UK Holds Third Annual CFS/ME Research Collaborative (CMRC) Conference

cmrcThe annual CMRC conference, executed by UK-based charity Action for ME, is a major event for ME/CFS in the United Kingdom. This two-day conference took place September 28-29 in Newcastle upon Tyne, with active participation from all CMRC member organizations (including Action for ME, AYME, ME Association, and ME Research UK).

Leading scientists and clinicians, as well as representatives from leading funding agencies like the Medical Research Council and Wellcome Trust, also attended, as did a large group of patients, advocates, researchers, and interested organizations.

Dr. Nahle, an invited speaker, gave a lecture in the “Big data, Biomarkers, and Stratification” session, where he discussed SMCI’s research work. He also participated in a workshop on postural orthostatic tachycardia syndrome (POTS) and sat on a panel of experts for a public discussion regarding pressing challenges in ME/CFS science, policy, and healthcare (pictured). Other experts on this panel included Dr. David Patrick (UBC, Canada), Dr. Julia Newton (Dean of Medical School, Newcastle University, UK), Dr. David Ford (Swansea University, UK), and Dr. George Davie Smith (University of Bristol, UK).

The meeting was an opportunity to collaborate and develop several partnerships, including one we started earlier this year with UK Biobank. Other individual meetings with authorities in the field, such as Drs. Charles Shepherd, Stephen Holgate, and Hugh Perry, among others, were also very productive. We extend our sincere gratitude to the meeting organizers—especially Ms. Sonya Chowdhury, executive director of Action for ME—for an excellent meeting filled with many thought-provoking discussions.

The official CMRC conference report will be released in the month. For additional conference information, please visithttp://www.meresearch.org.uk/news/cmrc-conference-2016/.

3 comments on “UK Holds Third Annual CFS/ME Research Collaborative (CMRC) Conference

  1. At last! some brilliant news, ME/CFS is being taken more seriously, Most GPs have little or no knowledge about this debilitating disease and seem to have no interest either.I am willing to try out new treatment and trials but have no idea where to start.

  2. Dear UK:

    Please stop funding psychiatric medicine researchers as your top-line response to ME/CFS. I bet if you paid a bunch of chiropractors to study ME/CFS, they’d find a cause in patients’ spines… if you paid a bunch of neurologists, they’d say it’s in their nervous systems. Unsurprisingly, the psychs think it’s all in their heads.

    Chances are, it’s all of the above. But dangerous precedents set by the PACE trial affect all of us worldwide. I hope your conference helps get the UK out of the international science doghouse with regard to ME/CFS and into a place of responsible leadership.

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