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X-WR-CALDESC:Events for Solve ME/CFS Initiative
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230123T120000
DTEND;TZID=America/Los_Angeles:20230123T130000
DTSTAMP:20260802T003016
CREATED:20221031T215217Z
LAST-MODIFIED:20221031T215217Z
UID:36829-1674475200-1674478800@solvecfs.org
SUMMARY:Meghan O’Rourke On Her NYT Bestseller  The Invisible Kingdom: Reimagining Chronic Illness
DESCRIPTION:Meghan O’Rourke will join us on Monday\, January 23\, 2023 at 12 PM PT to discuss her New York Times bestseller The Invisible Kingdom: Reimagining Chronic Illness\, which is a finalist for the National Book Award in nonfiction. \nMeghan is recipient of numerous literary awards\, including a Guggenheim Fellowship\, a Radcliffe Fellowship\, a Lannan Literary Fellowship\, and the Union League Prize for Poetry from the Poetry Foundation. She is also editor of The Yale Review. Her writing has appeared in The Atlantic Monthly\, The New Yorker\, and the New York Times. \nRegister today for the chance to win a free signed copy of The Invisible Kingdom! \nRegister here.
URL:https://solvecfs.org/event/meghan-orourke-on-her-nyt-bestseller-the-invisible-kingdom-reimagining-chronic-illness/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/10/Meghan.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221220T100000
DTEND;TZID=America/Los_Angeles:20221220T110000
DTSTAMP:20260802T003016
CREATED:20221214T003117Z
LAST-MODIFIED:20221214T003117Z
UID:37305-1671530400-1671534000@solvecfs.org
SUMMARY:Long COVID Technology
DESCRIPTION:As we approach the end of the year\, we are also wrapping up a stellar\, year-long webinar partnership with the Global Interdependence Center that has explored the pandemic’s long-term healthcare\, policy\, and economic impact\, specifically the implications of Long Covid. \nThe final installment in the series\, “Long Covid Technology\,” will take place on December 20. This webinar will explore the impacts technology has had on Long Covid developments with speaker Amy Proal\, Ph.D.\, Microbiologist/Research Team Coordinator at PolyBio Research Foundation\, Miguel Antonatos\, MD\, founder of Text2Med\, Harry Leeming\, founder of Visible\, and Andrew Rosenberg\, founder of Responsum Health. \n \nRegister here.
URL:https://solvecfs.org/event/long-covid-technology/
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/Webinars.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221215T100000
DTEND;TZID=America/Los_Angeles:20221215T110000
DTSTAMP:20260802T003016
CREATED:20221102T213657Z
LAST-MODIFIED:20221213T200457Z
UID:36932-1671098400-1671102000@solvecfs.org
SUMMARY:Challenges in Ensuring Equity In the Study and Treatment of ME/CFS and Long Covid
DESCRIPTION:Co-presented by Peter Rowe\, MD (Professor of Pediatrics\, Director\, Johns Hopkins Children’s Center Chronic Fatigue Clinic) and Camille Broussard\, MD\, MPH (Assistant Professor in the Division of Adolescent and Young Adult Medicine at Johns Hopkins School of Medicine)\, this webinar will explore the dissonant results of epidemiologic studies that suggest Latinx and Black individuals have a higher risk of ME/CFS and Long Covid than Whites\, while ME/CFS and Long Covid clinic populations in different countries are disproportionately composed of White individuals. We will look at the course of one young Black ME/CFS patient\, Jailyn Mercadel\, RN\, and hear from her about her experiences with the healthcare system. Dr. Broussard will then lead a discussion of the possible causes of the dissonant clinical and epidemiological findings\, and make suggestions for a more equitable approach to studies and clinical care. \nRegister here.
URL:https://solvecfs.org/event/challenges-in-ensuring-equity-in-the-study-and-treatment-of-me-cfs-and-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/11/RoweBroussard-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221129T100000
DTEND;TZID=America/Los_Angeles:20221129T110000
DTSTAMP:20260802T003016
CREATED:20221102T210847Z
LAST-MODIFIED:20221102T210847Z
UID:36930-1669716000-1669719600@solvecfs.org
SUMMARY:Long Covid in the Media
DESCRIPTION:Solve M.E. is continuing our event series with the Global Interdependence Center with a panel on November 29 10AM PT.  \nThe sixth installment of the GIC Solve Long Covid Initiative Program Series will explore the impact and coverage of Long Covid in the media. Join us virtually with speakers\, Cynthia Adinig\, Long Covid Advocate and Equity Policy Advisor\, Sandhya Kambhampati\, data reporter on the Los Angeles Times Data Desk\, and Fiona Lowenstein\, Founder of Body Politic. This event will also feature Meghan O’Rourke\, author of the New York Times bestseller “The Invisible Kingdom: Reimagining Chronic Illness.”
URL:https://solvecfs.org/event/long-covid-in-the-media/
LOCATION:Online
CATEGORIES:Long Covid,Media,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/Webinars.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221122T100000
DTEND;TZID=America/Los_Angeles:20221122T110000
DTSTAMP:20260802T003016
CREATED:20221031T214904Z
LAST-MODIFIED:20221031T214904Z
UID:36826-1669111200-1669114800@solvecfs.org
SUMMARY:Fiona Lowenstein\, Dona Kim Murphey and  The Long Covid Survival Guide
DESCRIPTION:For people living with Long Covid\, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms\, and with doctors continuing to work toward a cure\, people experiencing Long Covid are often left with more questions than answers. The Long Covid Survival Guide is the first patient-to-patient guide for people living with Long Covid—with expert advice on getting diagnosed\, dealing with symptoms\, accessing resources and accommodations\, and more.  \nEditor Fiona Lowenstein (award-winning journalist\, producer\, speaker\, and the founder of Body Politic) will join us on Tuesday\, November 22 at 10 AM PT to talk about the book. They’ll be joined by contributor Dona Kim Murphey\, a board certified clinical neurophysiologist who co-authored with Dr. David Putrino a Survival Guide chapter on diagnosis. \nWhether you’re a caregiver or a person with Long Covid\, ME/CFS\, or another associated condition\, this webinar will include relevant information about how to take care of yourself and what comes next. Register today for the chance to win a free signed copy of The Long Covid Survival Guide! \nRegister here.
URL:https://solvecfs.org/event/fiona-lowenstein-dona-kim-murphey-and-the-long-covid-survival-guide/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/10/Fio-Dona.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221114T100000
DTEND;TZID=America/Los_Angeles:20221114T110000
DTSTAMP:20260802T003016
CREATED:20221031T214538Z
LAST-MODIFIED:20221031T214538Z
UID:36823-1668420000-1668423600@solvecfs.org
SUMMARY:Ryan Prior On The Long Haul and  How Patients Can Change the World
DESCRIPTION:In his new book\, The Long Haul: Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever\, CNN journalist and ME/CFS patient advocate Ryan Prior writes about how chronically ill communities predicted the Long Covid crisis\, and how patient voices should shape the medical system of the future. \nIn this webinar hosted by Solve M.E. VP of Advocacy and Engagement Emily Taylor\, Prior talks about The Long Haul and how getting Long Covid treatments right could help revolutionize care for all complex\, chronic illnesses. Join us Monday\, November 14 at 10 AM PT. Register today for the chance to win a free signed copy of The Long Haul! \nRegister here.
URL:https://solvecfs.org/event/ryan-prior-on-the-long-haul-and-how-patients-can-change-the-world/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/10/Ryan.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221108T090000
DTEND;TZID=America/Los_Angeles:20221108T103000
DTSTAMP:20260802T003016
CREATED:20221102T204439Z
LAST-MODIFIED:20221102T204639Z
UID:36927-1667898000-1667903400@solvecfs.org
SUMMARY:Understanding the Biomarkers of PASC (otherwise known as Long Covid)
DESCRIPTION:The RECOVER Research Review (R3) Seminar Series will host a panel discussion titled\, “Understanding the Biomarkers of PASC” on Tuesday\, November 8th 12:00-1:30 PM EDT featuring: \n\nMichael Peluso\, MD\, University of California\, San Francisco\nMohamed Abdel-Mohsen\, PhD\, The Wistar Institute\nDavid R. Walt\, PhD\, Harvard Medical School; Brigham and Women’s Hospital \nGrace McComsey\, MD\, University Hospitals Health System; Case Western Reserve University \n\n\nThe goal of the R3 Seminar Series is to catalyze a shared understanding of the research of the scientific stakeholder community\, keep researchers up to date on insights and discoveries\, and inform the public about RECOVER and other research on PASC (otherwise known as Post-Covid or Long Covid).\n \nRegister here.
URL:https://solvecfs.org/event/understanding-the-biomarkers-of-pasc-otherwise-known-as-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/11/Recover-118.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221024T100000
DTEND;TZID=America/Los_Angeles:20221024T110000
DTSTAMP:20260802T003016
CREATED:20220908T180809Z
LAST-MODIFIED:20220908T190616Z
UID:36345-1666605600-1666609200@solvecfs.org
SUMMARY:COVID-19 as a Trigger for ME/CFS: Severity Biomarkers and Underlying Mechanisms
DESCRIPTION:Since the beginning of the pandemic\, SARS-CoV-2 has been suspected of causing chronic fatigue syndrome (ME/CFS). A well-controlled cohort study conducted by a group of researchers from Charité – Universitätsmedizin Berlin and the Max Delbrück Center for Molecular Medicine (MDC) has now shown that in the subset of patients who suffer from fatigue and exertion intolerance after mild-COVID-19\, around half of patients meet the diagnostic criteria for ME/CFS. \nTheir findings also describe differences between post-COVID ME/CFS patients and ME/CFS patients in the correlation between hand grip strength and inflammatory biomarkers. This may indicate differences in underlying mechanisms. The researchers’ findings have been published in Nature Communications. \nIn this webinar\, Prof. Dr. Carmen Scheibenbogen (Acting Director of Charité’s Institute of Medical Immunology on Campus Virchow-Klinikum and Solve M.E. Ramsay Research Grant awardee) will discuss the findings of this study\, and how the new findings may help researchers to develop specific treatments for post-Covid ME/CFS and ME/CFS. \nRegister here.
URL:https://solvecfs.org/event/covid-19-as-a-trigger-for-me-cfs-severity-biomarkers-and-underlying-mechanisms/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/09/Carmen-S-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221013T120000
DTEND;TZID=America/Los_Angeles:20221013T130000
DTSTAMP:20260802T003016
CREATED:20220927T171943Z
LAST-MODIFIED:20220927T171943Z
UID:36420-1665662400-1665666000@solvecfs.org
SUMMARY:Long Covid & Fatiguing Illness Recovery Program
DESCRIPTION:Research Update \nFeaturing: \n\nAvindra Nath\, MD (Clinical Director of National Institute of Neurological Disorders and Stroke – NIH; Chief of the Section of Infections of the Nervous System – NIH; Director of the Translational Neuroscience Center – NIH) Article: https://academic.oup.com/brain/article/145/7/2555/6621999\nHector Bonilla\, MD (Associate Professor of Medicine and Infectious Diseases – Stanford University Medical Director – ME/CFS Clinic – Stanford University) Article: https://pubmed.ncbi.nlm.nih.gov/35195253/\nAnna Nordvig\, MD (Assistant Professor of Neurology and Neuroscience – New York Presbyterian/ Weill Cornell Memory Disorders Program) Article: https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awac270/6672950\nPanelist: Michelle Haddad\, PhD\n\nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nRegister here.
URL:https://solvecfs.org/event/long-covid-fatiguing-illness-recovery-program-3/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/09/Echo-1013.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221007
DTEND;VALUE=DATE:20221009
DTSTAMP:20260802T003016
CREATED:20220829T205323Z
LAST-MODIFIED:20220829T205415Z
UID:36247-1665100800-1665273599@solvecfs.org
SUMMARY:ME/CFS + Long Covid International Conference 2022
DESCRIPTION:The Finnish Association of Orthopaedic Manual Therapy (FIAOMT) is hostng an international conference of ME/CFS and Long Covid – Treatment and Rehabilitation is held in Tampere Finland (also online) on 7-8 October 2022. The conference presents current information about ME/CFS and Long Covid. \nThis two-day conference will review the challenges of understanding the pathophysiology\, risk factors\, clinical presentation\, treatment and rehabilitation of post COVID-19 condition (Long COVID) and ME/CFS (myalgic encephalomyelitis/ chronic fatigue syndrome). Bringing together top researchers\, clinicians and therapists working in this field we can better understand the underlying mechanisms and identify potential treatments. \nLearn more here.
URL:https://solvecfs.org/event/me-cfs-long-covid-international-conference-2022/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/08/Hoito-ja-kuntoutus-MECFS-Long-COVID9.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221003
DTEND;VALUE=DATE:20221004
DTSTAMP:20260802T003016
CREATED:20220906T221240Z
LAST-MODIFIED:20220906T221240Z
UID:36340-1664755200-1664841599@solvecfs.org
SUMMARY:Long Covid Stakeholder Meeting
DESCRIPTION:The National Center for Health Research is hosting a national conference on October 3 featuring Long Covid healthcare professionals and patient advocates about effective treatments and interventions for Long Covid\, as well as research that is needed or underway. \nSpeakers and panel discussions will include topics such as autoimmune diseases\, challenges for caregivers\, overlap of Long Covid and ME/CFS\, Long Covid in children\, and the role of VA medical centers\, among others. \nPlease register by emailing Ashley at info@center4research.org. Please indicate if you are planning to attend a) in person or b) remotely\, and if in-person if you would like to request travel funds.
URL:https://solvecfs.org/event/long-covid-stakeholder-meeting/
LOCATION:Online
CATEGORIES:Conference,Long Covid
ATTACH;FMTTYPE=image/jpeg:https://solvecfs.org/wp-content/uploads/2022/09/Oct-3-LC-Conference.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220921T080000
DTEND;TZID=America/Los_Angeles:20220921T150000
DTSTAMP:20260802T003016
CREATED:20220912T183613Z
LAST-MODIFIED:20220912T183631Z
UID:36349-1663747200-1663772400@solvecfs.org
SUMMARY:Aila Health Presents Free Virtual Long Covid Summit
DESCRIPTION:Our friends at Aila Health are hosting a free Long Covid Summit on Wednesday\, September 21 8 AM – 3 PM PT to bring together specialists\, longhaulers\, caregivers\, advocacy organizations\, researchers and health system leaders to shed light on invisible illness and why Long Covid needs more attention. \nSolve M.E. Vice President of Advocacy and Engagement Emily Taylor will join to present Long Covid Advocacy and Policy. \nLearn more and register here.
URL:https://solvecfs.org/event/aila-health-presents-free-virtual-long-covid-summit/
LOCATION:Online
CATEGORIES:Conference,Long Covid
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/09/Long-Covid-Summit_Shareable-Posts.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220915T100000
DTEND;TZID=America/Los_Angeles:20220915T110000
DTSTAMP:20260802T003016
CREATED:20220825T223540Z
LAST-MODIFIED:20220825T223540Z
UID:36234-1663236000-1663239600@solvecfs.org
SUMMARY:OT: The Role of Occupational Therapy in Care for ME/CFS
DESCRIPTION:What is Occupational Therapy? How can it help people with ME/CFS? \nAmy Mooney\, MS OTR/L\, will share her expertise and what patients should know if they are looking for an Occupational Therapist. This webinar will describe occupational therapy’s role for providing symptom management and improving the quality of life for individuals with ME/CFS. Amy will demonstrate examples of pacing techniques and offer details of task analysis for individuals with ME/CFS. \nAs an OT with over 20 years’ experience\, Amy has worked in a variety of settings: school\, early intervention\, home health and clinic practice. Specializing in care for individuals with chronic disease\, Amy has been involved in numerous ME/CFS educational programs for medical professionals and advocacy campaigns for patients and caregivers.
URL:https://solvecfs.org/event/ot-the-role-of-occupational-therapy-in-care-for-me-cfs/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/08/Webinars-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220908T120000
DTEND;TZID=America/Los_Angeles:20220908T130000
DTSTAMP:20260802T003016
CREATED:20220829T234716Z
LAST-MODIFIED:20220831T223158Z
UID:36253-1662638400-1662642000@solvecfs.org
SUMMARY:Pediatric Post-COVID Conditions
DESCRIPTION:Long COVID & Fatiguing Illness Recovery Program \nPresenters include: \n\nPeter C. Rowe\, MD Director of the Chronic Fatigue Center at Johns Hopkins Children’s Center Professor of Pediatrics at Johns Hopkins University School of Medicine\nKatherine Rowe\, MD\nCharles W. Lapp\, MD\nAmanda Morrow\, MD\nLaura Malone MD\, PhD\nElla Eastin\n\nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nRegister here.
URL:https://solvecfs.org/event/pediatric-post-covid-conditions/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/08/Untitled-design-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220908T100000
DTEND;TZID=America/Los_Angeles:20220908T230000
DTSTAMP:20260802T003016
CREATED:20220829T234000Z
LAST-MODIFIED:20220829T234000Z
UID:36251-1662631200-1662678000@solvecfs.org
SUMMARY:Long Covid Congressional Panel
DESCRIPTION:Solve M.E. is continuing our event series with the Global Interdependence Center with a congressional panel on September 8 at 10 am PT/ 1 pm ET.  \nThis Zoom webinar will feature Congressmen Bergman and Beyer\, authors of the COVID-19 Long Hauler Act\, as well a discussion of Long Covid Policy with patient\, medical\, and organization experts
URL:https://solvecfs.org/event/long-covid-congressional-panel/
LOCATION:Online
CATEGORIES:Long Covid
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/Webinars.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220826T120000
DTEND;TZID=America/Los_Angeles:20220826T130000
DTSTAMP:20260802T003016
CREATED:20220817T165911Z
LAST-MODIFIED:20220817T170620Z
UID:36209-1661515200-1661518800@solvecfs.org
SUMMARY:NIH ME/CFS Telebriefing
DESCRIPTION:NIH’s next ME/CFS telebriefing will be held on August 26\, 2022 from 3:00- 4:00 pm ET. The telebriefing will include updates from NIH on ME/CFS-related research activities and a presentation by Lily Chu\, MD\, MSHS\, Vice President of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME)\, on highlights from the IACFS/ME 2022 Virtual Medical and Scientific Conference.During the telebriefing\, attendees will have the opportunity to ask questions out loud or to submit written questions in the Zoom Q&A box. \nRegistration is not required — join at this link.
URL:https://solvecfs.org/event/nih-me-cfs-telebriefing/
LOCATION:Online
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/08/Webinars-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220811T120000
DTEND;TZID=America/Los_Angeles:20220811T130000
DTSTAMP:20260802T003016
CREATED:20220810T233030Z
LAST-MODIFIED:20220810T233030Z
UID:36115-1660219200-1660222800@solvecfs.org
SUMMARY:Long Covid & Fatiguing Illness Recovery Program
DESCRIPTION:Physical Activity and Post-COVID Conditions \nCourtney Matrunick\, PT\, DPTNeurological Physical Therapist and Certified Aquatic Therapist – UNC Health Care &Heidi Greata PT\, DPT Vestibular Physical Therapist – UNC Hospital \nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nRegister here.
URL:https://solvecfs.org/event/long-covid-fatiguing-illness-recovery-program-2/
LOCATION:Online
CATEGORIES:Long Covid
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/08/Screen-Shot-2022-08-10-at-16.27.17.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220808
DTEND;VALUE=DATE:20220809
DTSTAMP:20260802T003016
CREATED:20220120T191219Z
LAST-MODIFIED:20220120T191219Z
UID:32891-1659916800-1660003199@solvecfs.org
SUMMARY:Severe ME Day
DESCRIPTION:Each year on August 8\, Severe ME/CFS Awareness Day\, we reflect on the tremendous toll this devastating disease takes on individuals suffering from severe ME/CFS symptoms and remember the lives of those we have lost. \nPeople living with severe ME/CFS are often bed-bound and unable to perform everyday tasks without assistance — eating\, showering\, and even standing are made nearly impossible. Their symptoms can worsen from light\, sound\, and movement. Some need 24-hour care. These severe symptoms can prevent members of our community from accessing medical care and support and lead to isolation from family and friends. \nStay tuned for more information about honoring those suffering from severe ME/CFS.
URL:https://solvecfs.org/event/severe-me-day/
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/Honoring-Empowering-Individuals-with-Severe-MECFS-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220728T123000
DTEND;TZID=America/Los_Angeles:20220728T123000
DTSTAMP:20260802T003016
CREATED:20220606T224022Z
LAST-MODIFIED:20220609T175449Z
UID:35301-1659011400-1659011400@solvecfs.org
SUMMARY:Solve M.E. Research Team at IACFS/ME 2022 Conference
DESCRIPTION:Join Solve M.E.’s research team at this year’s IACFS/ME for a special presentation by Solve M.E.’s Kate Mudie\, as well as a poster session\, during the 2022 Virtual Scientific Conference from July 27 – 30\, 2022! \n\nPresentation: Do people with joint hypermobility represent a subgroup of myalgic encephalomyelitis/ chronic fatigue syndrome?\n\nPoster Session: Baseline Characteristics of a Large\, Longitudinal Cohort of ME/CFS Patients \n\nMeeting events include workshops\, Keynote lecture by famed immunologist Akiko Iwasaki\, PhD (Yale University\, USA)\, Plenary Lecture by innovative ME/CFS clinician-researcher David Systrom\, MD (Harvard Medical School\, USA)\, and oral/ poster presentations of original research from around the world. Anyone with an interest in myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS)\, fibromyalgia\, COVID-19\, Long Covid\, post-acute sequelae of SARS-CoV-2 infection (PASC)\, dysautonomia\, and related disorders is welcomed to attend. \nRegister here.
URL:https://solvecfs.org/event/do-people-with-joint-hypermobility-represent-a-subgroup-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome/
LOCATION:Online
CATEGORIES:Long Covid,Research
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/06/Webinars-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220727T120000
DTEND;TZID=America/Los_Angeles:20220727T130000
DTSTAMP:20260802T003016
CREATED:20220606T224247Z
LAST-MODIFIED:20220606T224247Z
UID:35304-1658923200-1658926800@solvecfs.org
SUMMARY:ME/CFS and Long COVID Federal Advocacy Update
DESCRIPTION:Join a special presentation by Solve M.E.’s Emily Taylor during the 2022 Virtual Scientific Conference from July 27 – 30\, 2022! \nMeeting events include workshops\, Keynote lecture by famed immunologist Akiko Iwasaki\, PhD (Yale University\, USA)\, Plenary Lecture by innovative ME/CFS clinician-researcher David Systrom\, MD (Harvard Medical School\, USA)\, and oral/ poster presentations of original research from around the world. Anyone with an interest in myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS)\, fibromyalgia\, COVID-19\, Long Covid\, post-acute sequelae of SARS-CoV-2 infection (PASC)\, dysautonomia\, and related disorders is welcomed to attend. \nRegister here.
URL:https://solvecfs.org/event/me-cfs-and-long-covid-federal-advocacy-update/
LOCATION:Online
CATEGORIES:Conference,Long Covid,Research
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/06/Emily-IACFSME.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220721T100000
DTEND;TZID=America/Los_Angeles:20220721T110000
DTSTAMP:20260802T003016
CREATED:20220531T232752Z
LAST-MODIFIED:20220609T204520Z
UID:35209-1658397600-1658401200@solvecfs.org
SUMMARY:New Hope for Diagnosing and Treating Post-Infection Illnesses: Lessons Learned from HIV/AIDS
DESCRIPTION:In this special webinar\, Dr. Steven Deeks (Professor of Medicine-in-Residence at the University of California\, San Francisco) will be hosted by Solve M.E. Medical Advisor Dr. David Hardy (former Director of Division of Infectious Diseases at Cedars-Sinai Medical Center\, Los Angeles\, and Professor of Medicine at David Geffen School of Medicine\, University of California\, Los Angeles). The two long-time researchers and clinicians (practicing doctors) and veterans of the battle against HIV/AIDS\, will discuss how current studies on Long Covid\, informed by knowledge gained in other fields\, could help develop improved ways to diagnose and treat the broader challenge of post-infection illnesses\, such as ME/CFS. \nSince the beginning of the COVID-19 pandemic Dr. Deeks has re-focused his clinical care and research activity on this urgent need. He is now a member of the Board of Directors for the UCSF-based amfAR Institute for HIV Cure Research and a principal investigator for the NIH’s RECOVER study. In their conversation\, Drs. Deeks and Hardy will discuss the emerging scientific and medical findings\, reflect on their HIV/AIDS experience and the importance of patient engagement in research and advocacy\, and discuss the prospects for treatments and therapies. \nRegister here.
URL:https://solvecfs.org/event/lessons-learned-from-hiv-aids-new-hope-for-treating-post-infection-diseases/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/HardyDeeks.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220713T100000
DTEND;TZID=America/Los_Angeles:20220713T110000
DTSTAMP:20260802T003016
CREATED:20220606T204445Z
LAST-MODIFIED:20220606T204445Z
UID:35298-1657706400-1657710000@solvecfs.org
SUMMARY:Is There a Herpesviruses-Related Antibody Signature In Patients With ME/CFS?
DESCRIPTION:Many patients with ME/CFS experience common herpesviruses infections at their disease onset. Alternatively\, others experience reactivation of the same infections during the disease course. These facts suggest the existence of a disease-specific antibody signature related to these viruses. However\, current evidence is conflicting about this signature due to the heterogeneous nature of the disease\, the use of distinct lab assays\, and small sample sizes\, among other reasons. \nIn this webinar\, Ramsay Grant researcher Nuno Sepúlveda\, PhD\, will present new findings on this signature\, which could form the basis for developing a future diagnostic tool for ME/CFS patients with an infectious trigger. \nPlease send questions for Dr. Sepúlveda to solvecfs@solvecfs.org. \nRegister here.
URL:https://solvecfs.org/event/is-there-a-herpesviruses-related-antibody-signature-in-patients-with-me-cfs/
LOCATION:Online
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/06/Nuno-Webinar-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220623T100000
DTEND;TZID=America/Los_Angeles:20220623T110000
DTSTAMP:20260802T003016
CREATED:20220510T235818Z
LAST-MODIFIED:20220523T234349Z
UID:35033-1655978400-1655982000@solvecfs.org
SUMMARY:How We Can See ME/CFS Inflammation in the Brain
DESCRIPTION:Dr. Jarred Younger’s 2016 Ramsay Award was used to show that brain temperature is elevated in ME/CFS. This increased temperature is a sign of brain inflammation. The findings are now being replicated in a large group of individuals with ME/CFS. \nDr. Younger’s lab is now developing new magnetic resonance imaging (MRI) and positron emission tomography (PET) scans that can determine whether someone is suffering from brain inflammation. The goal of this research is to conclusively show that brain inflammation should be made a primary target for ME/CFS treatment. \nIn this webinar\, Dr. Younger will give updates on the brain inflammation research\, describe the studies coming up\, and discuss directions for improved ME/CFS treatment \n\n\nRegister here.
URL:https://solvecfs.org/event/how-we-can-see-me-cfs-inflammation-in-the-brain/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/Younger-Updated.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220613T100000
DTEND;TZID=America/Los_Angeles:20220613T110000
DTSTAMP:20260802T003016
CREATED:20220429T201653Z
LAST-MODIFIED:20220523T234437Z
UID:34885-1655114400-1655118000@solvecfs.org
SUMMARY:ME/CFS: NO problem?
DESCRIPTION:In 2019\, Francisco Westermeier\, PhD\, was awarded a Ramsay Research Grant by Solve M.E. to study endothelial function in ME/CFS. Like many other researchers in the Ramsay network\, Dr. Westermeier has since been dedicated to expanding the ME/CFS knowledge base. \nIn the coming months\, Dr. Westermeier and his team will be working to expand evidence of the reduced ability of ME/CFS patients to produce nitric oxide (NO). \nIn this webinar\, Dr. Westermeier will discuss this Solve M.E.- supported project that uses samples from the UK ME/CFS Biobank. \nPlease send questions for Dr. Westermeier to solvecfs@solvecfs.org.
URL:https://solvecfs.org/event/me-cfs-no-problem-2/
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/04/Francisco-Updated-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220610T080000
DTEND;TZID=America/Los_Angeles:20220610T210000
DTSTAMP:20260802T003016
CREATED:20220525T201906Z
LAST-MODIFIED:20220525T201906Z
UID:35182-1654848000-1654894800@solvecfs.org
SUMMARY:2022 INIM Conference
DESCRIPTION:Join the Institute for Neuro-Immune Medicine (Nova Southeastern University) on Friday\, June 10th for their annual 2022 INIM Conference.\n\n\n\nThe Institute’s clinicians and researchers will discuss research and the various clinical approaches to ME/CFS and Long Covid. Patients\, caregivers\, family members and friends are welcome to attend.\n\n\nRegister here.
URL:https://solvecfs.org/event/2022-inim-conference/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/jpeg:https://solvecfs.org/wp-content/uploads/2022/05/2022-INIM-Conference.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220609T120000
DTEND;TZID=America/Los_Angeles:20220609T130000
DTSTAMP:20260802T003016
CREATED:20220602T193359Z
LAST-MODIFIED:20220602T193359Z
UID:35288-1654776000-1654779600@solvecfs.org
SUMMARY:Long COVID & Fatiguing Illness Recovery Program
DESCRIPTION:The Patient Perspective on Post-Infectious Fatiguing Illnesses \nSonak Pastakia\, PharmD\, MPH\, PhD\, BCPS\, FCCP ME\nPatient since 2017 Professor of Pharmacy Practice Purdue University for Health Equity and Innovation \nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nRegister here.
URL:https://solvecfs.org/event/long-covid-fatiguing-illness-recovery-program/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/06/Untitled-design-8.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220607T110000
DTEND;TZID=America/Los_Angeles:20220607T120000
DTSTAMP:20260802T003016
CREATED:20220511T000248Z
LAST-MODIFIED:20220524T001451Z
UID:35036-1654599600-1654603200@solvecfs.org
SUMMARY:Long Covid and Children
DESCRIPTION:The Global Interdependence Center – Solve Long Covid Initiative Program Series: Session III: Long Covid and Children. \nThe Global Interdependence Center\, in partnership with the Solve Long Covid Initiative\, is conducting a year-long webinar and conference series exploring the pandemic’s long-term healthcare\, policy\, and economic impact\, specifically the implications of Long Covid. \nThis program will feature speakers Megan Carmilani\, Founder of Long Covid Families\, Dr. Peter Rowe\, Director of the Children’s Center Chronic Fatigue Clinic and Professor of Pediatrics\, Johns Hopkins\, and Stewart Gittelman\, Former CEO of Advanced Care\, Inc. (ACI)\, and Trevor Gittelman\, a myalgic encephalomyelitis (ME/CFS) patient. \nRegister here.
URL:https://solvecfs.org/event/long-covid-and-children/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/GIC-Rowe-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220526T100000
DTEND;TZID=America/Los_Angeles:20220526T113000
DTSTAMP:20260802T003016
CREATED:20220118T002434Z
LAST-MODIFIED:20220427T180158Z
UID:32704-1653559200-1653564600@solvecfs.org
SUMMARY:EmPOWER M.E.: State Advocacy
DESCRIPTION:This year\, our EmPOWER ME roundtable will focus on local advocacy. They say “all politics is local.” What does that mean for creating change for ME/CFS and Long Covid? \nJoin our panel of veteran state advocates as they discuss the importance of local and state advocacy. We’ll hear about initiatives in CA\, FL\, MA\, MD\, MN\, DE\, and NY\, and learn tips for starting projects in your neck of the woods. \nParticipants include: \nMelinda Lipscomb (MD)\nArt Mirin (CA)\nCharmian Proskauer (MA)\nLaura Bucholtz (FL)\nSuzanne Wheeler (MN)\nCharonda Johnson (DE)\nTerri Wilder (NY)
URL:https://solvecfs.org/event/empower-m-e/
LOCATION:Online
CATEGORIES:Advocacy Month 2022
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/IG-Empower-ME-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220524T090000
DTEND;TZID=America/Los_Angeles:20220524T100000
DTSTAMP:20260802T003016
CREATED:20220524T002131Z
LAST-MODIFIED:20220524T002131Z
UID:35157-1653382800-1653386400@solvecfs.org
SUMMARY:Leveraging EHR/Real World Data to Understand PASC
DESCRIPTION:Join the National Health Institutes (NIH) RECOVER Research Review (R3) Seminar Series\, “Leveraging EHR/Real World Data to Understand PASC\,” by registering here: http://ow.ly/sZep50Jg45C.  \nThe goal of the R3 Seminar Series is to catalyze a shared understanding of the research of the scientific stakeholder community within the RECOVER Consortium. Working and learning together while keeping each other up to date on their latest insights accelerates discoveries. Some sessions will also inform the public about RECOVER and other research on PASC.  All sessions will be recorded and posted to recovercovid.org. \nThe next seminar of the series is Tuesday\, May 24 12:00-1:30 PM EDT. It will be a panel discussion titled\, “Leveraging EHR/Real World Data to Understand PASC.” Panelists for the seminar will be: \n\nMelissa Haendel\, PhD\, University of Colorado Anschutz Medical Campus\nChristopher Chute\, MD\, DrPH\, MPH\, Johns Hopkins University\nRainu Kaushal\, MD\, MPH\, Weill Cornell Medicine; New York-Presbyterian Hospital\nThomas Carton\, PhD\, MS\, Louisiana Public Health Institute\nJosh Fessel\, MD\, PhD\, National Center for Advancing Translational Sciences (NCATS); National Institutes of Health\nRachel Hess\, MD\, MS\, University of Utah School of Medicine
URL:https://solvecfs.org/event/leveraging-ehr-real-world-data-to-understand-pasc/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/Screen-Shot-2022-05-23-at-17.21.01.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220519
DTEND;VALUE=DATE:20220520
DTSTAMP:20260802T003016
CREATED:20220302T010059Z
LAST-MODIFIED:20220517T205140Z
UID:33477-1652918400-1653004799@solvecfs.org
SUMMARY:Signature Event: Long Covid: Research\, Policy and Economic Impact
DESCRIPTION:The Global Interdependence Center\, in partnership with the Solve Long Covid Initiative\, is continuing our conference series exploring the pandemic’s long-term healthcare\, policy\, and economic impact\, specifically the implications of long haul COVID or long COVID. Together\, we invite you to join us for the signature event of this series\, an in-person conference in New York City on Thursday\, May 19\, 2022. \nThe purpose of our conference is to raise awareness of Long Covid by examining the science and research behind it and we hope can join us through one of our registration options\, including in-person or virtual attendance. For those joining us in person\, we are delighted to provide a Patient Rest Area on site at the event. This quiet space will be a rest area for patients who need to step away for flare-up/sensory overload equipped with cots/chairs/blankets. \nSession topics of the conference will include: \n\nA special report from the Solve Long Covid Initiative\nDefining/diagnosing Long Covid\nThe economic recovery and the policy response\nScientific research\nOutlook for the labor force and labor market challenges\nThe human experience\nIndustry specific implications for:\n\nHealth insurers and health care\nPharmaceuticals\nPolicymakers and government officials\n\n\n\nLearn more and register here. \nSpecial thanks to our sponsor\, Responsum Health\, a customized\, uniquely individualized chronic disease patient platform\, for providing streaming services for this event. 
URL:https://solvecfs.org/event/signature-event-long-covid-research-policy-and-economic-impact/
CATEGORIES:Advocacy Month 2022,Conference,Long Covid,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/GIC-sig-event.png
END:VEVENT
END:VCALENDAR