PROMINENT ME/CFS ADVOCATES, INCLUDING SMCI PRESIDENT CAROL HEAD, TO MEET WITH SENIOR HHS OFFICIALS

LOS ANGELES, Thursday, July 28, 2016 – Solve ME/CFS Initiative (SMCI) President Carol Head and prominent ME/CFS advocates Jen Brea of #MEAction, Mary Dimmock, Jennie Spotila, and Terri Wilder will meet with Karen B. DeSalvo, M.D., M.P.H., M.Sc., acting assistant secretary for health (ASH) at the Department of Health and Human Services (HHS), this August.

The result of tenacious work conducted by a nationwide group of advocates led by Mary Dimmock, the August meeting will focus on securing additional research funding for ME/CFS, streamlining HHS interagency processes and making those processes public, and including experts, researchers, and patients in the development of new strategies to combat ME/CFS. The meeting will also address the need for comprehensive and accurate medical provider education, vetted by disease experts, and aim to make sure that ME/CFS retains its forward momentum within HHS during the transition to a new president.

Within the US government, the responsibility for protecting the health of all Americans falls to the HHS. It directly oversees nearly 25% of all federal discretionary spending and administers more grant dollars than all other federal agencies combined. The HHS directly oversees the NIH and the CDC, two federal agencies directly working on ME/CFS. A cabinet-level department, the HHS reports directly to the President of the United States.

About Solve ME/CFS Initiative (SMCI)

Solve ME/CFS Initiative (SMCI) was founded in 1987 and has established itself as the leading non-profit organization dedicated to ME/CFS. The organization’s mission is to make ME/CFS widely understood, diagnosable, and treatable by stimulating and conducting research aimed at the early detection, objective diagnosis, and effective treatment of ME/CFS. SMCI is the first and only ME/CFS organization to earn the highest possible distinction (a 4-star rating) from Charity Navigator, America’s largest independent charity evaluator.