The Solve ME/CFS Initiative (Solve M.E.) wants to be helpful to all those interested in telling the story of myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) – traditional journalists, social media writers, and anyone working on sharing the reality of ME/CFS. Interviews with Solve M.E. spokespeople, expert sources working in ME/CFS research and connections to ME/CFS patients can be arranged upon request.
The ME/CFS community prefers to use “myalgic encephalomyelitis,” “ME” or “ME/CFS” when referring to this devastating illness. “Chronic Fatigue Syndrome” is no longer the commonly accepted terminology.
If referring to the illness as “Chronic Fatigue Syndrome,” we recommend using capital letters. We feel it’s important to distinguish this disabling disease from “fatigue” that can be a symptom of many different chronic health conditions. We request that you follow these terminology guidelines when you are quoting Solve M.E. or referencing our information.
MEDIA CONTACT
Email Karman Kregloe at KKregloe@solvecfs.org or call 323-828-1655
Media Tools
- Solve M.E.: Leading the Fight to Cure ME/CFS — PDF
- Solve M.E. Advocacy & Research Programs – PDF
- Solve M.E. Media Contacts – PDF
- ME/CFS Fact & Figures Sheet – PDF
- ME/CFS FAQ — PDF
- Solve M.E. Op-Ed in the Guardian: “We Know Too Little About Covid-19 ‘long-haulers.’ We Need a Comprehensive Study” – PDF
- Solve M.E. Position Statements and Letters
RECENT PRESS RELEASES
- 12.4.20 – Chronic Disease Stakeholders Join Solve M.E. in Push for Federally Funded Research into Long COVID – PDF
- 08.11.20 – Bipartisan Women’s Caucus to Collaborate with Chronic Illness Nonprofits and Prominent Guests for Virtual, Educational Roundtable Concerning the Impact of Covid-19 on Women’s Health – PDF
- 07.13.2020 – Solve M.E. Announces Launch of You + M.E. Registry and Biobank – PDF
- 05.21.20 – Solve M.E. Announces Oved Amitay as President and Chief Executive Officer – PDF
- 04.21.2020 – 2020 ME/CFS Advocacy Day – PDF
- 05.17.2018 – 2018 ME/CFS Advocacy Day – PDF
- 05.01.2018 – 2018 Ramsay Award Medical Research Program – PDF
- 10.31.2017 – Ramsay Award Program 2017 Recipients – PDF
- 10.19.2017 – 2017 ME/CFS Discovery Forum – PDF
- 09.28.2017 – Solve ME/CFS Initiative Honored to partner on three NIH-funded centers – PDF
- 09.22.2017 – Circle Receptions in Minnesota – PDF
- 05.29.2017 – 2017 ME/CFS Awareness Rally-Sacramento – PDF
- 05.08.2017 – 2017 ME/CFS Advocacy Week in D.C. – PDF
RECENT MEDIA COVERAGE
- 01.11.2021 – How to Recover if You Have Long-Haul COVID-19 Symptoms – Healthline
- 01.08.2021 – For Many COVID-19 Survivors, Another Devastating Syndrome May Follow – Next Avenue
- 12.24.2020 – Congress Approves Over a Billion Dollars to Study the COVID-19 Long Haulers: Implications for ME/CFS – Health Rising
- 12.14.2020 – Will COVID Unlock the Secrets of Chronic Fatigue? – Healthing
- 12.5.2020 – The Potential for COVID-19 Long Hauler Research to Explain ME/CFS – Will It Pan Out? – Health Rising
- 10.16.2020 – Have We Been Thinking About Long-Haul Coronavirus All Wrong? – Time
- 09.28.2020 – Country’s Quiet Coronavirus Crisis After Devastating First Wave – Yahoo News Australia
- 09.23.2020 – As Their Numbers Grow, COVID-19 “Long Haulers” Stump Experts – Journal of the American Medical Association (JAMA)
- 09.18.2020 – “We Had No Answers”: COVID Long Haulers Still Learning Why They’re Sick – Live Science
- 09.17.2020 – HR 7057 – Historic Effort to Increase Funding for ME/CFS Gains Steam – Health Rising
- 08.27.2020 – How COVID-19 Could Reveal the Secrets of Chronic Fatigue Syndrome – Columbia Magazine
- 08.25.2020 – Conference: Links Between Long COVID, Chronic Fatigue Syndrome & Other Energy-Deficit Ills – Daily Kos
- 08.25.2020 –The Emerging Links Between Covid-19 and Chronic Fatigue Syndrome – Medium
- 08.19.2020 – We Know Too Little About Covid-19 “long-haulers.” We Need a Comprehensive Study– The Guardian
- 08.14.2020 – “A Life Sentence”: The Frightening Trend Emerging in Young Coronavirus Patients – Yahoo News Australia
- 08.5.2020 – An Offering: ME/CFS Resources and Support for the COVID-19 Long Haulers – Health Rising
- 07.29.2020 – The Solve ME/CFS Initiative Goes All In on First Ever Patient Registry for ME/CFS – Health Rising
- 07.16.2020 – “We’ve Got You Now” – Historic Effort to Increase NIH Funding for ME/CFS Begins Amid Signs of Change – Health Rising
- 06.13.2020 – The Great Split? Are Post-Infectious ME/CFS Patients Fundamentally Different? – Health Rising
- 02.21.2020 – Hitting the Wall, Unexpected Allies and Momentum Building: Emily Taylor on Year Three of the Plan to Get More Funding for ME/CFS – Health Rising
- 01.08.2020 – Patients Push Limits for Clues to Chronic Fatigue Syndrome – U.S. News & World Report
- 09.09.2019 – Did a Pivotal Moment For ME/CFS Just Happen? – HealthRising/Cort Johnson
- 05.12.2019 – Dr. G Engaging Minds 5/12/19 – KABC 790
- 05.08.2019 – 19 Things People With ME/CFS Wish Others Understand – The Mighty
- 04.11.2019 – Millions of Women are Living With ‘Invisible Illnesses’: Here’s What That Means – Health
- 10.20.2017. – Solving the Mystery of Chronic Fatigue – WebMD Health News
- 10.17.2017 – Chronic Fatigue Syndrome Research Takes Leap Forward with NIH Funding – Pink Sheet
- 8.28.17 – New Breakthrough in Understand Chronic Fatigue Syndrome – Fox News Health
- 8.18.17 – A Disease That Cries Out for Research as Many Suffer Silently – Huffington Post
- 8.1.17 – New Study Sheds Light on Chronic Fatigue Syndrome – ABC News