Solve ME/CFS Initiative Science & Discovery Program – For ResearchersJanuary 6, 2018

ME/CFS is one of the top unsolved medical mysteries science has to tackle today. The field of ME/CFS research is ripe for discovery.

The research infrastructure of the Solve ME/CFS Initiative supports innovation and discovery. We have developed our research road map, in collaboration with our Research Advisory Council (RAC), to be a Participatory, Predictive and Personalized Platform that will help identify ME/CFS treatment candidates, sub-types and disease models:

  • Participatory research puts the patient at the center of ME/CFS discovery
  • Predictive measures come from the “Big Data” we gather
  • Personalized treatments result from patient-centered research

Solve ME/CFS Initiative has a strong record of seeding promising research and provides a variety of resources and programs to support researchers in the field of ME/CFS including:

The SolveCFS BioBank is an important pillar of our research infrastructure. This system is built on a foundation of standards including common data dictionaries, standard instruments and assessments. The SolveCFS BioBank is designed to allow investigators to share and collaborate. Patient information and samples have Global Unique Identifiers (GUIDs) so we can share and meet current privacy standards; GUIDs allow results generated on individuals to be linked to other discoveries on the same samples. The SolveCFS BioBank is a cost-effective and robust resource to investigate ME/CFS.
We are also in the process of developing a national ME/CFS Patient Registry, that will incorporate Electronic Health Records and nationally-defined ME/CFS Common Data Elements.
Learn more about the upcoming SMCI National ME/CFS Patient Registry, the SolveCFS BioBank, and how to apply for access to information and samples, by contacting:
SMCI’s Scientific Administrator:
Allison Ramiller
704-364-0016 EXT 210
aramiller@solvecfs.org
Past research supported by the BioBank:

Our 2012 grantees had a research focus on safe and effective treatments.

Discover ME/CFS Research! The Solve ME/CFS Initiative research program aims to accelerate progress toward accurate diagnosis and effective treatment of ME/CFS by directly supporting research studies, facilitating collaboration among investigators and pursuing increased investment in ME/CFS research by public, private and commercial institutions.
Please direct inquiries regarding our research program and/or its requests for applications to:
Zaher Nahle, PhD, MPA
Vice President for Research and Scientific Programs
E-mail: ZNahle@solvecfs.org