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DTSTART;TZID=America/Los_Angeles:20241113T100000
DTEND;TZID=America/Los_Angeles:20241113T110000
DTSTAMP:20260729T092719
CREATED:20240828T235023Z
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UID:40911-1731492000-1731495600@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Legal Rights (Pt. 2 of 4)
DESCRIPTION:ME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nThe second webinar in our series focuses on the multifaceted legal considerations faced by people with Severe ME and those who care for them. \nA panel of legal experts will share information on the topics of guardianship\, conservatorship\, power of attorney\, Social Security Disability Insurance (SSDI)\, Supplemental Security Income (SSI)\, and more. \nThe panelists will offer practical strategies for determining which legal protections are right for you\, successful application for different forms of disability benefits\, and what to do if disability claims are denied. \nJoin Solve M.E. President and CEO Emily Taylor as she moderates a panel of attorneys with valuable insights to share with our community. \nTopics and dates are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care\n• January 15: Research \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances. \n 
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-legal-rights-pt-2-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/Legal1_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241011T090000
DTEND;TZID=America/Los_Angeles:20241011T100000
DTSTAMP:20260729T092719
CREATED:20240918T204343Z
LAST-MODIFIED:20240918T204343Z
UID:40996-1728637200-1728640800@solvecfs.org
SUMMARY:ICUE Webinar: Uniting Voices\, Amplifying Impact: National Organizations Collaborating to Support Our IACC Communities
DESCRIPTION:Please join us for the final\, culminating webinar of the Infection-Associated Chronic Conditions Understanding and Engagement (ICUE) project\, where we will discuss the findings and results from the project as well as on-going efforts to collaborate across the IACC community on advancing awareness\, clinical care\, patient support and research. \nDuring this webinar\, you will hear from ICUE project leadership from the COVID-19 Longhauler Advocacy Project\, Patient-Led Research Collaborative\, and Solve M.E.\, as well as leading experts in IACC education\, clinical care\, and research. At the conclusion of the presentations\, we will take questions and answers. \nThis webinar is an opportunity to learn and identify ways to engage and collaborate. Patients\, clinicians\, researchers\, and various other stakeholders all have vital roles to play\, both independently and collaboratively\, in advancing the understanding and management of IACCs. By working together\, we can raise awareness to advance patient-centered research\, enhance clinical care\, and improve educational outreach\, ultimately leading to better health outcomes for all affected individuals.  \nWe look forward to your participation in this important discussion. Please confirm your attendance by October 10th and join us in our efforts to advance the understanding and management of IACCs. Your involvement is crucial\, and we hope to see you there. \nUNITING VOICES\, AMPLIFYING IMPACT: COLLABORATING TO SUPPORT OUR IACC COMMUNITIES\nFriday\, October 11\, 2024\n9 am PT /12 pm ET \nRegistration link:\nhttps://us06web.zoom.us/webinar/register/WN_JOGSRf0ZQsu0ueVkp2HuWw#/registration \n 
URL:https://solvecfs.org/event/icue-webinar-uniting-voices-amplifying-impact-national-organizations-collaborating-to-support-our-iacc-communities/
CATEGORIES:Advocacy,Long Covid,Research,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/09/icue-graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241009T100000
DTEND;TZID=America/Los_Angeles:20241009T110000
DTSTAMP:20260729T092719
CREATED:20240828T233108Z
LAST-MODIFIED:20240918T220436Z
UID:40900-1728468000-1728471600@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Caregiving (Pt. 1 of 4)
DESCRIPTION:ME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nTopics and dates for the series are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care\n• January 15: Research \nThe first webinar in our series focuses on the multifaceted challenges faced by those caring for severe ME/CFS patients and emphasizes the impact of chronic illness on entire support systems. A panel of experienced caregivers will explore navigating healthcare systems\, coping with ambiguous loss\, and maintaining healthy relationships. The panelists will provide valuable insights into balancing self-care with caregiving responsibilities and offer practical strategies for maintaining mental well-being. This event aims to provide caregivers with tools and support for their crucial roles. \nJoin BHC Deputy Executive Director and Education Director\, Tahlia Rushcioni as she moderates a panel of experienced caregivers with unique insights to share with the community. \nPanelists:\nGalen Warden\, mother to an adult son with Severe ME\nAmy Mooney\, mother to a teen daughter with Severe ME\nKim Moy\, wife to a husband with Severe ME\nKyle Kitzmiller\, husband to a woman with Severe ME (American science communicator Dianna Cowern aka YouTuber “Physicsgirl”) \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-caregiving-pt-1-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/CaregivingTwitter9.16.24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241003T090000
DTEND;TZID=America/Los_Angeles:20241003T100000
DTSTAMP:20260729T092719
CREATED:20240923T183251Z
LAST-MODIFIED:20240923T183251Z
UID:40947-1727946000-1727949600@solvecfs.org
SUMMARY:Skeletal Muscle Fatigue and Post-Exertional Malaise in Patients with Long Covid and Implications for ME/CFS
DESCRIPTION:On Thursday\, October 3\, 2024\, Solve M.E. will host a free educational webinar featuring Assistant Professor Rob Wüst from the Vrije Universiteit (Amsterdam\, Netherlands)\, who will discuss skeletal muscle fatigue and post-exertional malaise in patients with Long Covid and the implications for ME/CFS. \nDr. Wüst received a Solve M.E. Ramsay Research Grant in 2022 to study muscle pain\, post-exertional malaise\, and treatments for pain and malaise in patients with diseases like Long Covid and ME/CFS. He found that\, at the physiological and molecular levels\, post-exertional malaise differs from general fatigue. These differences have big implications for how physical therapy affects patients with Long Covid or ME/CFS. \nDr. Wüst will update us on his studies of these two central symptoms of Long Covid and ME/CFS—post-exertional malaise and general fatigue and answer questions from attendees. \nTime: 9 am PT / 12 pm ET \nDate: Thursday\, October 3 \nRegister here: https://us02web.zoom.us/webinar/register/WN_LRCE4Xg9SWa2dpWppLHJwg \n*The content provided by Solve M.E. in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.*
URL:https://solvecfs.org/event/skeletal-muscle-fatigue-and-post-exertional-malaise-in-patients-with-long-covid-and-implications-for-me-cfs/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/09/WustWebinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240910T120000
DTEND;TZID=America/Los_Angeles:20240910T130000
DTSTAMP:20260729T092719
CREATED:20240724T232700Z
LAST-MODIFIED:20240724T232804Z
UID:40840-1725969600-1725973200@solvecfs.org
SUMMARY:Solve Author Series:  Dr. Peter Rowe Discusses "Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment"
DESCRIPTION:Orthostatic intolerance (OI) describes a group of circulatory disorders whose symptoms are characterized by a dramatic drop in blood flow to the brain when people are sitting for long periods or standing still. It is often associated with other acute issues\, such as substantial drops in blood pressure\, tachycardia\, dizziness\, fainting\, or other long-term problems\, including ME/CFS and Long Covid.  \nIn his new book\, Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment\, Peter Rowe\, MD\, (Director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center and member of Solve M.E.’s Research Advisory Council) provides an overview of OI and its causes\, diagnosis\, symptom management and more.  \nIn this installment of our author spotlight series\, Solve President and CEO Emily Taylor talks to Dr. Rowe about his indispensable new guide for those diagnosed with the disorder\, their families\, and physicians. \nGuided by decades of research on managing and treating OI patients\, Dr. Rowe will provide illustrative case studies to help explain the disease and answer questions from attendees. \nPurchase a copy of Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment via Johns Hopkins University Press or Amazon. \nTuesday\, September 10\, 2024\n12-1 pm PT / 3-4 pm ET\nRegister here:\nhttps://us02web.zoom.us/webinar/register/WN_8pUWIfiqSvaL_d8gByvbUg
URL:https://solvecfs.org/event/solve-author-series-dr-peter-rowe-discusses-living-well-with-orthostatic-intolerance-a-guide-to-diagnosis-and-treatment/
CATEGORIES:Long Covid,Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/07/Rowe-Webinar-Sept.-2024-IG-500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240702T130000
DTEND;TZID=America/Los_Angeles:20240702T140000
DTSTAMP:20260729T092719
CREATED:20240612T232500Z
LAST-MODIFIED:20240624T163929Z
UID:40591-1719925200-1719928800@solvecfs.org
SUMMARY:Covid Vaccinations: Efficacy\, Options\, and Special Considerations for Chronic Illness
DESCRIPTION:People with chronic illnesses often have compromised immune systems or ongoing health issues that can affect how they respond to vaccines. The effectiveness and potential side effects of vaccines may differ for these individuals compared to the general population. Individuals with chronic illnesses may be at a higher risk of experiencing adverse reactions to vaccines. This can make them hesitant to receive the vaccine and necessitates a careful evaluation of risks and benefits. \nTo help inform our community\, Solve is hosting the free webinar\, “Covid Vaccinations: Efficacy\, Options\, and Special Considerations for Chronic Illness.” Solve President & CEO Emily Taylor and Solve Chief Scientific Officer H. Tim Hsiao\, PhD. will talk to infectious disease epidemiologist and science communicator Jessica Malaty Rivera\, M.S. (Chair\, Committee of Scientific and Medical Advisors\, Vaccinate Your Family) and distinguished physician Melanie Hoppers\, M.D. (Medical Provider\, Bateman Horne Center) about the complex issues surrounding Covid vaccination for those with ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses. \nThis comprehensive session will delve into: \n• The effectiveness of Covid vaccinations in preventing Long Covid and other long-term symptoms.\n• An overview of the different types of Covid vaccines currently available.\n• Insights into how vaccine manufacturers address the special needs of individuals with chronic illnesses during vaccine development.\n• Expert advice on how people with ME/CFS\, Long Covid\, and other infection-associated chronic conditions can make informed decisions about Covid vaccination. \nOur experts will provide valuable information\, answer your questions\, and offer practical guidance tailored to those with chronic health conditions. Don’t miss this opportunity to gain clarity and confidence in your vaccination choices. \nThis event is funded in part by an educational grant from Novavax. \nRegister here:\nhttps://us02web.zoom.us/webinar/register/WN_-vcECdI4QImGHEJpSJOo-Q
URL:https://solvecfs.org/event/covid-vaccinations-efficacy-options-and-special-considerations-for-chronic-illness/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/06/CovidVaccinationsWebinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240510T090000
DTEND;TZID=America/Los_Angeles:20240510T120000
DTSTAMP:20260729T092719
CREATED:20240429T164557Z
LAST-MODIFIED:20240429T164702Z
UID:40388-1715331600-1715342400@solvecfs.org
SUMMARY:World ME Day: Bridging Borders – Global Voices from the World ME Alliance
DESCRIPTION:Solve is a proud co-founder of the World ME Alliance and we invite you to join us this year for the World ME Day event Bridging Borders – Global Voices from the World ME Alliance! \nSolve M.E. President and CEO and World ME Alliance Co-Chair Emily Taylor will represent Solve as one of the many nonprofit organizations from across the globe showcasing our work to build a #GlobalVoiceForME. \nTune in on May 10th at 9am PT\, 12pm ET\, 5pm BST\, 6pm CEST. \nRSVP on Facebook here: https://www.facebook.com/events/974991507395331/ \nThis event will be livestreamed\, allowing individuals from around the world to tune in\, in real-time. The event will be available to watch afterward on Facebook. \nOr you can register here to join us for the event on Zoom (limited spaces): https://worldmealliance.org/2024/04/register-for-our-live-event-bridging-borders-global-voices-from-the-world-me-alliance/ \nEmily will be joined by speakers from around the world\, including South Africa\, Czechia\, Italy\, France\, and more! \nWith the World ME Alliance\, Solve is bridging borders\, forging connections\, and building toward a better future for people with ME. \n 
URL:https://solvecfs.org/event/world-me-day-bridging-borders-global-voices-from-the-world-me-alliance/
CATEGORIES:Advocacy,Conference,Research,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/04/WorldMEAllianceEvent_5.10.24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240508T123000
DTEND;TZID=America/Los_Angeles:20240508T133000
DTSTAMP:20260729T092719
CREATED:20240409T224442Z
LAST-MODIFIED:20240507T205214Z
UID:40225-1715171400-1715175000@solvecfs.org
SUMMARY:Comparing immunological signatures between Long Covid and ME/CFS
DESCRIPTION:**Webinar date changed to May 8\, 2024** \nDr. David Putrino and Dr. Jamie Wood\, of the Icahn School of Medicine at Mount Sinai\, have conducted several landmark studies on Long Covid. Their extensive research has led them to suspect that the immune responses of people with Long Covid differ in important ways from the immune responses of other people. If so\, these differences (called immunological signatures) may explain why some people develop Long Covid symptoms and hopefully lead to the development of new therapies. To find this information\, the team uses a wide range of cutting-edge technologies to compare blood and saliva samples from people with Long Covid with those from healthy participants. \nBecause both Long Covid and ME/CFS are post-acute infection syndromes (and have similar symptoms)\, the team also wants help from people with ME/CFS to find immunological signatures for ME/CFS. Similarities between the ME/CFS and Long Covid signatures may lead to therapeutic options for anyone with a post-acute-infection syndrome. \nIn this webinar\, Dr. Putrino and Dr. Wood will explain their ongoing research and the current study\, which has high potential to generate new knowledge and to help people diagnosed with ME/CFS or other post-acute infection syndromes. \nRegister here: https://us02web.zoom.us/webinar/register/WN_GY4b1ezER7udraoDjGTD8g \nThe Solve Together Real-World Data Platform (ST-RWD) will soon begin to refer consented ST-RWD users who have relevant profiles to be considered for participating in this study that compares ME/CFS and Long Covid. If you are interested\, please consider joining ST-RWD via https://solvecfs.org/research/solve-together/ by April 30\, 2024. You can also email us at research@solvecfs.org if you have any questions.
URL:https://solvecfs.org/event/comparing-immunological-signatures-between-long-covid-and-me-cfs/
CATEGORIES:Long Covid,Research,Solve Together
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/04/MAY-8-Putrino-Webinar-IG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240429T130000
DTEND;TZID=America/Los_Angeles:20240429T140000
DTSTAMP:20260729T092719
CREATED:20240409T175152Z
LAST-MODIFIED:20240430T005000Z
UID:40219-1714395600-1714399200@solvecfs.org
SUMMARY:Symptom Management and Patient Empowerment Through The Long Covid Wearable Study
DESCRIPTION:The lived experiences of people with ME and Long Covid have shown that activity management\, or pacing\, can be an effective method of reducing symptom severity. However\, pacing is difficult to implement. Many people living with energy-limiting conditions have utilized wrist-worn wearables\, or activity trackers\, to help implement pacing. To validate the value of using wearables to implement pacing\, Scripps Research is launching The Long Covid Wearable Study. This one-year study will gather survey and wearable data in a bid to better manage symptoms and empower study participants to manage their health. \nIn this webinar\, Julia Moore Vogel\, PhD\, (Senior Program Director at Scripps Research and Principal Investigator of the Long Covid Wearable Study) will share more details on the study (including the inclusion criteria)\, explain how you can join the study using your Solve Together account\, and answer questions from attendees. \nIf you are enrolled in the Solve Together Real-World Data Platform (ST-RWD)\, you can easily join this study based on your ST-RWD account. We will send relevant instructions through the ST-RWD platform messaging system by May 6th\, 2024\, on how to join this study directly from your ST-RWD dashboard. \nIf you are not a current user of the Solve Together RWD Platform\, you can learn more about what the platform has to offer on this webpage (https://solvecfs.org/research/solve-together/). You can also email us at research@solvecfs.org if you have any questions. \nWatch a recording of the webinar here:
URL:https://solvecfs.org/event/symptom-management-and-patient-empowerment-through-the-long-covid-wearable-study/
CATEGORIES:Long Covid,Research,Solve Together,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/04/Scripps-Webinar-IG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240419T090000
DTEND;TZID=America/Los_Angeles:20240419T124500
DTSTAMP:20260729T092719
CREATED:20240312T171855Z
LAST-MODIFIED:20240412T192104Z
UID:39964-1713517200-1713530700@solvecfs.org
SUMMARY:EmPOWER M.E.: How to Build and Work with Your Care Team
DESCRIPTION:As part of Advocacy Week 2024\, our EmPOWER M.E. roundtable on April 19 at 9 am PT / 12 pm ET will feature panels of patient advocates\, professionals\, and scientists who share their expertise on topics relevant to the quality of life for people with ME/CFS\, Long Covid\, and their caregivers. The EmPOWER M.E. topic this year will be “How to Build and Work with Your Care Team.” \nSusannah Fox\, author of Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care (MIT Press\, 2024)\, will be the keynote speaker. \nIn Rebel Health\, Fox draws on twenty years of tracking the expert networks of patients\, survivors\, and caregivers who have come of age between the cracks of the healthcare system to offer a way forward. \nEvent Agenda: \n9:00 am PT/12:00 pm ET – EmPOWER M.E. Main Session \n10:30 am PT/1:30 pm ET – 30-minute Break \n11:00 am PT/2:00 pm ET – Panel 1 – What it’s like to be part of a care team (Care Team Perspective) \n11:45 am PT/2:45 pm ET – 15-minute Break \n12:00 pm PT/3:00 pm ET – Panel 2 – How to work with your care team (Patient & Caregiver Perspective) \n12:45 pm PT/4:45 pm ET – End of event \nPanelists include:  \nAshanti Daniel\, Registered Nurse\, Chronic Illness Advocate \nDale Bolger\, Clinical Social Worker/Therapist \nAmy Mooney\, Occupational Therapist \nSanna Stella\, Behavioral Health Specialist \nEmily Taylor\, Solve M.E. President and CEO \n  \nPre-registration is required.  \nRegister here for EmPower M.E. on April 19! \n 
URL:https://solvecfs.org/event/empower-m-e-how-to-build-and-work-with-your-care-team/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Updated-Panelists-Empower-ME-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240415
DTEND;VALUE=DATE:20240420
DTSTAMP:20260729T092719
CREATED:20231116T165801Z
LAST-MODIFIED:20240129T231857Z
UID:39499-1713139200-1713571199@solvecfs.org
SUMMARY:Advocacy Week 2024
DESCRIPTION:Advocacy Week 2024 will take place virtually throughout the week of April 15th to April 19th\, 2024. \nAdvocacy Week is a nationwide advocacy effort to connect people with ME/CFS\, Long Covid\, and associated conditions; scientists; clinicians\, and caregivers to share their unique stories with Congress. Our ultimate goal is to make ME/CFS\, Long Covid\, and post-infection diseases widely understood\, diagnosable\, and treatable. \nThere will be actions for every energy level and ability to join\, from social media posts to virtual meetings with congressional leaders.  \nKey dates are listed below: \nMonday\, April 15th\, 2024 – Training Day \nTuesday\, April 16th\, 2024 – Senate Advocacy Day \nWednesday\, April 17th\, 2024 – Social Media Action Day \nThursday\, April 18th\, 2024 – House Advocacy Day \nFriday\, April 19th\, 10 AM ET\, 2024 – EmPOWER ME Day \nYou can register for Advocacy Week 2024 here. \nStay tuned for other ways to get involved by signing up for the Solve M.E. email newsletter.
URL:https://solvecfs.org/event/advocacy-week-2024/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/12/AdvoWeek2024BannerStacked.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240410T160000
DTEND;TZID=America/Los_Angeles:20240410T170000
DTSTAMP:20260729T092719
CREATED:20240312T171000Z
LAST-MODIFIED:20240321T192001Z
UID:39962-1712764800-1712768400@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 4 - South
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nStay tuned for call registration info. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-4-south/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240408T160000
DTEND;TZID=America/Los_Angeles:20240408T170000
DTSTAMP:20260729T092719
CREATED:20240312T164926Z
LAST-MODIFIED:20240321T192413Z
UID:39952-1712592000-1712595600@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 4: How to use the Advocacy Associates App
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App \n \nStay tuned for Training Session registration info.
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-4-how-to-use-the-advocacy-associates-app/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240403T160000
DTEND;TZID=America/Los_Angeles:20240403T170000
DTSTAMP:20260729T092719
CREATED:20240312T170631Z
LAST-MODIFIED:20240321T192026Z
UID:39959-1712160000-1712163600@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 3 - Midwest
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nStay tuned for call registration info. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-3-midwest/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240401T160000
DTEND;TZID=America/Los_Angeles:20240401T170000
DTSTAMP:20260729T092719
CREATED:20240312T164746Z
LAST-MODIFIED:20240321T192347Z
UID:39950-1711987200-1711990800@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 3: What we are advocating for
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App \n \nStay tuned for Training Session registration info.
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-3-what-we-are-advocating-for/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240327T160000
DTEND;TZID=America/Los_Angeles:20240327T170000
DTSTAMP:20260729T092719
CREATED:20240312T170357Z
LAST-MODIFIED:20240321T192050Z
UID:39957-1711555200-1711558800@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 2 - Northeast
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nStay tuned for call registration info. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-2-northeast/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240325T160000
DTEND;TZID=America/Los_Angeles:20240325T170000
DTSTAMP:20260729T092719
CREATED:20240312T164502Z
LAST-MODIFIED:20240321T192307Z
UID:39948-1711382400-1711386000@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 2: What to expect in your meetings
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App  \n  \nStay tuned for Training Session registration info.
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-2-what-to-expect-in-your-meetings/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240320T160000
DTEND;TZID=America/Los_Angeles:20240320T170000
DTSTAMP:20260729T092719
CREATED:20240312T165756Z
LAST-MODIFIED:20240321T192112Z
UID:39954-1710950400-1710954000@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 1 - West
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-1-west/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240318T160000
DTEND;TZID=America/Los_Angeles:20240318T170000
DTSTAMP:20260729T092719
CREATED:20240306T221835Z
LAST-MODIFIED:20240321T192209Z
UID:39922-1710777600-1710781200@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 1: How to tell your story
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App  \n  \n 
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-1-how-to-tell-your-story/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240228T113000
DTEND;TZID=America/Los_Angeles:20240228T123000
DTSTAMP:20260729T092719
CREATED:20240201T174614Z
LAST-MODIFIED:20240212T235042Z
UID:39774-1709119800-1709123400@solvecfs.org
SUMMARY:Webinar: Hydrogen Water Dosing Study for ME/CFS: A New Clinical Trial
DESCRIPTION:Free radicals are molecules with one or more unpaired electrons in their outer shells. They tear holes in cell membranes\, releasing an overabundance of even more free radicals and preventing proper cell functionality.   \nAntioxidants are molecules stable enough to donate an electron to a rampaging free radical and neutralize it\, containing the damage it can cause. Some studies indicate that the antioxidant systems of ME/CFS patients cannot effectively contain an abundance of free radicals\, causing inflammation\, mitochondria and blood vessel damage\, and other symptoms of ME/CFS.  \nHydrogen-enriched water is an effective antioxidant with the power to absorb free radicals. In this webinar\, Fred Friedberg\, PhD\, (Research Professor at Stony Brook University School of Medicine)\, will discuss his current ongoing clinical trial “Hydrogen Water Dosing Study for ME/CFS\,” designed to explore the potential benefit of the over the counter (OTC) supplement hydrogen water\, for the symptoms of ME/CFS. \nRecruitment for Dr. Friedberg’s study is being conducted on the Solve Together platform.  \nFor more information or to join\, use the QR code below\, click this link\, or email us at research@solvecfs.org. \nIf you are already a Solve Together participant\, you will automatically be considered in eligibility screening for this and all future studies and should hear from us within two  weeks of each study announcement.\n \n \nRegister here.
URL:https://solvecfs.org/event/webinar-hydrogen-water-dosing-study-for-me-cfs-a-new-clinical-trial/
CATEGORIES:Research,Solve Together,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/02/Feb-28-Friedberg-Webinar_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240216T140000
DTEND;TZID=America/Los_Angeles:20240216T150000
DTSTAMP:20260729T092719
CREATED:20240131T224155Z
LAST-MODIFIED:20240214T063942Z
UID:39761-1708092000-1708095600@solvecfs.org
SUMMARY:Caregiving\, Grief\, and Self-Care: Healthy Coping Through Change\, and Loss
DESCRIPTION:In our Caregiver Corner webinar series\, Stephanie Harrison\, founder of The New Happy\, joins Solve M.E. to help you cultivate greater well-being by sharing her unique perspective as a caregiver fused with her expertise in applied positive psychology. \nIn this session\, and in honor of National Caregivers Day (February 16)\, Stephanie will cover the topic of grief. As with patients\, sometimes being a caregiver means grieving losses caused by living with a debilitating disease. From changing relationships and missed opportunities to coping with regret\, Stephanie will discuss tools for managing these difficult feelings and finding hope—and even joy—through times of change and loss. \nStephanie’s interdisciplinary approach to studying happiness is based on hundreds of academic studies and original research that informs The New Happy philosophy that true\, lasting happiness comes from being of service to others. \nNo registration is required. Join at this link.
URL:https://solvecfs.org/event/caregiving-grief-and-self-care-healthy-coping-through-change-and-loss/
CATEGORIES:Advocacy,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/01/CaregiverFebUpdateFRIDAY_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240126T120000
DTEND;TZID=UTC:20240126T130000
DTSTAMP:20260729T092719
CREATED:20240123T224519Z
LAST-MODIFIED:20240125T213444Z
UID:39759-1706270400-1706274000@solvecfs.org
SUMMARY:January 2024 Advocacy Cafe Chat
DESCRIPTION:Join us for this month’s Advocacy Cafe Chat! In this session\, Solve’s Vice President of Advocacy and Engagement Emily Taylor will review our recently updated Policy Advocacy Statement\, which drives our decisions about the advocacy and engagement work we do here at Solve. Tune in to share your views about the updated Solve Policy Advocacy Statement! \nPlease note — no registration is required. Join at this link.
URL:https://solvecfs.org/event/january-2024-advocacy-cafe-chat/
CATEGORIES:Advocacy,Advocacy Week 2024,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/01/Advocacy-Cafe-Jan-2024_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240122T130000
DTEND;TZID=UTC:20240122T140000
DTSTAMP:20260729T092719
CREATED:20240109T015707Z
LAST-MODIFIED:20240116T233355Z
UID:39715-1705928400-1705932000@solvecfs.org
SUMMARY:Changes in the Gut Microbiome in ME/CFS and Long Covid
DESCRIPTION:Solve Ramsay Research Grant winner David Esteban\, PhD\, (Assoc. Professor of Biology\, Vassar College) will discuss ongoing work in his lab determining whether there is a link between changes in the gut microbiome and disease in ME/CFS and Long Covid. The collection of bacteria in the gut\, known as the gut microbiome\, produces many small molecules that can affect the immune\, nervous\, and gastrointestinal systems. In several other diseases\, microbial products of the amino acid tryptophan have been linked to symptoms or disease severity. \nIn this webinar\, Esteban will discuss his work to measure the amounts and activity of these important molecules in people with ME/CFS and Long Covid. Recruitment for Dr. Esteban’s study is being conducted on the Solve Together platform\, for more information or to join\, visit SolveTogether.org or email us at research@solvecfs.org. \nThis event is funded in part by an educational grant from Novavax.
URL:https://solvecfs.org/event/changes-in-the-gut-microbiome-in-me-cfs-and-long-covid/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/01/Jan-22-Gut-Microbiome-Final_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231211
DTEND;VALUE=DATE:20231214
DTSTAMP:20260729T092719
CREATED:20231018T191426Z
LAST-MODIFIED:20231026T192224Z
UID:39407-1702252800-1702511999@solvecfs.org
SUMMARY:Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID
DESCRIPTION:NIH ME/CFS Research Roadmap Webinar Series\nAugust – December 2023\nThis virtual webinar series is part of a larger effort to develop a Research Roadmap for ME/CFS\, which will identify research priorities to move the field toward translational studies and clinical trials. \nSave the date for two NIH ME/CFS events in December 2023! Additional details will be provided via the NIH ME/CFS listserv. \n\nNIH ME/CFS Young and Early Investigators Conference\nDecember 11\, 2023\nBethesda\, MD (in-person and virtual)\nAdvancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID\nDecember 12-13\, 2023\nBethesda\, MD (in-person and virtual)
URL:https://solvecfs.org/event/advancing-me-cfs-research-identifying-targets-for-intervention-and-learning-from-long-covid/
LOCATION:Online
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/NIHStudyVolunteers.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231207T120000
DTEND;TZID=America/Los_Angeles:20231207T130000
DTSTAMP:20260729T092719
CREATED:20231114T164759Z
LAST-MODIFIED:20231122T145559Z
UID:39491-1701950400-1701954000@solvecfs.org
SUMMARY:The Patient-Doctor Partnership: Optimally Treating People with Long Covid and ME/CFS Across the US
DESCRIPTION:Solve welcomes three medical providers who will share their experience with treating Long Covid\, ME/CFS\, POTS\, and dysautonomia patients across rural\, urban\, and suburban settings. Dr. Melanie Hoppers (co-founder and Chief Medical Officer at Physicians Quality Care\, in Jackson\, TN)\, Dr. William Pittman (co-director of the UCLA Long COVID Program)\, and Dr. Tiffany Walker (Principal Investigator for the Post-COVID Clinic Grady Hospital\, Emory University School of Medicine) will share how integrating a broader understanding of associated post-infection diseases has informed their care\, and offer insights into how patients and caregivers can best work together to create an optimal treatment experience. \n  \nThis event is funded in part by an educational grant from Novavax.
URL:https://solvecfs.org/event/the-patient-doctor-partnership-optimally-treating-people-with-long-covid-and-me-cfs-across-the-us/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/11/dec-7-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231127T140000
DTEND;TZID=America/Los_Angeles:20231130T163000
DTSTAMP:20260729T092719
CREATED:20230612T223959Z
LAST-MODIFIED:20230619T222913Z
UID:38679-1701093600-1701361800@solvecfs.org
SUMMARY:World Vaccine Congress West Coast 2023
DESCRIPTION:From November 27-30\, 2023 in Santa Clara\, The World Vaccine Congress\, West Coast will connect key stakeholders from across the industry in infectious disease vaccines\, cancer immunotherapies and antiviral therapeutics. From early development through to commercialization\, with a key focus on the methods and technology used to decode the immune system enabling us to develop more effective & targeted therapies for both ID and cancer\, this is an event you cannot afford to miss. \nWith 1000+ attendees\, this congress will be critical to those looking to stay abreast of the latest developments in this space\, benchmark their company against KOLs\, and will facilitate opportunities for partnerships and collaborations through our extensive networking opportunities. \nOur community is receiving discount codes to register: \n\n25% discount code is now live through until the end of the event: SME25\nPersonalized registration link: www.terrapinn.com/WVCWC/SolveME
URL:https://solvecfs.org/event/the-world-vaccine-congress-west-coast-2023/
LOCATION:Online
CATEGORIES:Conference
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/06/WVC-2023-Updated.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231027T100000
DTEND;TZID=America/Los_Angeles:20231027T110000
DTSTAMP:20260729T092719
CREATED:20231011T213849Z
LAST-MODIFIED:20231011T213849Z
UID:39349-1698400800-1698404400@solvecfs.org
SUMMARY:October Advocacy Cafe
DESCRIPTION:Join us for this month’s Advocacy Cafe Chat! This session will be your chance to provide input on our Policy Advocacy Statement. We are about to begin updating the statement\, which drives our decisions about the advocacy and engagement work we do here at Solve. We want to ensure that we hear from the community as we move into this phase of reflection and direction setting. \nPlease note — no registration is required. Join at this link.
URL:https://solvecfs.org/event/october-advocacy-cafe/
LOCATION:Online
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/Advocacy-Cafe.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231024T120000
DTEND;TZID=America/Los_Angeles:20231024T130000
DTSTAMP:20260729T092719
CREATED:20230829T180429Z
LAST-MODIFIED:20230929T042408Z
UID:39118-1698148800-1698152400@solvecfs.org
SUMMARY:Power of Community: Infection Associated Chronic Conditions Patient Advocacy Coalition Initiative Webinar
DESCRIPTION:Witness the power of community on Tuesday\, October 24 at 12PM ET / 9AM PT as the IACC- Patient Advocacy Coalition (IACCPAC) Initiative team presents findings from a new report about the needs and priorities of the infection-associated chronic conditions community. \nThis national webinar is part of the IACCPAC Initiative\, led by Solve M.E.\, the Long Covid Alliance\, COVID-19 Longhauler Advocacy Project\, Dysautonomia International\, and Patient-Led Research Collaborative\, with support from the CDC Foundation through the Infection Initiated Chronic Conditions Understanding and Engagement (ICUE). \nDuring our webinar\, we’ll present findings from our workshop sessions and identify a roadmap that we hope will strengthen support for individuals experiencing IACC through strategic collaboration. \nKey topics to be covered during the webinar include: \n\nCommunity Voices: Hear directly from those living with infection-associated chronic conditions\, sharing their experiences and perspectives.\nPriority Areas: Discover the most urgent needs and concerns identified by our community.\nFuture Goals: Learn about our collective vision for advancing research\, awareness\, and support for IACCs.\nAction Steps: Find out how you can get involved and make a difference in the lives of those affected by IACCs.\n\nRegister here.
URL:https://solvecfs.org/event/power-of-community-infection-associated-chronic-conditions-patient-advocacy-coalition-initiative-webinar/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/09/IACCPAC-October-Webinar-Graphic-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231019T080000
DTEND;TZID=America/Los_Angeles:20231019T090000
DTSTAMP:20260729T092719
CREATED:20231018T185555Z
LAST-MODIFIED:20231018T185555Z
UID:39404-1697702400-1697706000@solvecfs.org
SUMMARY:ME/CFS RESEARCH ROADMAP WEBINAR SERIES
DESCRIPTION:Tomorrow’s NINDS ME/CFS Research Roadmap webinar at 11AM ET will focus on how ME/CFS impacts the immune system\, current research\, knowledge gaps\, and future research opportunities. \n\n\n \n\n\nRegister here.\n\n\n \n\n\nA recording of the first session\, focusing on the nervous system\, is available here.
URL:https://solvecfs.org/event/me-cfs-research-roadmap-webinar-series/
LOCATION:Online
CATEGORIES:Research
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/10/MECFS-Research-Roadmap.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231004T110000
DTEND;TZID=America/Los_Angeles:20231004T120000
DTSTAMP:20260729T092719
CREATED:20230914T220524Z
LAST-MODIFIED:20230914T220524Z
UID:39221-1696417200-1696420800@solvecfs.org
SUMMARY:
DESCRIPTION:Join Solve Senior Director of Research Leslie E. Phillips\, PhD for a walkthrough of our new patient-centered data platform\, Solve Together! In this webinar\, we’ll share information about joining the platform\, share tips for maximizing built-in tools for participants\, and answer your questions. \nSolve Together is fully accessible by smartphone and will allow participants to track symptoms\, connect wearables\, download reports for doctor visits\, link electronic health records\, and expend less time and energy on participation through short\, infrequent surveys and passive data collection. \nStay tuned for additional webinars in the Solve Together series. \nRegister here.
URL:https://solvecfs.org/event/39221/
LOCATION:Online
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/09/Solve-Together-Basics-Webinar.png
END:VEVENT
END:VCALENDAR