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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220915T100000
DTEND;TZID=America/Los_Angeles:20220915T110000
DTSTAMP:20260802T084509
CREATED:20220825T223540Z
LAST-MODIFIED:20220825T223540Z
UID:36234-1663236000-1663239600@solvecfs.org
SUMMARY:OT: The Role of Occupational Therapy in Care for ME/CFS
DESCRIPTION:What is Occupational Therapy? How can it help people with ME/CFS? \nAmy Mooney\, MS OTR/L\, will share her expertise and what patients should know if they are looking for an Occupational Therapist. This webinar will describe occupational therapy’s role for providing symptom management and improving the quality of life for individuals with ME/CFS. Amy will demonstrate examples of pacing techniques and offer details of task analysis for individuals with ME/CFS. \nAs an OT with over 20 years’ experience\, Amy has worked in a variety of settings: school\, early intervention\, home health and clinic practice. Specializing in care for individuals with chronic disease\, Amy has been involved in numerous ME/CFS educational programs for medical professionals and advocacy campaigns for patients and caregivers.
URL:https://solvecfs.org/event/ot-the-role-of-occupational-therapy-in-care-for-me-cfs/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/08/Webinars-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220908T120000
DTEND;TZID=America/Los_Angeles:20220908T130000
DTSTAMP:20260802T084509
CREATED:20220829T234716Z
LAST-MODIFIED:20220831T223158Z
UID:36253-1662638400-1662642000@solvecfs.org
SUMMARY:Pediatric Post-COVID Conditions
DESCRIPTION:Long COVID & Fatiguing Illness Recovery Program \nPresenters include: \n\nPeter C. Rowe\, MD Director of the Chronic Fatigue Center at Johns Hopkins Children’s Center Professor of Pediatrics at Johns Hopkins University School of Medicine\nKatherine Rowe\, MD\nCharles W. Lapp\, MD\nAmanda Morrow\, MD\nLaura Malone MD\, PhD\nElla Eastin\n\nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nRegister here.
URL:https://solvecfs.org/event/pediatric-post-covid-conditions/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/08/Untitled-design-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220908T100000
DTEND;TZID=America/Los_Angeles:20220908T230000
DTSTAMP:20260802T084509
CREATED:20220829T234000Z
LAST-MODIFIED:20220829T234000Z
UID:36251-1662631200-1662678000@solvecfs.org
SUMMARY:Long Covid Congressional Panel
DESCRIPTION:Solve M.E. is continuing our event series with the Global Interdependence Center with a congressional panel on September 8 at 10 am PT/ 1 pm ET.  \nThis Zoom webinar will feature Congressmen Bergman and Beyer\, authors of the COVID-19 Long Hauler Act\, as well a discussion of Long Covid Policy with patient\, medical\, and organization experts
URL:https://solvecfs.org/event/long-covid-congressional-panel/
LOCATION:Online
CATEGORIES:Long Covid
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/Webinars.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220826T120000
DTEND;TZID=America/Los_Angeles:20220826T130000
DTSTAMP:20260802T084509
CREATED:20220817T165911Z
LAST-MODIFIED:20220817T170620Z
UID:36209-1661515200-1661518800@solvecfs.org
SUMMARY:NIH ME/CFS Telebriefing
DESCRIPTION:NIH’s next ME/CFS telebriefing will be held on August 26\, 2022 from 3:00- 4:00 pm ET. The telebriefing will include updates from NIH on ME/CFS-related research activities and a presentation by Lily Chu\, MD\, MSHS\, Vice President of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME)\, on highlights from the IACFS/ME 2022 Virtual Medical and Scientific Conference.During the telebriefing\, attendees will have the opportunity to ask questions out loud or to submit written questions in the Zoom Q&A box. \nRegistration is not required — join at this link.
URL:https://solvecfs.org/event/nih-me-cfs-telebriefing/
LOCATION:Online
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/08/Webinars-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220811T120000
DTEND;TZID=America/Los_Angeles:20220811T130000
DTSTAMP:20260802T084509
CREATED:20220810T233030Z
LAST-MODIFIED:20220810T233030Z
UID:36115-1660219200-1660222800@solvecfs.org
SUMMARY:Long Covid & Fatiguing Illness Recovery Program
DESCRIPTION:Physical Activity and Post-COVID Conditions \nCourtney Matrunick\, PT\, DPTNeurological Physical Therapist and Certified Aquatic Therapist – UNC Health Care &Heidi Greata PT\, DPT Vestibular Physical Therapist – UNC Hospital \nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nRegister here.
URL:https://solvecfs.org/event/long-covid-fatiguing-illness-recovery-program-2/
LOCATION:Online
CATEGORIES:Long Covid
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/08/Screen-Shot-2022-08-10-at-16.27.17.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220808
DTEND;VALUE=DATE:20220809
DTSTAMP:20260802T084509
CREATED:20220120T191219Z
LAST-MODIFIED:20220120T191219Z
UID:32891-1659916800-1660003199@solvecfs.org
SUMMARY:Severe ME Day
DESCRIPTION:Each year on August 8\, Severe ME/CFS Awareness Day\, we reflect on the tremendous toll this devastating disease takes on individuals suffering from severe ME/CFS symptoms and remember the lives of those we have lost. \nPeople living with severe ME/CFS are often bed-bound and unable to perform everyday tasks without assistance — eating\, showering\, and even standing are made nearly impossible. Their symptoms can worsen from light\, sound\, and movement. Some need 24-hour care. These severe symptoms can prevent members of our community from accessing medical care and support and lead to isolation from family and friends. \nStay tuned for more information about honoring those suffering from severe ME/CFS.
URL:https://solvecfs.org/event/severe-me-day/
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/Honoring-Empowering-Individuals-with-Severe-MECFS-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220728T123000
DTEND;TZID=America/Los_Angeles:20220728T123000
DTSTAMP:20260802T084509
CREATED:20220606T224022Z
LAST-MODIFIED:20220609T175449Z
UID:35301-1659011400-1659011400@solvecfs.org
SUMMARY:Solve M.E. Research Team at IACFS/ME 2022 Conference
DESCRIPTION:Join Solve M.E.’s research team at this year’s IACFS/ME for a special presentation by Solve M.E.’s Kate Mudie\, as well as a poster session\, during the 2022 Virtual Scientific Conference from July 27 – 30\, 2022! \n\nPresentation: Do people with joint hypermobility represent a subgroup of myalgic encephalomyelitis/ chronic fatigue syndrome?\n\nPoster Session: Baseline Characteristics of a Large\, Longitudinal Cohort of ME/CFS Patients \n\nMeeting events include workshops\, Keynote lecture by famed immunologist Akiko Iwasaki\, PhD (Yale University\, USA)\, Plenary Lecture by innovative ME/CFS clinician-researcher David Systrom\, MD (Harvard Medical School\, USA)\, and oral/ poster presentations of original research from around the world. Anyone with an interest in myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS)\, fibromyalgia\, COVID-19\, Long Covid\, post-acute sequelae of SARS-CoV-2 infection (PASC)\, dysautonomia\, and related disorders is welcomed to attend. \nRegister here.
URL:https://solvecfs.org/event/do-people-with-joint-hypermobility-represent-a-subgroup-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome/
LOCATION:Online
CATEGORIES:Long Covid,Research
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/06/Webinars-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220727T120000
DTEND;TZID=America/Los_Angeles:20220727T130000
DTSTAMP:20260802T084509
CREATED:20220606T224247Z
LAST-MODIFIED:20220606T224247Z
UID:35304-1658923200-1658926800@solvecfs.org
SUMMARY:ME/CFS and Long COVID Federal Advocacy Update
DESCRIPTION:Join a special presentation by Solve M.E.’s Emily Taylor during the 2022 Virtual Scientific Conference from July 27 – 30\, 2022! \nMeeting events include workshops\, Keynote lecture by famed immunologist Akiko Iwasaki\, PhD (Yale University\, USA)\, Plenary Lecture by innovative ME/CFS clinician-researcher David Systrom\, MD (Harvard Medical School\, USA)\, and oral/ poster presentations of original research from around the world. Anyone with an interest in myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS)\, fibromyalgia\, COVID-19\, Long Covid\, post-acute sequelae of SARS-CoV-2 infection (PASC)\, dysautonomia\, and related disorders is welcomed to attend. \nRegister here.
URL:https://solvecfs.org/event/me-cfs-and-long-covid-federal-advocacy-update/
LOCATION:Online
CATEGORIES:Conference,Long Covid,Research
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/06/Emily-IACFSME.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220721T100000
DTEND;TZID=America/Los_Angeles:20220721T110000
DTSTAMP:20260802T084509
CREATED:20220531T232752Z
LAST-MODIFIED:20220609T204520Z
UID:35209-1658397600-1658401200@solvecfs.org
SUMMARY:New Hope for Diagnosing and Treating Post-Infection Illnesses: Lessons Learned from HIV/AIDS
DESCRIPTION:In this special webinar\, Dr. Steven Deeks (Professor of Medicine-in-Residence at the University of California\, San Francisco) will be hosted by Solve M.E. Medical Advisor Dr. David Hardy (former Director of Division of Infectious Diseases at Cedars-Sinai Medical Center\, Los Angeles\, and Professor of Medicine at David Geffen School of Medicine\, University of California\, Los Angeles). The two long-time researchers and clinicians (practicing doctors) and veterans of the battle against HIV/AIDS\, will discuss how current studies on Long Covid\, informed by knowledge gained in other fields\, could help develop improved ways to diagnose and treat the broader challenge of post-infection illnesses\, such as ME/CFS. \nSince the beginning of the COVID-19 pandemic Dr. Deeks has re-focused his clinical care and research activity on this urgent need. He is now a member of the Board of Directors for the UCSF-based amfAR Institute for HIV Cure Research and a principal investigator for the NIH’s RECOVER study. In their conversation\, Drs. Deeks and Hardy will discuss the emerging scientific and medical findings\, reflect on their HIV/AIDS experience and the importance of patient engagement in research and advocacy\, and discuss the prospects for treatments and therapies. \nRegister here.
URL:https://solvecfs.org/event/lessons-learned-from-hiv-aids-new-hope-for-treating-post-infection-diseases/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/HardyDeeks.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220713T100000
DTEND;TZID=America/Los_Angeles:20220713T110000
DTSTAMP:20260802T084509
CREATED:20220606T204445Z
LAST-MODIFIED:20220606T204445Z
UID:35298-1657706400-1657710000@solvecfs.org
SUMMARY:Is There a Herpesviruses-Related Antibody Signature In Patients With ME/CFS?
DESCRIPTION:Many patients with ME/CFS experience common herpesviruses infections at their disease onset. Alternatively\, others experience reactivation of the same infections during the disease course. These facts suggest the existence of a disease-specific antibody signature related to these viruses. However\, current evidence is conflicting about this signature due to the heterogeneous nature of the disease\, the use of distinct lab assays\, and small sample sizes\, among other reasons. \nIn this webinar\, Ramsay Grant researcher Nuno Sepúlveda\, PhD\, will present new findings on this signature\, which could form the basis for developing a future diagnostic tool for ME/CFS patients with an infectious trigger. \nPlease send questions for Dr. Sepúlveda to solvecfs@solvecfs.org. \nRegister here.
URL:https://solvecfs.org/event/is-there-a-herpesviruses-related-antibody-signature-in-patients-with-me-cfs/
LOCATION:Online
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/06/Nuno-Webinar-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220623T100000
DTEND;TZID=America/Los_Angeles:20220623T110000
DTSTAMP:20260802T084509
CREATED:20220510T235818Z
LAST-MODIFIED:20220523T234349Z
UID:35033-1655978400-1655982000@solvecfs.org
SUMMARY:How We Can See ME/CFS Inflammation in the Brain
DESCRIPTION:Dr. Jarred Younger’s 2016 Ramsay Award was used to show that brain temperature is elevated in ME/CFS. This increased temperature is a sign of brain inflammation. The findings are now being replicated in a large group of individuals with ME/CFS. \nDr. Younger’s lab is now developing new magnetic resonance imaging (MRI) and positron emission tomography (PET) scans that can determine whether someone is suffering from brain inflammation. The goal of this research is to conclusively show that brain inflammation should be made a primary target for ME/CFS treatment. \nIn this webinar\, Dr. Younger will give updates on the brain inflammation research\, describe the studies coming up\, and discuss directions for improved ME/CFS treatment \n\n\nRegister here.
URL:https://solvecfs.org/event/how-we-can-see-me-cfs-inflammation-in-the-brain/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/Younger-Updated.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220613T100000
DTEND;TZID=America/Los_Angeles:20220613T110000
DTSTAMP:20260802T084509
CREATED:20220429T201653Z
LAST-MODIFIED:20220523T234437Z
UID:34885-1655114400-1655118000@solvecfs.org
SUMMARY:ME/CFS: NO problem?
DESCRIPTION:In 2019\, Francisco Westermeier\, PhD\, was awarded a Ramsay Research Grant by Solve M.E. to study endothelial function in ME/CFS. Like many other researchers in the Ramsay network\, Dr. Westermeier has since been dedicated to expanding the ME/CFS knowledge base. \nIn the coming months\, Dr. Westermeier and his team will be working to expand evidence of the reduced ability of ME/CFS patients to produce nitric oxide (NO). \nIn this webinar\, Dr. Westermeier will discuss this Solve M.E.- supported project that uses samples from the UK ME/CFS Biobank. \nPlease send questions for Dr. Westermeier to solvecfs@solvecfs.org.
URL:https://solvecfs.org/event/me-cfs-no-problem-2/
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/04/Francisco-Updated-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220610T080000
DTEND;TZID=America/Los_Angeles:20220610T210000
DTSTAMP:20260802T084509
CREATED:20220525T201906Z
LAST-MODIFIED:20220525T201906Z
UID:35182-1654848000-1654894800@solvecfs.org
SUMMARY:2022 INIM Conference
DESCRIPTION:Join the Institute for Neuro-Immune Medicine (Nova Southeastern University) on Friday\, June 10th for their annual 2022 INIM Conference.\n\n\n\nThe Institute’s clinicians and researchers will discuss research and the various clinical approaches to ME/CFS and Long Covid. Patients\, caregivers\, family members and friends are welcome to attend.\n\n\nRegister here.
URL:https://solvecfs.org/event/2022-inim-conference/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/jpeg:https://solvecfs.org/wp-content/uploads/2022/05/2022-INIM-Conference.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220609T120000
DTEND;TZID=America/Los_Angeles:20220609T130000
DTSTAMP:20260802T084509
CREATED:20220602T193359Z
LAST-MODIFIED:20220602T193359Z
UID:35288-1654776000-1654779600@solvecfs.org
SUMMARY:Long COVID & Fatiguing Illness Recovery Program
DESCRIPTION:The Patient Perspective on Post-Infectious Fatiguing Illnesses \nSonak Pastakia\, PharmD\, MPH\, PhD\, BCPS\, FCCP ME\nPatient since 2017 Professor of Pharmacy Practice Purdue University for Health Equity and Innovation \nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nRegister here.
URL:https://solvecfs.org/event/long-covid-fatiguing-illness-recovery-program/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/06/Untitled-design-8.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220607T110000
DTEND;TZID=America/Los_Angeles:20220607T120000
DTSTAMP:20260802T084509
CREATED:20220511T000248Z
LAST-MODIFIED:20220524T001451Z
UID:35036-1654599600-1654603200@solvecfs.org
SUMMARY:Long Covid and Children
DESCRIPTION:The Global Interdependence Center – Solve Long Covid Initiative Program Series: Session III: Long Covid and Children. \nThe Global Interdependence Center\, in partnership with the Solve Long Covid Initiative\, is conducting a year-long webinar and conference series exploring the pandemic’s long-term healthcare\, policy\, and economic impact\, specifically the implications of Long Covid. \nThis program will feature speakers Megan Carmilani\, Founder of Long Covid Families\, Dr. Peter Rowe\, Director of the Children’s Center Chronic Fatigue Clinic and Professor of Pediatrics\, Johns Hopkins\, and Stewart Gittelman\, Former CEO of Advanced Care\, Inc. (ACI)\, and Trevor Gittelman\, a myalgic encephalomyelitis (ME/CFS) patient. \nRegister here.
URL:https://solvecfs.org/event/long-covid-and-children/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/GIC-Rowe-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220526T100000
DTEND;TZID=America/Los_Angeles:20220526T113000
DTSTAMP:20260802T084509
CREATED:20220118T002434Z
LAST-MODIFIED:20220427T180158Z
UID:32704-1653559200-1653564600@solvecfs.org
SUMMARY:EmPOWER M.E.: State Advocacy
DESCRIPTION:This year\, our EmPOWER ME roundtable will focus on local advocacy. They say “all politics is local.” What does that mean for creating change for ME/CFS and Long Covid? \nJoin our panel of veteran state advocates as they discuss the importance of local and state advocacy. We’ll hear about initiatives in CA\, FL\, MA\, MD\, MN\, DE\, and NY\, and learn tips for starting projects in your neck of the woods. \nParticipants include: \nMelinda Lipscomb (MD)\nArt Mirin (CA)\nCharmian Proskauer (MA)\nLaura Bucholtz (FL)\nSuzanne Wheeler (MN)\nCharonda Johnson (DE)\nTerri Wilder (NY)
URL:https://solvecfs.org/event/empower-m-e/
LOCATION:Online
CATEGORIES:Advocacy Month 2022
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/IG-Empower-ME-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220524T090000
DTEND;TZID=America/Los_Angeles:20220524T100000
DTSTAMP:20260802T084509
CREATED:20220524T002131Z
LAST-MODIFIED:20220524T002131Z
UID:35157-1653382800-1653386400@solvecfs.org
SUMMARY:Leveraging EHR/Real World Data to Understand PASC
DESCRIPTION:Join the National Health Institutes (NIH) RECOVER Research Review (R3) Seminar Series\, “Leveraging EHR/Real World Data to Understand PASC\,” by registering here: http://ow.ly/sZep50Jg45C.  \nThe goal of the R3 Seminar Series is to catalyze a shared understanding of the research of the scientific stakeholder community within the RECOVER Consortium. Working and learning together while keeping each other up to date on their latest insights accelerates discoveries. Some sessions will also inform the public about RECOVER and other research on PASC.  All sessions will be recorded and posted to recovercovid.org. \nThe next seminar of the series is Tuesday\, May 24 12:00-1:30 PM EDT. It will be a panel discussion titled\, “Leveraging EHR/Real World Data to Understand PASC.” Panelists for the seminar will be: \n\nMelissa Haendel\, PhD\, University of Colorado Anschutz Medical Campus\nChristopher Chute\, MD\, DrPH\, MPH\, Johns Hopkins University\nRainu Kaushal\, MD\, MPH\, Weill Cornell Medicine; New York-Presbyterian Hospital\nThomas Carton\, PhD\, MS\, Louisiana Public Health Institute\nJosh Fessel\, MD\, PhD\, National Center for Advancing Translational Sciences (NCATS); National Institutes of Health\nRachel Hess\, MD\, MS\, University of Utah School of Medicine
URL:https://solvecfs.org/event/leveraging-ehr-real-world-data-to-understand-pasc/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/Screen-Shot-2022-05-23-at-17.21.01.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220519
DTEND;VALUE=DATE:20220520
DTSTAMP:20260802T084509
CREATED:20220302T010059Z
LAST-MODIFIED:20220517T205140Z
UID:33477-1652918400-1653004799@solvecfs.org
SUMMARY:Signature Event: Long Covid: Research\, Policy and Economic Impact
DESCRIPTION:The Global Interdependence Center\, in partnership with the Solve Long Covid Initiative\, is continuing our conference series exploring the pandemic’s long-term healthcare\, policy\, and economic impact\, specifically the implications of long haul COVID or long COVID. Together\, we invite you to join us for the signature event of this series\, an in-person conference in New York City on Thursday\, May 19\, 2022. \nThe purpose of our conference is to raise awareness of Long Covid by examining the science and research behind it and we hope can join us through one of our registration options\, including in-person or virtual attendance. For those joining us in person\, we are delighted to provide a Patient Rest Area on site at the event. This quiet space will be a rest area for patients who need to step away for flare-up/sensory overload equipped with cots/chairs/blankets. \nSession topics of the conference will include: \n\nA special report from the Solve Long Covid Initiative\nDefining/diagnosing Long Covid\nThe economic recovery and the policy response\nScientific research\nOutlook for the labor force and labor market challenges\nThe human experience\nIndustry specific implications for:\n\nHealth insurers and health care\nPharmaceuticals\nPolicymakers and government officials\n\n\n\nLearn more and register here. \nSpecial thanks to our sponsor\, Responsum Health\, a customized\, uniquely individualized chronic disease patient platform\, for providing streaming services for this event. 
URL:https://solvecfs.org/event/signature-event-long-covid-research-policy-and-economic-impact/
CATEGORIES:Advocacy Month 2022,Conference,Long Covid,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/GIC-sig-event.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220517
DTEND;VALUE=DATE:20220518
DTSTAMP:20260802T084509
CREATED:20220118T002358Z
LAST-MODIFIED:20220426T004049Z
UID:32702-1652745600-1652831999@solvecfs.org
SUMMARY:Senate Action Day
DESCRIPTION:Participants who register to participate in meetings with their elected officials will receive personalized meeting links via email or the advocacy portal. \nRegister is closed\, but advocates wishing to participate in online action can visit our action kit.
URL:https://solvecfs.org/event/senate-action-day/
LOCATION:Online
CATEGORIES:Advocacy Month 2022
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220512T120000
DTEND;TZID=America/Los_Angeles:20220512T130000
DTSTAMP:20260802T084510
CREATED:20220505T171219Z
LAST-MODIFIED:20220505T171352Z
UID:34994-1652356800-1652360400@solvecfs.org
SUMMARY:Long COVID & Fatiguing Illness Recovery Program ECHO
DESCRIPTION:History of ME/CFS \nLucinda Bateman\, MD\nMedical Director\, Provider\, & Research expert in the diagnosis and treatment of ME/CFS.\nFounder and Chief Medical Officer of the Bateman Horne Center of Excellence \nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nTo register: Click Here
URL:https://solvecfs.org/event/long-covid-fatiguing-illness-recovery-program-echo-2/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220512
DTEND;VALUE=DATE:20220513
DTSTAMP:20260802T084510
CREATED:20220510T223717Z
LAST-MODIFIED:20220510T223858Z
UID:35021-1652313600-1652399999@solvecfs.org
SUMMARY:World Premiere: Long Haul Voices
DESCRIPTION:In honor of World ME Day\, Solve M.E. is releasing the first episode of the series Long Haul Voices: Living with Long Covid and ME/CFS worldwide. Long Haul Voices seeks to amplify the experiences of individuals with Long Covid and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)\, the experts devoted to improving their care\, and the challenges surrounding these largely invisible\, poorly-understood diseases that affect a rapidly growing population.  \nThis mini-series\, created in partnership with Unfixed Media Productions\, is directed by Kimberly Warner\, an award-winning filmmaker with her own chronic disease experience\, and edited by Emmy award winner Michael Wolcott. Each cast member also shares a connection to ME/CFS and/or Long Covid\, including:  \n\nCynthia Adinig – Patient Advocate & Equity Policy Advisor (Long Covid\, POTS\, MCAS)\nPaul Burnside – Retired Banker\, Organist (Long Covid\, Vestibular Neuritis)\nDr. Anthony Komaroff – Professor of Medicine Harvard Medical School\nSoh-Yeon Lee – Senior Program Analyst (ME/CFS)\nLili Lim – Actor\, Comedian (ME/CFS)\nDr. Nina Muirhead – Dermatology Surgeon (ME/CFS)\nDr. Amy Proal – Microbiologist & Viral Science Advisor\nBilal Qizibash – CEO (Long Covid\, Autism)\nSarah Ramey – Author/Musician (ME/CFS\, CRPS\, POTS)\nEmily Taylor – VP Advocacy & Engagement at Solve M.E.\, ME/CFS Patient Caregiver\n\n\nWatch a teaser clip here. \nOn May 12\, tune in for Episode One: Long Haul Patients here. \n 
URL:https://solvecfs.org/event/world-premiere-long-haul-voices/
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220512
DTEND;VALUE=DATE:20220513
DTSTAMP:20260802T084510
CREATED:20220120T191418Z
LAST-MODIFIED:20220426T004317Z
UID:32894-1652313600-1652399999@solvecfs.org
SUMMARY:World ME Day
DESCRIPTION:Solve M.E. is proud to be a partner in the first-ever World ME Day\, May 12\, 2022. We’re joining ME/CFS organizations around the world to campaign together and raise awareness with the theme #LearnFromME. Learn more: http://worldmeday.org/ \nME/CFS is a chronic\, complex\, neuroimmune disease that profoundly limits the health and productivity of patients. There is no cure\, nor are there any FDA-approved drugs or treatments. Symptoms can include extreme exhaustion at the cellular level (exacerbated by activity)\, and neurological symptoms such as: extreme sensitivity to light and sound\, cognitive impairment\, and even complete organ system shutdown.  \n 
URL:https://solvecfs.org/event/international-me-awareness-day/
CATEGORIES:Advocacy Month 2022
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220511
DTEND;VALUE=DATE:20220512
DTSTAMP:20260802T084510
CREATED:20220118T002321Z
LAST-MODIFIED:20220426T003939Z
UID:32700-1652227200-1652313599@solvecfs.org
SUMMARY:House Action Day 2
DESCRIPTION:Participants who register to participate in meetings with their elected officials will receive personalized meeting links via email or the advocacy portal. \nRegister is closed\, but advocates wishing to participate in online action can visit our action kit.
URL:https://solvecfs.org/event/house-action-day-2/
LOCATION:Online
CATEGORIES:Advocacy Month 2022
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220510
DTEND;VALUE=DATE:20220511
DTSTAMP:20260802T084510
CREATED:20220118T002204Z
LAST-MODIFIED:20220426T004017Z
UID:32698-1652140800-1652227199@solvecfs.org
SUMMARY:House Action Day
DESCRIPTION:Participants who register to participate in meetings with their elected officials will receive personalized meeting links via email or the advocacy portal. \nRegister is closed\, but advocates wishing to participate in online action can visit our action kit.
URL:https://solvecfs.org/event/house-action-day/
LOCATION:Online
CATEGORIES:Advocacy Month 2022
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220504T100000
DTEND;TZID=America/Los_Angeles:20220504T110000
DTSTAMP:20260802T084510
CREATED:20220413T204106Z
LAST-MODIFIED:20220425T201500Z
UID:34533-1651658400-1651662000@solvecfs.org
SUMMARY:Remote Congressional Meeting Training
DESCRIPTION:Join the Solve M.E. Advocacy team for a training session outlining best practices for your congressional meetings! \nRegister here.
URL:https://solvecfs.org/event/remote-congressional-meeting-training/
LOCATION:Online
CATEGORIES:Advocacy Month 2022
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/04/Remote-Congressional-Meeting-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220502T100000
DTEND;TZID=America/Los_Angeles:20220502T110000
DTSTAMP:20260802T084510
CREATED:20220118T002046Z
LAST-MODIFIED:20220426T002535Z
UID:32691-1651485600-1651489200@solvecfs.org
SUMMARY:Advocacy Month Kickoff
DESCRIPTION:We are kicking off Advocacy Month with a keynote address by disability advocate Jessica Kellgren-Fozard and a discussion about the importance of sharing our stories and raising our voices to create change! \nRegister here.
URL:https://solvecfs.org/event/advocacy-month-kickoff/
LOCATION:Online
CATEGORIES:Advocacy Month 2022
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Shanghai:20220421T100000
DTEND;TZID=Asia/Shanghai:20220421T110000
DTSTAMP:20260802T084510
CREATED:20220414T161402Z
LAST-MODIFIED:20220414T221551Z
UID:34561-1650535200-1650538800@solvecfs.org
SUMMARY:CDMRP for ME/CFS: Navigating the Grant Application Process
DESCRIPTION:The FY22 Defense Appropriation provides funding to support therapeutic research related to medical threats\, and treatments for Service Members in current and future battlefield settings. The managing agent for the funding opportunities is the Department of Defense Office of Congressionally Directed Medical Research Programs (CDMRP) at the U.S. Army Medical Research and Development Command (USAMRDC). One of the Focus Areas for funding in FY22 is myalgic encephalomyelitis/chronic fatigue syndrome. Last year\, ME/CFS researchers received $2.5 million in funding from the Peer-Reviewed Medical Research Program. \nThis informational webinar is designed to better inform and prepare the ME/CFS research community about the Peer Reviewed Medical Research Program (PRMRP) and the grant application process.  Panelists include Cecilia Dupecher\, PhD (Program Manager for PRMRP at the Congressionally Directed Medical Research Programs – CDMRP) and Solve M.E.’s Oved Amitay\, Emily Taylor\, and Leslie Phillips. \nIf you have questions for our panelists\, please send them to SolveCFS@solvecfs.org.
URL:https://solvecfs.org/event/cdmrp-for-me-cfs-navigating-the-grant-application-process/
CATEGORIES:Research,Solve M.E. Leadership,Webinar
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Krasnoyarsk:20220412T130000
DTEND;TZID=Asia/Krasnoyarsk:20220412T140000
DTSTAMP:20260802T084510
CREATED:20220309T205636Z
LAST-MODIFIED:20220401T222237Z
UID:33569-1649768400-1649772000@solvecfs.org
SUMMARY:Long Covid: Research\, Policy and Economic Impact (Session II)
DESCRIPTION:Solve Long Covid Initiative\, in partnership with the Global Interdependence Center\, is conducting a year-long webinar and conference series exploring the pandemic’s long-term healthcare\, policy\, and economic impact\, specifically the implications of long haul COVID or long COVID. \nThis program\, in partnership with the Solve Long Covid Initiative\, will feature speakers Katie Bach\, a Nonresident Senior Fellow at Brookings\, and Melissa Smallwood\, a Graduate Student Researcher\, College of Global Futures. Our speakers will participate in a live audience Q&A moderated by Emily Taylor\, Vice President of Advocacy and Community Engagement at Solve M.E. \nOver the next twelve months\, GIC and SLCI will bring together world-class immunologists\, medical experts\, policymakers\, and economists to explore critical insights into defining\, diagnosing\, optimizing treatments\, and healthcare policies for long COVID and analyzing its impact on U.S. and global labor markets. \nLearn more and register here.
URL:https://solvecfs.org/event/long-covid-research-policy-and-economic-impact-session-ii/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220407T100000
DTEND;TZID=UTC:20220407T110000
DTSTAMP:20260802T084510
CREATED:20220303T053514Z
LAST-MODIFIED:20220309T210703Z
UID:33495-1649325600-1649329200@solvecfs.org
SUMMARY:ME/CFS: NO problem?
DESCRIPTION:Nitric oxide (NO) – a gas produced by cells lining the blood vessels (endothelial cells) – helps to promote the widening of blood vessels (vasodilation) and is involved in the immune and metabolic systems. This key process allows oxygenated blood to reach tissues throughout the body. The production of NO increases in response to physical activity in healthy individuals. However\, their findings in vitro suggest that ME/CFS patients might have a reduced ability to produce NO. \nOver the next few months\, Ramsay Researcher Dr. Francisco Westermeier and his team aim to expand the existing evidence by analyzing several biochemical pathways and metabolites responsible for NO production. \nIn this webinar\, Dr. Westermeier will discuss this Solve M.E.- supported project that uses samples from the UK ME/CFS Biobank. \nRegister here.
URL:https://solvecfs.org/event/me-cfs-no-problem/
LOCATION:Online
CATEGORIES:Webinar
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220316T130000
DTEND;TZID=UTC:20220316T140000
DTSTAMP:20260802T084510
CREATED:20220310T165208Z
LAST-MODIFIED:20220310T165716Z
UID:33573-1647435600-1647439200@solvecfs.org
SUMMARY:Implications of ME/CFS Case Definitions for Long Covid
DESCRIPTION:Our friends at the U.S. Action Working Group are hosting Dr. Leonard Jason\, Professor of Psychology DePaul University\, for a special webinar event. \nLeonard Jason’s talk will cover the content below: \nEvery disease has a case definition\, and these entities are crucial\, as they allow patients to have a diagnosis for a constellation of symptoms as well as for scientists who can research those with the illness versus those without the illness. If difficulties occur in arriving at a reliable case definition\, there are serious consequences for patients\, as they would then be unsure whether or not they have the illness\, as well as for scientists\, who might then have difficulties in estimating prevalence as well as finding biomarkers. This has occurred for the post-viral illness that is known as ME/CFS and has already begun to occur for Long COVID. The consequences have been increased stigma for patients as to when patient heterogeneity makes it difficult to identify biomarkers\, and when they are not identified\, health care workers can easily attribute the condition to solely psychiatric reasons. The relevance of ME/CFS takes on even greater importance given recent findings that a PASC-anticipating risk factor at the time of initial COVID-19 diagnosis is the Epstein-Barr virus viremia\, which has also been associated with ME/CFS. \nRegister here.
URL:https://solvecfs.org/event/implications-of-me-cfs-case-definitions-for-long-covid/
LOCATION:Online
CATEGORIES:Webinar
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END:VCALENDAR