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DTSTART;VALUE=DATE:20231211
DTEND;VALUE=DATE:20231214
DTSTAMP:20260731T090938
CREATED:20231018T191426Z
LAST-MODIFIED:20231026T192224Z
UID:39407-1702252800-1702511999@solvecfs.org
SUMMARY:Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID
DESCRIPTION:NIH ME/CFS Research Roadmap Webinar Series\nAugust – December 2023\nThis virtual webinar series is part of a larger effort to develop a Research Roadmap for ME/CFS\, which will identify research priorities to move the field toward translational studies and clinical trials. \nSave the date for two NIH ME/CFS events in December 2023! Additional details will be provided via the NIH ME/CFS listserv. \n\nNIH ME/CFS Young and Early Investigators Conference\nDecember 11\, 2023\nBethesda\, MD (in-person and virtual)\nAdvancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID\nDecember 12-13\, 2023\nBethesda\, MD (in-person and virtual)
URL:https://solvecfs.org/event/advancing-me-cfs-research-identifying-targets-for-intervention-and-learning-from-long-covid/
LOCATION:Online
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/NIHStudyVolunteers.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231207T120000
DTEND;TZID=America/Los_Angeles:20231207T130000
DTSTAMP:20260731T090938
CREATED:20231114T164759Z
LAST-MODIFIED:20231122T145559Z
UID:39491-1701950400-1701954000@solvecfs.org
SUMMARY:The Patient-Doctor Partnership: Optimally Treating People with Long Covid and ME/CFS Across the US
DESCRIPTION:Solve welcomes three medical providers who will share their experience with treating Long Covid\, ME/CFS\, POTS\, and dysautonomia patients across rural\, urban\, and suburban settings. Dr. Melanie Hoppers (co-founder and Chief Medical Officer at Physicians Quality Care\, in Jackson\, TN)\, Dr. William Pittman (co-director of the UCLA Long COVID Program)\, and Dr. Tiffany Walker (Principal Investigator for the Post-COVID Clinic Grady Hospital\, Emory University School of Medicine) will share how integrating a broader understanding of associated post-infection diseases has informed their care\, and offer insights into how patients and caregivers can best work together to create an optimal treatment experience. \n  \nThis event is funded in part by an educational grant from Novavax.
URL:https://solvecfs.org/event/the-patient-doctor-partnership-optimally-treating-people-with-long-covid-and-me-cfs-across-the-us/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/11/dec-7-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231127T140000
DTEND;TZID=America/Los_Angeles:20231130T163000
DTSTAMP:20260731T090938
CREATED:20230612T223959Z
LAST-MODIFIED:20230619T222913Z
UID:38679-1701093600-1701361800@solvecfs.org
SUMMARY:World Vaccine Congress West Coast 2023
DESCRIPTION:From November 27-30\, 2023 in Santa Clara\, The World Vaccine Congress\, West Coast will connect key stakeholders from across the industry in infectious disease vaccines\, cancer immunotherapies and antiviral therapeutics. From early development through to commercialization\, with a key focus on the methods and technology used to decode the immune system enabling us to develop more effective & targeted therapies for both ID and cancer\, this is an event you cannot afford to miss. \nWith 1000+ attendees\, this congress will be critical to those looking to stay abreast of the latest developments in this space\, benchmark their company against KOLs\, and will facilitate opportunities for partnerships and collaborations through our extensive networking opportunities. \nOur community is receiving discount codes to register: \n\n25% discount code is now live through until the end of the event: SME25\nPersonalized registration link: www.terrapinn.com/WVCWC/SolveME
URL:https://solvecfs.org/event/the-world-vaccine-congress-west-coast-2023/
LOCATION:Online
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/06/WVC-2023-Updated.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231027T100000
DTEND;TZID=America/Los_Angeles:20231027T110000
DTSTAMP:20260731T090938
CREATED:20231011T213849Z
LAST-MODIFIED:20231011T213849Z
UID:39349-1698400800-1698404400@solvecfs.org
SUMMARY:October Advocacy Cafe
DESCRIPTION:Join us for this month’s Advocacy Cafe Chat! This session will be your chance to provide input on our Policy Advocacy Statement. We are about to begin updating the statement\, which drives our decisions about the advocacy and engagement work we do here at Solve. We want to ensure that we hear from the community as we move into this phase of reflection and direction setting. \nPlease note — no registration is required. Join at this link.
URL:https://solvecfs.org/event/october-advocacy-cafe/
LOCATION:Online
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/Advocacy-Cafe.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231024T120000
DTEND;TZID=America/Los_Angeles:20231024T130000
DTSTAMP:20260731T090938
CREATED:20230829T180429Z
LAST-MODIFIED:20230929T042408Z
UID:39118-1698148800-1698152400@solvecfs.org
SUMMARY:Power of Community: Infection Associated Chronic Conditions Patient Advocacy Coalition Initiative Webinar
DESCRIPTION:Witness the power of community on Tuesday\, October 24 at 12PM ET / 9AM PT as the IACC- Patient Advocacy Coalition (IACCPAC) Initiative team presents findings from a new report about the needs and priorities of the infection-associated chronic conditions community. \nThis national webinar is part of the IACCPAC Initiative\, led by Solve M.E.\, the Long Covid Alliance\, COVID-19 Longhauler Advocacy Project\, Dysautonomia International\, and Patient-Led Research Collaborative\, with support from the CDC Foundation through the Infection Initiated Chronic Conditions Understanding and Engagement (ICUE). \nDuring our webinar\, we’ll present findings from our workshop sessions and identify a roadmap that we hope will strengthen support for individuals experiencing IACC through strategic collaboration. \nKey topics to be covered during the webinar include: \n\nCommunity Voices: Hear directly from those living with infection-associated chronic conditions\, sharing their experiences and perspectives.\nPriority Areas: Discover the most urgent needs and concerns identified by our community.\nFuture Goals: Learn about our collective vision for advancing research\, awareness\, and support for IACCs.\nAction Steps: Find out how you can get involved and make a difference in the lives of those affected by IACCs.\n\nRegister here.
URL:https://solvecfs.org/event/power-of-community-infection-associated-chronic-conditions-patient-advocacy-coalition-initiative-webinar/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/09/IACCPAC-October-Webinar-Graphic-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231019T080000
DTEND;TZID=America/Los_Angeles:20231019T090000
DTSTAMP:20260731T090938
CREATED:20231018T185555Z
LAST-MODIFIED:20231018T185555Z
UID:39404-1697702400-1697706000@solvecfs.org
SUMMARY:ME/CFS RESEARCH ROADMAP WEBINAR SERIES
DESCRIPTION:Tomorrow’s NINDS ME/CFS Research Roadmap webinar at 11AM ET will focus on how ME/CFS impacts the immune system\, current research\, knowledge gaps\, and future research opportunities. \n\n\n \n\n\nRegister here.\n\n\n \n\n\nA recording of the first session\, focusing on the nervous system\, is available here.
URL:https://solvecfs.org/event/me-cfs-research-roadmap-webinar-series/
LOCATION:Online
CATEGORIES:Research
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/10/MECFS-Research-Roadmap.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231004T110000
DTEND;TZID=America/Los_Angeles:20231004T120000
DTSTAMP:20260731T090938
CREATED:20230914T220524Z
LAST-MODIFIED:20230914T220524Z
UID:39221-1696417200-1696420800@solvecfs.org
SUMMARY:
DESCRIPTION:Join Solve Senior Director of Research Leslie E. Phillips\, PhD for a walkthrough of our new patient-centered data platform\, Solve Together! In this webinar\, we’ll share information about joining the platform\, share tips for maximizing built-in tools for participants\, and answer your questions. \nSolve Together is fully accessible by smartphone and will allow participants to track symptoms\, connect wearables\, download reports for doctor visits\, link electronic health records\, and expend less time and energy on participation through short\, infrequent surveys and passive data collection. \nStay tuned for additional webinars in the Solve Together series. \nRegister here.
URL:https://solvecfs.org/event/39221/
LOCATION:Online
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/09/Solve-Together-Basics-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230926T110000
DTEND;TZID=America/Los_Angeles:20230926T120000
DTSTAMP:20260731T090939
CREATED:20230815T233137Z
LAST-MODIFIED:20230918T181956Z
UID:39065-1695726000-1695729600@solvecfs.org
SUMMARY:Federal Policy: How to Make an Impact with Support Long COVID and a National Taskforce
DESCRIPTION:Join Solve M.E.\, Marked By Covid\, and Long COVID Alliance for an interactive discussion on key COVID policy actions: the National Task Force on the COVID-19 Pandemic Act (S.1489) and Long COVID Support Act (S.2560). This event will detail the bills\, their importance for the COVID and Long Covid patient community\, and next steps for federal advocacy in 2024.  \nSee Samantha Koehler (Health Policy Advisor\, Sen. Tim Kaine) and Gilbert Ruiz (Legislative Director\, Sen. Kirsten Gillibrand) in conversation with Kristin Urquiza (Co-founder\, Marked By Covid)\, Emily Taylor (Vice President of Advocacy\, Solve M.E.)\, Liza Fisher (Executive Committee Member\, Long COVID Alliance)\, and Michael Sieverts (Executive Committee Member\, Long COVID Alliance).  \nRegister here.
URL:https://solvecfs.org/event/advocacy-cafe-chat-2/
LOCATION:Online
CATEGORIES:Advocacy,Long Covid
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/08/LC-Federal-Policy-Webinar-Updated.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230825T100000
DTEND;TZID=America/New_York:20230825T140000
DTSTAMP:20260731T090939
CREATED:20230815T233629Z
LAST-MODIFIED:20230823T162155Z
UID:39067-1692957600-1692972000@solvecfs.org
SUMMARY:NIH ME/CFS Research Roadmap Series: Nervous System
DESCRIPTION:The first ME/CFS Research Roadmap webinar will take place on August 25\, 2023\, from 10:00 am – 2:00 pm ET. Focusing on how ME/CFS impacts the nervous system\, presenters will describe current research\, knowledge gaps\, and future research opportunities in this area. There will be Q&A sessions during which attendees can ask questions and contribute ideas. Researchers\, clinicians\, advocates\, those living with ME/CFS\, and anyone invested in or impacted by ME/CFS are encouraged to attend. The webinar will be recorded and posted online after the event for future viewing.\n\n\n\n\nPlease visit the webinar series event page for details about the agenda and speakers\, and upcoming webinars. Registration information is forthcoming. Learn about the overall roadmap process\, including information on how you can provide input\, on the NANDSC Research Roadmap Working Group page. Please note that in order to best accommodate this comprehensive effort\, the final research roadmap will now be presented at the NANDS Council meeting on May 15-16\, 2024.\n\nRegistration is not required. Please join at this Zoom link with the passcode 616680.
URL:https://solvecfs.org/event/nih-me-cfs-research-roadmap-series-nervous-system/
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/08/Screen-Shot-2023-08-15-at-16.37.09.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230814T120000
DTEND;TZID=America/Los_Angeles:20230814T130000
DTSTAMP:20260731T090939
CREATED:20230613T202305Z
LAST-MODIFIED:20230809T235120Z
UID:38684-1692014400-1692018000@solvecfs.org
SUMMARY:Caregiver Corner: Resilience Tools for Difficult Times
DESCRIPTION:In this webinar series\, Stephanie Harrison\, founder of The New Happy\, joins Solve M.E. to help you cultivate greater well-being. She will share her unique perspective as a caregiver fused with her expertise in applied positive psychology. Her interdisciplinary approach to studying happiness is based on hundreds of academic studies and original research that informs The New Happy philosophy that true\, lasting happiness comes from being of service to others. \nIn this session we will be covering science-backed tools that you can use to help you stay resilient. From small daily practices to longer-term perspective shifts\, you will walk away with useful suggestions that can be put into practice right away. \nRegister here.
URL:https://solvecfs.org/event/caregiver-corner-2/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/06/New-Caregiver-Corner-date.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230727T090000
DTEND;TZID=America/New_York:20230729T170000
DTSTAMP:20260731T090939
CREATED:20230425T231635Z
LAST-MODIFIED:20230425T231635Z
UID:38328-1690448400-1690650000@solvecfs.org
SUMMARY:IACFS/ME 2023 International Scientific Conference
DESCRIPTION:Mark your calendars July 27 – 29\, 2023 for the IACFS/ME’s International Scientific Conference to be held at Stony Brook University in Stony Brook\, New York\, USA. This will be their 16th Scientific Conference! \nProgram will include: \n\nResearch presentations\nInnovative symposia\nClinical workshops\nPoster sessions\n\nSuggestions on possible topics\, speakers\, workshops or organizations should be sent to iacfsmeorg@gmail.com. \nThe meeting will run from approximately 9 AM to 5 PM July 27-29\, Thursday through Saturday. \nThe conference will focus on the biomedical\, public health\, and behavioral aspects of ME/CFS and associated comorbidities. A portion of the meeting will also be devoted to COVID-19 and its relevance to ME/CFS research and clinical care. \nAttendees at IACFS/ME conferences are primarily biomedical and behavioral professionals\, including clinicians\, researchers\, and educators. \nLearn more.
URL:https://solvecfs.org/event/iacfs-me-2023-international-scientific-conference/
LOCATION:Online
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://solvecfs.org/wp-content/uploads/2021/08/iacfs-logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230725T140000
DTEND;TZID=America/Los_Angeles:20230725T150000
DTSTAMP:20260731T090939
CREATED:20230706T184146Z
LAST-MODIFIED:20230706T185822Z
UID:38919-1690293600-1690297200@solvecfs.org
SUMMARY:The Future of Symptom Tracking: Exploring STAT Health's Revolutionary In-Ear Device That Measures Blood Flow to Head
DESCRIPTION:Solve M.E. is excited to host STAT Health CEO Daniel Lee for a conversation about their innovative in-ear wearable device. We’ll discuss how the STAT in-ear wearable measures blood flow to the head\, tracks changes in heart rate and blood pressure trend when users stand up. Designed to empower individuals with ME/CFS\, Long Covid\, and POTS\, this device can help people better understand common symptoms such as dizziness\, fainting\, and brain fog. \nRegister here.
URL:https://solvecfs.org/event/the-future-of-symptom-tracking-exploring-stat-healths-revolutionary-in-ear-device-that-measures-blood-flow-to-head/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/07/STAT-Health-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230721T120000
DTEND;TZID=America/Los_Angeles:20230721T130000
DTSTAMP:20260731T090939
CREATED:20230706T200638Z
LAST-MODIFIED:20230706T200638Z
UID:38930-1689940800-1689944400@solvecfs.org
SUMMARY:July Advocacy Cafe
DESCRIPTION:Advocacy Cafe is a community-favorite event that brings you more stories\, inspiration\, and conversations to connect and empower our advocates. This month’s session will take place 7/21 at 12 pm PT/ 3 pm ET and feature a conversation with Solve M.E.’s Emily Taylor about our appropriations process. \nPlease note — no registration is required. Join at this link.
URL:https://solvecfs.org/event/july-advocacy-cafe/
LOCATION:Online
CATEGORIES:Advocacy,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/Advocacy-Cafe.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230629T080000
DTEND;TZID=UTC:20230630T170000
DTSTAMP:20260731T090939
CREATED:20230328T213743Z
LAST-MODIFIED:20230329T211124Z
UID:38096-1688025600-1688144400@solvecfs.org
SUMMARY:NASEM Hosts Chronic Illness Workshop with Key ME/CFS Voices
DESCRIPTION:The National Academies of Sciences\, Engineering\, and Medicine (NASEM) is hosting a two-day workshop bringing together clinicians\, researchers\, and other stakeholders to create a scientific paradigm shift by examining common biological and clinical factors in chronic illnesses associated with prior infectious disease.  \nThe public workshop\, “Toward a Common Research Agenda in Infection-Associated Chronic Illnesses: A Workshop to Examine Common\, Overlapping Clinical and Biological Factors\,” will take place June 29-30 and will include discussion of potential strategies to treat or prevent disease progression.  \nThe planning committee for this public workshop includes ME/CFS expert clinician and Solve Research Advisory Council member Dr. Peter Rowe\, and PolyBio Research Foundation Microbiologist Amy Proal\, PhD\, who is also a part of Solve’s Ramsay Research Grant network.  \nSolve M.E. Oved Amitay will attend\, and notes\, “This event is not unlike the transformative Institute of Medicine (IOM) expert committee meeting that yielded the impactful 2015 report\, ‘Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness.’ That report recommended new diagnostic criteria\, called for more research and underscored the profound impact that ME/CFS has on the millions who suffer worldwide. This Chronic Illness Workshop convenes some of the most important voices from the ME/CFS network with leaders from multiple disease spaces\, all working together to create a scientific foundation for research and increase collaboration to benefit numerous patient communities.” \nLearn more and register here.
URL:https://solvecfs.org/event/nasem-hosts-chronic-illness-workshop-with-key-me-cfs-voices/
LOCATION:Online
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/03/NASEM-Logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230525T100000
DTEND;TZID=America/Los_Angeles:20230525T110000
DTSTAMP:20260731T090939
CREATED:20230517T190057Z
LAST-MODIFIED:20230517T190057Z
UID:38466-1685008800-1685012400@solvecfs.org
SUMMARY:Stem Cell Therapy As a Potential Treatment for Long Covid
DESCRIPTION:Solve is hosting the Hope Biosciences Research Foundation (HBRF) for a webinar on Thursday\, May 25 at 10AM PT. HBRF has conducted three FDA-authorized studies in mesenchymal cell therapy for COVID-19 prevention and treatment\, and two studies in Long Covid.  \nJoin Solve President Oved Amitay and HBRF founder Donna Chang for a comprehensive discussion of findings and more information about a Long Covid study that is currently enrolling\, as well as the potential for future studies in ME/CFS. \nRegister here.
URL:https://solvecfs.org/event/stem-cell-therapy-as-a-potential-treatment-for-long-covid/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/05/Hope-BIO-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230519T093000
DTEND;TZID=America/Los_Angeles:20230519T140000
DTSTAMP:20260731T090939
CREATED:20230424T205400Z
LAST-MODIFIED:20230424T205400Z
UID:38272-1684488600-1684504800@solvecfs.org
SUMMARY:The Institute for Neuro Immune Medicine: ME/CFS Conference
DESCRIPTION:The Institute for Neuro Immune Medicine will host the conference in the Alan B. Levan Innovation Center on the Nova Southeastern University campus in Davie\, FL May 19th 12:30 – 5pm \nThe goal of the conference is to highlight new information\, present ongoing research and new services being offered in their clinic. \nAmong the topics to be covered: \n\nWhat ME/CFS Taught Us about Covid Long Haulers\nReducing Home Toxins\nEBV Reactivation in Post Viral Illness\nThe Importance of Nutrition\nAlternative Medicine and ME/CFS\n\nRegister here.
URL:https://solvecfs.org/event/the-institute-for-neuro-immune-medicine-me-cfs-conference/
LOCATION:Online
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/INIM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230512T120000
DTEND;TZID=America/Los_Angeles:20230512T130000
DTSTAMP:20260731T090939
CREATED:20230424T210130Z
LAST-MODIFIED:20230426T160513Z
UID:38278-1683892800-1683896400@solvecfs.org
SUMMARY:Advocacy Cafe Chat
DESCRIPTION:Advocacy Cafe is a community-favorite event that brings you more stories\, inspiration\, and conversations to connect and empower our advocates.  \nOur next session will be on Friday\, May 12 at 12 pm PT/ 3 pm ET to coincide with World ME Day. Solve M.E.’s Emily Taylor will bring you a recap of this month’s Advocacy Week. \nPlease note — no registration is required\, join here.
URL:https://solvecfs.org/event/april-advocacy-cafe-chat/
LOCATION:Online
CATEGORIES:Advocacy,Advocacy Week 2023
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/Advocacy-Cafe.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230511T090000
DTEND;TZID=America/Los_Angeles:20230512T140000
DTSTAMP:20260731T090939
CREATED:20230424T203648Z
LAST-MODIFIED:20230424T203648Z
UID:38264-1683795600-1683900000@solvecfs.org
SUMMARY:Understand\, Diagnose\, Treat: ME/CFS Conference 2023\, hosted by Charité Fatigue Center
DESCRIPTION:2nd International Meeting of the CFC – Charité Fatigue Center \nME/CFS Conference 2023 – Understand\, Diagnose\, Treat \nDate:\nThursday\, May 11\, 2023\, 9 a.m. to 6 p.m.\nand Friday\, May 12\, 2023\, 9 a.m. to 2 p.m\nNo participation fees. \nRegister here.
URL:https://solvecfs.org/event/understand-diagnose-treat-me-cfs-conference-2023-hosted-by-charite-fatigue-center/
LOCATION:Online
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/Screen-Shot-2023-04-24-at-13.36.29.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230501T090000
DTEND;TZID=America/Los_Angeles:20230501T100000
DTSTAMP:20260731T090939
CREATED:20230424T203930Z
LAST-MODIFIED:20230424T204024Z
UID:38267-1682931600-1682935200@solvecfs.org
SUMMARY:NIH ME/CFS Telebriefing
DESCRIPTION:NIH’s next ME/CFS Advocacy Call will be held on May 1\, 2023 from 12:00 – 1:00 pm ET. The webinar will include updates from NIH on ME/CFS-related research activities and a scientific presentation by Avik Roy\, PhD\, and Gunnar Gottschalk\, PhD\, investigators at Simmaron Research and the University of Wisconsin-Milwaukee. Please register in advance! \nDuring the webinar\, attendees will have the opportunity to ask questions out loud or to submit written questions in the Zoom Q&A box. For those on the phone\, please dial *9 to raise/lower your hand and *6 to mute/unmute. Additional instructions for joining by phone are on the Zoom support website. We regret that we may not be able to respond to all questions that we receive\, but we will try to answer as many as possible in the time allotted.
URL:https://solvecfs.org/event/nih-me-cfs-telebriefing-2/
LOCATION:Online
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2020/02/NIHStudyVolunteers.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230427T110000
DTEND;TZID=America/Los_Angeles:20230427T120000
DTSTAMP:20260731T090939
CREATED:20230405T221942Z
LAST-MODIFIED:20230405T222038Z
UID:38161-1682593200-1682596800@solvecfs.org
SUMMARY:Effects of Long Covid and ME/CFS on Sleep
DESCRIPTION:Many individuals who have had COVID-19 experience long-term symptoms that have a major impact on their lives. One of the most common symptoms is sleep disturbance. After more than six months from the time of infection\, about 60% of people self-report lingering sleep difficulties\, even if they had a mild course of acute COVID-19. Unrefreshing sleep is also part of the diagnostic criteria for ME/CFS\, along with other overlapping symptoms such as post-exertional malaise (PEM) or “brain fog.” \nTo probe deeper into the topic of sleep\, we are pleased to invite you to a webinar on the Effects of Long Covid and ME/CFS on Sleep\, featuring  SleepScore Lab’s neuroscientist\, Dr. Elie Gottlieb. The presentation will cover a range of topics including: \n\nThe connection between Long Covid\, ME/CFS\, and sleep disturbances.\nThe neurological and cognitive aspects of sleep and how brain changes/disruptions may be bi-directionally associated with Long Covid and ME/CFS.\nUnrefreshing sleep vs. quality sleep and why people with ME/CFS or Long COVID might experience the former.\nThe evidence-based methods to improve sleep and how SleepScore Lab’s improvement program addresses them.\n\n The presentation will be followed by a live Q&A. \nRegister here.
URL:https://solvecfs.org/event/effects-of-long-covid-and-me-cfs-on-sleep/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/April-27-Sleepscore-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230425T100000
DTEND;TZID=America/New_York:20230425T160000
DTSTAMP:20260731T090939
CREATED:20230301T234226Z
LAST-MODIFIED:20230301T234226Z
UID:37888-1682416800-1682438400@solvecfs.org
SUMMARY:FDA Patient-Focused Drug Development Public Meeting for Long Covid
DESCRIPTION:The US Food and Drug Administration (FDA) is hosting a virtual public meeting on Patient-Focused Drug Development for Long Covid on Tuesday\, April 25th\, 2023\, from 10 a.m. to 4:00 p.m. ET.  It will be conducted with live translation in both English and Spanish. \nPatient-Focused Drug Development meetings are important and infrequent opportunities for patients to provide direct input to the FDA\, as well as for the FDA to obtain patient and patient representative input on several aspects related to a disease. ME/CFS was one of the earliest diseases to benefit from the concept of including patients in this process\, approximately a decade ago. \nThis meeting will focus on Long Covid\, how it affects daily life\, symptoms that matter most to patients\, current approaches to treating Long Covid\, and considerations for clinical trial participation. \nSolve M.E. encourages individuals in our community with Long Covid\, family members\, advocates\, caregivers\, and other stakeholders to participate in the live webcast. Register here and find more information on the discussion questions and meeting format\, and find more information on FDA’s website. \nPatients or caregivers who are willing to share their experiences as part of a panel conversation are asked to indicate their willingness as part of registration. They will then be directed to send a short summary of their responses to the discussion questions to PatientFocused@fda.hhs.gov.
URL:https://solvecfs.org/event/fda-patient-focused-drug-development-public-meeting-for-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Research
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/03/Untitled-design-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230421T100000
DTEND;TZID=America/New_York:20230421T110000
DTSTAMP:20260731T090939
CREATED:20230330T173436Z
LAST-MODIFIED:20230330T201248Z
UID:38107-1682071200-1682074800@solvecfs.org
SUMMARY:EmPOWER M.E. 2023: Navigating the World with Energy Limiting Disabilities
DESCRIPTION:Hosting EmPOWER M.E. during Advocacy Week each year is one of our favorite ways to connect with our community after a long week of congressional meetings.  \nThis year\, our Lived Experience Taskforce (LET) partners helped us choose our topic: Navigating the World with Energy Limiting Disabilities. This special event on April 21 at 10 AM ET will feature expert ME/CFS and Long Covid advocates sharing tips for overcoming personal\, professional\, and medical challenges. \nDuring our EmPOWER M.E. roundtables\, we convene panels of patient advocates\, professionals\, and scientists to share their expertise on topics relevant to the quality of life for people with ME/CFS\, Long Covid\, and their caregivers. Learn more and watch past events here. \nRegister here.
URL:https://solvecfs.org/event/38107/
LOCATION:Online
CATEGORIES:Advocacy,Advocacy Week 2023
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/03/Empower-ME-2023.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230417
DTEND;VALUE=DATE:20230423
DTSTAMP:20260731T090939
CREATED:20230207T011136Z
LAST-MODIFIED:20230207T162649Z
UID:37652-1681689600-1682207999@solvecfs.org
SUMMARY:Advocacy Week 2023
DESCRIPTION:Advocacy Week 2023 will take place virtually and in person throughout the week of April 17th to April 22nd\, 2023!  \nAdvocacy Week is a nationwide advocacy effort to connect people with ME/CFS\, Long COVID\, and associated conditions; scientists; clinicians\, and caregivers to share their unique stories with Congress. Our ultimate goal is to make ME/CFS\, Long COVID\, and associated conditions widely understood\, diagnosable\, and treatable. \nThere are actions for every energy level and ability to join\, from social media posts to virtual meetings with Congressional leaders. This year we will be offering both virtual and in-person (Washington DC) events.  \n\n\n\n\nAdvocacy Week 2023  \nMonday\, April 17th\, 2023 – Training Day – Washington DC & Virtual \nTuesday\, April 18th\, 2023 – Senate Advocacy Day – Washington DC \nWednesday\, April 19th\, 2023 – Social Media Action Day – Virtual \nThursday\, April 20th\, 2023 – House Advocacy Day – Virtual \nFriday\, April 21st\, 2023 – EmPOWER ME Day – Virtual \nFor registration and more event details\, visit StopTheLongHaul.org.
URL:https://solvecfs.org/event/advocacy-week-2023/
CATEGORIES:Advocacy,Advocacy Week 2023,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/02/Advo-Week-2023-Announcement-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230403
DTEND;VALUE=DATE:20230418
DTSTAMP:20260731T090939
CREATED:20230224T233341Z
LAST-MODIFIED:20230224T233341Z
UID:37812-1680480000-1681775999@solvecfs.org
SUMMARY:Solve M.E. Advocacy Week Training Sessions
DESCRIPTION:No advocacy experience? Join our training sessions!\n\n\n \n\n\nWe’re hosting three virtual training sessions — all will cover the same material\, to allow multiple opportunities to register. Join our virtual Congressional Meeting Trainings on Monday\, April 3rd\, Thursday\, April 6th\, and Tuesday\, April 11\, 2023. We will also have an In-Person Congressional Meeting Training on April 17th\, 2023\, in Washington DC. \n\n\n \n\n\nRegister for training here.
URL:https://solvecfs.org/event/solve-m-e-advocacy-week-training-sessions/
LOCATION:Online
CATEGORIES:Advocacy,Advocacy Week 2023
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/02/ADVOCACY-MONTH-ACTION-CENTER.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230331T120000
DTEND;TZID=America/Los_Angeles:20230331T130000
DTSTAMP:20260731T090939
CREATED:20230323T232540Z
LAST-MODIFIED:20230323T232540Z
UID:38081-1680264000-1680267600@solvecfs.org
SUMMARY:March Advocacy Cafe Chat
DESCRIPTION:During Advocacy Month 2022\, we premiered a new series spotlighting the voices of several standout members of our community as they inspired us with their stories\, advocated for change\, and answered your questions. This series — Advocacy Cafe — became a community favorite\, and we’re excited to announce that we will continue hosting more throughout 2023. \nJoin us the last Friday of the month at 12 pm PT/ 3 pm ET as we bring you more stories\, inspiration\, and conversations. No registration required- join here.
URL:https://solvecfs.org/event/march-advocacy-cafe-chat/
LOCATION:Online
CATEGORIES:Advocacy Week 2023
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/01/Advocacy-Cafe.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230330T110000
DTEND;TZID=America/Los_Angeles:20230330T120000
DTSTAMP:20260731T090939
CREATED:20230316T000937Z
LAST-MODIFIED:20230321T200001Z
UID:38021-1680174000-1680177600@solvecfs.org
SUMMARY:How to Make an Impact at the FDA's Drug Development Meeting for Long Covid
DESCRIPTION:On April 25th\, 2023\, FDA is hosting a virtual public meeting on Patient-Focused Drug Development (PFDD) for Long Covid. This meeting will provide FDA the opportunity to obtain initial patient and patient representative input on the aspects of Long Covid\, including how Long COVID affects their daily life\, the symptoms that matter most to patients\, their current approaches to treating Long Covid\, and what they consider when determining whether or not to participate in a clinical trial. \n\n\n\n\nAhead of the FDA’s PFDD for Long Covid\, Solve M.E. will host a webinar on March 30th from 11- 12 pm PT / 2-3pm ET to help educate our community about this important event. \nThis is a unique opportunity to share stories of living with Long Covid\, as well as experiences with treatments\, with important decision-makers at the FDA. Though Solve is not involved in the planning of the PFDD meeting\, we have invited two former FDA officials who are experts in this area to help prepare our community for this important day. \n\nJames Valentine\, JD\, MHS\, has worked the last 15 years as a champion for the patient voice as part of the regulatory process.  James previously worked at the FDA where he was a patient liaison\, helping to incorporate the patient voice into medical product review across the FDA’s various medical product centers and review divisions.  There\, he helped to develop and launch the Patient-Focused Drug Development initiative.\nLarry Bauer\, RN\, MS\, worked at the NIH for 17 years in clinical research\, followed by a position at the FDA as a Regulatory Scientist in the Center for Drug Evaluation and Research’s Rare Diseases Program\, a group he co-founded and worked for 10 years\, where he advanced rare disease drug development. In private practice\, James and Larry have worked with many patient organizations to ensure their community’s voices were heard by decision-makers.  Relevant to the upcoming PFDD meeting\, both Larry and James were involved in these FDA-led PFDD meetings in their time at the Agency\, and since leaving have been a resource to the majority of patient communities participating in FDA’s sister externally-led PFDD program.\n\nThe hoped outcome of the meeting is to improve the development of new drugs in the research pipeline and inform the context in which regulatory decisions will be made for new drugs for Long Covid. \nDuring the webinar on March 30th\, we will be covering the following topics: \n\nBackground on FDA & Drug Development\nIntroduction to Patient-Focused Drug Development & Role of Patient Voice\nOverview of the PFDD Meeting\nGuide to Participating in the Meeting\nLogistics\, Format\, & Tips\n\nIt doesn’t matter where you live or where you are in your journey\, what matters is your story. \nRegister here.
URL:https://solvecfs.org/event/how-to-make-an-impact-at-the-fdas-drug-development-meeting-for-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/03/Webinars-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230329T100000
DTEND;TZID=America/Los_Angeles:20230329T110000
DTSTAMP:20260731T090939
CREATED:20230228T040819Z
LAST-MODIFIED:20230301T004824Z
UID:37834-1680084000-1680087600@solvecfs.org
SUMMARY:CDC Update: Recent Strides in Long Covid
DESCRIPTION:In this webinar\, Solve M.E. President Oved Amitay welcomes Dr. Elizabeth Unger\, chief of Chronic Viral Diseases Branch at Centers for Disease Control and Prevention\, and her CDC colleagues to share updates and progress on The School-Based Active Surveillance Project (presented by Anindita Nanda Issa\, MD)\, the Long Covid Fatiguing Illness Recovery Program (ECHO) (presented by Jennifer Cope\, MD\, MPH)\, and initial findings from the Multi-site Study of Post-COVID conditions (Medical chart abstraction project) (presented by Miriam Nji\, MD\, MPH). \nRegister here.
URL:https://solvecfs.org/event/cdc-update-recent-strides-in-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/02/CDC-Webinar-Updated-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Shanghai:20230221T100000
DTEND;TZID=Asia/Shanghai:20230221T130000
DTSTAMP:20260731T090939
CREATED:20230131T184624Z
LAST-MODIFIED:20230216T234324Z
UID:37499-1676973600-1676984400@solvecfs.org
SUMMARY:Solve M.E. and BIO co-host "Long Covid: What Will It Take To Accelerate Therapeutic Progress?"
DESCRIPTION:Solve M.E. and The Biotechnology Innovation Organization (BIO) will co-host a three-hour virtual event “Long Covid: What Will It Take to Accelerate Therapeutic Progress?” on Tuesday\, February 21 from 10:00 AM – 1:00 PM PT (1:00 – 4:00 PM ET).  \nOur goal is to convene stakeholders to advance research and development to diagnose and treat Long Covid\, ME/CFS\, and other post-infection diseases. By increasing awareness among drug developers to the unmet needs of our communities\, we hope to inspire these industry players to study these diseases and create therapeutic breakthroughs.  \nThe session will establish a knowledge base of emerging research in Long Covid and existing body of data in other post-infection diseases (such as myalgic encephalomyelitis/chronic fatigue syndrome\, dysautonomia\, mast cell activation\, and others). The session also will feature solution-oriented perspectives from government\, academic\, and industry researchers\, patient groups\, funding sources\, and policymakers.  \nHosts: \n\nOved Amitay\, R.Ph.\, M.Sc.\, President and CEO of Solve M.E. Christopher Austin\, MD\, CEO-Partner\, Flagship Pioneering\nCartier Esham\, PhD\, Chief Science Officer\, Biotechnology Innovation Organization (BIO)\n\nOpening Remarks: \n\nUS Senator\, Tim Kaine\nRachel L. Levine\, M.D.\, Admiral\, U.S. Public Health Service\, U.S. Department of Health and Human Services\n\nSpeakers: \n\nAkiko Iwasaki\, PhD\, Sterling Professor of Immunobiology (Microbial Diseases)\, Yale School of Medicine\nBruce Patterson\, MD\, CEO & Founder\, IncellDx\nChristopher Austin\, MD\, CEO-Partner\, Flagship Pioneering\nDavid Putrino\, PhD\, Associate Professor\, Rehabilitation and Human\nJulie Gerberding\, MD\, MPH\, CEO\, Foundation for the National Institutes of Health\nKatie Bach\, MBA\, Nonresident Senior Fellow\,Brookings Institution\nLisa McCorkell\, MPP\, Co-Founder\, Patient-Led Research Collaborative\nMargaret Koziel\, MD\, SVP\, Chief Medical Officer\, Axcella Therapeutics\nPriti Patel\, MD\, MPH\, Senior Advisor for Post-COVID Conditions\, Centers for Disease Control and Prevention\nRachel L. Levine\, M.D.\, Admiral\, U.S. Public Health Service\, U.S. Department of Health and Human Services\nSeth Lederman\, MD\, Co-Founder\, CEO & Chairman\, Tonix Pharmaceuticals\nThomas Equels\, M.S.\, J.D.\, CEO\, AIM Immunotech\nWalter Koroshetz\, MD\, Director\, National Institute of Neurological Disorders and Stroke (NINDS)\n\nSolve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics\, treatments\, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)\, Long Covid and other post-infection diseases.  \nBIO is the world’s largest advocacy association representing member companies\, state biotechnology groups\, academic and research institutions\, and related organizations across the United States and in 30+ countries.
URL:https://solvecfs.org/event/solve-m-e-and-bio-co-host-long-covid-what-will-it-take-to-accelerate-therapeutic-progress/
CATEGORIES:Long Covid,Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/01/Sample-Bio-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230216T100000
DTEND;TZID=America/Los_Angeles:20230216T110000
DTSTAMP:20260731T090939
CREATED:20230207T162555Z
LAST-MODIFIED:20230207T162555Z
UID:37649-1676541600-1676545200@solvecfs.org
SUMMARY:Caring for The Caregiver
DESCRIPTION:In this webinar\, Stephanie Harrison\, founder of The New Happy\, joins Solve M.E. to help you cultivate greater well-being. She will share her unique perspective as a caregiver fused with her expertise in applied positive psychology. Her interdisciplinary approach to studying happiness is based on hundreds of academic studies and original research that informs The New Happy philosophy that true\, lasting happiness comes from being of service to others. \nAs caregivers\, you live in service to others and embody this philosophy already. But you also need to receive care yourself\, too. During this special presentation in honor of National Caregivers Day 2023\, Stephanie will share insights on how you\, as a caregiver\, can support your own well-being as you care for your loved ones. The resources and philosophies she’ll share are grounded in peer-reviewed research and focus on self-compassion\, resilience\, and self-care.\nRegister: https://us02web.zoom.us/meeting/register/tZUld-igqDIoEtSFgiTltGbHYMA4d0CX-plc
URL:https://solvecfs.org/event/caring-for-the-caregiver/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/02/Caring-for-the-Caregiver.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230127T120000
DTEND;TZID=America/Los_Angeles:20230127T130000
DTSTAMP:20260731T090939
CREATED:20230124T225429Z
LAST-MODIFIED:20230125T010604Z
UID:37486-1674820800-1674824400@solvecfs.org
SUMMARY:Advocacy Cafe Chat
DESCRIPTION:During Advocacy Month 2022\, we premiered a new series spotlighting the voices of several standout members of our community as they inspired us with their stories\, advocated for change\, and answered your questions. This series — Advocacy Cafe — became a community favorite\, and we’re excited to announce that we will continue hosting more throughout 2023. \nPlease join us for our first Advocacy Café Chat of 2023\, hosted by Solve M.E.’s Vice President of Advocacy and Engagement\, Emily Taylor. Emily will discuss the recently announced 2023 budget and how your advocacy efforts in 2022 influenced the current payout. \nThe next Café Chat takes place on Friday\, January 27\, and registration is not required — join here.
URL:https://solvecfs.org/event/advocacy-cafe-chat/
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/01/Advocacy-Cafe.png
END:VEVENT
END:VCALENDAR