As we recently conveyed to our community, the $5.4 million in CDC funding for ME/CFS has been stricken from the Senate’s version of the 2016 federal budget. ME/CFS was the only disease to be reduced to $0.
The Solve ME/CFS Initiative played a key role in spreading the word about this funding threat, which would mean that a monumental multi-year, multi-site CDC ME/CFS study would have to be truncated prematurely. Our organization and others encouraged patients to contact the key staff members who serve the Senators on this budget committee to urge them to restore the funding in the 2016 budget. Patients sent hundreds of emails to the staff members, who heard our community’s voice loud and clear.
One of the key staff members reached out to our organization, as well as to the Massachusetts CFIDS/ME & FM Association, to learn more about our efforts and the ME/CFS community overall.
While the budget deliberations are continuing, we feel that great strides have been made to educate staff about the devastation of our disease and the dire need for more funding for it.
The Solve ME/CFS Initiative will be meeting with key House and Senate staff in Washington, D.C., in early October to build relationships and strengthen the argument for additional ME/CFS funding. We will keep our community updated on developments.