U.S. ME/CFS Clinician Coalition Releases Updated Clinical Guidance That Could Help Those with Long Covid

The U.S. ME/CFS Clinician Coalition recently released updated clinical guidance for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), which may also help individuals suffering from Long Covid symptoms. An article about the guidance was published in Mayo Clinic Proceedings, which is widely read by clinicians.

Read it here.

The updated clinical guidance from the U.S. ME/CFS Clinician Coalition focuses on adults and includes:

  • New diagnostic criteria requiring post-exertional malaise and other key features to improve diagnostic accuracy
  • Efficient use of interview questions, physical examination findings, and diagnostic testing
  • Alternative diagnoses and co-existing conditions to consider
  • Pharmacological and nonpharmacological treatments
  • A discussion of why previously-recommended treatments—cognitive behavioral therapy and graded exercise therapy—can be harmful and are no longer recommended

In the accompanying press release, the Clinician Coalition cites Dr. Anthony Fauci of the National Institutes of Health (NIH), who has said that Long Covid is “highly suggestive” of ME/CFS, as well as recent research that suggests 10% or more of adults with acute COVID-19 may go on to develop ME/CFS.

“Patients with ME/CFS have long struggled to access clinical care as a result of a lack of accurate clinical guidance and provider knowledge,” the Clinician Coalition writes in its press release. “The influx of so many new cases of ME/CFS has created an urgent need for clinicians everywhere to learn about this disease.”

Read the full press release here.

Solve M.E. Research Advisory Council Member Dr. Lucinda Bateman Offers Insights Into Clinical Guidance​​​​​​

Dr. Lucinda Bateman, founder and chief medical officer of the Bateman Horne Center and member of Solve M.E.’s Research Advisory Council, offered her insights on the U.S. ME/CFS Clinician Coalition clinical guidance via video.

“The takeaway message of this article is that every clinician — every generalist or specialist — can and should know about (ME/CFS),” Dr. Bateman says in the video. “Understanding and correctly applying the ME/CFS diagnostic criteria can help clinicians recognize this debilitating, multisystem illness, and use existing tools and resources to provide a high standard of care.”

Watch the full video here.