September 2017 Research 1st – Dr. Nahle Letter

Dear Friends,

Changing the Status Quo!

I am thrilled to report to our community the launch of a new science and discovery program dedicated to ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome) at the prestigious Memorial Sloan Kettering Cancer Center (MSKCC) in New York City. This comes after we shared news last month of another SMCI-Directed Research Initiative at Brigham and Women’s Hospital (BWH) in Boston, an important center at the forefront of science and biomedicine. For more details on the MSKCC partnership, please visit our full announcement.

Briefly, the ME/CFS MSKCC initiative has a translational objective and will use advanced screening platforms, biomarker identification technologies, and therapeutic targeting to advance ME/CFS research. Notably, this collaboration is with some of the world’s leading experts in this domain.

The relentless effort at SMCI to establish meaningful and diverse ME/CFS projects at leading research centers is part of our strategic plan. We leave no stone unturned when it comes to solving ME/CFS. Using different instruments and tools at our disposal, we strive to fill knowledge gaps, invest in innovative ideas, partner with patients for solutions, facilitate meaningful collaborations among stakeholders, create reliable health record systems for patients, lead conferences and think tanks, advance medical education, advocate for equitable funding, and work constructively with medical agencies and government organizations towards solving ME/CFS.

At this juncture, we are also all anxious to hear the announcement of the new NIH-funded competitive grant opportunities that were announced in January: one for Collaborative Research Centers (CRCs) and another for a Data Management and Coordinating Center (DMCC). We had the privilege of participating in several different applications organized by diverse teams. We pride ourselves on being a trusted scientific partner and credible resource for everyone creating value in our ME/CFS community. Without bias or prejudice, our policy is to assist in every way for cause, not for credit.

Finally, we look forward to announcing the results of our Ramsay 2017 cycle competition in basic, clinical, translational and epidemiology research next month. As our peer review process is wrapping up, we are gratified to have received some exciting proposals, submitted by talented individuals in several critical areas of investigation. We wish them all luck too!

Yours,

Zaher Nahle PhD, MPA
Chief Scientific Officer and Vice President for Research
Solve ME/CFS Initiative