BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Solve ME/CFS Initiative - ECPv6.15.17//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://solvecfs.org
X-WR-CALDESC:Events for Solve ME/CFS Initiative
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Los_Angeles
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20200308T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20201101T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20210314T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20211107T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20220313T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20221106T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20230312T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20231105T090000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Asia/Shanghai
BEGIN:STANDARD
TZOFFSETFROM:+0800
TZOFFSETTO:+0800
TZNAME:CST
DTSTART:20210101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Asia/Krasnoyarsk
BEGIN:STANDARD
TZOFFSETFROM:+0700
TZOFFSETTO:+0700
TZNAME:+07
DTSTART:20210101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20210101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220721T100000
DTEND;TZID=America/Los_Angeles:20220721T110000
DTSTAMP:20260717T082848
CREATED:20220531T232752Z
LAST-MODIFIED:20220609T204520Z
UID:35209-1658397600-1658401200@solvecfs.org
SUMMARY:New Hope for Diagnosing and Treating Post-Infection Illnesses: Lessons Learned from HIV/AIDS
DESCRIPTION:In this special webinar\, Dr. Steven Deeks (Professor of Medicine-in-Residence at the University of California\, San Francisco) will be hosted by Solve M.E. Medical Advisor Dr. David Hardy (former Director of Division of Infectious Diseases at Cedars-Sinai Medical Center\, Los Angeles\, and Professor of Medicine at David Geffen School of Medicine\, University of California\, Los Angeles). The two long-time researchers and clinicians (practicing doctors) and veterans of the battle against HIV/AIDS\, will discuss how current studies on Long Covid\, informed by knowledge gained in other fields\, could help develop improved ways to diagnose and treat the broader challenge of post-infection illnesses\, such as ME/CFS. \nSince the beginning of the COVID-19 pandemic Dr. Deeks has re-focused his clinical care and research activity on this urgent need. He is now a member of the Board of Directors for the UCSF-based amfAR Institute for HIV Cure Research and a principal investigator for the NIH’s RECOVER study. In their conversation\, Drs. Deeks and Hardy will discuss the emerging scientific and medical findings\, reflect on their HIV/AIDS experience and the importance of patient engagement in research and advocacy\, and discuss the prospects for treatments and therapies. \nRegister here.
URL:https://solvecfs.org/event/lessons-learned-from-hiv-aids-new-hope-for-treating-post-infection-diseases/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/HardyDeeks.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220713T100000
DTEND;TZID=America/Los_Angeles:20220713T110000
DTSTAMP:20260717T082848
CREATED:20220606T204445Z
LAST-MODIFIED:20220606T204445Z
UID:35298-1657706400-1657710000@solvecfs.org
SUMMARY:Is There a Herpesviruses-Related Antibody Signature In Patients With ME/CFS?
DESCRIPTION:Many patients with ME/CFS experience common herpesviruses infections at their disease onset. Alternatively\, others experience reactivation of the same infections during the disease course. These facts suggest the existence of a disease-specific antibody signature related to these viruses. However\, current evidence is conflicting about this signature due to the heterogeneous nature of the disease\, the use of distinct lab assays\, and small sample sizes\, among other reasons. \nIn this webinar\, Ramsay Grant researcher Nuno Sepúlveda\, PhD\, will present new findings on this signature\, which could form the basis for developing a future diagnostic tool for ME/CFS patients with an infectious trigger. \nPlease send questions for Dr. Sepúlveda to solvecfs@solvecfs.org. \nRegister here.
URL:https://solvecfs.org/event/is-there-a-herpesviruses-related-antibody-signature-in-patients-with-me-cfs/
LOCATION:Online
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/06/Nuno-Webinar-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220623T100000
DTEND;TZID=America/Los_Angeles:20220623T110000
DTSTAMP:20260717T082848
CREATED:20220510T235818Z
LAST-MODIFIED:20220523T234349Z
UID:35033-1655978400-1655982000@solvecfs.org
SUMMARY:How We Can See ME/CFS Inflammation in the Brain
DESCRIPTION:Dr. Jarred Younger’s 2016 Ramsay Award was used to show that brain temperature is elevated in ME/CFS. This increased temperature is a sign of brain inflammation. The findings are now being replicated in a large group of individuals with ME/CFS. \nDr. Younger’s lab is now developing new magnetic resonance imaging (MRI) and positron emission tomography (PET) scans that can determine whether someone is suffering from brain inflammation. The goal of this research is to conclusively show that brain inflammation should be made a primary target for ME/CFS treatment. \nIn this webinar\, Dr. Younger will give updates on the brain inflammation research\, describe the studies coming up\, and discuss directions for improved ME/CFS treatment \n\n\nRegister here.
URL:https://solvecfs.org/event/how-we-can-see-me-cfs-inflammation-in-the-brain/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/Younger-Updated.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220613T100000
DTEND;TZID=America/Los_Angeles:20220613T110000
DTSTAMP:20260717T082848
CREATED:20220429T201653Z
LAST-MODIFIED:20220523T234437Z
UID:34885-1655114400-1655118000@solvecfs.org
SUMMARY:ME/CFS: NO problem?
DESCRIPTION:In 2019\, Francisco Westermeier\, PhD\, was awarded a Ramsay Research Grant by Solve M.E. to study endothelial function in ME/CFS. Like many other researchers in the Ramsay network\, Dr. Westermeier has since been dedicated to expanding the ME/CFS knowledge base. \nIn the coming months\, Dr. Westermeier and his team will be working to expand evidence of the reduced ability of ME/CFS patients to produce nitric oxide (NO). \nIn this webinar\, Dr. Westermeier will discuss this Solve M.E.- supported project that uses samples from the UK ME/CFS Biobank. \nPlease send questions for Dr. Westermeier to solvecfs@solvecfs.org.
URL:https://solvecfs.org/event/me-cfs-no-problem-2/
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/04/Francisco-Updated-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220610T080000
DTEND;TZID=America/Los_Angeles:20220610T210000
DTSTAMP:20260717T082848
CREATED:20220525T201906Z
LAST-MODIFIED:20220525T201906Z
UID:35182-1654848000-1654894800@solvecfs.org
SUMMARY:2022 INIM Conference
DESCRIPTION:Join the Institute for Neuro-Immune Medicine (Nova Southeastern University) on Friday\, June 10th for their annual 2022 INIM Conference.\n\n\n\nThe Institute’s clinicians and researchers will discuss research and the various clinical approaches to ME/CFS and Long Covid. Patients\, caregivers\, family members and friends are welcome to attend.\n\n\nRegister here.
URL:https://solvecfs.org/event/2022-inim-conference/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/jpeg:https://solvecfs.org/wp-content/uploads/2022/05/2022-INIM-Conference.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220607T110000
DTEND;TZID=America/Los_Angeles:20220607T120000
DTSTAMP:20260717T082848
CREATED:20220511T000248Z
LAST-MODIFIED:20220524T001451Z
UID:35036-1654599600-1654603200@solvecfs.org
SUMMARY:Long Covid and Children
DESCRIPTION:The Global Interdependence Center – Solve Long Covid Initiative Program Series: Session III: Long Covid and Children. \nThe Global Interdependence Center\, in partnership with the Solve Long Covid Initiative\, is conducting a year-long webinar and conference series exploring the pandemic’s long-term healthcare\, policy\, and economic impact\, specifically the implications of Long Covid. \nThis program will feature speakers Megan Carmilani\, Founder of Long Covid Families\, Dr. Peter Rowe\, Director of the Children’s Center Chronic Fatigue Clinic and Professor of Pediatrics\, Johns Hopkins\, and Stewart Gittelman\, Former CEO of Advanced Care\, Inc. (ACI)\, and Trevor Gittelman\, a myalgic encephalomyelitis (ME/CFS) patient. \nRegister here.
URL:https://solvecfs.org/event/long-covid-and-children/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/GIC-Rowe-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220524T090000
DTEND;TZID=America/Los_Angeles:20220524T100000
DTSTAMP:20260717T082848
CREATED:20220524T002131Z
LAST-MODIFIED:20220524T002131Z
UID:35157-1653382800-1653386400@solvecfs.org
SUMMARY:Leveraging EHR/Real World Data to Understand PASC
DESCRIPTION:Join the National Health Institutes (NIH) RECOVER Research Review (R3) Seminar Series\, “Leveraging EHR/Real World Data to Understand PASC\,” by registering here: http://ow.ly/sZep50Jg45C.  \nThe goal of the R3 Seminar Series is to catalyze a shared understanding of the research of the scientific stakeholder community within the RECOVER Consortium. Working and learning together while keeping each other up to date on their latest insights accelerates discoveries. Some sessions will also inform the public about RECOVER and other research on PASC.  All sessions will be recorded and posted to recovercovid.org. \nThe next seminar of the series is Tuesday\, May 24 12:00-1:30 PM EDT. It will be a panel discussion titled\, “Leveraging EHR/Real World Data to Understand PASC.” Panelists for the seminar will be: \n\nMelissa Haendel\, PhD\, University of Colorado Anschutz Medical Campus\nChristopher Chute\, MD\, DrPH\, MPH\, Johns Hopkins University\nRainu Kaushal\, MD\, MPH\, Weill Cornell Medicine; New York-Presbyterian Hospital\nThomas Carton\, PhD\, MS\, Louisiana Public Health Institute\nJosh Fessel\, MD\, PhD\, National Center for Advancing Translational Sciences (NCATS); National Institutes of Health\nRachel Hess\, MD\, MS\, University of Utah School of Medicine
URL:https://solvecfs.org/event/leveraging-ehr-real-world-data-to-understand-pasc/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/Screen-Shot-2022-05-23-at-17.21.01.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220512T120000
DTEND;TZID=America/Los_Angeles:20220512T130000
DTSTAMP:20260717T082848
CREATED:20220505T171219Z
LAST-MODIFIED:20220505T171352Z
UID:34994-1652356800-1652360400@solvecfs.org
SUMMARY:Long COVID & Fatiguing Illness Recovery Program ECHO
DESCRIPTION:History of ME/CFS \nLucinda Bateman\, MD\nMedical Director\, Provider\, & Research expert in the diagnosis and treatment of ME/CFS.\nFounder and Chief Medical Officer of the Bateman Horne Center of Excellence \nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nTo register: Click Here
URL:https://solvecfs.org/event/long-covid-fatiguing-illness-recovery-program-echo-2/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/Untitled-design-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Shanghai:20220421T100000
DTEND;TZID=Asia/Shanghai:20220421T110000
DTSTAMP:20260717T082848
CREATED:20220414T161402Z
LAST-MODIFIED:20220414T221551Z
UID:34561-1650535200-1650538800@solvecfs.org
SUMMARY:CDMRP for ME/CFS: Navigating the Grant Application Process
DESCRIPTION:The FY22 Defense Appropriation provides funding to support therapeutic research related to medical threats\, and treatments for Service Members in current and future battlefield settings. The managing agent for the funding opportunities is the Department of Defense Office of Congressionally Directed Medical Research Programs (CDMRP) at the U.S. Army Medical Research and Development Command (USAMRDC). One of the Focus Areas for funding in FY22 is myalgic encephalomyelitis/chronic fatigue syndrome. Last year\, ME/CFS researchers received $2.5 million in funding from the Peer-Reviewed Medical Research Program. \nThis informational webinar is designed to better inform and prepare the ME/CFS research community about the Peer Reviewed Medical Research Program (PRMRP) and the grant application process.  Panelists include Cecilia Dupecher\, PhD (Program Manager for PRMRP at the Congressionally Directed Medical Research Programs – CDMRP) and Solve M.E.’s Oved Amitay\, Emily Taylor\, and Leslie Phillips. \nIf you have questions for our panelists\, please send them to SolveCFS@solvecfs.org.
URL:https://solvecfs.org/event/cdmrp-for-me-cfs-navigating-the-grant-application-process/
CATEGORIES:Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/jpeg:https://solvecfs.org/wp-content/uploads/2022/04/CDMRPTwitter.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Krasnoyarsk:20220412T130000
DTEND;TZID=Asia/Krasnoyarsk:20220412T140000
DTSTAMP:20260717T082848
CREATED:20220309T205636Z
LAST-MODIFIED:20220401T222237Z
UID:33569-1649768400-1649772000@solvecfs.org
SUMMARY:Long Covid: Research\, Policy and Economic Impact (Session II)
DESCRIPTION:Solve Long Covid Initiative\, in partnership with the Global Interdependence Center\, is conducting a year-long webinar and conference series exploring the pandemic’s long-term healthcare\, policy\, and economic impact\, specifically the implications of long haul COVID or long COVID. \nThis program\, in partnership with the Solve Long Covid Initiative\, will feature speakers Katie Bach\, a Nonresident Senior Fellow at Brookings\, and Melissa Smallwood\, a Graduate Student Researcher\, College of Global Futures. Our speakers will participate in a live audience Q&A moderated by Emily Taylor\, Vice President of Advocacy and Community Engagement at Solve M.E. \nOver the next twelve months\, GIC and SLCI will bring together world-class immunologists\, medical experts\, policymakers\, and economists to explore critical insights into defining\, diagnosing\, optimizing treatments\, and healthcare policies for long COVID and analyzing its impact on U.S. and global labor markets. \nLearn more and register here.
URL:https://solvecfs.org/event/long-covid-research-policy-and-economic-impact-session-ii/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/Webinars.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220407T100000
DTEND;TZID=UTC:20220407T110000
DTSTAMP:20260717T082848
CREATED:20220303T053514Z
LAST-MODIFIED:20220309T210703Z
UID:33495-1649325600-1649329200@solvecfs.org
SUMMARY:ME/CFS: NO problem?
DESCRIPTION:Nitric oxide (NO) – a gas produced by cells lining the blood vessels (endothelial cells) – helps to promote the widening of blood vessels (vasodilation) and is involved in the immune and metabolic systems. This key process allows oxygenated blood to reach tissues throughout the body. The production of NO increases in response to physical activity in healthy individuals. However\, their findings in vitro suggest that ME/CFS patients might have a reduced ability to produce NO. \nOver the next few months\, Ramsay Researcher Dr. Francisco Westermeier and his team aim to expand the existing evidence by analyzing several biochemical pathways and metabolites responsible for NO production. \nIn this webinar\, Dr. Westermeier will discuss this Solve M.E.- supported project that uses samples from the UK ME/CFS Biobank. \nRegister here.
URL:https://solvecfs.org/event/me-cfs-no-problem/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/Add-a-heading.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220316T130000
DTEND;TZID=UTC:20220316T140000
DTSTAMP:20260717T082848
CREATED:20220310T165208Z
LAST-MODIFIED:20220310T165716Z
UID:33573-1647435600-1647439200@solvecfs.org
SUMMARY:Implications of ME/CFS Case Definitions for Long Covid
DESCRIPTION:Our friends at the U.S. Action Working Group are hosting Dr. Leonard Jason\, Professor of Psychology DePaul University\, for a special webinar event. \nLeonard Jason’s talk will cover the content below: \nEvery disease has a case definition\, and these entities are crucial\, as they allow patients to have a diagnosis for a constellation of symptoms as well as for scientists who can research those with the illness versus those without the illness. If difficulties occur in arriving at a reliable case definition\, there are serious consequences for patients\, as they would then be unsure whether or not they have the illness\, as well as for scientists\, who might then have difficulties in estimating prevalence as well as finding biomarkers. This has occurred for the post-viral illness that is known as ME/CFS and has already begun to occur for Long COVID. The consequences have been increased stigma for patients as to when patient heterogeneity makes it difficult to identify biomarkers\, and when they are not identified\, health care workers can easily attribute the condition to solely psychiatric reasons. The relevance of ME/CFS takes on even greater importance given recent findings that a PASC-anticipating risk factor at the time of initial COVID-19 diagnosis is the Epstein-Barr virus viremia\, which has also been associated with ME/CFS. \nRegister here.
URL:https://solvecfs.org/event/implications-of-me-cfs-case-definitions-for-long-covid/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/Jason2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220308T100000
DTEND;TZID=UTC:20220308T110000
DTSTAMP:20260717T082848
CREATED:20220222T234740Z
LAST-MODIFIED:20220301T021217Z
UID:33308-1646733600-1646737200@solvecfs.org
SUMMARY:Chronic Illnesses in Women: ME/CFS and Migraine
DESCRIPTION:Join us for this event in which ME/CFS & migraine comorbid communities collaborate to bring together patients\, researchers\, and doctors to discuss ME/CFS\, migraine disorders\, and their impact on women’s health. This webinar\, hosted by Solve M.E. and the Association for Migraine Disorders\, will feature presentations by Dr. James Baraniuk (Director of the Chronic Pain and Fatigue Research Center\, Georgetown University Medical Center)\, Dr. Nancy Klimas (Director\, Institute for Neuro-Immune Medicine)\, and community members Georgia Linders and Melinda Lipscomb. \nPlease join us March 8\, International Women’s Day\, at 10 am PT. 
URL:https://solvecfs.org/event/chronic-illnesses-in-women-me-cfs-and-migraine/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/02/TW-Migraine-ME_CFS-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220215T150000
DTEND;TZID=UTC:20220215T160000
DTSTAMP:20260717T082848
CREATED:20211209T174806Z
LAST-MODIFIED:20220107T001148Z
UID:31571-1644937200-1644940800@solvecfs.org
SUMMARY:Using Data Analysis to Study ME/CFS and Long Covid: Session 2
DESCRIPTION:We expanded our Ramsay Grant Program in 2021 by launching the new Stupski Awards\, which support research using data from the Registry. These webinars feature the 2021 Stupski Award recipients\, Efthymios Kalafatis and Jennifer Stone\, PhD\, who will discuss their research and answer your questions. \nJennifer Stone\, PhD\nAustralian National University \nDr. Stone will discuss her Stupski-supported project\, which uses advanced analytic methods to compare important demographic and clinical characteristics in people with ME/CFS to Long Covid controls and healthy controls. \nDr. Stone recently received her PhD in clinical epidemiology from Australian National University. She has co-authored several journal articles using data and modeling to uncover causes of disease. Jennifer earned her BA and MPH from the University of Queensland. \nSession II\nFebruary 15\, 2022\n3 pm PT\nPlease click here to register.
URL:https://solvecfs.org/event/using-data-analysis-to-study-me-cfs-and-long-covid-session-2/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2021/12/revised.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220210T130000
DTEND;TZID=UTC:20220210T140000
DTSTAMP:20260717T082848
CREATED:20220112T171934Z
LAST-MODIFIED:20220112T171934Z
UID:32642-1644498000-1644501600@solvecfs.org
SUMMARY:Solve Spotlight: Writer Nadine Sander-Green in Conversation with Joe Komsky
DESCRIPTION:Before developing ME/CFS\, Canadian writer Nadine Sander-Green was an avid adventurer\, canoeing down rapids\, mountain-biking along rugged trails\, and skiing through waist-deep powder. Post-diagnosis\, she’s written in detail about her journey towards the acceptance of her new body and living within drastically smaller limits. \nIn this webinar\, Nadine talks to Solve M.E. Development Director Joe Komsky about her ME/CFS experience\, the impact of the disease on multiple family members\, and why the accurate and nuanced representation of people with ME/CFS in storytelling is so crucial to progress.
URL:https://solvecfs.org/event/solve-spotlight-writer-nadine-sander-green-in-conversation-with-joe-komsky/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/SanderGreenWebinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220210T120000
DTEND;TZID=UTC:20220210T130000
DTSTAMP:20260717T082848
CREATED:20220127T175259Z
LAST-MODIFIED:20220127T175259Z
UID:32994-1644494400-1644498000@solvecfs.org
SUMMARY:Long COVID & Fatiguing Illness Recovery Program ECHO
DESCRIPTION:(continuing on the 2nd Thursday of each month) \nNeurocognitive Manifestations of PASC \nMichelle Haddad\, PhD\nAssistant Professor\, Department of Rehabilitation Medicine Emory University School of Medicine \n  \n\n\n\nFamily Health Centers of San Diego\, the ECHO Institute\, University of Washington\, and University of Colorado have collaborated to provide a CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of SARS-COV-2 infection (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. This large-scale national monthly ECHO webinar series will offer didactic presentations by subject matter experts\, examples of emerging best practices and models of care\, and a facilitated Q&A. This program is open to all healthcare professionals and all Long COVID and ME/CFS patient-lived experience experts interested in learning more about the treatment of Long COVID and ME/CFS.
URL:https://solvecfs.org/event/long-covid-fatiguing-illness-recovery-program-echo/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/Untitled-design-7.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220127T110000
DTEND;TZID=UTC:20220127T120000
DTSTAMP:20260717T082848
CREATED:20211227T221549Z
LAST-MODIFIED:20220125T182836Z
UID:31856-1643281200-1643284800@solvecfs.org
SUMMARY:Ampligen: A General Overview and the Plan for ME/CFS & Long Covid
DESCRIPTION:For the second installment in our clinical diagnostics and treatments webinar series\, Solve M.E. welcomes two leaders from bio-pharma company AIM ImmunoTech to discuss their plans for clinical studies of their investigational drug Ampligen\, in ME/CFS and Long Covid. In addition\, Drs. Lapp and Gottschalk will share insights from real-world use of Ampligen to treat patients with ME/CFS and Long Covid. \nAmpligen (Rintatolimod)\, is a drug that modulates the immune system and has anti-viral activity. It has been studied in clinical trials since the late 1980s\, and although it has been endorsed by countries outside the USA specifically for treating people with ME/CFS\, it does not have FDA approval. AIM has recently updated its plans for developing the drug in ME/CFS and Long Covid. \nThe application of Ampligen for both diseases is yet another example of how ME/CFS research can benefit people with ME/CFS and Long Covid\, and why the study of both is crucial to each community. \nJoin Solve President and CEO Oved Amitay in conversation with Thomas K. Equels\, M.S.\, J.D. (Chief Executive Officer\, AIM)\, and David R. Strayer\, M.D (Chief Scientific & Medical Officer\, AIM) to learn more about their plans for Ampligen and how the community may get involved. Dr. Charles Lapp (Medical Director\, Hunter-Hopkins Center) will discuss his use of Ampligen as a treatment for both ME/CFS and Long Covid\, and Dr. Gunnar Gottschalk (Executive Director/PI\, Simmaron Research Inc)\, will share data on the use of Ampligen in people with ME/CFS. \nRegister for the webinar here. \nDo you have a question for our panelists? Submit it to us at SolveCFS@solvecfs.org \nTo view the first webinar in our clinical diagnostics and treatments webinar series\, “Immune-Based Prediction of Long Covid and Implications for ME/CFS “ featuring Dr. Bruce Patterson\, click here.
URL:https://solvecfs.org/event/ampligen-a-general-overview-and-the-plan-for-me-cfs-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2021/12/Ampligen-FB-IG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220121T100000
DTEND;TZID=America/Los_Angeles:20220121T110000
DTSTAMP:20260717T082848
CREATED:20211130T142746Z
LAST-MODIFIED:20220107T001640Z
UID:22804-1642759200-1642762800@solvecfs.org
SUMMARY:Using Data Analysis to Study ME/CFS and Long Covid: Session 1
DESCRIPTION:We expanded our Ramsay Grant Program in 2021 by launching the new Stupski Awards\, which support research using data from the Registry. These webinars feature the 2021 Stupski Award recipients\, Efthymios Kalafatis and Jennifer Stone\, PhD\, who will discuss their research and answer your questions. \nEfthymios [Themos] Kalafatis\nData Scientist/Machine Learning Engineer \nKalafatis will discuss tracking his ME/CFS symptoms and analyzing the data and how that led to his Stupski-funded project\, which applies powerful machine learning and text analysis methods to better understand symptoms\, identify potential associations with treatments and life events and examine models of temporal patterns. \nKalafatis has over 20 years of data and text mining experience and holds a patent on a methodology that uses machine learning\, network analysis and natural language processing for medical research. He has applied artificial intelligence techniques to research ME/CFS and natural language processing methods to analyze patient records. Themos has a BA from the University of Portsmouth and a MSc from the University of East Anglia. \nSession I\nNEW DATE: January 21\, 2022\n10-11 am PT\nPlease click here to register.
URL:https://solvecfs.org/event/using-data-analysis-to-study-me-cfs-and-long-covid-session-1/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2021/12/revised.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20211206T110000
DTEND;TZID=America/Los_Angeles:20211206T120000
DTSTAMP:20260717T082848
CREATED:20211130T151838Z
LAST-MODIFIED:20220107T001420Z
UID:22819-1638788400-1638792000@solvecfs.org
SUMMARY:Immune-Based Prediction of Long Covid and Implications for ME/CFS
DESCRIPTION:Dr. Bruce Patterson is the CEO of IncellDx\, where he is developing a new paradigm for predicting\, identifying\, and treating people with Long Covid. \nDr. Patterson’s published scientific work suggests that Long Covid patients can be diagnosed reliably by analyzing patterns in cytokines- different types of proteins produced by a person’s immune system. Identifying a Long Covid immune system “fingerprint” may lead to a better understanding of the disease and to new treatment approaches that address the underlying causes. \nIn this webinar\, Dr. Patterson will describe his recent findings in COVID-19 and different pathogens that impair the immune system’s ability to function effectively\, and their implications for other diseases\, including ME/CFS. \nDr. Patterson made significant contributions to the diagnosis of HIV/AIDS and previously served as medical director of diagnostic virology at Stanford University School of Medicine.
URL:https://solvecfs.org/event/immune-based-prediction-of-long-covid-and-implications-for-me-cfs/
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=:
END:VEVENT
END:VCALENDAR