IOM Report Released – Recommends New Diagnostic Criteria, Calls for More Research, and Proposes New Disease Name

IOM Report Released – Recommends New Diagnostic Criteria, Calls for More Research, and Proposes New Disease Name. The report underscores the profound impact that ME/CFS has on the millions who suffer from it worldwide (est. 17 million) and the importance of getting people diagnosed; committee calls for more research funding. READ MORE…

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SMCI Survey Data Analyzed for Publication

Leonard A. Jason, along with Laura Nicholson, Diana Ohanian, Kelly O’Connor, & Abigail Brown, all of DePaul University are preparing a paper titled, “ME/CFS Patient Perspectives on Name Change & Priorities for Healthcare Provider Education.” This paper is based on the results of an SMCI survey facilitated prior to an IOM committee meeting earlier this year. Read the summary now, in advance of publication…

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IOM: Let’s Get It Right

The CFIDS Association, along with PANDORA Org and other advocates, has been invited to make a brief presentation to the IOM Committee on ME/CFS. They want to know what primary thing they should keep in mind as they look at the research. We want YOUR thoughts so we can best represent your concerns and make the most of the open session on January 27th. TAKE OUR SURVEY

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