The Solve ME/CFS Initiative (Solve M.E.) wants to be helpful to all those interested in telling the story of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Long  Covid and other post-infection diseases – traditional journalists, social media writers, and anyone working on sharing accurate information. Interviews with Solve M.E. spokespeople, expert sources working in ME/CFS, Long Covid, and post-infection disease research and connections to patients can be arranged upon request.

The ME/CFS community prefers to use “Myalgic Encephalomyelitis,” “ME” or “ME/CFS” when referring to this devastating illness. “Chronic Fatigue Syndrome” is no longer the commonly accepted terminology.

If referring to the illness as “Chronic Fatigue Syndrome,” we recommend using capital letters. We feel it’s important to distinguish this disabling disease from “fatigue” which can be a symptom of many different chronic health conditions. We request that you follow these terminology guidelines when you are quoting Solve M.E. or referencing our information.

MEDIA CONTACT
Email Karman Kregloe at KKregloe@solvecfs.org or call 704-364-0016 (office).

Media Tools

  • Solve M.E. Leads the Fight to Cure ME/CFS — PDF
  • Solve M.E. Advocacy & Research Programs – PDF
  • Solve M.E. Media Contacts – PDF
  • ME/CFS Fact & Figures Sheet – PDF
  • ME/CFS FAQ — PDF
  • 2021 Advocacy Week Media Kit – PDF
  • Solve M.E. Op-Ed in the Guardian: “We Know Too Little About Covid-19 ‘long-haulers.’ We Need a Comprehensive Study” – PDF
  • Solve M.E. Position Statements and Letters

RECENT PRESS RELEASES

  • 08.23.21 – Seven Significant Organizations Propose Critical Code Change to CDC’s ICD-10, Addressing Catastrophic Lack of ME/CFS Case Tracking in the U.S. – PDF
  • 05.27.21 – Nearly $100M in Long COVID Funding Introduced in Congress – PDF
  • 4.30.21 – Community Advisory Council Member Robert Jacobs Announces Donation of ME/CFS Books to Local Library in Honor of ME/CFS International Awareness Day, May 12 – PDF
  • 04.21.21 – Beyer, Bergman Announce Introduction Of Bipartisan COVID-19 Long Haulers Act – PDF
  • 04.19.21 – Long COVID Dramatically Increases Cases of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – PDF
  • 02.25.21 – Solve M.E. Spearheads Long COVID Alliance to Accelerate Post-Infectious Research – PDF
  • 12.04.20 – Chronic Disease Stakeholders Join Solve M.E. in Push for Federally Funded Research into Long COVID – PDF
  • 08.11.20 – Bipartisan Women’s Caucus to Collaborate with Chronic Illness Nonprofits and Prominent Guests for Virtual, Educational Roundtable Concerning the Impact of Covid-19 on Women’s Health – PDF
  • 07.13.2020 – Solve M.E. Announces Launch of You + M.E. Registry and Biobank  – PDF
  • 05.21.20 – Solve M.E. Announces Oved Amitay as President and Chief Executive Officer – PDF
  • 04.21.2020 – 2020 ME/CFS Advocacy Day – PDF
  • 05.17.2018 – 2018 ME/CFS Advocacy Day – PDF
  • 05.01.2018 – 2018 Ramsay Award Medical Research Program – PDF
  • 10.31.2017 – Ramsay Award Program 2017 Recipients – PDF
  • 10.19.2017 – 2017 ME/CFS Discovery Forum – PDF
  • 09.28.2017 – Solve ME/CFS Initiative Honored to partner on three NIH-funded centers – PDF
  • 09.22.2017 – Circle Receptions in Minnesota – PDF
  • 05.29.2017 – 2017 ME/CFS Awareness Rally-Sacramento – PDF
  • 05.08.2017 – 2017 ME/CFS Advocacy Week in D.C. – PDF

RECENT MEDIA COVERAGE