Guest Blog: Dr. Lucinda Bateman on the Discussion Surrounding the IOM Report

Lucinda Bateman, MD, specializes in the diagnosis and management of unexplained chronic fatigue, ME/CFS and fibromyalgia. Having served on the IOM committee that produced the recent report, Beyond ME/CFS: Redefining an Illness, she brings an in-depth, well-informed opinion to the conversation surrounding the IOM report on ME/CFS, the new diagnostic criteria and the proposed name, Systemic Exertion Intolerance Disease (SEID). READ MORE…

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Guest Blog: Changing the Conversation – IOM Report Sparks Re-evaluation of ME/CFS in the Media

On Tuesday the IOM released its report, “Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness”. This landmark report has been highlighted the media this week in more than 300 articles including JAMA, Annals, Science, Nature and a host of accessible lay media including NYT, Al Jazeera America, NPR, CBS Online and HealthDay. In this guest blog, Cort Johnson discusses how the IOM report is changing the conversation. READ MORE…

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IOM Report Released – Recommends New Diagnostic Criteria, Calls for More Research, and Proposes New Disease Name

IOM Report Released – Recommends New Diagnostic Criteria, Calls for More Research, and Proposes New Disease Name. The report underscores the profound impact that ME/CFS has on the millions who suffer from it worldwide (est. 17 million) and the importance of getting people diagnosed; committee calls for more research funding. READ MORE…

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Research Digest – January 2015: High Interest in ME/CFS Shown in Journal Rankings

Deciphering PEM is a critically important area of research for ME/CFS. Despite the lack of gravity and specificity a term like “post exertional malaise” signifies, research into what it is and how to measure it is some of the most important research – and most popular. The Journal of Translational Medicine ranked two articles dealing with ME/CFS among its most highly accessed for 2014. LEARN MORE…

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P2P Draft Report Set to be Published, 30 days for Feedback

On December 9 & 10, the Pathway to Prevention Workshop for “Advancing the Research on ME/CFS” was held. The draft report is scheduled to be posted on December 18, 2014 with a 30 day comment period. The Solve ME/CFS Initiative will work with members of its Research Advisory Council and other advisers to issue a response to the report. Access the workshop recordings a READ MORE

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