Solve ME/CFS Initiative Science & Discovery Program – For ResearchersJanuary 6, 2018
ME/CFS is one of the top unsolved medical mysteries science has to tackle today. The field of ME/CFS research is ripe for discovery.
The research infrastructure of the Solve ME/CFS Initiative supports innovation and discovery. We have developed our research road map, in collaboration with our Research Advisory Council (RAC), to be a Participatory, Predictive and Personalized Platform that will help identify ME/CFS treatment candidates, sub-types and disease models:
- Participatory research puts the patient at the center of ME/CFS discovery
- Predictive measures come from the “Big Data” we gather
- Personalized treatments result from patient-centered research
Solve ME/CFS Initiative has a strong record of seeding promising research and provides a variety of resources and programs to support researchers in the field of ME/CFS including:
- A diversified portfolio of current SMCI Directed Projects
- The Ramsay Award Program, an annual competitive peer-reviewed research grant program
- The Patient-Scientist Partnership Program, facilitating patient participation in decision-making and defining research priorities
- MeetME Travel Awards to facilitate the participation of junior scientists and underrepresented groups in meetings and conferences focused on ME/CFS
- The upcoming SMCI National ME/CFS Patient Registry, coming in 2018
- And the SolveCFS Biobank.
The SolveCFS BioBank is an important pillar of our research infrastructure. This system is built on a foundation of standards including common data dictionaries, standard instruments and assessments. The SolveCFS BioBank is designed to allow investigators to share and collaborate. Patient information and samples have Global Unique Identifiers (GUIDs) so we can share and meet current privacy standards; GUIDs allow results generated on individuals to be linked to other discoveries on the same samples. The SolveCFS BioBank is a cost-effective and robust resource to investigate ME/CFS.
We are also in the process of developing a national ME/CFS Patient Registry, that will incorporate Electronic Health Records and nationally-defined ME/CFS Common Data Elements.
Learn more about the upcoming SMCI National ME/CFS Patient Registry, the SolveCFS BioBank, and how to apply for access to information and samples, by contacting:
SMCI’s Scientific Administrator:
Allison Ramiller
704-364-0016 EXT 210
aramiller@solvecfs.org
Past research supported by the BioBank:
- Dr. Jay Chung (NIH)
- Dr. Dorothy Hudig & Isabel Silvestre
- Dr. Mercedes Rincon & David Maughan
- Dr. Michael Cooperstock
- Dr. Eric Delwart
- Dr. Steve Elledge
- Dr. Michael Houghton
- Dr. Leonard Jason
- Dr. Gordon Broderick
- Dr. Kathy and Alan Light
- Dr. Marvin Medow and Julian Stewart
- Dr. Bud Mishra and Eric Aslakson
- Dr. Dikoma Shungu and Sanjay Mathew
- Dr. Sanjay Shukla and Steve Yale
Our 2012 grantees had a research focus on safe and effective treatments.
Discover ME/CFS Research! The Solve ME/CFS Initiative research program aims to accelerate progress toward accurate diagnosis and effective treatment of ME/CFS by directly supporting research studies, facilitating collaboration among investigators and pursuing increased investment in ME/CFS research by public, private and commercial institutions.
Please direct inquiries regarding our research program and/or its requests for applications to:
Dr. Sadie Whittaker
Chief Scientific Officer
SWhittaker@solvecfs.org