ME/CFS Media CenterJanuary 6, 2018

The Solve ME/CFS Initiative (SMCI) wants to be helpful to all those interested in telling the story of myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) – traditional journalists, social media writers, and anyone working on sharing the reality of ME/CFS. Interviews with SMCI spokespeople, expert sources working in ME/CFS research and connections to ME/CFS patients can be arranged upon request.

The ME/CFS community prefers to use “myalgic encephalomyelitis,” “ME” or “ME/CFS” when referring to this devastating illness. “Chronic Fatigue Syndrome” is no longer the commonly accepted terminology.

If referring to the illness as “Chronic Fatigue Syndrome,” we recommend using capital letters. We feel it’s important to distinguish this disabling disease from “fatigue” that can be a symptom of many different chronic health conditions. We request that you follow these terminology guidelines when you are quoting SMCI or referencing our information.

Email Karman Kregloe at or call 704-364-0016 x 204

Media Tools

  • SMCI: Leading the Fight to Cure ME/CFS – PDF
  • Advocacy Press Kit – Dropbox
  • ME/CFS Fact Sheet – PDF
  • Solve ME/CFS Initiative Fact Sheet – PDF
  • Solve ME/CFS Initiative Press Kit – PDF


  • 05.17.2018 – ME/CFS Advocacy Day – PDF
  • 05.01.2018 – Ramsay Award Medical Research Program – PDF
  • 10.31.2017 – Ramsay Award Program 2017 Recipients – PDF
  • 10.19.2017 – ME/CFS Discovery Forum 2017 – PDF
  • 9.28.2017 – SMCI Honored to partner on three NIH-funded centers – PDF
  • 9.22.2017 – Circle Receptions in Minnesota – PDF
  • 5.29.2017 – ME/CFS Awareness Rally-Sacramento – PDF
  • 5.8.2017 – ‘ME/CFS Advocacy Week’ in D.C. – PDF