Aila Health Presents Free Virtual Long Covid Summit

Online

Our friends at Aila Health are hosting a free Long Covid Summit on Wednesday, September 21 8 AM - 3 PM PT to bring together specialists, longhaulers, caregivers, advocacy organizations, researchers and health system leaders to shed light on invisible illness and why Long Covid needs more attention. Solve M.E. Vice President of Advocacy and […]

Long Covid Stakeholder Meeting

Online

The National Center for Health Research is hosting a national conference on October 3 featuring Long Covid healthcare professionals and patient advocates about effective treatments and interventions for Long Covid, as well as research that is needed or underway. Speakers and panel discussions will include topics such as autoimmune diseases, challenges for caregivers, overlap of […]

ME/CFS + Long Covid International Conference 2022

Online

The Finnish Association of Orthopaedic Manual Therapy (FIAOMT) is hostng an international conference of ME/CFS and Long Covid – Treatment and Rehabilitation is held in Tampere Finland (also online) on 7-8 October 2022. The conference presents current information about ME/CFS and Long Covid. This two-day conference will review the challenges of understanding the pathophysiology, risk […]

Long Covid & Fatiguing Illness Recovery Program

Online

Research Update Featuring: Avindra Nath, MD (Clinical Director of National Institute of Neurological Disorders and Stroke – NIH; Chief of the Section of Infections of the Nervous System – NIH; Director of the Translational Neuroscience Center – NIH) Article: https://academic.oup.com/brain/article/145/7/2555/6621999 Hector Bonilla, MD (Associate Professor of Medicine and Infectious Diseases – Stanford University Medical Director […]

COVID-19 as a Trigger for ME/CFS: Severity Biomarkers and Underlying Mechanisms

Online

Since the beginning of the pandemic, SARS-CoV-2 has been suspected of causing chronic fatigue syndrome (ME/CFS). A well-controlled cohort study conducted by a group of researchers from Charité - Universitätsmedizin Berlin and the Max Delbrück Center for Molecular Medicine (MDC) has now shown that in the subset of patients who suffer from fatigue and exertion […]

Understanding the Biomarkers of PASC (otherwise known as Long Covid)

Online

The RECOVER Research Review (R3) Seminar Series will host a panel discussion titled, "Understanding the Biomarkers of PASC” on Tuesday, November 8th 12:00-1:30 PM EDT featuring: Michael Peluso, MD, University of California, San Francisco Mohamed Abdel-Mohsen, PhD, The Wistar Institute David R. Walt, PhD, Harvard Medical School; Brigham and Women's Hospital  Grace McComsey, MD, University […]

Ryan Prior On The Long Haul and How Patients Can Change the World

In his new book, The Long Haul: Solving the Puzzle of the Pandemic's Long Haulers and How They Are Changing Healthcare Forever, CNN journalist and ME/CFS patient advocate Ryan Prior writes about how chronically ill communities predicted the Long Covid crisis, and how patient voices should shape the medical system of the future. In this […]

Fiona Lowenstein, Dona Kim Murphey and The Long Covid Survival Guide

Online

For people living with Long Covid, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long Covid are often left with more questions than answers. The Long Covid Survival Guide is the first patient-to-patient guide […]

Long Covid in the Media

Online

Solve M.E. is continuing our event series with the Global Interdependence Center with a panel on November 29 10AM PT.  The sixth installment of the GIC Solve Long Covid Initiative Program Series will explore the impact and coverage of Long Covid in the media. Join us virtually with speakers, Cynthia Adinig, Long Covid Advocate and […]

Challenges in Ensuring Equity In the Study and Treatment of ME/CFS and Long Covid

Online

Co-presented by Peter Rowe, MD (Professor of Pediatrics, Director, Johns Hopkins Children’s Center Chronic Fatigue Clinic) and Camille Broussard, MD, MPH (Assistant Professor in the Division of Adolescent and Young Adult Medicine at Johns Hopkins School of Medicine), this webinar will explore the dissonant results of epidemiologic studies that suggest Latinx and Black individuals have […]

Long COVID Technology

As we approach the end of the year, we are also wrapping up a stellar, year-long webinar partnership with the Global Interdependence Center that has explored the pandemic’s long-term healthcare, policy, and economic impact, specifically the implications of Long Covid. The final installment in the series, “Long Covid Technology,” will take place on December 20. […]

Meghan O’Rourke On Her NYT Bestseller The Invisible Kingdom: Reimagining Chronic Illness

Online

Meghan O’Rourke will join us on Monday, January 23, 2023 at 12 PM PT to discuss her New York Times bestseller The Invisible Kingdom: Reimagining Chronic Illness, which is a finalist for the National Book Award in nonfiction. Meghan is recipient of numerous literary awards, including a Guggenheim Fellowship, a Radcliffe Fellowship, a Lannan Literary […]

Advocacy Cafe Chat

During Advocacy Month 2022, we premiered a new series spotlighting the voices of several standout members of our community as they inspired us with their stories, advocated for change, and answered your questions. This series — Advocacy Cafe — became a community favorite, and we’re excited to announce that we will continue hosting more throughout […]

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