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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231207T120000
DTEND;TZID=America/Los_Angeles:20231207T130000
DTSTAMP:20260715T212521
CREATED:20231114T164759Z
LAST-MODIFIED:20231122T145559Z
UID:39491-1701950400-1701954000@solvecfs.org
SUMMARY:The Patient-Doctor Partnership: Optimally Treating People with Long Covid and ME/CFS Across the US
DESCRIPTION:Solve welcomes three medical providers who will share their experience with treating Long Covid\, ME/CFS\, POTS\, and dysautonomia patients across rural\, urban\, and suburban settings. Dr. Melanie Hoppers (co-founder and Chief Medical Officer at Physicians Quality Care\, in Jackson\, TN)\, Dr. William Pittman (co-director of the UCLA Long COVID Program)\, and Dr. Tiffany Walker (Principal Investigator for the Post-COVID Clinic Grady Hospital\, Emory University School of Medicine) will share how integrating a broader understanding of associated post-infection diseases has informed their care\, and offer insights into how patients and caregivers can best work together to create an optimal treatment experience. \n  \nThis event is funded in part by an educational grant from Novavax.
URL:https://solvecfs.org/event/the-patient-doctor-partnership-optimally-treating-people-with-long-covid-and-me-cfs-across-the-us/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/11/dec-7-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231024T120000
DTEND;TZID=America/Los_Angeles:20231024T130000
DTSTAMP:20260715T212521
CREATED:20230829T180429Z
LAST-MODIFIED:20230929T042408Z
UID:39118-1698148800-1698152400@solvecfs.org
SUMMARY:Power of Community: Infection Associated Chronic Conditions Patient Advocacy Coalition Initiative Webinar
DESCRIPTION:Witness the power of community on Tuesday\, October 24 at 12PM ET / 9AM PT as the IACC- Patient Advocacy Coalition (IACCPAC) Initiative team presents findings from a new report about the needs and priorities of the infection-associated chronic conditions community. \nThis national webinar is part of the IACCPAC Initiative\, led by Solve M.E.\, the Long Covid Alliance\, COVID-19 Longhauler Advocacy Project\, Dysautonomia International\, and Patient-Led Research Collaborative\, with support from the CDC Foundation through the Infection Initiated Chronic Conditions Understanding and Engagement (ICUE). \nDuring our webinar\, we’ll present findings from our workshop sessions and identify a roadmap that we hope will strengthen support for individuals experiencing IACC through strategic collaboration. \nKey topics to be covered during the webinar include: \n\nCommunity Voices: Hear directly from those living with infection-associated chronic conditions\, sharing their experiences and perspectives.\nPriority Areas: Discover the most urgent needs and concerns identified by our community.\nFuture Goals: Learn about our collective vision for advancing research\, awareness\, and support for IACCs.\nAction Steps: Find out how you can get involved and make a difference in the lives of those affected by IACCs.\n\nRegister here.
URL:https://solvecfs.org/event/power-of-community-infection-associated-chronic-conditions-patient-advocacy-coalition-initiative-webinar/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/09/IACCPAC-October-Webinar-Graphic-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231004T110000
DTEND;TZID=America/Los_Angeles:20231004T120000
DTSTAMP:20260715T212521
CREATED:20230914T220524Z
LAST-MODIFIED:20230914T220524Z
UID:39221-1696417200-1696420800@solvecfs.org
SUMMARY:
DESCRIPTION:Join Solve Senior Director of Research Leslie E. Phillips\, PhD for a walkthrough of our new patient-centered data platform\, Solve Together! In this webinar\, we’ll share information about joining the platform\, share tips for maximizing built-in tools for participants\, and answer your questions. \nSolve Together is fully accessible by smartphone and will allow participants to track symptoms\, connect wearables\, download reports for doctor visits\, link electronic health records\, and expend less time and energy on participation through short\, infrequent surveys and passive data collection. \nStay tuned for additional webinars in the Solve Together series. \nRegister here.
URL:https://solvecfs.org/event/39221/
LOCATION:Online
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/09/Solve-Together-Basics-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230825T100000
DTEND;TZID=America/New_York:20230825T140000
DTSTAMP:20260715T212521
CREATED:20230815T233629Z
LAST-MODIFIED:20230823T162155Z
UID:39067-1692957600-1692972000@solvecfs.org
SUMMARY:NIH ME/CFS Research Roadmap Series: Nervous System
DESCRIPTION:The first ME/CFS Research Roadmap webinar will take place on August 25\, 2023\, from 10:00 am – 2:00 pm ET. Focusing on how ME/CFS impacts the nervous system\, presenters will describe current research\, knowledge gaps\, and future research opportunities in this area. There will be Q&A sessions during which attendees can ask questions and contribute ideas. Researchers\, clinicians\, advocates\, those living with ME/CFS\, and anyone invested in or impacted by ME/CFS are encouraged to attend. The webinar will be recorded and posted online after the event for future viewing.\n\n\n\n\nPlease visit the webinar series event page for details about the agenda and speakers\, and upcoming webinars. Registration information is forthcoming. Learn about the overall roadmap process\, including information on how you can provide input\, on the NANDSC Research Roadmap Working Group page. Please note that in order to best accommodate this comprehensive effort\, the final research roadmap will now be presented at the NANDS Council meeting on May 15-16\, 2024.\n\nRegistration is not required. Please join at this Zoom link with the passcode 616680.
URL:https://solvecfs.org/event/nih-me-cfs-research-roadmap-series-nervous-system/
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/08/Screen-Shot-2023-08-15-at-16.37.09.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230814T120000
DTEND;TZID=America/Los_Angeles:20230814T130000
DTSTAMP:20260715T212521
CREATED:20230613T202305Z
LAST-MODIFIED:20230809T235120Z
UID:38684-1692014400-1692018000@solvecfs.org
SUMMARY:Caregiver Corner: Resilience Tools for Difficult Times
DESCRIPTION:In this webinar series\, Stephanie Harrison\, founder of The New Happy\, joins Solve M.E. to help you cultivate greater well-being. She will share her unique perspective as a caregiver fused with her expertise in applied positive psychology. Her interdisciplinary approach to studying happiness is based on hundreds of academic studies and original research that informs The New Happy philosophy that true\, lasting happiness comes from being of service to others. \nIn this session we will be covering science-backed tools that you can use to help you stay resilient. From small daily practices to longer-term perspective shifts\, you will walk away with useful suggestions that can be put into practice right away. \nRegister here.
URL:https://solvecfs.org/event/caregiver-corner-2/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/06/New-Caregiver-Corner-date.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230725T140000
DTEND;TZID=America/Los_Angeles:20230725T150000
DTSTAMP:20260715T212521
CREATED:20230706T184146Z
LAST-MODIFIED:20230706T185822Z
UID:38919-1690293600-1690297200@solvecfs.org
SUMMARY:The Future of Symptom Tracking: Exploring STAT Health's Revolutionary In-Ear Device That Measures Blood Flow to Head
DESCRIPTION:Solve M.E. is excited to host STAT Health CEO Daniel Lee for a conversation about their innovative in-ear wearable device. We’ll discuss how the STAT in-ear wearable measures blood flow to the head\, tracks changes in heart rate and blood pressure trend when users stand up. Designed to empower individuals with ME/CFS\, Long Covid\, and POTS\, this device can help people better understand common symptoms such as dizziness\, fainting\, and brain fog. \nRegister here.
URL:https://solvecfs.org/event/the-future-of-symptom-tracking-exploring-stat-healths-revolutionary-in-ear-device-that-measures-blood-flow-to-head/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/07/STAT-Health-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230721T120000
DTEND;TZID=America/Los_Angeles:20230721T130000
DTSTAMP:20260715T212521
CREATED:20230706T200638Z
LAST-MODIFIED:20230706T200638Z
UID:38930-1689940800-1689944400@solvecfs.org
SUMMARY:July Advocacy Cafe
DESCRIPTION:Advocacy Cafe is a community-favorite event that brings you more stories\, inspiration\, and conversations to connect and empower our advocates. This month’s session will take place 7/21 at 12 pm PT/ 3 pm ET and feature a conversation with Solve M.E.’s Emily Taylor about our appropriations process. \nPlease note — no registration is required. Join at this link.
URL:https://solvecfs.org/event/july-advocacy-cafe/
LOCATION:Online
CATEGORIES:Advocacy,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/Advocacy-Cafe.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230525T100000
DTEND;TZID=America/Los_Angeles:20230525T110000
DTSTAMP:20260715T212521
CREATED:20230517T190057Z
LAST-MODIFIED:20230517T190057Z
UID:38466-1685008800-1685012400@solvecfs.org
SUMMARY:Stem Cell Therapy As a Potential Treatment for Long Covid
DESCRIPTION:Solve is hosting the Hope Biosciences Research Foundation (HBRF) for a webinar on Thursday\, May 25 at 10AM PT. HBRF has conducted three FDA-authorized studies in mesenchymal cell therapy for COVID-19 prevention and treatment\, and two studies in Long Covid.  \nJoin Solve President Oved Amitay and HBRF founder Donna Chang for a comprehensive discussion of findings and more information about a Long Covid study that is currently enrolling\, as well as the potential for future studies in ME/CFS. \nRegister here.
URL:https://solvecfs.org/event/stem-cell-therapy-as-a-potential-treatment-for-long-covid/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/05/Hope-BIO-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230427T110000
DTEND;TZID=America/Los_Angeles:20230427T120000
DTSTAMP:20260715T212521
CREATED:20230405T221942Z
LAST-MODIFIED:20230405T222038Z
UID:38161-1682593200-1682596800@solvecfs.org
SUMMARY:Effects of Long Covid and ME/CFS on Sleep
DESCRIPTION:Many individuals who have had COVID-19 experience long-term symptoms that have a major impact on their lives. One of the most common symptoms is sleep disturbance. After more than six months from the time of infection\, about 60% of people self-report lingering sleep difficulties\, even if they had a mild course of acute COVID-19. Unrefreshing sleep is also part of the diagnostic criteria for ME/CFS\, along with other overlapping symptoms such as post-exertional malaise (PEM) or “brain fog.” \nTo probe deeper into the topic of sleep\, we are pleased to invite you to a webinar on the Effects of Long Covid and ME/CFS on Sleep\, featuring  SleepScore Lab’s neuroscientist\, Dr. Elie Gottlieb. The presentation will cover a range of topics including: \n\nThe connection between Long Covid\, ME/CFS\, and sleep disturbances.\nThe neurological and cognitive aspects of sleep and how brain changes/disruptions may be bi-directionally associated with Long Covid and ME/CFS.\nUnrefreshing sleep vs. quality sleep and why people with ME/CFS or Long COVID might experience the former.\nThe evidence-based methods to improve sleep and how SleepScore Lab’s improvement program addresses them.\n\n The presentation will be followed by a live Q&A. \nRegister here.
URL:https://solvecfs.org/event/effects-of-long-covid-and-me-cfs-on-sleep/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/April-27-Sleepscore-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230330T110000
DTEND;TZID=America/Los_Angeles:20230330T120000
DTSTAMP:20260715T212521
CREATED:20230316T000937Z
LAST-MODIFIED:20230321T200001Z
UID:38021-1680174000-1680177600@solvecfs.org
SUMMARY:How to Make an Impact at the FDA's Drug Development Meeting for Long Covid
DESCRIPTION:On April 25th\, 2023\, FDA is hosting a virtual public meeting on Patient-Focused Drug Development (PFDD) for Long Covid. This meeting will provide FDA the opportunity to obtain initial patient and patient representative input on the aspects of Long Covid\, including how Long COVID affects their daily life\, the symptoms that matter most to patients\, their current approaches to treating Long Covid\, and what they consider when determining whether or not to participate in a clinical trial. \n\n\n\n\nAhead of the FDA’s PFDD for Long Covid\, Solve M.E. will host a webinar on March 30th from 11- 12 pm PT / 2-3pm ET to help educate our community about this important event. \nThis is a unique opportunity to share stories of living with Long Covid\, as well as experiences with treatments\, with important decision-makers at the FDA. Though Solve is not involved in the planning of the PFDD meeting\, we have invited two former FDA officials who are experts in this area to help prepare our community for this important day. \n\nJames Valentine\, JD\, MHS\, has worked the last 15 years as a champion for the patient voice as part of the regulatory process.  James previously worked at the FDA where he was a patient liaison\, helping to incorporate the patient voice into medical product review across the FDA’s various medical product centers and review divisions.  There\, he helped to develop and launch the Patient-Focused Drug Development initiative.\nLarry Bauer\, RN\, MS\, worked at the NIH for 17 years in clinical research\, followed by a position at the FDA as a Regulatory Scientist in the Center for Drug Evaluation and Research’s Rare Diseases Program\, a group he co-founded and worked for 10 years\, where he advanced rare disease drug development. In private practice\, James and Larry have worked with many patient organizations to ensure their community’s voices were heard by decision-makers.  Relevant to the upcoming PFDD meeting\, both Larry and James were involved in these FDA-led PFDD meetings in their time at the Agency\, and since leaving have been a resource to the majority of patient communities participating in FDA’s sister externally-led PFDD program.\n\nThe hoped outcome of the meeting is to improve the development of new drugs in the research pipeline and inform the context in which regulatory decisions will be made for new drugs for Long Covid. \nDuring the webinar on March 30th\, we will be covering the following topics: \n\nBackground on FDA & Drug Development\nIntroduction to Patient-Focused Drug Development & Role of Patient Voice\nOverview of the PFDD Meeting\nGuide to Participating in the Meeting\nLogistics\, Format\, & Tips\n\nIt doesn’t matter where you live or where you are in your journey\, what matters is your story. \nRegister here.
URL:https://solvecfs.org/event/how-to-make-an-impact-at-the-fdas-drug-development-meeting-for-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/03/Webinars-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230329T100000
DTEND;TZID=America/Los_Angeles:20230329T110000
DTSTAMP:20260715T212521
CREATED:20230228T040819Z
LAST-MODIFIED:20230301T004824Z
UID:37834-1680084000-1680087600@solvecfs.org
SUMMARY:CDC Update: Recent Strides in Long Covid
DESCRIPTION:In this webinar\, Solve M.E. President Oved Amitay welcomes Dr. Elizabeth Unger\, chief of Chronic Viral Diseases Branch at Centers for Disease Control and Prevention\, and her CDC colleagues to share updates and progress on The School-Based Active Surveillance Project (presented by Anindita Nanda Issa\, MD)\, the Long Covid Fatiguing Illness Recovery Program (ECHO) (presented by Jennifer Cope\, MD\, MPH)\, and initial findings from the Multi-site Study of Post-COVID conditions (Medical chart abstraction project) (presented by Miriam Nji\, MD\, MPH). \nRegister here.
URL:https://solvecfs.org/event/cdc-update-recent-strides-in-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/02/CDC-Webinar-Updated-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Shanghai:20230221T100000
DTEND;TZID=Asia/Shanghai:20230221T130000
DTSTAMP:20260715T212521
CREATED:20230131T184624Z
LAST-MODIFIED:20230216T234324Z
UID:37499-1676973600-1676984400@solvecfs.org
SUMMARY:Solve M.E. and BIO co-host "Long Covid: What Will It Take To Accelerate Therapeutic Progress?"
DESCRIPTION:Solve M.E. and The Biotechnology Innovation Organization (BIO) will co-host a three-hour virtual event “Long Covid: What Will It Take to Accelerate Therapeutic Progress?” on Tuesday\, February 21 from 10:00 AM – 1:00 PM PT (1:00 – 4:00 PM ET).  \nOur goal is to convene stakeholders to advance research and development to diagnose and treat Long Covid\, ME/CFS\, and other post-infection diseases. By increasing awareness among drug developers to the unmet needs of our communities\, we hope to inspire these industry players to study these diseases and create therapeutic breakthroughs.  \nThe session will establish a knowledge base of emerging research in Long Covid and existing body of data in other post-infection diseases (such as myalgic encephalomyelitis/chronic fatigue syndrome\, dysautonomia\, mast cell activation\, and others). The session also will feature solution-oriented perspectives from government\, academic\, and industry researchers\, patient groups\, funding sources\, and policymakers.  \nHosts: \n\nOved Amitay\, R.Ph.\, M.Sc.\, President and CEO of Solve M.E. Christopher Austin\, MD\, CEO-Partner\, Flagship Pioneering\nCartier Esham\, PhD\, Chief Science Officer\, Biotechnology Innovation Organization (BIO)\n\nOpening Remarks: \n\nUS Senator\, Tim Kaine\nRachel L. Levine\, M.D.\, Admiral\, U.S. Public Health Service\, U.S. Department of Health and Human Services\n\nSpeakers: \n\nAkiko Iwasaki\, PhD\, Sterling Professor of Immunobiology (Microbial Diseases)\, Yale School of Medicine\nBruce Patterson\, MD\, CEO & Founder\, IncellDx\nChristopher Austin\, MD\, CEO-Partner\, Flagship Pioneering\nDavid Putrino\, PhD\, Associate Professor\, Rehabilitation and Human\nJulie Gerberding\, MD\, MPH\, CEO\, Foundation for the National Institutes of Health\nKatie Bach\, MBA\, Nonresident Senior Fellow\,Brookings Institution\nLisa McCorkell\, MPP\, Co-Founder\, Patient-Led Research Collaborative\nMargaret Koziel\, MD\, SVP\, Chief Medical Officer\, Axcella Therapeutics\nPriti Patel\, MD\, MPH\, Senior Advisor for Post-COVID Conditions\, Centers for Disease Control and Prevention\nRachel L. Levine\, M.D.\, Admiral\, U.S. Public Health Service\, U.S. Department of Health and Human Services\nSeth Lederman\, MD\, Co-Founder\, CEO & Chairman\, Tonix Pharmaceuticals\nThomas Equels\, M.S.\, J.D.\, CEO\, AIM Immunotech\nWalter Koroshetz\, MD\, Director\, National Institute of Neurological Disorders and Stroke (NINDS)\n\nSolve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics\, treatments\, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)\, Long Covid and other post-infection diseases.  \nBIO is the world’s largest advocacy association representing member companies\, state biotechnology groups\, academic and research institutions\, and related organizations across the United States and in 30+ countries.
URL:https://solvecfs.org/event/solve-m-e-and-bio-co-host-long-covid-what-will-it-take-to-accelerate-therapeutic-progress/
CATEGORIES:Long Covid,Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/01/Sample-Bio-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230123T120000
DTEND;TZID=America/Los_Angeles:20230123T130000
DTSTAMP:20260715T212521
CREATED:20221031T215217Z
LAST-MODIFIED:20221031T215217Z
UID:36829-1674475200-1674478800@solvecfs.org
SUMMARY:Meghan O’Rourke On Her NYT Bestseller  The Invisible Kingdom: Reimagining Chronic Illness
DESCRIPTION:Meghan O’Rourke will join us on Monday\, January 23\, 2023 at 12 PM PT to discuss her New York Times bestseller The Invisible Kingdom: Reimagining Chronic Illness\, which is a finalist for the National Book Award in nonfiction. \nMeghan is recipient of numerous literary awards\, including a Guggenheim Fellowship\, a Radcliffe Fellowship\, a Lannan Literary Fellowship\, and the Union League Prize for Poetry from the Poetry Foundation. She is also editor of The Yale Review. Her writing has appeared in The Atlantic Monthly\, The New Yorker\, and the New York Times. \nRegister today for the chance to win a free signed copy of The Invisible Kingdom! \nRegister here.
URL:https://solvecfs.org/event/meghan-orourke-on-her-nyt-bestseller-the-invisible-kingdom-reimagining-chronic-illness/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/10/Meghan.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221220T100000
DTEND;TZID=America/Los_Angeles:20221220T110000
DTSTAMP:20260715T212521
CREATED:20221214T003117Z
LAST-MODIFIED:20221214T003117Z
UID:37305-1671530400-1671534000@solvecfs.org
SUMMARY:Long COVID Technology
DESCRIPTION:As we approach the end of the year\, we are also wrapping up a stellar\, year-long webinar partnership with the Global Interdependence Center that has explored the pandemic’s long-term healthcare\, policy\, and economic impact\, specifically the implications of Long Covid. \nThe final installment in the series\, “Long Covid Technology\,” will take place on December 20. This webinar will explore the impacts technology has had on Long Covid developments with speaker Amy Proal\, Ph.D.\, Microbiologist/Research Team Coordinator at PolyBio Research Foundation\, Miguel Antonatos\, MD\, founder of Text2Med\, Harry Leeming\, founder of Visible\, and Andrew Rosenberg\, founder of Responsum Health. \n \nRegister here.
URL:https://solvecfs.org/event/long-covid-technology/
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/Webinars.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221215T100000
DTEND;TZID=America/Los_Angeles:20221215T110000
DTSTAMP:20260715T212521
CREATED:20221102T213657Z
LAST-MODIFIED:20221213T200457Z
UID:36932-1671098400-1671102000@solvecfs.org
SUMMARY:Challenges in Ensuring Equity In the Study and Treatment of ME/CFS and Long Covid
DESCRIPTION:Co-presented by Peter Rowe\, MD (Professor of Pediatrics\, Director\, Johns Hopkins Children’s Center Chronic Fatigue Clinic) and Camille Broussard\, MD\, MPH (Assistant Professor in the Division of Adolescent and Young Adult Medicine at Johns Hopkins School of Medicine)\, this webinar will explore the dissonant results of epidemiologic studies that suggest Latinx and Black individuals have a higher risk of ME/CFS and Long Covid than Whites\, while ME/CFS and Long Covid clinic populations in different countries are disproportionately composed of White individuals. We will look at the course of one young Black ME/CFS patient\, Jailyn Mercadel\, RN\, and hear from her about her experiences with the healthcare system. Dr. Broussard will then lead a discussion of the possible causes of the dissonant clinical and epidemiological findings\, and make suggestions for a more equitable approach to studies and clinical care. \nRegister here.
URL:https://solvecfs.org/event/challenges-in-ensuring-equity-in-the-study-and-treatment-of-me-cfs-and-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/11/RoweBroussard-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221129T100000
DTEND;TZID=America/Los_Angeles:20221129T110000
DTSTAMP:20260715T212521
CREATED:20221102T210847Z
LAST-MODIFIED:20221102T210847Z
UID:36930-1669716000-1669719600@solvecfs.org
SUMMARY:Long Covid in the Media
DESCRIPTION:Solve M.E. is continuing our event series with the Global Interdependence Center with a panel on November 29 10AM PT.  \nThe sixth installment of the GIC Solve Long Covid Initiative Program Series will explore the impact and coverage of Long Covid in the media. Join us virtually with speakers\, Cynthia Adinig\, Long Covid Advocate and Equity Policy Advisor\, Sandhya Kambhampati\, data reporter on the Los Angeles Times Data Desk\, and Fiona Lowenstein\, Founder of Body Politic. This event will also feature Meghan O’Rourke\, author of the New York Times bestseller “The Invisible Kingdom: Reimagining Chronic Illness.”
URL:https://solvecfs.org/event/long-covid-in-the-media/
LOCATION:Online
CATEGORIES:Long Covid,Media,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/Webinars.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221122T100000
DTEND;TZID=America/Los_Angeles:20221122T110000
DTSTAMP:20260715T212521
CREATED:20221031T214904Z
LAST-MODIFIED:20221031T214904Z
UID:36826-1669111200-1669114800@solvecfs.org
SUMMARY:Fiona Lowenstein\, Dona Kim Murphey and  The Long Covid Survival Guide
DESCRIPTION:For people living with Long Covid\, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms\, and with doctors continuing to work toward a cure\, people experiencing Long Covid are often left with more questions than answers. The Long Covid Survival Guide is the first patient-to-patient guide for people living with Long Covid—with expert advice on getting diagnosed\, dealing with symptoms\, accessing resources and accommodations\, and more.  \nEditor Fiona Lowenstein (award-winning journalist\, producer\, speaker\, and the founder of Body Politic) will join us on Tuesday\, November 22 at 10 AM PT to talk about the book. They’ll be joined by contributor Dona Kim Murphey\, a board certified clinical neurophysiologist who co-authored with Dr. David Putrino a Survival Guide chapter on diagnosis. \nWhether you’re a caregiver or a person with Long Covid\, ME/CFS\, or another associated condition\, this webinar will include relevant information about how to take care of yourself and what comes next. Register today for the chance to win a free signed copy of The Long Covid Survival Guide! \nRegister here.
URL:https://solvecfs.org/event/fiona-lowenstein-dona-kim-murphey-and-the-long-covid-survival-guide/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/10/Fio-Dona.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221114T100000
DTEND;TZID=America/Los_Angeles:20221114T110000
DTSTAMP:20260715T212521
CREATED:20221031T214538Z
LAST-MODIFIED:20221031T214538Z
UID:36823-1668420000-1668423600@solvecfs.org
SUMMARY:Ryan Prior On The Long Haul and  How Patients Can Change the World
DESCRIPTION:In his new book\, The Long Haul: Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever\, CNN journalist and ME/CFS patient advocate Ryan Prior writes about how chronically ill communities predicted the Long Covid crisis\, and how patient voices should shape the medical system of the future. \nIn this webinar hosted by Solve M.E. VP of Advocacy and Engagement Emily Taylor\, Prior talks about The Long Haul and how getting Long Covid treatments right could help revolutionize care for all complex\, chronic illnesses. Join us Monday\, November 14 at 10 AM PT. Register today for the chance to win a free signed copy of The Long Haul! \nRegister here.
URL:https://solvecfs.org/event/ryan-prior-on-the-long-haul-and-how-patients-can-change-the-world/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/10/Ryan.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221108T090000
DTEND;TZID=America/Los_Angeles:20221108T103000
DTSTAMP:20260715T212521
CREATED:20221102T204439Z
LAST-MODIFIED:20221102T204639Z
UID:36927-1667898000-1667903400@solvecfs.org
SUMMARY:Understanding the Biomarkers of PASC (otherwise known as Long Covid)
DESCRIPTION:The RECOVER Research Review (R3) Seminar Series will host a panel discussion titled\, “Understanding the Biomarkers of PASC” on Tuesday\, November 8th 12:00-1:30 PM EDT featuring: \n\nMichael Peluso\, MD\, University of California\, San Francisco\nMohamed Abdel-Mohsen\, PhD\, The Wistar Institute\nDavid R. Walt\, PhD\, Harvard Medical School; Brigham and Women’s Hospital \nGrace McComsey\, MD\, University Hospitals Health System; Case Western Reserve University \n\n\nThe goal of the R3 Seminar Series is to catalyze a shared understanding of the research of the scientific stakeholder community\, keep researchers up to date on insights and discoveries\, and inform the public about RECOVER and other research on PASC (otherwise known as Post-Covid or Long Covid).\n \nRegister here.
URL:https://solvecfs.org/event/understanding-the-biomarkers-of-pasc-otherwise-known-as-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/11/Recover-118.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221024T100000
DTEND;TZID=America/Los_Angeles:20221024T110000
DTSTAMP:20260715T212521
CREATED:20220908T180809Z
LAST-MODIFIED:20220908T190616Z
UID:36345-1666605600-1666609200@solvecfs.org
SUMMARY:COVID-19 as a Trigger for ME/CFS: Severity Biomarkers and Underlying Mechanisms
DESCRIPTION:Since the beginning of the pandemic\, SARS-CoV-2 has been suspected of causing chronic fatigue syndrome (ME/CFS). A well-controlled cohort study conducted by a group of researchers from Charité – Universitätsmedizin Berlin and the Max Delbrück Center for Molecular Medicine (MDC) has now shown that in the subset of patients who suffer from fatigue and exertion intolerance after mild-COVID-19\, around half of patients meet the diagnostic criteria for ME/CFS. \nTheir findings also describe differences between post-COVID ME/CFS patients and ME/CFS patients in the correlation between hand grip strength and inflammatory biomarkers. This may indicate differences in underlying mechanisms. The researchers’ findings have been published in Nature Communications. \nIn this webinar\, Prof. Dr. Carmen Scheibenbogen (Acting Director of Charité’s Institute of Medical Immunology on Campus Virchow-Klinikum and Solve M.E. Ramsay Research Grant awardee) will discuss the findings of this study\, and how the new findings may help researchers to develop specific treatments for post-Covid ME/CFS and ME/CFS. \nRegister here.
URL:https://solvecfs.org/event/covid-19-as-a-trigger-for-me-cfs-severity-biomarkers-and-underlying-mechanisms/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/09/Carmen-S-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221013T120000
DTEND;TZID=America/Los_Angeles:20221013T130000
DTSTAMP:20260715T212521
CREATED:20220927T171943Z
LAST-MODIFIED:20220927T171943Z
UID:36420-1665662400-1665666000@solvecfs.org
SUMMARY:Long Covid & Fatiguing Illness Recovery Program
DESCRIPTION:Research Update \nFeaturing: \n\nAvindra Nath\, MD (Clinical Director of National Institute of Neurological Disorders and Stroke – NIH; Chief of the Section of Infections of the Nervous System – NIH; Director of the Translational Neuroscience Center – NIH) Article: https://academic.oup.com/brain/article/145/7/2555/6621999\nHector Bonilla\, MD (Associate Professor of Medicine and Infectious Diseases – Stanford University Medical Director – ME/CFS Clinic – Stanford University) Article: https://pubmed.ncbi.nlm.nih.gov/35195253/\nAnna Nordvig\, MD (Assistant Professor of Neurology and Neuroscience – New York Presbyterian/ Weill Cornell Memory Disorders Program) Article: https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awac270/6672950\nPanelist: Michelle Haddad\, PhD\n\nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nRegister here.
URL:https://solvecfs.org/event/long-covid-fatiguing-illness-recovery-program-3/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/09/Echo-1013.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221007
DTEND;VALUE=DATE:20221009
DTSTAMP:20260715T212521
CREATED:20220829T205323Z
LAST-MODIFIED:20220829T205415Z
UID:36247-1665100800-1665273599@solvecfs.org
SUMMARY:ME/CFS + Long Covid International Conference 2022
DESCRIPTION:The Finnish Association of Orthopaedic Manual Therapy (FIAOMT) is hostng an international conference of ME/CFS and Long Covid – Treatment and Rehabilitation is held in Tampere Finland (also online) on 7-8 October 2022. The conference presents current information about ME/CFS and Long Covid. \nThis two-day conference will review the challenges of understanding the pathophysiology\, risk factors\, clinical presentation\, treatment and rehabilitation of post COVID-19 condition (Long COVID) and ME/CFS (myalgic encephalomyelitis/ chronic fatigue syndrome). Bringing together top researchers\, clinicians and therapists working in this field we can better understand the underlying mechanisms and identify potential treatments. \nLearn more here.
URL:https://solvecfs.org/event/me-cfs-long-covid-international-conference-2022/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/08/Hoito-ja-kuntoutus-MECFS-Long-COVID9.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220915T100000
DTEND;TZID=America/Los_Angeles:20220915T110000
DTSTAMP:20260715T212521
CREATED:20220825T223540Z
LAST-MODIFIED:20220825T223540Z
UID:36234-1663236000-1663239600@solvecfs.org
SUMMARY:OT: The Role of Occupational Therapy in Care for ME/CFS
DESCRIPTION:What is Occupational Therapy? How can it help people with ME/CFS? \nAmy Mooney\, MS OTR/L\, will share her expertise and what patients should know if they are looking for an Occupational Therapist. This webinar will describe occupational therapy’s role for providing symptom management and improving the quality of life for individuals with ME/CFS. Amy will demonstrate examples of pacing techniques and offer details of task analysis for individuals with ME/CFS. \nAs an OT with over 20 years’ experience\, Amy has worked in a variety of settings: school\, early intervention\, home health and clinic practice. Specializing in care for individuals with chronic disease\, Amy has been involved in numerous ME/CFS educational programs for medical professionals and advocacy campaigns for patients and caregivers.
URL:https://solvecfs.org/event/ot-the-role-of-occupational-therapy-in-care-for-me-cfs/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/08/Webinars-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220908T120000
DTEND;TZID=America/Los_Angeles:20220908T130000
DTSTAMP:20260715T212521
CREATED:20220829T234716Z
LAST-MODIFIED:20220831T223158Z
UID:36253-1662638400-1662642000@solvecfs.org
SUMMARY:Pediatric Post-COVID Conditions
DESCRIPTION:Long COVID & Fatiguing Illness Recovery Program \nPresenters include: \n\nPeter C. Rowe\, MD Director of the Chronic Fatigue Center at Johns Hopkins Children’s Center Professor of Pediatrics at Johns Hopkins University School of Medicine\nKatherine Rowe\, MD\nCharles W. Lapp\, MD\nAmanda Morrow\, MD\nLaura Malone MD\, PhD\nElla Eastin\n\nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nRegister here.
URL:https://solvecfs.org/event/pediatric-post-covid-conditions/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/08/Untitled-design-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220721T100000
DTEND;TZID=America/Los_Angeles:20220721T110000
DTSTAMP:20260715T212521
CREATED:20220531T232752Z
LAST-MODIFIED:20220609T204520Z
UID:35209-1658397600-1658401200@solvecfs.org
SUMMARY:New Hope for Diagnosing and Treating Post-Infection Illnesses: Lessons Learned from HIV/AIDS
DESCRIPTION:In this special webinar\, Dr. Steven Deeks (Professor of Medicine-in-Residence at the University of California\, San Francisco) will be hosted by Solve M.E. Medical Advisor Dr. David Hardy (former Director of Division of Infectious Diseases at Cedars-Sinai Medical Center\, Los Angeles\, and Professor of Medicine at David Geffen School of Medicine\, University of California\, Los Angeles). The two long-time researchers and clinicians (practicing doctors) and veterans of the battle against HIV/AIDS\, will discuss how current studies on Long Covid\, informed by knowledge gained in other fields\, could help develop improved ways to diagnose and treat the broader challenge of post-infection illnesses\, such as ME/CFS. \nSince the beginning of the COVID-19 pandemic Dr. Deeks has re-focused his clinical care and research activity on this urgent need. He is now a member of the Board of Directors for the UCSF-based amfAR Institute for HIV Cure Research and a principal investigator for the NIH’s RECOVER study. In their conversation\, Drs. Deeks and Hardy will discuss the emerging scientific and medical findings\, reflect on their HIV/AIDS experience and the importance of patient engagement in research and advocacy\, and discuss the prospects for treatments and therapies. \nRegister here.
URL:https://solvecfs.org/event/lessons-learned-from-hiv-aids-new-hope-for-treating-post-infection-diseases/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/HardyDeeks.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220713T100000
DTEND;TZID=America/Los_Angeles:20220713T110000
DTSTAMP:20260715T212521
CREATED:20220606T204445Z
LAST-MODIFIED:20220606T204445Z
UID:35298-1657706400-1657710000@solvecfs.org
SUMMARY:Is There a Herpesviruses-Related Antibody Signature In Patients With ME/CFS?
DESCRIPTION:Many patients with ME/CFS experience common herpesviruses infections at their disease onset. Alternatively\, others experience reactivation of the same infections during the disease course. These facts suggest the existence of a disease-specific antibody signature related to these viruses. However\, current evidence is conflicting about this signature due to the heterogeneous nature of the disease\, the use of distinct lab assays\, and small sample sizes\, among other reasons. \nIn this webinar\, Ramsay Grant researcher Nuno Sepúlveda\, PhD\, will present new findings on this signature\, which could form the basis for developing a future diagnostic tool for ME/CFS patients with an infectious trigger. \nPlease send questions for Dr. Sepúlveda to solvecfs@solvecfs.org. \nRegister here.
URL:https://solvecfs.org/event/is-there-a-herpesviruses-related-antibody-signature-in-patients-with-me-cfs/
LOCATION:Online
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/06/Nuno-Webinar-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220623T100000
DTEND;TZID=America/Los_Angeles:20220623T110000
DTSTAMP:20260715T212521
CREATED:20220510T235818Z
LAST-MODIFIED:20220523T234349Z
UID:35033-1655978400-1655982000@solvecfs.org
SUMMARY:How We Can See ME/CFS Inflammation in the Brain
DESCRIPTION:Dr. Jarred Younger’s 2016 Ramsay Award was used to show that brain temperature is elevated in ME/CFS. This increased temperature is a sign of brain inflammation. The findings are now being replicated in a large group of individuals with ME/CFS. \nDr. Younger’s lab is now developing new magnetic resonance imaging (MRI) and positron emission tomography (PET) scans that can determine whether someone is suffering from brain inflammation. The goal of this research is to conclusively show that brain inflammation should be made a primary target for ME/CFS treatment. \nIn this webinar\, Dr. Younger will give updates on the brain inflammation research\, describe the studies coming up\, and discuss directions for improved ME/CFS treatment \n\n\nRegister here.
URL:https://solvecfs.org/event/how-we-can-see-me-cfs-inflammation-in-the-brain/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/Younger-Updated.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220613T100000
DTEND;TZID=America/Los_Angeles:20220613T110000
DTSTAMP:20260715T212521
CREATED:20220429T201653Z
LAST-MODIFIED:20220523T234437Z
UID:34885-1655114400-1655118000@solvecfs.org
SUMMARY:ME/CFS: NO problem?
DESCRIPTION:In 2019\, Francisco Westermeier\, PhD\, was awarded a Ramsay Research Grant by Solve M.E. to study endothelial function in ME/CFS. Like many other researchers in the Ramsay network\, Dr. Westermeier has since been dedicated to expanding the ME/CFS knowledge base. \nIn the coming months\, Dr. Westermeier and his team will be working to expand evidence of the reduced ability of ME/CFS patients to produce nitric oxide (NO). \nIn this webinar\, Dr. Westermeier will discuss this Solve M.E.- supported project that uses samples from the UK ME/CFS Biobank. \nPlease send questions for Dr. Westermeier to solvecfs@solvecfs.org.
URL:https://solvecfs.org/event/me-cfs-no-problem-2/
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/04/Francisco-Updated-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220610T080000
DTEND;TZID=America/Los_Angeles:20220610T210000
DTSTAMP:20260715T212521
CREATED:20220525T201906Z
LAST-MODIFIED:20220525T201906Z
UID:35182-1654848000-1654894800@solvecfs.org
SUMMARY:2022 INIM Conference
DESCRIPTION:Join the Institute for Neuro-Immune Medicine (Nova Southeastern University) on Friday\, June 10th for their annual 2022 INIM Conference.\n\n\n\nThe Institute’s clinicians and researchers will discuss research and the various clinical approaches to ME/CFS and Long Covid. Patients\, caregivers\, family members and friends are welcome to attend.\n\n\nRegister here.
URL:https://solvecfs.org/event/2022-inim-conference/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/jpeg:https://solvecfs.org/wp-content/uploads/2022/05/2022-INIM-Conference.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220607T110000
DTEND;TZID=America/Los_Angeles:20220607T120000
DTSTAMP:20260715T212521
CREATED:20220511T000248Z
LAST-MODIFIED:20220524T001451Z
UID:35036-1654599600-1654603200@solvecfs.org
SUMMARY:Long Covid and Children
DESCRIPTION:The Global Interdependence Center – Solve Long Covid Initiative Program Series: Session III: Long Covid and Children. \nThe Global Interdependence Center\, in partnership with the Solve Long Covid Initiative\, is conducting a year-long webinar and conference series exploring the pandemic’s long-term healthcare\, policy\, and economic impact\, specifically the implications of Long Covid. \nThis program will feature speakers Megan Carmilani\, Founder of Long Covid Families\, Dr. Peter Rowe\, Director of the Children’s Center Chronic Fatigue Clinic and Professor of Pediatrics\, Johns Hopkins\, and Stewart Gittelman\, Former CEO of Advanced Care\, Inc. (ACI)\, and Trevor Gittelman\, a myalgic encephalomyelitis (ME/CFS) patient. \nRegister here.
URL:https://solvecfs.org/event/long-covid-and-children/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/GIC-Rowe-Webinar.png
END:VEVENT
END:VCALENDAR