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X-WR-CALDESC:Events for Solve ME/CFS Initiative
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DTSTART;TZID=UTC:20220127T110000
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UID:31856-1643281200-1643284800@solvecfs.org
SUMMARY:Ampligen: A General Overview and the Plan for ME/CFS & Long Covid
DESCRIPTION:For the second installment in our clinical diagnostics and treatments webinar series\, Solve M.E. welcomes two leaders from bio-pharma company AIM ImmunoTech to discuss their plans for clinical studies of their investigational drug Ampligen\, in ME/CFS and Long Covid. In addition\, Drs. Lapp and Gottschalk will share insights from real-world use of Ampligen to treat patients with ME/CFS and Long Covid. \nAmpligen (Rintatolimod)\, is a drug that modulates the immune system and has anti-viral activity. It has been studied in clinical trials since the late 1980s\, and although it has been endorsed by countries outside the USA specifically for treating people with ME/CFS\, it does not have FDA approval. AIM has recently updated its plans for developing the drug in ME/CFS and Long Covid. \nThe application of Ampligen for both diseases is yet another example of how ME/CFS research can benefit people with ME/CFS and Long Covid\, and why the study of both is crucial to each community. \nJoin Solve President and CEO Oved Amitay in conversation with Thomas K. Equels\, M.S.\, J.D. (Chief Executive Officer\, AIM)\, and David R. Strayer\, M.D (Chief Scientific & Medical Officer\, AIM) to learn more about their plans for Ampligen and how the community may get involved. Dr. Charles Lapp (Medical Director\, Hunter-Hopkins Center) will discuss his use of Ampligen as a treatment for both ME/CFS and Long Covid\, and Dr. Gunnar Gottschalk (Executive Director/PI\, Simmaron Research Inc)\, will share data on the use of Ampligen in people with ME/CFS. \nRegister for the webinar here. \nDo you have a question for our panelists? Submit it to us at SolveCFS@solvecfs.org \nTo view the first webinar in our clinical diagnostics and treatments webinar series\, “Immune-Based Prediction of Long Covid and Implications for ME/CFS “ featuring Dr. Bruce Patterson\, click here.
URL:https://solvecfs.org/event/ampligen-a-general-overview-and-the-plan-for-me-cfs-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2021/12/Ampligen-FB-IG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220121T110000
DTEND;TZID=UTC:20220121T130000
DTSTAMP:20260803T151909
CREATED:20220119T173516Z
LAST-MODIFIED:20220119T173516Z
UID:32827-1642762800-1642770000@solvecfs.org
SUMMARY:Understanding Long COVID Across Communities of Color\, Including Those Hardest Hit by COVID
DESCRIPTION:The National Institutes of Health (NIH) is hosting a listening session\, “Understanding Long COVID Across Communities of Color\, Including Those Hardest Hit by COVID” on Friday 1/21 from 2PM – 4PM EST. \n\n\nThe event will be hosted by the NIH RECOVER Initiative and the Initiative’s Clinical Science Core (CSC) at NYU Langone Health.This Listening Session is part of a series of ongoing engagement activities that enable the RECOVER Initiative to hear from and better understand affected communities’ experiences\, needs\, and priorities — and\, in this case\, specifically\, how Long COVID is affecting communities of color. Recognizing that communities of color are disproportionately affected by COVID-19\, it is likely that they similarly might experience a disproportionate burden of Long COVID. \n\nTune into this link the day of the event: https://videocast.nih.gov/ 
URL:https://solvecfs.org/event/understanding-long-covid-across-communities-of-color-including-those-hardest-hit-by-covid/
LOCATION:Online
CATEGORIES:Long Covid
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/Screen-Shot-2022-01-19-at-09.34.25.png
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220121T100000
DTEND;TZID=America/Los_Angeles:20220121T110000
DTSTAMP:20260803T151909
CREATED:20211130T142746Z
LAST-MODIFIED:20220107T001640Z
UID:22804-1642759200-1642762800@solvecfs.org
SUMMARY:Using Data Analysis to Study ME/CFS and Long Covid: Session 1
DESCRIPTION:We expanded our Ramsay Grant Program in 2021 by launching the new Stupski Awards\, which support research using data from the Registry. These webinars feature the 2021 Stupski Award recipients\, Efthymios Kalafatis and Jennifer Stone\, PhD\, who will discuss their research and answer your questions. \nEfthymios [Themos] Kalafatis\nData Scientist/Machine Learning Engineer \nKalafatis will discuss tracking his ME/CFS symptoms and analyzing the data and how that led to his Stupski-funded project\, which applies powerful machine learning and text analysis methods to better understand symptoms\, identify potential associations with treatments and life events and examine models of temporal patterns. \nKalafatis has over 20 years of data and text mining experience and holds a patent on a methodology that uses machine learning\, network analysis and natural language processing for medical research. He has applied artificial intelligence techniques to research ME/CFS and natural language processing methods to analyze patient records. Themos has a BA from the University of Portsmouth and a MSc from the University of East Anglia. \nSession I\nNEW DATE: January 21\, 2022\n10-11 am PT\nPlease click here to register.
URL:https://solvecfs.org/event/using-data-analysis-to-study-me-cfs-and-long-covid-session-1/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2021/12/revised.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20220119T090000
DTEND;TZID=UTC:20220119T100000
DTSTAMP:20260803T151909
CREATED:20220119T174555Z
LAST-MODIFIED:20220119T174555Z
UID:32833-1642582800-1642586400@solvecfs.org
SUMMARY:Long COVID Clubhouse: Patients meet Researchers with Consuli Conversations
DESCRIPTION:Long COVID Clubhouse: Patients meet Researchers with Consuli Conversations. Join us on #ClubhouseApp\n Wednesday\, 1/19\n 9:00 am PT\n We’ll be speaking to #doctors #researchers & #patients\n #longcovid #longhaulers #covidsymptoms\n Search for room: Long COVID: Patients meet Researchers
URL:https://solvecfs.org/event/long-covid-clubhouse-patients-meet-researchers-with-consuli-conversations/
LOCATION:Online
CATEGORIES:Long Covid
ATTACH;FMTTYPE=image/jpeg:https://solvecfs.org/wp-content/uploads/2022/01/consuli-.jpeg
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20211216T120000
DTEND;TZID=America/Los_Angeles:20211216T130000
DTSTAMP:20260803T151909
CREATED:20211130T154057Z
LAST-MODIFIED:20211130T154057Z
UID:22829-1639656000-1639659600@solvecfs.org
SUMMARY:CDC ME/CFS Stakeholder Engagement & Communication Conference Call
DESCRIPTION:The Centers for Disease Control (CDC) holds regular Stakeholder Engagement and Communication (SEC) calls to update the ME/CFS community on CDC activities and facilitate presentations from guest speakers. The next call on December 16 will feature updates from Elizabeth Unger\, PhD\, MD (Branch Chief\, Chronic Viral Diseases Branch\, Centers for Disease Control and Prevention) and the presentation “Is ME/CFS Another Face of Long Covid?” by Solve M.E. 2018 Ramsay Grant awardee Hector Bonilla\, MD (Clinical Associate Professor\, Medicine – Infectious Diseases\, Stanford University).
URL:https://solvecfs.org/event/cdc-me-cfs-stakeholder-engagement-communication-conference-call/
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20211215T090000
DTEND;TZID=America/Los_Angeles:20211215T100000
DTSTAMP:20260803T151909
CREATED:20211213T141506Z
LAST-MODIFIED:20220107T001511Z
UID:22899-1639558800-1639562400@solvecfs.org
SUMMARY:Emily Taylor Interview with WYPR's Midday
DESCRIPTION:Solve M.E. Vice President of Advocacy and Community Engagement Emily Taylor joins WYPR’s Midday host Tom Hall on Wednesday\, December 15\, from 12-1 pm ET / 9-10 am PT for a live radio conversation about our efforts to assist survivors with Long Covid and other post-infection chronic diseases. Also joining the conversation will be Long Covid Alliance member Chimére L. Smith.  \nListen to the interview here.
URL:https://solvecfs.org/event/emily-taylor-live-interview-with-wyprs-midday/
CATEGORIES:Long Covid,Media,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2018/03/emily-e1637691757648.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20211206T110000
DTEND;TZID=America/Los_Angeles:20211206T120000
DTSTAMP:20260803T151909
CREATED:20211130T151838Z
LAST-MODIFIED:20220107T001420Z
UID:22819-1638788400-1638792000@solvecfs.org
SUMMARY:Immune-Based Prediction of Long Covid and Implications for ME/CFS
DESCRIPTION:Dr. Bruce Patterson is the CEO of IncellDx\, where he is developing a new paradigm for predicting\, identifying\, and treating people with Long Covid. \nDr. Patterson’s published scientific work suggests that Long Covid patients can be diagnosed reliably by analyzing patterns in cytokines- different types of proteins produced by a person’s immune system. Identifying a Long Covid immune system “fingerprint” may lead to a better understanding of the disease and to new treatment approaches that address the underlying causes. \nIn this webinar\, Dr. Patterson will describe his recent findings in COVID-19 and different pathogens that impair the immune system’s ability to function effectively\, and their implications for other diseases\, including ME/CFS. \nDr. Patterson made significant contributions to the diagnosis of HIV/AIDS and previously served as medical director of diagnostic virology at Stanford University School of Medicine.
URL:https://solvecfs.org/event/immune-based-prediction-of-long-covid-and-implications-for-me-cfs/
CATEGORIES:Long Covid,Webinar
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