elementor-widget-ha-member happy-addon ha-member\" data-id=\"2d91d6a\" data-element_type=\"widget\" data-widget_type=\"ha-member.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\n\t\t\t\t\t<figure class=\"ha-member-figure\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"500\" height=\"500\" src=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Bilal_Qizibash1x1.jpeg\" class=\"elementor-animation-disable-animation attachment-large size-large wp-image-33962\" alt=\"\" srcset=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Bilal_Qizibash1x1.jpeg 500w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Bilal_Qizibash1x1-300x300.jpeg 300w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Bilal_Qizibash1x1-150x150.jpeg 150w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/>\t\t\t<\/figure>\n\t\t\n\t\t<div class=\"ha-member-body\">\n\t\t\t<h4 class=\"ha-member-name\">Bilal Qizibash - CEO (Long Covid, Autism)<\/h4>\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d3c1a39 flex-card elementor-widget elementor-widget-ha-member happy-addon ha-member\" data-id=\"d3c1a39\" data-element_type=\"widget\" data-widget_type=\"ha-member.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\n\t\t\t\t\t<figure class=\"ha-member-figure\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"500\" height=\"500\" src=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Lili_Lim_1x1.jpeg\" class=\"elementor-animation-disable-animation attachment-large size-large wp-image-33966\" alt=\"\" srcset=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Lili_Lim_1x1.jpeg 500w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Lili_Lim_1x1-300x300.jpeg 300w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Lili_Lim_1x1-150x150.jpeg 150w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/>\t\t\t<\/figure>\n\t\t\n\t\t<div class=\"ha-member-body\">\n\t\t\t<h4 class=\"ha-member-name\">Lili Lim  - Actor, Comedian (ME\/CFS)<\/h4>\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6410ffe flex-card elementor-widget elementor-widget-ha-member happy-addon ha-member\" data-id=\"6410ffe\" data-element_type=\"widget\" data-widget_type=\"ha-member.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\n\t\t\t\t\t<figure class=\"ha-member-figure\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"500\" height=\"499\" src=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/PaulBurnside1x1.jpeg\" class=\"elementor-animation-disable-animation attachment-large size-large wp-image-33969\" alt=\"\" srcset=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/PaulBurnside1x1.jpeg 500w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/PaulBurnside1x1-300x300.jpeg 300w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/PaulBurnside1x1-150x150.jpeg 150w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/>\t\t\t<\/figure>\n\t\t\n\t\t<div class=\"ha-member-body\">\n\t\t\t<h4 class=\"ha-member-name\">Paul Burnside - Retired Banker, Organist (Long Covid, Vestibular Neuritis)<\/h4>\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-25 elementor-inner-column elementor-element elementor-element-401eb94\" data-id=\"401eb94\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7e349dd flex-card elementor-widget elementor-widget-ha-member happy-addon ha-member\" data-id=\"7e349dd\" data-element_type=\"widget\" data-widget_type=\"ha-member.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\n\t\t\t\t\t<figure class=\"ha-member-figure\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"500\" height=\"500\" src=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/CynthiaAdinig_headshot1x1.jpeg\" class=\"elementor-animation-disable-animation attachment-large size-large wp-image-33963\" alt=\"\" srcset=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/CynthiaAdinig_headshot1x1.jpeg 500w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/CynthiaAdinig_headshot1x1-300x300.jpeg 300w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/CynthiaAdinig_headshot1x1-150x150.jpeg 150w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/>\t\t\t<\/figure>\n\t\t\n\t\t<div class=\"ha-member-body\">\n\t\t\t<h4 class=\"ha-member-name\">Cynthia Adinig - Patient Advocate &amp; Equity Policy Advisor (Long Covid, POTS, MCAS)<\/h4>\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-53e31cb flex-card elementor-widget elementor-widget-ha-member happy-addon ha-member\" data-id=\"53e31cb\" data-element_type=\"widget\" data-widget_type=\"ha-member.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\n\t\t\t\t\t<figure class=\"ha-member-figure\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"500\" height=\"500\" src=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Amy_Proal_1x1.jpeg\" class=\"elementor-animation-disable-animation attachment-large size-large wp-image-33967\" alt=\"\" srcset=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Amy_Proal_1x1.jpeg 500w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Amy_Proal_1x1-300x300.jpeg 300w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Amy_Proal_1x1-150x150.jpeg 150w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/>\t\t\t<\/figure>\n\t\t\n\t\t<div class=\"ha-member-body\">\n\t\t\t<h4 class=\"ha-member-name\">Dr. Amy Proal - Microbiologist &amp; Viral Science Advisor<\/h4>\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6be6d9b flex-card elementor-widget elementor-widget-ha-member happy-addon ha-member\" data-id=\"6be6d9b\" data-element_type=\"widget\" data-widget_type=\"ha-member.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\n\t\t\t\t\t<figure class=\"ha-member-figure\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"500\" height=\"500\" src=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Emily_Headshot1x1.jpeg\" class=\"elementor-animation-disable-animation attachment-large size-large wp-image-33970\" alt=\"\" srcset=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Emily_Headshot1x1.jpeg 500w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Emily_Headshot1x1-300x300.jpeg 300w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Emily_Headshot1x1-150x150.jpeg 150w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/>\t\t\t<\/figure>\n\t\t\n\t\t<div class=\"ha-member-body\">\n\t\t\t<h4 class=\"ha-member-name\">Emily Taylor - VP Advocacy &amp; Engagement at Solve M.E.<\/h4>\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-25 elementor-inner-column elementor-element elementor-element-6540cab\" data-id=\"6540cab\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f373cfd flex-card elementor-widget elementor-widget-ha-member happy-addon ha-member\" data-id=\"f373cfd\" data-element_type=\"widget\" data-widget_type=\"ha-member.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\n\t\t\t\t\t<figure class=\"ha-member-figure\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"500\" height=\"500\" src=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/NinaMuirhead_1x1.jpeg\" class=\"elementor-animation-disable-animation attachment-large size-large wp-image-33964\" alt=\"\" srcset=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/NinaMuirhead_1x1.jpeg 500w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/NinaMuirhead_1x1-300x300.jpeg 300w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/NinaMuirhead_1x1-150x150.jpeg 150w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/>\t\t\t<\/figure>\n\t\t\n\t\t<div class=\"ha-member-body\">\n\t\t\t<h4 class=\"ha-member-name\">Dr. Nina Muirhead - Dermatology Surgeon (ME\/CFS)<\/h4>\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-689e31d flex-card elementor-widget elementor-widget-ha-member happy-addon ha-member\" data-id=\"689e31d\" data-element_type=\"widget\" data-widget_type=\"ha-member.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\n\t\t\t\t\t<figure class=\"ha-member-figure\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"500\" height=\"500\" src=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Soh-YeonLee1x1.jpeg\" class=\"elementor-animation-disable-animation attachment-large size-large wp-image-33968\" alt=\"\" srcset=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Soh-YeonLee1x1.jpeg 500w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Soh-YeonLee1x1-300x300.jpeg 300w, https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/03\/Soh-YeonLee1x1-150x150.jpeg 150w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/>\t\t\t<\/figure>\n\t\t\n\t\t<div class=\"ha-member-body\">\n\t\t\t<h4 class=\"ha-member-name\">Soh-Yeon Lee - Senior Program Analyst (ME\/CFS)<\/h4>\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-48d3337 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"48d3337\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-372d434\" data-id=\"372d434\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-27b4b4b elementor-widget elementor-widget-heading\" data-id=\"27b4b4b\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Your Data and the Stories Behind it Matter!<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ced427b elementor-widget elementor-widget-text-editor\" data-id=\"ced427b\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Join our You + ME Registry to help researchers find a cure for ME\/CFS, Long Covid, and other post-infection diseases.<\/span><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-15be23f elementor-mobile-align-left elementor-widget-mobile__width-auto elementor-align-left elementor-widget elementor-widget-button\" data-id=\"15be23f\" data-element_type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t<a href=\"https:\/\/youandmeregistry.com\/join-the-registry\/\" target=\"_blank\" class=\"elementor-button-link elementor-button elementor-size-sm elementor-animation-shrink\" role=\"button\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-text\">Join our registry<\/span>\n\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-aac5abb elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"aac5abb\" data-element_type=\"section\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-7ce2128\" data-id=\"7ce2128\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Home Long Haul Voices: Living with Long Covid and ME\/CFS Long Haul Voices is a mini-series created in partnership with Unfixed Media Productions that amplifies the experiences of individuals with [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":0,"parent":341,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"sfsi_plus_gutenberg_text_before_share":"","sfsi_plus_gutenberg_show_text_before_share":"","sfsi_plus_gutenberg_icon_type":"","sfsi_plus_gutenberg_icon_alignemt":"","sfsi_plus_gutenburg_max_per_row":"","footnotes":""},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Long Haul Voices - Solve ME\/CFS Initiative<\/title>\n<meta name=\"description\" content=\"The Solve ME\/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS), Long Covid and other post-infection diseases.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/solvecfs.org\/me-cfs-long-covid\/long-haul-voices\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Long Haul Voices - Solve ME\/CFS Initiative\" \/>\n<meta property=\"og:description\" content=\"The Solve ME\/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS), Long Covid and other post-infection diseases.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/solvecfs.org\/me-cfs-long-covid\/long-haul-voices\/\" \/>\n<meta property=\"og:site_name\" content=\"Solve ME\/CFS Initiative\" \/>\n<meta property=\"article:modified_time\" content=\"2023-02-01T23:52:03+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/solvecfs.org\/wp-content\/uploads\/elementor\/thumbs\/LHV_HORZ-1-ppn3bfmad72kbwpxg5jgnf2rwf4c7zsojbhh0mb010.png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/solvecfs.org\/me-cfs-long-covid\/long-haul-voices\/\",\"url\":\"https:\/\/solvecfs.org\/me-cfs-long-covid\/long-haul-voices\/\",\"name\":\"Long Haul Voices - 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