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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260714T150000
DTEND;TZID=America/Los_Angeles:20260714T160000
DTSTAMP:20260726T135300
CREATED:20260622T155750Z
LAST-MODIFIED:20260622T155750Z
UID:44319-1784041200-1784044800@solvecfs.org
SUMMARY:Repurposing Rapamycin: A Report On the First Biomarker-Driven Treatment Trial for ME/CFS
DESCRIPTION:In 2025\, Simmaron Research was the second recipient of Solve’s ME/CFS Catalyst Award in support of its study\, “Low Dose Rapamycin in ME/CFS\, Long-COVID\, and Other Infection-Associated Chronic Conditions.” The study hypothesizes that mTOR inhibition through rapamycin may address observed findings of autophagy impairment and symptoms in a subset of patients with ME/CFS and other infection-associated chronic conditions and illnesses (IACCIs).   \nThe study advances an already FDA-approved drug for reducing key symptoms of ME/CFS and Long Covid\, repurposing rapamycin to reduce fatigue\, orthostatic intolerance\, post-exertional malaise\, and sleep issues for a subset of people with ME/CFS. \nIn this webinar hosted by Solve M.E. President Emily Taylor\, panelists Courtney Miller (Board President at Simmaron)\, Dr. C. Gunnar Gottschalk (Chief Executive Officer at Simmaron)\, and Dr. Avik Roy (Chief Scientific Officer at Simmaron) will discuss the latest learnings from the study\, and their plan to conduct an  NIH exploratory treatment trial based on the data. 
URL:https://solvecfs.org/event/repurposing-rapamycin-a-report-on-the-first-biomarker-driven-treatment-trial-for-me-cfs/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2026/06/July14SimmaronWebinar2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260610T110000
DTEND;TZID=America/Los_Angeles:20260610T120000
DTSTAMP:20260726T135300
CREATED:20260512T140632Z
LAST-MODIFIED:20260512T140632Z
UID:43930-1781089200-1781092800@solvecfs.org
SUMMARY:Sequence ME & Long Covid: The Search for ME/CFS and Long Covid Biomarkers and Subtypes
DESCRIPTION:The DecodeME Project is the largest genetic study of ME/CFS conducted to date and has identified eight genetic signals where people with ME/CFS tend to differ from those without\, linked to the immune and nervous systems. These landmark findings reflect the lived experience of thousands of people with ME/CFS\, providing validation and exciting new avenues for research. \nIn earlier work\, the DecodeME team analyzed the genomes of 15\,500 people with ME/CFS\, finding critical genomic spots where variation significantly influences disease risk. Now\, with support from a Solve ME/CFS Catalyst Award\, the team will set up this ambitious project\, allowing them later to read these genomes in even more detail. \nWhile the earlier DecodeME study used technology that examined only a million genomic spots per participant\, the wider project will leverage Oxford Nanopore Technology’s new whole genome sequencing method to examine all three billion spots across the genome for most participants (9\,000 of the original 15\,500 participants). \nIn this free educational webinar\, host Dr. Jessica Maya (Solve Vice President of Scientific Programs) will talk to the DecodeME management team and recent Catalyst Award honorees Prof. Chris Ponting (Chair of Medical Bioinformatics\, University of Edinburgh)\, Sonya Chowdhury (Chief Executive\, Action For ME) and Andy Devereux-Cooke (Patient Representative and Co-Investigator at DecodeME Study) about how their study could reveal many more genes\, gene-regulation elements\, and biological pathways that affect ME/CFS risk\, advance efforts to identify new biomarkers for disease subtypes\, and ultimately lead to new treatments. \nRegister for the event here.
URL:https://solvecfs.org/event/sequence-me-long-covid-the-search-for-me-cfs-and-long-covid-biomarkers-and-subtypes/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2026/05/June10DecodeMEFINAL.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260428T150000
DTEND;TZID=America/Los_Angeles:20260428T160000
DTSTAMP:20260726T135300
CREATED:20260225T175319Z
LAST-MODIFIED:20260227T012933Z
UID:43389-1777388400-1777392000@solvecfs.org
SUMMARY:The Discovery of Target Antigens for Dysfunctional T Cells in ME/CFS and Long COVID
DESCRIPTION:Dr. Liisa Selin\, Dr. Ayano Kohlgruber\, and Dr. Roshan Kumar received a Solve ME/CFS Catalyst Award for their study searching for the exact proteins recognized by T-cell receptors from a person with ME/CFS and a person with Long Covid. \nThese disease-associated T cells include “exhausted” CD8+ T cells and “double-positive” CD4+/CD8+ T cells (which are found in people with autoimmune diseases\, too). The researchers hypothesize that these T cells recognize fragments of microbial proteins critical for developing the disease. The microbial protein fragments may overstimulate and exhaust the T cells. \nAlso\, fragments of human proteins may resemble these microbial protein fragments; thus\, the disease-associated T cells may cross-react with human proteins to drive an autoimmune response. \nIn this study\, the research team will screen a library of protein fragments from microbes (viruses and bacteria) that are associated with developing Long Covid or ME/CFS (e.g.\, SARS-CoV-2\, B. burgdorferi\, enteroviruses)\, and a library of protein fragments from humans (to find self-antigens). \nIf successful\, these deliverables would be important for understanding how much persisting pathogens or self-antigens can exhaust the immune system\, and how dysfunctional and exhausted immune responses contribute to ME/CFS and Long Covid. \nIn this webinar hosted by Solve M.E. VP of Scientific Programs Dr. Jessica Maya\, the panelists will discuss the study and how this work could also produce new disease biomarkers and suggest new treatments for patient subgroups\, as well as how the libraries of human leukocyte antigen–displayed microbial and human protein fragments established by this work could be valuable resources for future ME/CFS and Long Covid studies.
URL:https://solvecfs.org/event/the-discovery-of-target-antigens-for-dysfunctional-t-cells-in-me-cfs-and-long-covid/
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2026/02/SelinSolveWebinarApril282026JMFinal-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260416T083000
DTEND;TZID=America/Los_Angeles:20260416T093000
DTSTAMP:20260726T135300
CREATED:20260225T175057Z
LAST-MODIFIED:20260401T190628Z
UID:43385-1776328200-1776331800@solvecfs.org
SUMMARY:GLP-1 Drugs to Reduce Symptoms in People with ME/CFS and Identify Disease Subgroups
DESCRIPTION:Glucagon-Like Peptide-1 (GLP-1) agonist medications\, like semaglutide\, are injectable or oral drugs that mimic the natural GLP-1 hormone\, which helps regulate insulin levels. Thus\, these medicines help control blood sugar in people with Type 2 diabetes and promote substantial weight loss for individuals with a high body mass index (BMI) by slowing digestion\, reducing appetite\, and increasing insulin release. \n\nBut can they also ease symptoms in people with ME/CFS and identify disease subtypes?\n\nSolve Ramsay Research Grant Program alum Dr. Carmen Scheibenbogen (acting director of the Institute for Medical Immunology of the Charité University Hospital in Berlin) recently received a Solve ME/CFS Catalyst Award for her study evaluating whether semaglutide reduces symptoms and improves quality of life for people with ME/CFS who have high BMI.\n\nIn this free educational webinar hosted by Solve Chief Scientific Officer Dr. Sadie Whittaker and VP of Scientific Programs Dr. Jessica Maya\, Dr. Scheibenbogen will discuss details of her study\, explain how her research will identify biomarkers\, and discuss how these results could help determine which patients are most likely to benefit from treatment.
URL:https://solvecfs.org/event/glp-1-drugs-to-reduce-symptoms-in-people-with-me-cfs-and-identify-disease-subgroups/
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2026/02/ScheibenbogenMayaWhittakerTw.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260211T120000
DTEND;TZID=America/Los_Angeles:20260211T130000
DTSTAMP:20260726T135300
CREATED:20251104T211937Z
LAST-MODIFIED:20251104T211937Z
UID:42968-1770811200-1770814800@solvecfs.org
SUMMARY:Protecting the Ones You Love: Legal & Insurance Tools for ME/CFS Caregivers
DESCRIPTION: Caring for someone with ME/CFS is an act of deep love–and preparation is one of the most meaningful ways to protect their future. \nHosted by Solve M.E. Director of Advocacy Monique Wike\, Andrew Kantor\, Esq. (Senior Partner at Kantor & Kantor\, LLP)\,  will walk caregivers through essential legal and insurance strategies to support a loved one living with ME/CFS. \nAndrew will break down long-term disability (LTD) insurance\, long-term care (LTC) planning\, medical and legal documentation tips\, and practical steps families can take to secure benefits and long-term stability. \nWhether you’re just beginning this journey or planning ahead\, you’ll gain the knowledge and confidence to advocate effectively\, protect your loved one’s financial security\, and support their care with clarity and strength. \nRegister here:\nhttps://us02web.zoom.us/webinar/register/WN_wfVeRW4bTXGLRUp5VjHzng
URL:https://solvecfs.org/event/protecting-the-ones-you-love-legal-insurance-tools-for-me-cfs-caregivers/
CATEGORIES:Advocacy,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2025/11/Protecting-the-Ones-You-Love-Legal-Insurance-Tools-for-MECFS-Caregivers-Final.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260115T090000
DTEND;TZID=America/Los_Angeles:20260115T100000
DTSTAMP:20260726T135300
CREATED:20251028T001815Z
LAST-MODIFIED:20251028T001815Z
UID:42923-1768467600-1768471200@solvecfs.org
SUMMARY:From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test
DESCRIPTION:For the first time\, scientists have developed a simple\, accurate blood test that can potentially identify Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) — a long-term\, debilitating condition that affects millions of patients worldwide.  \nThe study (published in the Journal of Translational Medicine)\, led by the University of East Anglia in partnership with Oxford BioDynamics\, used cutting-edge 3D genomic technology to look at how DNA is folded inside blood cells. Just like origami\, the shape and folds of DNA control which genes are switched on or off.  \nThe team discovered a distinctive pattern of these folds that appears only in people with ME/CFS — providing a clear biological “fingerprint” of the disease. Using this pattern\, the researchers created a blood test that can diagnose ME/CFS with 96% accuracy. Until now\, doctors have had to rely on symptoms alone and rule out other illnesses\, a process that can take years. This test offers the potential for quicker\, more confident diagnoses and could end the uncertainty many patients face. \nBeyond diagnosis\, the findings also point toward disrupted immune and inflammation pathways\, which may help scientists develop targeted treatments in the future. The same approach could even pave the way for a similar test for Long Covid\, which shares many of the same biological features as ME/CFS. \nThis discovery marks an important turning point: it brings scientific validation to patients whose symptoms have too often been dismissed\, and it opens the door to better understanding\, earlier support\, and more effective care for people living with this complex condition. \nIn this webinar\, Solve CEO Emily Taylor will host research team members Dr. Dmitry Pshezhetskiy (University of East Anglia)\, Dr. Alexandre Akoulitchev\, MA\, PhD\, FRSM (Chief Scientific Officer\, Oxford BioDynamics)\, Bartu Ahiska (Senior Director\, Commercial Development & Marketing Comms\, Oxford BioDynamics)\, and Ewan Hunter (Chief Data and Technology Officer\, Oxford BioDynamics)\, who will discuss the development of their new blood-based assay\, the EpiSwitch CFS test\, and its potential impact on diagnosing and treating people with ME/CFS and Long Covid.
URL:https://solvecfs.org/event/from-mystery-to-measurable-the-science-behind-the-new-me-cfs-blood-test/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2025/10/1.15.26-From-Mystery-to-Measurable.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251014T150000
DTEND;TZID=America/Los_Angeles:20251014T160000
DTSTAMP:20260726T135300
CREATED:20250814T002133Z
LAST-MODIFIED:20250814T002133Z
UID:42597-1760454000-1760457600@solvecfs.org
SUMMARY:The Unified Platform: Advancing Research Across ME/CFS\, Long Covid\, and Other Chronic Conditions
DESCRIPTION:Chronic illnesses such as myalgic encephalomyelitis (ME) and Long COVID\, which lack clinical biomarkers\, present challenges around diagnosis\, symptom reporting\, and monitoring. That’s why the unhide® Solve Together Unified Platform–which is participant-led with continuous digital data collection–offers some advantages over traditional site-based clinical research models.  \nThe easy-to-use\, secure platform allows patients to contribute data through symptom surveys\, validated assessments\, wearable devices\, and health history to support research across 30+ related conditions. It also uncovers hidden connections between inflammation\, chronic illness\, and overall health.  \nThe Unified Platform enables patients and caregivers to: \n\nTrack symptoms and visualize health patterns over time\nConnect wearable data for more complete insights\nDownload and print customized reports to have better conversations with healthcare providers\nContribute to cross-disease research initiatives\nOptionally receive invitations to participate in clinical trials and studies\nIdentify ways to determine relationships between brain inflammation and mental health symptoms such as brain fog\, difficulty concentrating\, memory issues\, sleep problems\, mood changes\, anxiety\, and depression\n\nParticipants may contribute data across multiple domains: validated surveys (dysautonomia\, PEM\, fatigue\, function)\, daily symptom and treatment logs\, device/sensor data (Apple Watch\, Fitbit\, Garmin)\, and electronic health records (EHRs).  \nIn this webinar\, Solve CEO Emily Taylor\, Brain Inflammation Collaborative (BIC) co-founder and CEO Christy Jagdfeld\, Principal Investigator and lived experience expert Megan L. Fitzgerald\, PhD\, and platform architect and caregiver to a person with ME/CFS Chris Nowak (CareEvolution) will discuss how the unhide® Solve Together Unified Platform facilitates partnerships\, successfully improves patient-provider communication\, enables robust recruitment and multidimensional data collection\, and serves as a catalyst for better health among all who are impacted by neuroinflammation.  \nVisit unhidenow.org to learn more or enroll. \nRegister for the webinar here: https://us02web.zoom.us/webinar/register/WN_ATe5-nbxSsy89D8TcXIInw
URL:https://solvecfs.org/event/the-unified-platform-advancing-research-across-me-cfs-long-covid-and-other-chronic-conditions/
CATEGORIES:Long Covid,Research,Solve Together,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2025/08/UnifiedPlatformWebinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250904T150000
DTEND;TZID=America/Los_Angeles:20250904T160000
DTSTAMP:20260726T135300
CREATED:20250617T061031Z
LAST-MODIFIED:20250801T002154Z
UID:42167-1756998000-1757001600@solvecfs.org
SUMMARY:Targeting Autophagy: A Clinical Trial of Low-Dose Rapamycin for ME/CFS\, Long COVID\, and IACCIs
DESCRIPTION:Simmaron Research is the second recipient of Solve’s ME/CFS Catalyst Award in support of its study\,” “Low Dose Rapamycin in ME/CFS\, Long-COVID\, and Other Infection-Associated Chronic Conditions.” \nRead a preprint from Phase 1 of the trial here. \nThe study advances an already FDA-approved drug for reducing key symptoms of ME/CFS and Long Covid\, repurposing rapamycin to reduce fatigue\, orthostatic intolerance\, post-exertional malaise\, and sleep issues for a subset of people with ME/CFS. \nIn this webinar led by Solve M.E. President Emily Taylor\, panelists Dr. C. Gunnar Gottschalk (Chief Executive Officer at Simmaron) and Dr. Avik Roy (Chief Scientific Officer at Simmaron)\, and Dr. Stephanie Grach (Assistant Professor of Medicine and Consultant in General Internal Medicine at Mayo Clinic-Rochester) will discuss the study\, which hypothesizes that mTOR inhibition through rapamycin may address observed findings of autophagy impairment and symptoms in a subset of patients with ME/CFS and other infection-associated chronic conditions and illnesses (IACCIs).  Attendees will learn how they can get involved in the trial\, and the panelists will answer questions as time allows. \nRegister here:\nhttps://us02web.zoom.us/webinar/register/WN_URmi_dKHTQyNF6cjnOJa1A
URL:https://solvecfs.org/event/targeting-autophagy-a-clinical-trial-of-low-dose-rapamycin-for-me-cfs-long-covid-and-iaccis/
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2025/06/UPDATEDSimmaronSolveWebinarSept4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250731T120000
DTEND;TZID=America/Los_Angeles:20250731T130000
DTSTAMP:20260726T135300
CREATED:20250512T144339Z
LAST-MODIFIED:20250513T235311Z
UID:41960-1753963200-1753966800@solvecfs.org
SUMMARY:Probing Functional Autoantibodies in Patients with ME/CFS
DESCRIPTION:Dr. Akiko Iwasaki (Sterling Professor of Immunobiology and Molecular\, Cellular and Developmental Biology at Yale University) is the first recipient of Solve’s ME/CFS Catalyst Award in support of her study\, “Probing Functional Autoantibodies in Patients with ME/CFS.” \nIn this webinar\, Dr. Iwasaki will talk to Solve CEO Emily Taylor about the study\, which focuses on a crucial and emerging area of investigation: the role of autoantibodies—antibodies that mistakenly target a person’s own tissues—in the long-term neurological symptoms seen in patients with ME/CFS. \nDr. Iwasaki’s lab will investigate whether these autoantibodies can actually cause symptoms such as fatigue\, pain\, cognitive issues\, and motor dysfunction by introducing patient-derived antibodies into mice and analyzing their effects. The team will also use an advanced technology (called HuProt) to scan all human proteins to find which ones are targeted by specific autoantibodies. Autoantibodies against specific human proteins may be effective biomarkers—measurable features that help us diagnose patients quicker or customize how we treat each patient. \nThe study is remarkable because it: \n• Links Autoimmunity to ME/CFS: Helps determine whether immune system dysfunction is a root cause of neurological [SB3] symptoms in ME/CFS. \n• Lays the Groundwork for Targeted Treatments: Could identify which patients benefit most from existing immune-based therapies (like B-cell depletion or antibody-blocking drugs). \n• Advances Diagnostic Tools: Could find biomarkers that lead to the development of long-overdue diagnostic tests. \n• Bridges the Gap Between Long COVID and ME/CFS: Builds on recent research in long COVID\, creating momentum for both communities. \n• Centers Patient Experience: Is directly informed by the real-life neurological symptoms and struggles of people living with ME/CFS. \n  \nAfter her presentation and as time allows\, Dr. Iwasaki will take questions from the audience. \nRegister here: \nhttps://us02web.zoom.us/webinar/register/WN_byWyT5GoQfyLwYP3t0qruw
URL:https://solvecfs.org/event/probing-functional-autoantibodies-in-patients-with-me-cfs/
CATEGORIES:Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2025/05/IwasakiSolveWebinarV412pmPT.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250722T150000
DTEND;TZID=America/Los_Angeles:20250722T160000
DTSTAMP:20260726T135300
CREATED:20250626T213218Z
LAST-MODIFIED:20250626T213218Z
UID:42085-1753196400-1753200000@solvecfs.org
SUMMARY:The ADDRESS-LC Trial: Studying the Impact of Bezisterim on Brain fog and Fatigue in People with Long Covid
DESCRIPTION:In this webinar\, we’ll be joined by panelists Michael Peluso\, MD (Assistant Professor of Medicine\, University of California\, San Francisco) Ezra Spier (Creator\, Long Covid Studies)\, Penelope Markham\, PhD (Senior Vice President\, BioVie) who will discuss the latest updates on Long COVID research and the ADDRESS-LC trial. The ADDRESS-LC trial was designed to assess the potential impact of bezisterim on cognitive impairment/brain fog and fatigue in individuals with Long COVID and is currently recruiting people 18-64 diagnosed with Long Covid. Attendees will learn more about the requirements for participation and how to join the trial. \nIn this discussion led by Solve M.E. President and CEO Emily Taylor\, the panelists will also share how the lived experience of patients has informed the development and conduct of the trial and the importance of patient-researcher collaboration. \nDate:\nTuesday\, July 22\, 2025\nTime:\n3:00 pm PST / 6 pm EST \nRegister here. \n  \n 
URL:https://solvecfs.org/event/the-address-lc-trial-studying-the-impact-of-bezisterim-on-brain-fog-and-fatigue-in-people-with-long-covid/
CATEGORIES:Long Covid,Research
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2025/05/UPDATEDADDRESS-LC.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250627T100000
DTEND;TZID=America/Los_Angeles:20250627T130000
DTSTAMP:20260726T135300
CREATED:20250616T221212Z
LAST-MODIFIED:20250616T221303Z
UID:42186-1751018400-1751029200@solvecfs.org
SUMMARY:Pacing: Power in Slowing Down
DESCRIPTION:One of the cornerstones of our annual Advocacy Week program is the EmPOWER M.E. roundtable. Panels of patient advocates\, professionals\, and scientists share their expertise on topics relevant to the quality of life for people with ME/CFS and Long Covid and their caregivers. \nEmPOWER M.E. is dedicated to empowering patients and caregivers in medical and advocacy environments\, giving our community tools to share our stories with impact. \nDriven by patient input\, EmPOWER M.E. projects strive to ensure that no family ever has to learn “the hard way” on their journey with ME/CFS\, Long Covid\, or other post-infection diseases. \nThis year the EmPOWER M.E. topic is “Pacing: Power In Slowing Down.” \nThe program will include a main information session\, followed by two community forums with experts and patient leaders. \nPanelists include: \nTodd E. Davenport\, PT\, DPT\, PhD\, MPH \nDr. Lisa Hamilton\, OTD\, OTR/L \nHollis Mickey\, MA\, MFA \nClayton Powers\, DPT \n\nEmPOWER M.E. Main Session – Pacing: Power in Slowing Down\n10-11:00 am PDT / 1:00-2:00 pm EDT \nPacing is one of the most talked-about — but often misunderstood — tools in chronic illness management. In this informative session\, we’ll break down what pacing really means\, why it works\, and how it works — so no family has to learn the hard way. \nCommunity Forum: Pacing in Public: Know Your Rights \n11:30 am-12:00 pm PDT / 2:30-3:00 pm EDT  \nWe will explore the practical realities and impact of navigating pacing strategies in public spaces — including work\, education\, and civic life — from a care and support perspective\, as well as how support networks can play a role in reinforcing these strategies. \nCommunity Forum: Pacing at Home: Prioritizing\, Planning & The Art of Asking\n12:15-12:45 PM PDT / 3:15-3:45 PM EDT  \nWe will focus on how individuals living with ME/CFS and related conditions can structure their home routines through intentional pacing strategies — including prioritizing essential activities\, planning around limited energy\, and communicating needs to caregivers and support networks. \nClick here to register for our Friday\, June 27 EmPOWER M.E. event “Pacing: Power in Slowing Down.” \nClick here to view previous EmPOWER M.E. roundtable events.
URL:https://solvecfs.org/event/pacing-power-in-slowing-down/
CATEGORIES:Advocacy,Advocacy Week 2025,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2025/06/Empower2025FINAL2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250429T150000
DTEND;TZID=America/Los_Angeles:20250429T160000
DTSTAMP:20260726T135300
CREATED:20250407T214650Z
LAST-MODIFIED:20250424T221623Z
UID:41868-1745938800-1745942400@solvecfs.org
SUMMARY:Investigating Immune Dysfunction and T-Cell Exhaustion via Single Cell Immune Profiling in ME/CFS and Long COVID
DESCRIPTION:Join us for a webinar on April 29 from 3-4 pm PT / 6-7 pm ET with Solve Ramsay Research Grant winners Liisa K. Selin\, MD\, PhD\, and Anna Gil\, PhD (viral immunologists from the Univ. of Massachusetts Chan Medical School)\, Roshan Kumar\, PhD (clinical stage global biotech company HiFiBiO Therapeutics)\, and the labs’ patient representatives Megan L. Fitzgerald\, PhD\, and Rivka Solomon\, MS. \nThese two collaborating labs are studying dysregulated immune cells of ME/CFS and Long COVID patients. Their research goals include: gaining insights into the underlying immune mechanisms of these illnesses (including via antigen discovery); better understanding patient subgroups; and finding diagnostic biomarkers and therapeutic innovations. \nThe two labs received funding from the Patient Led Research Collaborative to collaborate on their current project analyzing T cells from ME/CFS and Long COVID patients both functionally and at a single-cell level. \nAlso at this webinar moderated by Solve CEO Emily Taylor\, the Selin Lab will summarize their paper “Identification of CD8 T-cell dysfunction associated with symptoms in ME/CFS and Long COVID and treatment with a nebulized antioxidant/anti-pathogen agent in a retrospective case series.” \nRegistration is free. Sign up here:\nhttps://us02web.zoom.us/webinar/register/WN_mlr1fE3_RdKztSL3JIfSWQ
URL:https://solvecfs.org/event/investigating-immune-dysfunction-and-t-cell-exhaustion-via-single-cell-immune-profiling-in-me-cfs-and-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2025/04/SelinGilWebinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250121T100000
DTEND;TZID=UTC:20250121T110000
DTSTAMP:20260726T135300
CREATED:20240829T000158Z
LAST-MODIFIED:20250113T182537Z
UID:40917-1737453600-1737457200@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Research (Pt. 4 of 4)
DESCRIPTION:**NEW DATE: Tuesday\, January 21 @ 10 am PT** \nME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nTopics and dates are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care \nNEW DATE:\n• January 21: Research \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-research-pt-4-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/SevereMEResearchTwitter_1.11.24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241218T100000
DTEND;TZID=America/Los_Angeles:20241218T110000
DTSTAMP:20260726T135300
CREATED:20241111T193438Z
LAST-MODIFIED:20241203T172519Z
UID:41153-1734516000-1734519600@solvecfs.org
SUMMARY:The Future of IACCI and Long Covid Research: ME/CFS and the Unfinished work of the COPVS Task Force
DESCRIPTION:**NEW TIME AND DATE!** \nIn 2021 the National Institutes of Health (NIH) launched the RECOVER Initiative\, a patient-centered\, integrated\, adaptive research network created to study Long Covid. Included in the RECOVER Initiative infrastructure was the Commonalities with Other Post-Viral Syndromes Task Force. \nThe Task Force included Solve President and CEO Emily Taylor\, Dr. Leonard Jason (Professor of Psychology at DePaul University and the Director of the Center for Community Research)\, and other well-known ME/CFS experts and played a crucial role in fostering collaboration among researchers\, clinicians\, and patient advocates. It also facilitated the exchange of knowledge and identified common data elements\, treatment strategies\, and diagnostic criteria. This multidisciplinary approach was essential for advancing our understanding of post-viral illnesses and developing effective interventions. \nThe Task Force concluded that Long Covid researchers can learn from ME/CFS efforts to identify key symptoms\, provide explicit criteria for when a symptom meets the threshold for being considered a problem\, and employ tactics to ensure that consistent information is elicited from patient interviews across settings. \nThe Task Force published a paper on their findings in December 2023 and was then disbanded by NIH. However\, there is clearly still a need to educate care providers\, researchers\, and the public about the connection between ME/CFS and Long Covid. \nIn this webinar\, Emily Taylor and Dr. Jason will discuss their findings and what they signal for the future of research on ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). The session will conclude with the launch of an important advocacy action.
URL:https://solvecfs.org/event/the-future-of-iacci-and-long-covid-research-me-cfs-and-the-unfinished-work-of-the-copvs-task-force/
CATEGORIES:Advocacy,Long Covid,Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/11/500LennyJasonCOPVSIG121824.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241204T100000
DTEND;TZID=America/Los_Angeles:20241204T110000
DTSTAMP:20260726T135300
CREATED:20240828T235832Z
LAST-MODIFIED:20240909T173412Z
UID:40914-1733306400-1733310000@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Medical Care (Pt. 3 of 4)
DESCRIPTION:ME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nTopics and dates are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care\n• January 15: Research \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-medical-care-pt-3-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/SolveBHCWebinarSeriesDatesIG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241113T100000
DTEND;TZID=America/Los_Angeles:20241113T110000
DTSTAMP:20260726T135300
CREATED:20240828T235023Z
LAST-MODIFIED:20241112T184500Z
UID:40911-1731492000-1731495600@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Legal Rights (Pt. 2 of 4)
DESCRIPTION:ME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nThe second webinar in our series focuses on the multifaceted legal considerations faced by people with Severe ME and those who care for them. \nA panel of legal experts will share information on the topics of guardianship\, conservatorship\, power of attorney\, Social Security Disability Insurance (SSDI)\, Supplemental Security Income (SSI)\, and more. \nThe panelists will offer practical strategies for determining which legal protections are right for you\, successful application for different forms of disability benefits\, and what to do if disability claims are denied. \nJoin Solve M.E. President and CEO Emily Taylor as she moderates a panel of attorneys with valuable insights to share with our community. \nTopics and dates are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care\n• January 15: Research \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances. \n 
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-legal-rights-pt-2-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/Legal1_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241011T090000
DTEND;TZID=America/Los_Angeles:20241011T100000
DTSTAMP:20260726T135300
CREATED:20240918T204343Z
LAST-MODIFIED:20240918T204343Z
UID:40996-1728637200-1728640800@solvecfs.org
SUMMARY:ICUE Webinar: Uniting Voices\, Amplifying Impact: National Organizations Collaborating to Support Our IACC Communities
DESCRIPTION:Please join us for the final\, culminating webinar of the Infection-Associated Chronic Conditions Understanding and Engagement (ICUE) project\, where we will discuss the findings and results from the project as well as on-going efforts to collaborate across the IACC community on advancing awareness\, clinical care\, patient support and research. \nDuring this webinar\, you will hear from ICUE project leadership from the COVID-19 Longhauler Advocacy Project\, Patient-Led Research Collaborative\, and Solve M.E.\, as well as leading experts in IACC education\, clinical care\, and research. At the conclusion of the presentations\, we will take questions and answers. \nThis webinar is an opportunity to learn and identify ways to engage and collaborate. Patients\, clinicians\, researchers\, and various other stakeholders all have vital roles to play\, both independently and collaboratively\, in advancing the understanding and management of IACCs. By working together\, we can raise awareness to advance patient-centered research\, enhance clinical care\, and improve educational outreach\, ultimately leading to better health outcomes for all affected individuals.  \nWe look forward to your participation in this important discussion. Please confirm your attendance by October 10th and join us in our efforts to advance the understanding and management of IACCs. Your involvement is crucial\, and we hope to see you there. \nUNITING VOICES\, AMPLIFYING IMPACT: COLLABORATING TO SUPPORT OUR IACC COMMUNITIES\nFriday\, October 11\, 2024\n9 am PT /12 pm ET \nRegistration link:\nhttps://us06web.zoom.us/webinar/register/WN_JOGSRf0ZQsu0ueVkp2HuWw#/registration \n 
URL:https://solvecfs.org/event/icue-webinar-uniting-voices-amplifying-impact-national-organizations-collaborating-to-support-our-iacc-communities/
CATEGORIES:Advocacy,Long Covid,Research,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/09/icue-graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241009T100000
DTEND;TZID=America/Los_Angeles:20241009T110000
DTSTAMP:20260726T135300
CREATED:20240828T233108Z
LAST-MODIFIED:20240918T220436Z
UID:40900-1728468000-1728471600@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Caregiving (Pt. 1 of 4)
DESCRIPTION:ME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nTopics and dates for the series are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care\n• January 15: Research \nThe first webinar in our series focuses on the multifaceted challenges faced by those caring for severe ME/CFS patients and emphasizes the impact of chronic illness on entire support systems. A panel of experienced caregivers will explore navigating healthcare systems\, coping with ambiguous loss\, and maintaining healthy relationships. The panelists will provide valuable insights into balancing self-care with caregiving responsibilities and offer practical strategies for maintaining mental well-being. This event aims to provide caregivers with tools and support for their crucial roles. \nJoin BHC Deputy Executive Director and Education Director\, Tahlia Rushcioni as she moderates a panel of experienced caregivers with unique insights to share with the community. \nPanelists:\nGalen Warden\, mother to an adult son with Severe ME\nAmy Mooney\, mother to a teen daughter with Severe ME\nKim Moy\, wife to a husband with Severe ME\nKyle Kitzmiller\, husband to a woman with Severe ME (American science communicator Dianna Cowern aka YouTuber “Physicsgirl”) \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-caregiving-pt-1-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/CaregivingTwitter9.16.24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241003T090000
DTEND;TZID=America/Los_Angeles:20241003T100000
DTSTAMP:20260726T135300
CREATED:20240923T183251Z
LAST-MODIFIED:20240923T183251Z
UID:40947-1727946000-1727949600@solvecfs.org
SUMMARY:Skeletal Muscle Fatigue and Post-Exertional Malaise in Patients with Long Covid and Implications for ME/CFS
DESCRIPTION:On Thursday\, October 3\, 2024\, Solve M.E. will host a free educational webinar featuring Assistant Professor Rob Wüst from the Vrije Universiteit (Amsterdam\, Netherlands)\, who will discuss skeletal muscle fatigue and post-exertional malaise in patients with Long Covid and the implications for ME/CFS. \nDr. Wüst received a Solve M.E. Ramsay Research Grant in 2022 to study muscle pain\, post-exertional malaise\, and treatments for pain and malaise in patients with diseases like Long Covid and ME/CFS. He found that\, at the physiological and molecular levels\, post-exertional malaise differs from general fatigue. These differences have big implications for how physical therapy affects patients with Long Covid or ME/CFS. \nDr. Wüst will update us on his studies of these two central symptoms of Long Covid and ME/CFS—post-exertional malaise and general fatigue and answer questions from attendees. \nTime: 9 am PT / 12 pm ET \nDate: Thursday\, October 3 \nRegister here: https://us02web.zoom.us/webinar/register/WN_LRCE4Xg9SWa2dpWppLHJwg \n*The content provided by Solve M.E. in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.*
URL:https://solvecfs.org/event/skeletal-muscle-fatigue-and-post-exertional-malaise-in-patients-with-long-covid-and-implications-for-me-cfs/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/09/WustWebinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240910T120000
DTEND;TZID=America/Los_Angeles:20240910T130000
DTSTAMP:20260726T135300
CREATED:20240724T232700Z
LAST-MODIFIED:20240724T232804Z
UID:40840-1725969600-1725973200@solvecfs.org
SUMMARY:Solve Author Series:  Dr. Peter Rowe Discusses "Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment"
DESCRIPTION:Orthostatic intolerance (OI) describes a group of circulatory disorders whose symptoms are characterized by a dramatic drop in blood flow to the brain when people are sitting for long periods or standing still. It is often associated with other acute issues\, such as substantial drops in blood pressure\, tachycardia\, dizziness\, fainting\, or other long-term problems\, including ME/CFS and Long Covid.  \nIn his new book\, Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment\, Peter Rowe\, MD\, (Director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center and member of Solve M.E.’s Research Advisory Council) provides an overview of OI and its causes\, diagnosis\, symptom management and more.  \nIn this installment of our author spotlight series\, Solve President and CEO Emily Taylor talks to Dr. Rowe about his indispensable new guide for those diagnosed with the disorder\, their families\, and physicians. \nGuided by decades of research on managing and treating OI patients\, Dr. Rowe will provide illustrative case studies to help explain the disease and answer questions from attendees. \nPurchase a copy of Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment via Johns Hopkins University Press or Amazon. \nTuesday\, September 10\, 2024\n12-1 pm PT / 3-4 pm ET\nRegister here:\nhttps://us02web.zoom.us/webinar/register/WN_8pUWIfiqSvaL_d8gByvbUg
URL:https://solvecfs.org/event/solve-author-series-dr-peter-rowe-discusses-living-well-with-orthostatic-intolerance-a-guide-to-diagnosis-and-treatment/
CATEGORIES:Long Covid,Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/07/Rowe-Webinar-Sept.-2024-IG-500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240702T130000
DTEND;TZID=America/Los_Angeles:20240702T140000
DTSTAMP:20260726T135300
CREATED:20240612T232500Z
LAST-MODIFIED:20240624T163929Z
UID:40591-1719925200-1719928800@solvecfs.org
SUMMARY:Covid Vaccinations: Efficacy\, Options\, and Special Considerations for Chronic Illness
DESCRIPTION:People with chronic illnesses often have compromised immune systems or ongoing health issues that can affect how they respond to vaccines. The effectiveness and potential side effects of vaccines may differ for these individuals compared to the general population. Individuals with chronic illnesses may be at a higher risk of experiencing adverse reactions to vaccines. This can make them hesitant to receive the vaccine and necessitates a careful evaluation of risks and benefits. \nTo help inform our community\, Solve is hosting the free webinar\, “Covid Vaccinations: Efficacy\, Options\, and Special Considerations for Chronic Illness.” Solve President & CEO Emily Taylor and Solve Chief Scientific Officer H. Tim Hsiao\, PhD. will talk to infectious disease epidemiologist and science communicator Jessica Malaty Rivera\, M.S. (Chair\, Committee of Scientific and Medical Advisors\, Vaccinate Your Family) and distinguished physician Melanie Hoppers\, M.D. (Medical Provider\, Bateman Horne Center) about the complex issues surrounding Covid vaccination for those with ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses. \nThis comprehensive session will delve into: \n• The effectiveness of Covid vaccinations in preventing Long Covid and other long-term symptoms.\n• An overview of the different types of Covid vaccines currently available.\n• Insights into how vaccine manufacturers address the special needs of individuals with chronic illnesses during vaccine development.\n• Expert advice on how people with ME/CFS\, Long Covid\, and other infection-associated chronic conditions can make informed decisions about Covid vaccination. \nOur experts will provide valuable information\, answer your questions\, and offer practical guidance tailored to those with chronic health conditions. Don’t miss this opportunity to gain clarity and confidence in your vaccination choices. \nThis event is funded in part by an educational grant from Novavax. \nRegister here:\nhttps://us02web.zoom.us/webinar/register/WN_-vcECdI4QImGHEJpSJOo-Q
URL:https://solvecfs.org/event/covid-vaccinations-efficacy-options-and-special-considerations-for-chronic-illness/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/06/CovidVaccinationsWebinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240510T090000
DTEND;TZID=America/Los_Angeles:20240510T120000
DTSTAMP:20260726T135300
CREATED:20240429T164557Z
LAST-MODIFIED:20240429T164702Z
UID:40388-1715331600-1715342400@solvecfs.org
SUMMARY:World ME Day: Bridging Borders – Global Voices from the World ME Alliance
DESCRIPTION:Solve is a proud co-founder of the World ME Alliance and we invite you to join us this year for the World ME Day event Bridging Borders – Global Voices from the World ME Alliance! \nSolve M.E. President and CEO and World ME Alliance Co-Chair Emily Taylor will represent Solve as one of the many nonprofit organizations from across the globe showcasing our work to build a #GlobalVoiceForME. \nTune in on May 10th at 9am PT\, 12pm ET\, 5pm BST\, 6pm CEST. \nRSVP on Facebook here: https://www.facebook.com/events/974991507395331/ \nThis event will be livestreamed\, allowing individuals from around the world to tune in\, in real-time. The event will be available to watch afterward on Facebook. \nOr you can register here to join us for the event on Zoom (limited spaces): https://worldmealliance.org/2024/04/register-for-our-live-event-bridging-borders-global-voices-from-the-world-me-alliance/ \nEmily will be joined by speakers from around the world\, including South Africa\, Czechia\, Italy\, France\, and more! \nWith the World ME Alliance\, Solve is bridging borders\, forging connections\, and building toward a better future for people with ME. \n 
URL:https://solvecfs.org/event/world-me-day-bridging-borders-global-voices-from-the-world-me-alliance/
CATEGORIES:Advocacy,Conference,Research,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/04/WorldMEAllianceEvent_5.10.24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240508T123000
DTEND;TZID=America/Los_Angeles:20240508T133000
DTSTAMP:20260726T135300
CREATED:20240409T224442Z
LAST-MODIFIED:20240507T205214Z
UID:40225-1715171400-1715175000@solvecfs.org
SUMMARY:Comparing immunological signatures between Long Covid and ME/CFS
DESCRIPTION:**Webinar date changed to May 8\, 2024** \nDr. David Putrino and Dr. Jamie Wood\, of the Icahn School of Medicine at Mount Sinai\, have conducted several landmark studies on Long Covid. Their extensive research has led them to suspect that the immune responses of people with Long Covid differ in important ways from the immune responses of other people. If so\, these differences (called immunological signatures) may explain why some people develop Long Covid symptoms and hopefully lead to the development of new therapies. To find this information\, the team uses a wide range of cutting-edge technologies to compare blood and saliva samples from people with Long Covid with those from healthy participants. \nBecause both Long Covid and ME/CFS are post-acute infection syndromes (and have similar symptoms)\, the team also wants help from people with ME/CFS to find immunological signatures for ME/CFS. Similarities between the ME/CFS and Long Covid signatures may lead to therapeutic options for anyone with a post-acute-infection syndrome. \nIn this webinar\, Dr. Putrino and Dr. Wood will explain their ongoing research and the current study\, which has high potential to generate new knowledge and to help people diagnosed with ME/CFS or other post-acute infection syndromes. \nRegister here: https://us02web.zoom.us/webinar/register/WN_GY4b1ezER7udraoDjGTD8g \nThe Solve Together Real-World Data Platform (ST-RWD) will soon begin to refer consented ST-RWD users who have relevant profiles to be considered for participating in this study that compares ME/CFS and Long Covid. If you are interested\, please consider joining ST-RWD via https://solvecfs.org/research/solve-together/ by April 30\, 2024. You can also email us at research@solvecfs.org if you have any questions.
URL:https://solvecfs.org/event/comparing-immunological-signatures-between-long-covid-and-me-cfs/
CATEGORIES:Long Covid,Research,Solve Together
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/04/MAY-8-Putrino-Webinar-IG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240429T130000
DTEND;TZID=America/Los_Angeles:20240429T140000
DTSTAMP:20260726T135300
CREATED:20240409T175152Z
LAST-MODIFIED:20240430T005000Z
UID:40219-1714395600-1714399200@solvecfs.org
SUMMARY:Symptom Management and Patient Empowerment Through The Long Covid Wearable Study
DESCRIPTION:The lived experiences of people with ME and Long Covid have shown that activity management\, or pacing\, can be an effective method of reducing symptom severity. However\, pacing is difficult to implement. Many people living with energy-limiting conditions have utilized wrist-worn wearables\, or activity trackers\, to help implement pacing. To validate the value of using wearables to implement pacing\, Scripps Research is launching The Long Covid Wearable Study. This one-year study will gather survey and wearable data in a bid to better manage symptoms and empower study participants to manage their health. \nIn this webinar\, Julia Moore Vogel\, PhD\, (Senior Program Director at Scripps Research and Principal Investigator of the Long Covid Wearable Study) will share more details on the study (including the inclusion criteria)\, explain how you can join the study using your Solve Together account\, and answer questions from attendees. \nIf you are enrolled in the Solve Together Real-World Data Platform (ST-RWD)\, you can easily join this study based on your ST-RWD account. We will send relevant instructions through the ST-RWD platform messaging system by May 6th\, 2024\, on how to join this study directly from your ST-RWD dashboard. \nIf you are not a current user of the Solve Together RWD Platform\, you can learn more about what the platform has to offer on this webpage (https://solvecfs.org/research/solve-together/). You can also email us at research@solvecfs.org if you have any questions. \nWatch a recording of the webinar here:
URL:https://solvecfs.org/event/symptom-management-and-patient-empowerment-through-the-long-covid-wearable-study/
CATEGORIES:Long Covid,Research,Solve Together,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/04/Scripps-Webinar-IG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240419T090000
DTEND;TZID=America/Los_Angeles:20240419T124500
DTSTAMP:20260726T135300
CREATED:20240312T171855Z
LAST-MODIFIED:20240412T192104Z
UID:39964-1713517200-1713530700@solvecfs.org
SUMMARY:EmPOWER M.E.: How to Build and Work with Your Care Team
DESCRIPTION:As part of Advocacy Week 2024\, our EmPOWER M.E. roundtable on April 19 at 9 am PT / 12 pm ET will feature panels of patient advocates\, professionals\, and scientists who share their expertise on topics relevant to the quality of life for people with ME/CFS\, Long Covid\, and their caregivers. The EmPOWER M.E. topic this year will be “How to Build and Work with Your Care Team.” \nSusannah Fox\, author of Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care (MIT Press\, 2024)\, will be the keynote speaker. \nIn Rebel Health\, Fox draws on twenty years of tracking the expert networks of patients\, survivors\, and caregivers who have come of age between the cracks of the healthcare system to offer a way forward. \nEvent Agenda: \n9:00 am PT/12:00 pm ET – EmPOWER M.E. Main Session \n10:30 am PT/1:30 pm ET – 30-minute Break \n11:00 am PT/2:00 pm ET – Panel 1 – What it’s like to be part of a care team (Care Team Perspective) \n11:45 am PT/2:45 pm ET – 15-minute Break \n12:00 pm PT/3:00 pm ET – Panel 2 – How to work with your care team (Patient & Caregiver Perspective) \n12:45 pm PT/4:45 pm ET – End of event \nPanelists include:  \nAshanti Daniel\, Registered Nurse\, Chronic Illness Advocate \nDale Bolger\, Clinical Social Worker/Therapist \nAmy Mooney\, Occupational Therapist \nSanna Stella\, Behavioral Health Specialist \nEmily Taylor\, Solve M.E. President and CEO \n  \nPre-registration is required.  \nRegister here for EmPower M.E. on April 19! \n 
URL:https://solvecfs.org/event/empower-m-e-how-to-build-and-work-with-your-care-team/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Updated-Panelists-Empower-ME-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240415
DTEND;VALUE=DATE:20240420
DTSTAMP:20260726T135300
CREATED:20231116T165801Z
LAST-MODIFIED:20240129T231857Z
UID:39499-1713139200-1713571199@solvecfs.org
SUMMARY:Advocacy Week 2024
DESCRIPTION:Advocacy Week 2024 will take place virtually throughout the week of April 15th to April 19th\, 2024. \nAdvocacy Week is a nationwide advocacy effort to connect people with ME/CFS\, Long Covid\, and associated conditions; scientists; clinicians\, and caregivers to share their unique stories with Congress. Our ultimate goal is to make ME/CFS\, Long Covid\, and post-infection diseases widely understood\, diagnosable\, and treatable. \nThere will be actions for every energy level and ability to join\, from social media posts to virtual meetings with congressional leaders.  \nKey dates are listed below: \nMonday\, April 15th\, 2024 – Training Day \nTuesday\, April 16th\, 2024 – Senate Advocacy Day \nWednesday\, April 17th\, 2024 – Social Media Action Day \nThursday\, April 18th\, 2024 – House Advocacy Day \nFriday\, April 19th\, 10 AM ET\, 2024 – EmPOWER ME Day \nYou can register for Advocacy Week 2024 here. \nStay tuned for other ways to get involved by signing up for the Solve M.E. email newsletter.
URL:https://solvecfs.org/event/advocacy-week-2024/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/12/AdvoWeek2024BannerStacked.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240410T160000
DTEND;TZID=America/Los_Angeles:20240410T170000
DTSTAMP:20260726T135300
CREATED:20240312T171000Z
LAST-MODIFIED:20240321T192001Z
UID:39962-1712764800-1712768400@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 4 - South
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nStay tuned for call registration info. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-4-south/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240408T160000
DTEND;TZID=America/Los_Angeles:20240408T170000
DTSTAMP:20260726T135300
CREATED:20240312T164926Z
LAST-MODIFIED:20240321T192413Z
UID:39952-1712592000-1712595600@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 4: How to use the Advocacy Associates App
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App \n \nStay tuned for Training Session registration info.
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-4-how-to-use-the-advocacy-associates-app/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240403T160000
DTEND;TZID=America/Los_Angeles:20240403T170000
DTSTAMP:20260726T135300
CREATED:20240312T170631Z
LAST-MODIFIED:20240321T192026Z
UID:39959-1712160000-1712163600@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 3 - Midwest
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nStay tuned for call registration info. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-3-midwest/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240401T160000
DTEND;TZID=America/Los_Angeles:20240401T170000
DTSTAMP:20260726T135300
CREATED:20240312T164746Z
LAST-MODIFIED:20240321T192347Z
UID:39950-1711987200-1711990800@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 3: What we are advocating for
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App \n \nStay tuned for Training Session registration info.
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-3-what-we-are-advocating-for/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
END:VCALENDAR