Solve Long Covid Initiative, in partnership with the Global Interdependence Center, is conducting a year-long webinar and conference series exploring the pandemic’s long-term healthcare, policy, and economic impact, specifically the implications of long haul COVID or long COVID. This program, in partnership with the Solve Long Covid Initiative, will feature speakers Katie Bach, a Nonresident Senior […]
Join the Solve M.E. Advocacy team for a training session outlining best practices for your congressional meetings! Register here.
In honor of World ME Day, Solve M.E. is releasing the first episode of the series Long Haul Voices: Living with Long Covid and ME/CFS worldwide. Long Haul Voices seeks to amplify the experiences of individuals with Long Covid and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), the experts devoted to improving their care, and the challenges […]
The Global Interdependence Center – Solve Long Covid Initiative Program Series: Session III: Long Covid and Children. The Global Interdependence Center, in partnership with the Solve Long Covid Initiative, is conducting a year-long webinar and conference series exploring the pandemic’s long-term healthcare, policy, and economic impact, specifically the implications of Long Covid. This program will feature speakers […]
Our friends at Aila Health are hosting a free Long Covid Summit on Wednesday, September 21 8 AM - 3 PM PT to bring together specialists, longhaulers, caregivers, advocacy organizations, researchers and health system leaders to shed light on invisible illness and why Long Covid needs more attention. Solve M.E. Vice President of Advocacy and […]
In his new book, The Long Haul: Solving the Puzzle of the Pandemic's Long Haulers and How They Are Changing Healthcare Forever, CNN journalist and ME/CFS patient advocate Ryan Prior writes about how chronically ill communities predicted the Long Covid crisis, and how patient voices should shape the medical system of the future. In this […]
During Advocacy Month 2022, we premiered a new series spotlighting the voices of several standout members of our community as they inspired us with their stories, advocated for change, and answered your questions. This series — Advocacy Cafe — became a community favorite, and we’re excited to announce that we will continue hosting more throughout […]
Advocacy Week 2023 will take place virtually and in person throughout the week of April 17th to April 22nd, 2023! Advocacy Week is a nationwide advocacy effort to connect people with ME/CFS, Long COVID, and associated conditions; scientists; clinicians, and caregivers to share their unique stories with Congress. Our ultimate goal is to make ME/CFS, […]
Advocacy Cafe is a community-favorite event that brings you more stories, inspiration, and conversations to connect and empower our advocates. This month's session will take place 7/21 at 12 pm PT/ 3 pm ET and feature a conversation with Solve M.E.’s Emily Taylor about our appropriations process. Please note — no registration is required. Join […]
Join Solve M.E., Marked By Covid, and Long COVID Alliance for an interactive discussion on key COVID policy actions: the National Task Force on the COVID-19 Pandemic Act (S.1489) and Long COVID Support Act (S.2560). This event will detail the bills, their importance for the COVID and Long Covid patient community, and next steps for […]
Join us for this month's Advocacy Cafe Chat! This session will be your chance to provide input on our Policy Advocacy Statement. We are about to begin updating the statement, which drives our decisions about the advocacy and engagement work we do here at Solve. We want to ensure that we hear from the community […]
Join us for this month's Advocacy Cafe Chat! In this session, Solve's Vice President of Advocacy and Engagement Emily Taylor will review our recently updated Policy Advocacy Statement, which drives our decisions about the advocacy and engagement work we do here at Solve. Tune in to share your views about the updated Solve Policy Advocacy […]
Orthostatic intolerance (OI) describes a group of circulatory disorders whose symptoms are characterized by a dramatic drop in blood flow to the brain when people are sitting for long periods or standing still. It is often associated with other acute issues, such as substantial drops in blood pressure, tachycardia, dizziness, fainting, or other long-term problems, […]
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