{"id":25751,"date":"2021-08-24T17:56:27","date_gmt":"2021-08-24T17:56:27","guid":{"rendered":"https:\/\/solvecfs.org\/?page_id=25751"},"modified":"2024-01-04T23:45:36","modified_gmt":"2024-01-04T23:45:36","slug":"patient-and-caregiver-resources","status":"publish","type":"page","link":"https:\/\/solvecfs.org\/me-cfs-long-covid\/patient-and-caregiver-resources\/","title":{"rendered":"Patient and Caregiver Resources"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"25751\" class=\"elementor elementor-25751\">\n\t\t\t\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-166fbc68 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"166fbc68\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-41dc42b0\" data-id=\"41dc42b0\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3bd18cfc elementor-widget elementor-widget-ha-breadcrumbs happy-addon ha-breadcrumbs happy-addon-pro\" data-id=\"3bd18cfc\" data-element_type=\"widget\" data-widget_type=\"ha-breadcrumbs.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<ul class=\"ha-breadcrumbs\"><li class=\"ha-breadcrumbs-item ha-breadcrumbs-start\"><a href=\"https:\/\/solvecfs.org\/\" rel=\"home\"><span class=\"ha-breadcrumbs-text\">Home<\/span><\/a><\/li><\/ul>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-3e8a4095 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"3e8a4095\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-516d73d3 animated-fast\" data-id=\"516d73d3\" data-element_type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;none&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-765ba263 elementor-widget elementor-widget-heading\" data-id=\"765ba263\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Resources for People with ME\/CFS, Long Covid, & Caregivers<\/h1>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-69a003aa elementor-widget elementor-widget-text-editor\" data-id=\"69a003aa\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">As someone living with and managing ME\/CFS or Long Covid, we know you have questions. Below are links to information about some of our most commonly asked questions.\u00a0<\/span><\/p><p><span style=\"font-weight: 400;\">These resources are not intended to substitute individual, professional medical advice, diagnosis, or treatment. Please seek the advice of your medical provider before starting any new medication, treatment, or therapy. Solve M.E. cannot give medical or legal advice.<\/span><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-241bc537 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"241bc537\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-603489c6\" data-id=\"603489c6\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-eaaee1e elementor-widget elementor-widget-heading\" data-id=\"eaaee1e\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Navigation<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-48571e02 elementor-widget elementor-widget-text-editor\" data-id=\"48571e02\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul><li><a href=\"#tracking-your-symptoms\"><b>Symptom Tracking<\/b><\/a><\/li><li aria-level=\"1\"><a href=\"#securing-support-system\"><b>Securing your Personal Support System<\/b><\/a><\/li><li aria-level=\"1\"><a href=\"#resources-for-caregivers\"><b>Resources for Caregivers<\/b><\/a><\/li><li aria-level=\"1\"><a href=\"#finding-a-doctor\"><b>Finding a Doctor<\/b><\/a><\/li><li aria-level=\"1\"><a href=\"#school-work-finances\"><b>Work, School, and Finances<\/b><\/a><\/li><li aria-level=\"1\"><a href=\"#pem\"><b>Post Exertional Malaise (PEM) and Pacing<\/b><\/a><\/li><li aria-level=\"1\"><a href=\"#mental-health\"><b>Mental Health<\/b><\/a><\/li><li aria-level=\"1\"><a href=\"#children-and-teens\"><b>Children and Teens with ME\/CFS or Long Covid<\/b><\/a><\/li><li aria-level=\"1\"><a href=\"#additional-resources\"><b>Resources from Partners<\/b><\/a><\/li><li aria-level=\"1\"><a href=\"https:\/\/solvecfs.org\/me-cfs-long-covid\/recursos-para-personas-con-em-sfc-covid-persistente-y-cuidadores\/\"><strong>Spanish Language Resources<\/strong><\/a><\/li><\/ul>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-a71102b elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"a71102b\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-4c464373\" data-id=\"4c464373\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-906da5b elementor-widget elementor-widget-menu-anchor\" data-id=\"906da5b\" data-element_type=\"widget\" data-widget_type=\"menu-anchor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div id=\"tracking-your-symptoms\" class=\"elementor-menu-anchor\"><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3098bd14 elementor-widget elementor-widget-heading\" data-id=\"3098bd14\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Tracking your Symptoms<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-779e113c elementor-widget elementor-widget-text-editor\" data-id=\"779e113c\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Keeping track of your symptoms through journaling or charting, especially early on, can help you identify your personal limitations and provide valuable data for your medical team.\u00a0<\/p><p><span style=\"color: var( --e-global-color-016a029 ); font-family: var( --e-global-typography-6c6163f-font-family ), Sans-serif; font-size: var( --e-global-typography-6c6163f-font-size ); font-style: var( --e-global-typography-6c6163f-font-style ); font-weight: var( --e-global-typography-6c6163f-font-weight ); letter-spacing: var( --e-global-typography-6c6163f-letter-spacing ); word-spacing: var( --e-global-typography-6c6163f-word-spacing ); background-color: var( --e-global-color-96f9c92 );\">The symptoms of ME\/CFS and Long Covid are many and varied. Symptoms may be constant, worse some days, better some days. Or, you may experience a symptom for a while, and then it may dissipate as a di\ufb00erent symptom appears. Visit our <\/span><a style=\"font-family: var( --e-global-typography-6c6163f-font-family ), Sans-serif; font-size: var( --e-global-typography-6c6163f-font-size ); font-style: var( --e-global-typography-6c6163f-font-style ); font-weight: var( --e-global-typography-6c6163f-font-weight ); letter-spacing: var( --e-global-typography-6c6163f-letter-spacing ); word-spacing: var( --e-global-typography-6c6163f-word-spacing );\" href=\"https:\/\/solvecfs.org\/about-the-disease\/\">About ME\/CFS page<\/a><span style=\"color: var( --e-global-color-016a029 ); font-family: var( --e-global-typography-6c6163f-font-family ), Sans-serif; font-size: var( --e-global-typography-6c6163f-font-size ); font-style: var( --e-global-typography-6c6163f-font-style ); font-weight: var( --e-global-typography-6c6163f-font-weight ); letter-spacing: var( --e-global-typography-6c6163f-letter-spacing ); word-spacing: var( --e-global-typography-6c6163f-word-spacing ); background-color: var( --e-global-color-96f9c92 );\"> or <a href=\"https:\/\/solvecfs.org\/me-cfs-long-covid\/what-is-long-covid\/\">About Long Covid page<\/a> for lists of symptoms.<\/span><\/p><p><span style=\"font-weight: 400;\">If your initial tracking begins at a time when you are very ill, be kind to yourself and use whatever materials are easily available to you. Pen and paper, a monthly calendar, or cell phone calendar are all perfectly fine options. Download this <\/span><a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/05\/Tracking-Symptoms.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">PDF worksheet<\/span><\/a><span style=\"font-weight: 400;\"> to get started. You can also use <a href=\"https:\/\/solvecfs.org\/research\/solve-together\/\">Solve Together <\/a><\/span><span style=\"font-weight: 400;\">to track your symptoms and contribute to ME\/CFS and Long Covid research at the same time.<\/span><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-52b05b4 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"52b05b4\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-14db5f8\" data-id=\"14db5f8\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-32bd0ef elementor-widget elementor-widget-menu-anchor\" data-id=\"32bd0ef\" data-element_type=\"widget\" data-widget_type=\"menu-anchor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div id=\"securing-support-system\" class=\"elementor-menu-anchor\"><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8811999 elementor-widget elementor-widget-heading\" data-id=\"8811999\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Securing a Personal Support System<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8ae7402 elementor-widget elementor-widget-text-editor\" data-id=\"8ae7402\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>It is crucial to have a personal support system of family, friends, or caregivers to help you through this di\ufb03cult, debilitating disease. It is important that this support system understands what you are going through so they can help in supportive, empathetic ways. However, it can be difficult to find reliable information and avoid misinformation.<\/p><p><span style=\"font-weight: 400;\">If you are a person with ME\/CFS or Long Covid seeking a support system, or if you are a caregiver and\/or loved one, visit our guide <\/span><a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/05\/Loving-Someone-with-MECFS-or-Long-Covid.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">here<\/span><\/a><span style=\"font-weight: 400;\">. You may also consider sharing <a href=\"https:\/\/batemanhornecenter.org\/wp-content\/uploads\/filebase\/Caregiver-Letter-Insights-into-My-Chronic-Illness-V5.pdf\" target=\"_blank\" rel=\"noopener\">this letter<\/a> with your loved ones to help them understand what you may be going through.<\/span><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-201b1c7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"201b1c7\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-294247b\" data-id=\"294247b\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c0cf3b9 elementor-widget elementor-widget-menu-anchor\" data-id=\"c0cf3b9\" data-element_type=\"widget\" data-widget_type=\"menu-anchor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div id=\"resources-for-caregivers\" class=\"elementor-menu-anchor\"><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b88d0aa elementor-widget elementor-widget-heading\" data-id=\"b88d0aa\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Resources for Caregivers<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-caa1456 elementor-widget elementor-widget-text-editor\" data-id=\"caa1456\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Caregivers are an essential part of a patient\u2019s support network, but caregiving isn\u2019t easy. Caregivers face their own emotional, financial, and physical challenges that can lead to burnout, mental health difficulties and other hardships.<\/p><p>Our friends at <a href=\"https:\/\/www.caringinfo.org\/\" target=\"_blank\" rel=\"noopener\">CaringInfo.org<\/a> created an amazing resource for caregivers navigating the legal and logistical challenges of severe illness. While designed for people facing life-threatening conditions, many medical resources such as palliative care and hospice, financial resources such as Medicare and insurance, or other items like advance directives or bereavement care, can be helpful for those seeking to learn more.<\/p><p>For additional support for caregivers, see the below resources:<\/p><p><span style=\"font-weight: 400;\"><a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/05\/Loving-Someone-with-MECFS-or-Long-Covid.pdf\">Visit our guide for caregivers and loved ones<\/a>.<\/span><\/p><p>Click here for <a href=\"https:\/\/my.clevelandclinic.org\/health\/diseases\/9225-caregiver-burnout\">resources for caregiver burnout<\/a>.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-ff85a24 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"ff85a24\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-5b8c1de\" data-id=\"5b8c1de\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-b1e1193 elementor-widget elementor-widget-menu-anchor\" data-id=\"b1e1193\" data-element_type=\"widget\" data-widget_type=\"menu-anchor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div id=\"finding-a-doctor\" class=\"elementor-menu-anchor\"><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1077656 elementor-widget elementor-widget-heading\" data-id=\"1077656\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Finding a Doctor<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9b6133a elementor-widget elementor-widget-text-editor\" data-id=\"9b6133a\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">There are only a handful of <\/span><a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2023\/02\/2023-Clinical-Research-and-Patient-Leaders.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">specialists and clinical centers<\/span><\/a><span style=\"font-weight: 400;\"> that specialize in ME\/CFS around the country. Many of them do not take insurance and most have waiting lists that can be years long. Instead of seeking out a specific specialty, many people with ME\/CFS and Long Covid focus on finding doctors who are willing to be a partner in their medical care and listen to their needs.\u00a0<\/span><\/p><p><span style=\"font-weight: 400;\">There are several resources online that can help you make a list of potential doctors. Your initial appointment with a physician should be treated like a job interview. Write your interview questions down. Keep your list of interview questions as short as possible, without compromising your ability to make an informed decision. You have the right to expect any physician to give your concerns their genuine consideration. <\/span><span style=\"font-weight: 400;\">Download our\u00a0<\/span><a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/Interview-Questions-for-Doctors-1.pdf\" target=\"_blank\" rel=\"noopener\">interview question worksheet<\/a><span style=\"font-weight: 400;\">\u00a0and visit our full <\/span><a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/05\/Finding-a-Doctor.pdf\">Finding a Doctor guide here<\/a>. You may need to inform new providers that\u00a0the <a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/12\/New-ICD10-code-MECFS-Handout-for-providers-final12-6-22-1.pdf\" target=\"_blank\" rel=\"noopener\">U.S. 2023 ICD-10-CM<\/a> (the International Classification of Diseases) was recently updated to enable accurate tracking of people with ME\/CFS, including those who develop the disease following COVID.\u00a0<\/p><p><span style=\"font-weight: 400;\">If you are finding it di\ufb03cult to locate any doctor in your area that is familiar with ME\/CFS and Long Covid, your best choice may be to work with a doctor who is actively curious about you first, and ME\/CFS or Long Covid second. Visit our <\/span><a href=\"https:\/\/solvecfs.org\/me-cfs-long-covid\/resources-for-healthcare-providers\/\"><span style=\"font-weight: 400;\">resource page for medical providers<\/span><\/a><span style=\"font-weight: 400;\"> for information that you can share with your doctor.<\/span><\/p><p>Many people with Long Covid focus also finding doctors who are willing to be a partner in their medical care and listen to their needs.\u00a0\u00a0<\/p><p>For individuals looking for resources specific to navigating Long Covid care, check out\u00a0<a href=\"https:\/\/content.hugo.health\/navigating-your-covid-care\" target=\"_blank\" rel=\"noopener\">this article<\/a>\u00a0from Solve M.E. Board Member, Cynthia Adinig.\u00a0<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-016abc3 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"016abc3\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-fa03a2f\" data-id=\"fa03a2f\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-8952412 elementor-widget elementor-widget-menu-anchor\" data-id=\"8952412\" data-element_type=\"widget\" data-widget_type=\"menu-anchor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div id=\"school-work-finances\" class=\"elementor-menu-anchor\"><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5274595 elementor-widget elementor-widget-heading\" data-id=\"5274595\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">School, work, and finances<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b147283 elementor-widget elementor-widget-text-editor\" data-id=\"b147283\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<h3>School and Work<\/h3><p><span style=\"font-weight: 400;\">Your symptom journal can be an invaluable tool to use with your employer or educators. Sharing your health information with your Supervisor or Teacher could lead to their sharing your information with Human Resources, School District Administrators or vice versa. Remember, be selective about what information you share since it will likely be shared with others.<\/span><\/p><p><span style=\"font-weight: 400;\">One month of charting can provide a snapshot of your current condition. Multiple months of charting can provide valuable information into the progression\/regression of the illness. It is important to stress to your employer, or to your child\u2019s school, how urgently you\/your child want(s) to return to normal and back to work\/school and identify the barriers preventing you\/your child from doing so. Read more on our <a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/05\/School-and-Work.pdf\">School and Work Guide<\/a><\/span><span style=\"font-weight: 400;\">.<\/span><\/p><h3>Navigating the Disability Process<\/h3><p><span style=\"font-weight: 400;\">One of the most horrific e\ufb00ects of ME\/CFS and Long Covid is the inability to work, and the often crippling loss of income. If you are unable to work, or if you feel yourself struggling to continue to work, do not hesitate to file for disability insurance. The time from applying for disability to the time of approval can take from six (6) to twelve (12) months, or longer.<\/span><\/p><p><span style=\"font-weight: 400;\">There are multiple sources for disability insurance in the United States. Some large corporations provide disability insurance for their employees, private disability insurance can be purchased from insurance agents \u2014 prior to the onset of illness. A few state governments provide disability insurance payments for their government employees, and the federal government provides two types of disability insurance.<\/span><\/p><p><span style=\"font-weight: 400;\">For more information, download our <a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/05\/Navigating-the-Disability-Process.pdf\">disability guide<\/a><\/span>.<\/p><h3>Finances<\/h3><p><span style=\"font-weight: 400;\">If you have been diagnosed with ME\/CFS, Long Covid, or any chronic disease, you may be struggling or unable to work. Monetary disruption can lead to extreme stress levels, particularly if you are ill; and even more stressful if you are the sole financial support for your household. There are several important tips to help manage your financial journey: take stock of your monthly bills and outstanding debt, have a trusted confidant, and build relationships with your creditor.\u00a0<\/span><\/p><p><span style=\"font-weight: 400;\">Download a PDF of our <a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/MECFS-and-Finances-Guide-1.pdf\">financial guide<\/a>.<\/span><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-0e136fa elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"0e136fa\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-9f8cadf\" data-id=\"9f8cadf\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-36427a2 elementor-widget elementor-widget-menu-anchor\" data-id=\"36427a2\" data-element_type=\"widget\" data-widget_type=\"menu-anchor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div id=\"pem\" class=\"elementor-menu-anchor\"><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9c90e81 elementor-widget elementor-widget-heading\" data-id=\"9c90e81\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Understanding Post Exertional Malaise (PEM):<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d17377a elementor-widget elementor-widget-text-editor\" data-id=\"d17377a\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Understanding and managing Post Exertional Malaise (PEM), the most devastating symptom of ME\/CFS and Long Covid, is unfortunately an issue in all ages and stages of persons with these diseases. PEM is the worsening of symptoms following even minor physical or mental exertion, with symptoms typically worsening 12 to 48 hours after activity and lasting for days or even weeks.\u00a0<\/span><\/p><p><span style=\"font-weight: 400;\">With ME\/CFS and Long Covid, quick, easy recovery cannot be taken for granted. Often crushing fatigue \u2014 even after minor everyday exertions \u2014 is a major concern for persons living through ME\/CFS and Long Covid. The kind of fatigue being considered is a relentless \u201ctired to the bone\u201d fatigue that can persist for days, even weeks and perhaps months after exertion. What is PEM, and why is it so important to discuss? Learn more <\/span><a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/05\/PEM-REST-Combined.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">here, <\/span><\/a><span style=\"font-weight: 400;\">and check out <a href=\"https:\/\/solvecfs.org\/using-a-heart-rate-monitor-to-prevent-post-exertional-malaise-in-me-cfs-long-covid\/\">this resource<\/a> about managing PEM using a heart rate monitor.\u00a0<\/span><\/p><h3>The Importance of Rest<\/h3><p><span style=\"font-weight: 400;\">As a person with ME\/CFS or Long Covid, you need to determine your individual limits for physical and mental activity, and plan your day accordingly. Sounds easy? It\u2019s not! But, through trial and error, and careful charting of your symptoms after di\ufb00ering types of activities, you can find your rhythm to avoid \u201ccrashes.\u201d Rest is the main ingredient for reinstating your physical equilibrium.<\/span><\/p><p><span style=\"font-weight: 400;\">Activity Management, also called pacing, is critical to navigating life with PEM. <\/span><span style=\"font-weight: 400;\">Before you start pacing, it can be helpful to identify the activities in your life that lead to PEM. Click <\/span><a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/05\/PEM-REST-Combined.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">here<\/span><\/a><span style=\"font-weight: 400;\"> to find worksheets to identify your triggers.\u00a0<\/span><\/p><h3>Warning: Graded Exercise Therapy (GET) Can Cause Harm<\/h3><p><span style=\"font-weight: 400;\">Graded Exercise Therapy is NOT the same as pacing. GET requires you to increase your activity over time, potentially pushing you to repeatedly trigger the PEM response. GET has been reported by many patients to be harmful and has left some patients significantly worse than they were before they started. GET can repeatedly push a patient to the point where the PEM response is triggered, resulting in an overall (possibly permanent) worsening of symptoms. For more information, read the <\/span><a href=\"https:\/\/workwellfoundation.org\/wp-content\/uploads\/2019\/07\/MECFS-GET-Letter-to-Health-Care-Providers-v4-30-2.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">open letter to healthcare providers from the Workwell Foundation<\/span><\/a><span style=\"font-weight: 400;\">. <\/span><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-a709626 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"a709626\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-c72ff64\" data-id=\"c72ff64\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e048583 elementor-widget elementor-widget-menu-anchor\" data-id=\"e048583\" data-element_type=\"widget\" data-widget_type=\"menu-anchor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div id=\"mental-health\" class=\"elementor-menu-anchor\"><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b70a23a elementor-widget elementor-widget-heading\" data-id=\"b70a23a\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Mental Health<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9b62a5d elementor-widget elementor-widget-text-editor\" data-id=\"9b62a5d\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">ME\/CFS and Long Covid are not a psychiatric illness. However, it is common for people with serious medical issues to experience secondary anxiety and depression, and patients with post-infection diseases are no exception. Feelings of anger, grief, hopelessness and guilt are common as well. It is important to address the issues of loss in regard to ME\/CFS and Long Covid. These diseases have so many tentacles that touch every single aspect of a person\u2019s life; it is di\ufb03cult to think of any area of life these diseases do not touch. Although it is important to stay positive, it is also important to be realistic with your internal thoughts. The energy you do have is best used toward recovery, not wasted on anger and frustration. Read more <\/span><a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/05\/Mental-Health-Resources-Includes-relief-exercises-goal-setting.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">here<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/p>\n<p><strong><a href=\"https:\/\/988lifeline.org\/current-events\/the-lifeline-and-988\/\" target=\"_blank\" rel=\"noopener\">988 Suicide and Crisis Lifeline<\/a>&nbsp;(or call and text 988)<\/strong><\/p>\n<p><span style=\"color: #545454; font-family: var( --e-global-typography-accent-font-family ), Sans-serif; font-size: var( --e-global-typography-accent-font-size ); font-weight: var( --e-global-typography-accent-font-weight ); letter-spacing: var( --e-global-typography-accent-letter-spacing ); font-style: var( --e-global-typography-6c6163f-font-style ); word-spacing: var( --e-global-typography-6c6163f-word-spacing );\">Support Groups<\/span><\/p>\n<p><span style=\"font-weight: 400;\">These groups all take place online, some are volunteer led and some are professionally facilitated:<\/span><\/p>\n<p><a href=\"https:\/\/www.facebook.com\/groups\/MECFSPhoneGroup\/\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">ME\/CFS Weekly Phone Support Group<\/span><\/a><\/p>\n<p><a href=\"https:\/\/batemanhornecenter.org\/outreach\/crisis-resources\/\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">Bateman Horne Center Crisis Support<\/span><\/a><\/p>\n<p><a href=\"https:\/\/www.meaction.net\/groups\/\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">ME Action Support Groups<\/span><\/a><\/p>\n<p><a href=\"https:\/\/www.thecenterforchronicillness.org\/programs-and-services\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">Center for Chronic Illness<\/span><\/a><\/p>\n<p><a href=\"https:\/\/www.longhauler-advocacy.org\/support-us\" target=\"_blank\" rel=\"noopener\">COVID-19 Long Hauler Advocacy Project: Facebook Groups<\/a><\/p>\n<p><a href=\"https:\/\/www.wearebodypolitic.com\/covid-19\" target=\"_blank\" rel=\"noopener\">Body Politic COVID-19 Support Group<\/a><\/p>\n<p><a href=\"https:\/\/www.dysautonomiainternational.org\/page.php?ID=24\" target=\"_blank\" rel=\"noopener\">Dysautonomia International Support Group<\/a>s<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-73570c6 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"73570c6\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-8a045a4\" data-id=\"8a045a4\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6dd8bc8 elementor-widget elementor-widget-menu-anchor\" data-id=\"6dd8bc8\" data-element_type=\"widget\" data-widget_type=\"menu-anchor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div id=\"children-and-teens\" class=\"elementor-menu-anchor\"><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e794403 elementor-widget elementor-widget-heading\" data-id=\"e794403\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Children and Teens with ME\/CFS or Long Covid<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-86cc3fd elementor-widget elementor-widget-text-editor\" data-id=\"86cc3fd\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">As with adults, the degree to which a child or teen\u2019s life is impacted by the disease depends on a number of things, including disease severity. If the child is mildly affected, he or she might benefit from a slightly modified school schedule and a reduction in social activity as long as parents and guardians recognize the need to avoid triggering PEM and worsening symptoms. If the child is moderately ill, the school and parent\/guardian will need to work together to establish a substantially modified plan of education which might include private tutoring, remote learning, or some type of home-schooling. Children who fall into the moderate-to-severe range are generally unable to attend school at all and need help with even the most basic personal care.<\/span><\/p><p><span style=\"font-weight: 400;\">It is important for family members and caregivers to know enough about the disease to understand what is happening and help guide the child\u2019s activities in order to prevent worsening of symptoms. For more information about navigating pediatric ME\/CFS and working with your child\u2019s school, click <\/span><a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2023\/01\/Children-and-Teens-with-MECFS-or-Long-Covid-2023.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">here<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-fa97247 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"fa97247\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-6b133f3\" data-id=\"6b133f3\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-4c90c07 elementor-widget elementor-widget-menu-anchor\" data-id=\"4c90c07\" data-element_type=\"widget\" data-widget_type=\"menu-anchor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div id=\"additional-resources\" class=\"elementor-menu-anchor\"><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3d3bad5 elementor-widget elementor-widget-heading\" data-id=\"3d3bad5\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Additional Resources<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-18a49c9 elementor-widget elementor-widget-text-editor\" data-id=\"18a49c9\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p><em>Below you&#8217;ll find resources created by our friends and partners:<\/em><\/p><ul><li>For timely, accurate information relevant to people with ME\/CFS and fibromyalgia, visit <em><a href=\"https:\/\/www.healthrising.org\/\" target=\"_blank\" rel=\"noopener\">Health Rising<\/a>,<\/em> maintained by our friend and journalist Cort Johnson. \u00a0<\/li><li>Solve Board Member and co-founder of the <a href=\"https:\/\/www.bipocequityagency.com\/\">BIPOC Equity Agency<\/a> Cynthia Adinig authored this helpful document:\u00a0 <a href=\"https:\/\/www.bipocequityagency.com\/post\/empowering-patients-a-guide-to-chronic-illness-patient-rights-and-path-to-justice\">&#8220;Empowering Patients: A Guide to Chronic Illness Patient Rights and Path to Justice&#8221;<\/a><\/li><li>For a report on the impact of ME\/CFS and quality of life of people with ME\/CFS and their partners and family members,\u00a0<a href=\"https:\/\/bmjopen.bmj.com\/content\/bmjopen\/12\/5\/e058128.full.pdf\" target=\"_blank\" rel=\"noopener\">check out this report<\/a>\u00a0from our friends at Doctors with M.E.<\/li><li><a href=\"https:\/\/apps.who.int\/iris\/bitstream\/handle\/10665\/362783\/WHO-2019-nCoV-Clinical-2022.2-eng.pdf\" target=\"_blank\" rel=\"noopener\">Clinical management of COVID-19: Living Guideline for the Rehabilitation of adults with Post COVID-19 Condition (World Health Organization)\u00a0<\/a><\/li><li><a href=\"https:\/\/www.galenwarden.com\/post\/gurney-guide\" target=\"_blank\" rel=\"noopener\">The Gurney Guide for Severe ME Transportation<\/a><\/li><\/ul><p><strong>Tracking Your Symptoms<\/strong><\/p><ul><li><span data-sheets-value=\"{&quot;1&quot;:2,&quot;2&quot;:&quot;The National Academy of Medicine published an interactive resource that highlights gaps in #ChronicPain care and actions that can improve the pain management process. Check out the person-centered chronic pain journey map and learn more here: https:\/\/nam.edu\/programs\/action-collaborative-on-countering-the-u-s-opioid-epidemic\/chronic-pain-journey-map\/&quot;}\" data-sheets-userformat=\"{&quot;2&quot;:1053609,&quot;3&quot;:{&quot;1&quot;:0},&quot;6&quot;:{&quot;1&quot;:[{&quot;1&quot;:2,&quot;2&quot;:0,&quot;5&quot;:{&quot;1&quot;:2,&quot;2&quot;:0}},{&quot;1&quot;:0,&quot;2&quot;:0,&quot;3&quot;:3},{&quot;1&quot;:1,&quot;2&quot;:0,&quot;4&quot;:1}]},&quot;8&quot;:{&quot;1&quot;:[{&quot;1&quot;:2,&quot;2&quot;:0,&quot;5&quot;:{&quot;1&quot;:2,&quot;2&quot;:0}},{&quot;1&quot;:0,&quot;2&quot;:0,&quot;3&quot;:3},{&quot;1&quot;:1,&quot;2&quot;:0,&quot;4&quot;:1}]},&quot;10&quot;:2,&quot;11&quot;:4,&quot;12&quot;:0,&quot;15&quot;:&quot;Arial&quot;,&quot;23&quot;:1}\" data-sheets-textstyleruns=\"{&quot;1&quot;:0}\uee10{&quot;1&quot;:243,&quot;2&quot;:{&quot;2&quot;:{&quot;1&quot;:2,&quot;2&quot;:1136076},&quot;9&quot;:1}}\" data-sheets-hyperlinkruns=\"{&quot;1&quot;:243,&quot;2&quot;:&quot;https:\/\/nam.edu\/programs\/action-collaborative-on-countering-the-u-s-opioid-epidemic\/chronic-pain-journey-map\/&quot;}\uee10{&quot;1&quot;:352}\">The National Academy of Medicine&#8217;s <a href=\"https:\/\/nam.edu\/programs\/action-collaborative-on-countering-the-u-s-opioid-epidemic\/chronic-pain-journey-map\/\" target=\"_blank\" rel=\"noopener\">person-centered chronic pain journey map<\/a>\u00a0highlights gaps in chronic pain care and actions that can improve the pain management process.<\/span><\/li><\/ul><p><strong>Resources for Caregivers<\/strong><\/p><ul><li aria-level=\"1\"><a href=\"https:\/\/www.cdc.gov\/aging\/publications\/features\/caring-for-yourself.html\" target=\"_blank\" rel=\"noopener\">CDC: Caring for Yourself When Caring for Another\u00a0<\/a><\/li><\/ul><p><strong>Finding a Doctor<\/strong><\/p><ul><li><a href=\"https:\/\/www.youtube.com\/watch?v=c7sACMrqsY0\" target=\"_blank\" rel=\"noopener\">Working With Your Healthcare Provider for People with Chronic Illness<\/a>. \u2014 a video resource from our friends at the Massachusetts ME\/CFS Association<\/li><li aria-level=\"1\"><strong><a href=\"https:\/\/www.longhauler-advocacy.org\/\" target=\"_blank\" rel=\"noopener\">COVID-19 Long Hauler Advocacy Project<\/a>:<\/strong><ul><li aria-level=\"1\"><strong><a href=\"https:\/\/docs.google.com\/spreadsheets\/d\/1qRz6jcMX2Yx7_prnJqdBQFXgVJE_CgZSlIYNshW3XJM\/edit#gid=718047883\">COVID Competent Health Care Providers<\/a><\/strong><\/li><li><a href=\"https:\/\/docs.google.com\/spreadsheets\/d\/1SasCkk_7uWpQK1Pn5ZtuxUHf5EymSfzCRVTEX1TV6WU\/edit#gid=943772212\" target=\"_blank\" rel=\"noopener\">Post Covid Care Centers List\u00a0<\/a><\/li><\/ul><\/li><li aria-level=\"1\"><strong><a href=\"https:\/\/www.meaction.net\/resources\/find-your-doctor\/\" target=\"_blank\" rel=\"noopener\">#MEAction: ME-friendly practitioners<\/a><\/strong><\/li><li aria-level=\"1\"><a href=\"http:\/\/www.dysautonomiainternational.org\/page.php?ID=14\" target=\"_blank\" rel=\"noopener\">Dysautonomia International: Doctors With Experience in Autonomic Disorders\u00a0\u00a0<\/a><\/li><li aria-level=\"1\"><a href=\"https:\/\/www.cdc.gov\/coronavirus\/2019-ncov\/long-term-effects\/post-COVID-appointment\/index.html\" target=\"_blank\" rel=\"noopener\">CDC: Healthcare Provider Appointments for Post-COVID Conditions<\/a><\/li><\/ul><p><strong>Navigating Disability<\/strong><\/p><ul><li><a href=\"https:\/\/www.ssa.gov\/disability\/professionals\/documents\/64-063.pdf\" target=\"_blank\" rel=\"noopener\">Social Security Administration: Providing Medical Evidence for Individuals with Myalgic Encephalomyelitis\/Chronic Fatigue Syndrome (ME\/CFS)<\/a><\/li><li><a href=\"https:\/\/web.archive.org\/web\/20210703002309\/https:\/\/solvecfs.org\/wp-content\/uploads\/2020\/12\/KK-COVID-19-Insurance-Guidebook.pdf\" target=\"_blank\" rel=\"noopener\">COVID-19 Insurance Denial Guidebook<\/a>, provided by the attorneys at Kantor &amp; Kantor, LLP.<\/li><li><a href=\"https:\/\/www.hhs.gov\/civil-rights\/for-providers\/civil-rights-covid19\/guidance-long-covid-disability\/index.html\" target=\"_blank\" rel=\"noopener\">Check out these additional resources<\/a> from the U.S. Department of Health and Human Services for more information on Long Covid disability<\/li><li style=\"font-size: 18px;\" aria-level=\"1\"><a href=\"https:\/\/www.omf.ngo\/wp-content\/uploads\/2019\/03\/Disability-Insurance-ME-CFS-paper-for-OMF-FINAL.pdf\" target=\"_blank\" rel=\"noopener\">ME\/CFS ERISA and Individual Disability Income Long Term Disability <\/a><a href=\"https:\/\/www.omf.ngo\/wp-content\/uploads\/2019\/03\/Disability-Insurance-ME-CFS-paper-for-OMF-FINAL.pdf\" target=\"_blank\" rel=\"noopener\">Insurance Claims<\/a><\/li><li style=\"font-size: 18px;\" aria-level=\"1\"><a style=\"font-family: var( --e-global-typography-6c6163f-font-family ), Sans-serif; font-size: var( --e-global-typography-6c6163f-font-size ); font-weight: var( --e-global-typography-6c6163f-font-weight ); font-style: var( --e-global-typography-6c6163f-font-style ); line-height: var( --e-global-typography-6c6163f-line-height ); letter-spacing: var( --e-global-typography-6c6163f-letter-spacing ); word-spacing: var( --e-global-typography-6c6163f-word-spacing );\" href=\"https:\/\/askjan.org\/blogs\/jan\/2021\/03\/Long-COVID-and-the-Americans-with-Disabilities-Act.cfm\" target=\"_blank\" rel=\"noopener\">Job Accommodation Network: Long COVID and the Americans with Disabilities Act<\/a><\/li><li style=\"font-size: 18px;\" aria-level=\"1\"><a href=\"https:\/\/askjan.org\/disabilities\/Myalgic-Encephalomyelitis-Chronic-Fatigue-Syndrome.cfm\" target=\"_blank\" rel=\"noopener\">Job Accommodation Network: ME\/CFS\u00a0Accommodation and Compliance<\/a><\/li><li style=\"font-size: 18px;\" aria-level=\"1\"><a style=\"font-family: var( --e-global-typography-6c6163f-font-family ), Sans-serif; font-size: var( --e-global-typography-6c6163f-font-size ); font-weight: var( --e-global-typography-6c6163f-font-weight ); font-style: var( --e-global-typography-6c6163f-font-style ); line-height: var( --e-global-typography-6c6163f-line-height ); letter-spacing: var( --e-global-typography-6c6163f-letter-spacing ); word-spacing: var( --e-global-typography-6c6163f-word-spacing );\" href=\"https:\/\/www.hhs.gov\/civil-rights\/for-providers\/civil-rights-covid19\/guidance-long-covid-disability\/index.html\">U.S. Department of Health &amp; Human Services: Guidance on \u201cLong COVID\u201d as a Disability<\/a><\/li><\/ul><div>\u00a0<\/div><div><b>Understanding PEM<\/b><\/div><ul><li><span style=\"font-weight: 400;\">Check out this <a href=\"https:\/\/www.meaction.net\/wp-content\/uploads\/2023\/02\/Pacing-Guide-Clincians.FINAL2_.pdf\" target=\"_blank\" rel=\"noopener\">Pacing and Management Guide for<\/a><br \/>ME\/CFS and Long COVID, produced in collaboration by #MEAction and the Patient-Led Research Collaborative.<\/span><\/li><li>Our friends at the Bateman Horne Center created a\u00a0<a href=\"https:\/\/batemanhornecenter.org\/education\/mecfs-guidebook\/\" target=\"_blank\" rel=\"noopener\">Crash Survival Guide<\/a> for patients, their support network, and medical providers to manage and prevent crashes<\/li><li>The Stanford Medicine ME\/CFS Initiative has created a\u00a0<a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2019\/01\/PEM-Avoidance-Toolkit.pdf\" target=\"_blank\" rel=\"noopener\">4-Step Toolkit to Avoid Post Exertional Malaise<\/a><\/li><li>For more tips on making a PEM \u201ctool kit,&#8221; check out\u00a0<a href=\"https:\/\/www.emerge.org.au\/building-your-post-exertional-malaise-pem-toolkit\" target=\"_blank\" rel=\"noopener noreferrer\" data-auth=\"NotApplicable\" data-linkindex=\"0\">Emerge Australia&#8217;s video workshop<\/a><\/li><\/ul><p><strong>Children and Teens<\/strong><\/p><ul><li aria-level=\"1\"><a href=\"https:\/\/longcovidfamilies.org\/daily-living\/\" target=\"_blank\" rel=\"noopener\">Long COVID Families: Daily Living<\/a><\/li><li aria-level=\"1\"><a href=\"https:\/\/sites.ed.gov\/idea\/idea-files\/long-covid-under-section-504-and-the-idea-a-resource\/\" target=\"_blank\" rel=\"noopener\">US Department of Education: Long COVID under Section 504 and the IDEA<\/a><\/li><li aria-level=\"1\"><a href=\"https:\/\/www.kennedykrieger.org\/sites\/default\/files\/library\/documents\/community\/specialized-health-needs-interagency-collaboration-shnic\/SHNIC_Supporting%20a%20student%20with%20Long%20COVID_Educators%20.pdf\" target=\"_blank\" rel=\"noopener\">Kennedy Krieger Institute: Supporting a Student with Long-COVID<\/a><\/li><li aria-level=\"1\"><a href=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2022\/05\/School-and-Work.pdf\" target=\"_blank\" rel=\"noopener\">Solve M.E. Patient and Caregiver Resource Guide: School and Work<\/a><\/li><li aria-level=\"1\"><a href=\"https:\/\/www.longhauler-advocacy.org\/\">COVID-19 Long Hauler Advocacy Project<\/a>:<a href=\"https:\/\/www.youtube.com\/watch?v=Qek--5RwpHc&amp;t=7s\" target=\"_blank\" rel=\"noopener\">Long COVID In Children Video<\/a><\/li><li aria-level=\"1\"><a href=\"http:\/\/www.meaction.net\/wp-content\/uploads\/2022\/08\/Pediatric-Pacing-Guide.pdf?mc_cid=e8bf2d047d&amp;mc_eid=c28beede33\" target=\"_blank\" rel=\"noopener\">#MEAction and Long COVID Families: Pediatric Guide to Pacing\u00a0<\/a><\/li><li aria-level=\"1\"><a href=\"https:\/\/www.dovepress.com\/chronic-fatigue-syndromemyalgic-encephalomyelitis-cfsme-in-adolescents-peer-reviewed-fulltext-article-AHMT\" target=\"_blank\" rel=\"noopener\">Chronic Fatigue Syndrome\/Myalgic Encephalomyelitis (CFS\/ME) in Adolescents: Practical Guidance and Management Challenges<\/a><\/li><li aria-level=\"1\"><a href=\"https:\/\/www.longcovidkids.org\/educational-toolkit?fbclid=IwAR1tRSiEnalKOzFpLiyEnncPMRUx49kp7Mq4qmD-2eKLIujejtUnlFASfzA\">Long Covid Kids Educational Toolkit<\/a><\/li><\/ul>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-f8ea02c elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"f8ea02c\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-f98ef83\" data-id=\"f98ef83\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-8ddd811 elementor-widget elementor-widget-heading\" data-id=\"8ddd811\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Reading List<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4ebf627 elementor-widget elementor-widget-text-editor\" data-id=\"4ebf627\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p><a href=\"https:\/\/www.goodreads.com\/book\/show\/54802534-help-me-what-i-wish-families-knew-about-me-cfs\" target=\"_blank\" rel=\"noopener\"><i>Help Me! What I Wish Families Knew About ME\/CFS: Myalgic Encephalomyelitis (ME) Also Known As: Chronic Fatigue Syndrome<\/i><\/a><\/p><p><span style=\"font-weight: 400;\">2020, Rebecca Susan Culbertson. Rebecca is a person with ME\/CFS and psychotherapist. She donated her time and writing to this resource page and has helped countless people with her worksheets, guidance, and openness about her families\u2019 own journey through chronic illness.<\/span><\/p><hr \/><p><br \/><a href=\"https:\/\/www.goodreads.com\/en\/book\/show\/55035267-when-force-meets-fate\" target=\"_blank\" rel=\"noopener\"><i><span style=\"font-weight: 400;\">When Force Meets Fate<\/span><\/i><\/a><\/p><p><span style=\"font-weight: 400;\">2021, Jamison Hill. A healthy young man survives a fatal car crash only to be plagued by a mysterious illness that robs him of the ability to walk, talk, and eat solid food. When Force Meets Fate is a captivating, transcendent survival story\u2015one that forces all of us to reckon with our own mortality and the fragility of life.<\/span><\/p><hr \/><p><br \/><a href=\"https:\/\/www.goodreads.com\/en\/book\/show\/53397832-the-puzzle-solver\" target=\"_blank\" rel=\"noopener\"><i><span style=\"font-weight: 400;\">The Puzzle Solver: A Scientist&#8217;s Desperate Quest to Cure the Illness that Stole his Son<\/span><\/i><\/a><\/p><p><span style=\"font-weight: 400;\">2021, Tracie White and Dr. Ronald Davis. This book is about Ron Davis, geneticist at Stanford University, and his efforts to cure his son Whitney Dafoe, who has very severe ME\/CFS.<\/span><\/p><hr \/><p><br \/><a href=\"https:\/\/www.nap.edu\/read\/19012\/chapter\/1\" target=\"_blank\" rel=\"noopener\"><i><span style=\"font-weight: 400;\">Beyond Myalgic Encephalomyelitis\/Chronic Fatigue Syndrome: Redefining an Illness<\/span><\/i><\/a><\/p><p><span style=\"font-weight: 400;\">2015,\u00a0 National Academy of Medicine (NAM) (then called the Institute of Medicine- IOM). One of the most comprehensive reports regarding ME\/CFS, this report includes a diagnostic criteria, clinicians guide, and comprehensive literature review.<\/span><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-3a40d654 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"3a40d654\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-d567702\" data-id=\"d567702\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-43d5c0a4 elementor-widget elementor-widget-heading\" data-id=\"43d5c0a4\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Continued Learning<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-68c7ba3 elementor-section-content-top elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"68c7ba3\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-25 elementor-inner-column elementor-element elementor-element-30b49eb8\" data-id=\"30b49eb8\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5bdeaebf patient-card elementor-widget elementor-widget-ha-member happy-addon ha-member\" data-id=\"5bdeaebf\" data-element_type=\"widget\" data-widget_type=\"ha-member.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\n\t\t\t\t\t<figure class=\"ha-member-figure\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"777\" src=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/empower-me-1024x994.jpg\" class=\"elementor-animation-disable-animation attachment-large size-large wp-image-27612\" alt=\"empower-me\" srcset=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/empower-me-1024x994.jpg 1024w, https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/empower-me-300x291.jpg 300w, https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/empower-me-768x746.jpg 768w, https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/empower-me.jpg 1104w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t<\/figure>\n\t\t\n\t\t<div class=\"ha-member-body\">\n\t\t\t<h4 class=\"ha-member-name\">EmPOWER M.E. Program<\/h4>\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t\t\t<a class=\"ha-btn ha-btn--link ha-btn--icon-after\" href=\"https:\/\/solvecfs.org\/advocacy\/empower-me\/\"><span class=\"ha-btn-text\">Learn more<\/span> <i class=\"ha-btn-icon fas fa-chevron-right\" aria-hidden=\"true\"><\/i><\/a>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-25 elementor-inner-column elementor-element elementor-element-7c9a3deb\" data-id=\"7c9a3deb\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-4869ce22 patient-card elementor-widget elementor-widget-ha-member happy-addon ha-member\" data-id=\"4869ce22\" data-element_type=\"widget\" data-widget_type=\"ha-member.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\n\t\t\t\t\t<figure class=\"ha-member-figure\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2023\/06\/Campaign-Gallery-3-scaled-e1687969526662-1024x1024.jpeg\" class=\"elementor-animation-disable-animation attachment-large size-large wp-image-38852\" alt=\"\" srcset=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2023\/06\/Campaign-Gallery-3-scaled-e1687969526662-1024x1024.jpeg 1024w, https:\/\/solvecfs.org\/wp-content\/uploads\/2023\/06\/Campaign-Gallery-3-scaled-e1687969526662-300x300.jpeg 300w, https:\/\/solvecfs.org\/wp-content\/uploads\/2023\/06\/Campaign-Gallery-3-scaled-e1687969526662-150x150.jpeg 150w, https:\/\/solvecfs.org\/wp-content\/uploads\/2023\/06\/Campaign-Gallery-3-scaled-e1687969526662-768x768.jpeg 768w, https:\/\/solvecfs.org\/wp-content\/uploads\/2023\/06\/Campaign-Gallery-3-scaled-e1687969526662-1536x1536.jpeg 1536w, https:\/\/solvecfs.org\/wp-content\/uploads\/2023\/06\/Campaign-Gallery-3-scaled-e1687969526662.jpeg 1708w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t<\/figure>\n\t\t\n\t\t<div class=\"ha-member-body\">\n\t\t\t<h4 class=\"ha-member-name\">Solve Together<\/h4>\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t\t\t<a class=\"ha-btn ha-btn--link ha-btn--icon-after\" href=\"https:\/\/youtu.be\/DU0UgWGyi0A\" rel=\"noopener noreferrer\"><span class=\"ha-btn-text\">Learn more<\/span> <i class=\"ha-btn-icon fas fa-chevron-right\" aria-hidden=\"true\"><\/i><\/a>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-25 elementor-inner-column elementor-element elementor-element-5a9c9af9\" data-id=\"5a9c9af9\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-27ce55a4 patient-card elementor-widget elementor-widget-ha-member happy-addon ha-member\" data-id=\"27ce55a4\" data-element_type=\"widget\" data-widget_type=\"ha-member.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\n\t\t\t\t\t<figure class=\"ha-member-figure\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"777\" src=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/cdc-toolkit-thumbnail-1024x994.jpg\" class=\"elementor-animation-disable-animation attachment-large size-large wp-image-27284\" alt=\"cdc-toolkit-thumbnail\" srcset=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/cdc-toolkit-thumbnail-1024x994.jpg 1024w, https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/cdc-toolkit-thumbnail-300x291.jpg 300w, https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/cdc-toolkit-thumbnail-768x746.jpg 768w, https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/cdc-toolkit-thumbnail.jpg 1104w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t<\/figure>\n\t\t\n\t\t<div class=\"ha-member-body\">\n\t\t\t<h4 class=\"ha-member-name\">Solve M.E. Webinar Series<\/h4>\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t\t\t<a class=\"ha-btn ha-btn--link ha-btn--icon-after\" href=\"https:\/\/solvecfs.org\/news-and-insights\/webinars\/\"><span class=\"ha-btn-text\">Learn more<\/span> <i class=\"ha-btn-icon fas fa-chevron-right\" aria-hidden=\"true\"><\/i><\/a>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-25 elementor-inner-column elementor-element elementor-element-38211e14\" data-id=\"38211e14\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7527bc16 patient-card elementor-widget elementor-widget-ha-member happy-addon ha-member\" data-id=\"7527bc16\" data-element_type=\"widget\" data-widget_type=\"ha-member.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\n\t\t\t\t\t<figure class=\"ha-member-figure\">\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"777\" src=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/cdc-toolkit-thumbnail-2-1024x994.jpg\" class=\"elementor-animation-disable-animation attachment-large size-large wp-image-27287\" alt=\"cdc-logo\" srcset=\"https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/cdc-toolkit-thumbnail-2-1024x994.jpg 1024w, https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/cdc-toolkit-thumbnail-2-300x291.jpg 300w, https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/cdc-toolkit-thumbnail-2-768x746.jpg 768w, https:\/\/solvecfs.org\/wp-content\/uploads\/2021\/09\/cdc-toolkit-thumbnail-2.jpg 1104w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t<\/figure>\n\t\t\n\t\t<div class=\"ha-member-body\">\n\t\t\t<h4 class=\"ha-member-name\">CDC Patient Toolkit<\/h4>\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t\t\t<a class=\"ha-btn ha-btn--link ha-btn--icon-after\" href=\"https:\/\/www.cdc.gov\/me-cfs\/resources\/patient-toolkit.html\" target=\"_blank\" rel=\"noopener noreferrer\"><span class=\"ha-btn-text\">Learn more<\/span> <i class=\"ha-btn-icon fas fa-chevron-right\" aria-hidden=\"true\"><\/i><\/a>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-4fb0185f elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"4fb0185f\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-4cc48bb\" data-id=\"4cc48bb\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-76f9b65 elementor-widget elementor-widget-heading\" data-id=\"76f9b65\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Never miss an email: subscribe to our newsletter<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3d444608 elementor-widget elementor-widget-text-editor\" data-id=\"3d444608\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Stay up-to-date on the most recent information and expertise related to ME\/CFS, Long Covid, and other post-viral illnesses, as well as programs and developments at Solve M.E..<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1acbfb44 elementor-mobile-align-left elementor-widget-mobile__width-auto elementor-align-left elementor-widget elementor-widget-button\" data-id=\"1acbfb44\" data-element_type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t<a href=\"https:\/\/solvecfs.org\/news-and-insights\/subscribe-to-newsletter\/\" class=\"elementor-button-link elementor-button elementor-size-sm elementor-animation-shrink\" role=\"button\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-text\">Subscribe<\/span>\n\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Home Resources for People with ME\/CFS, Long Covid, &#038; Caregivers As someone living with and managing ME\/CFS or Long Covid, we know you have questions. Below are links to information [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":2410,"parent":341,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"sfsi_plus_gutenberg_text_before_share":"","sfsi_plus_gutenberg_show_text_before_share":"","sfsi_plus_gutenberg_icon_type":"","sfsi_plus_gutenberg_icon_alignemt":"","sfsi_plus_gutenburg_max_per_row":"","footnotes":""},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Patient and Caregiver Resources - Solve ME\/CFS Initiative<\/title>\n<meta name=\"description\" content=\"As someone living with and managing ME\/CFS or Long Covid, we know you have questions. 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