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DTSTART;TZID=America/Los_Angeles:20241218T100000
DTEND;TZID=America/Los_Angeles:20241218T110000
DTSTAMP:20260717T004811
CREATED:20241111T193438Z
LAST-MODIFIED:20241203T172519Z
UID:41153-1734516000-1734519600@solvecfs.org
SUMMARY:The Future of IACCI and Long Covid Research: ME/CFS and the Unfinished work of the COPVS Task Force
DESCRIPTION:**NEW TIME AND DATE!** \nIn 2021 the National Institutes of Health (NIH) launched the RECOVER Initiative\, a patient-centered\, integrated\, adaptive research network created to study Long Covid. Included in the RECOVER Initiative infrastructure was the Commonalities with Other Post-Viral Syndromes Task Force. \nThe Task Force included Solve President and CEO Emily Taylor\, Dr. Leonard Jason (Professor of Psychology at DePaul University and the Director of the Center for Community Research)\, and other well-known ME/CFS experts and played a crucial role in fostering collaboration among researchers\, clinicians\, and patient advocates. It also facilitated the exchange of knowledge and identified common data elements\, treatment strategies\, and diagnostic criteria. This multidisciplinary approach was essential for advancing our understanding of post-viral illnesses and developing effective interventions. \nThe Task Force concluded that Long Covid researchers can learn from ME/CFS efforts to identify key symptoms\, provide explicit criteria for when a symptom meets the threshold for being considered a problem\, and employ tactics to ensure that consistent information is elicited from patient interviews across settings. \nThe Task Force published a paper on their findings in December 2023 and was then disbanded by NIH. However\, there is clearly still a need to educate care providers\, researchers\, and the public about the connection between ME/CFS and Long Covid. \nIn this webinar\, Emily Taylor and Dr. Jason will discuss their findings and what they signal for the future of research on ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). The session will conclude with the launch of an important advocacy action.
URL:https://solvecfs.org/event/the-future-of-iacci-and-long-covid-research-me-cfs-and-the-unfinished-work-of-the-copvs-task-force/
CATEGORIES:Advocacy,Long Covid,Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/11/500LennyJasonCOPVSIG121824.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241204T100000
DTEND;TZID=America/Los_Angeles:20241204T110000
DTSTAMP:20260717T004811
CREATED:20240828T235832Z
LAST-MODIFIED:20240909T173412Z
UID:40914-1733306400-1733310000@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Medical Care (Pt. 3 of 4)
DESCRIPTION:ME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nTopics and dates are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care\n• January 15: Research \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-medical-care-pt-3-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/SolveBHCWebinarSeriesDatesIG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241113T100000
DTEND;TZID=America/Los_Angeles:20241113T110000
DTSTAMP:20260717T004811
CREATED:20240828T235023Z
LAST-MODIFIED:20241112T184500Z
UID:40911-1731492000-1731495600@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Legal Rights (Pt. 2 of 4)
DESCRIPTION:ME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nThe second webinar in our series focuses on the multifaceted legal considerations faced by people with Severe ME and those who care for them. \nA panel of legal experts will share information on the topics of guardianship\, conservatorship\, power of attorney\, Social Security Disability Insurance (SSDI)\, Supplemental Security Income (SSI)\, and more. \nThe panelists will offer practical strategies for determining which legal protections are right for you\, successful application for different forms of disability benefits\, and what to do if disability claims are denied. \nJoin Solve M.E. President and CEO Emily Taylor as she moderates a panel of attorneys with valuable insights to share with our community. \nTopics and dates are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care\n• January 15: Research \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances. \n 
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-legal-rights-pt-2-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/Legal1_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241009T100000
DTEND;TZID=America/Los_Angeles:20241009T110000
DTSTAMP:20260717T004811
CREATED:20240828T233108Z
LAST-MODIFIED:20240918T220436Z
UID:40900-1728468000-1728471600@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Caregiving (Pt. 1 of 4)
DESCRIPTION:ME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nTopics and dates for the series are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care\n• January 15: Research \nThe first webinar in our series focuses on the multifaceted challenges faced by those caring for severe ME/CFS patients and emphasizes the impact of chronic illness on entire support systems. A panel of experienced caregivers will explore navigating healthcare systems\, coping with ambiguous loss\, and maintaining healthy relationships. The panelists will provide valuable insights into balancing self-care with caregiving responsibilities and offer practical strategies for maintaining mental well-being. This event aims to provide caregivers with tools and support for their crucial roles. \nJoin BHC Deputy Executive Director and Education Director\, Tahlia Rushcioni as she moderates a panel of experienced caregivers with unique insights to share with the community. \nPanelists:\nGalen Warden\, mother to an adult son with Severe ME\nAmy Mooney\, mother to a teen daughter with Severe ME\nKim Moy\, wife to a husband with Severe ME\nKyle Kitzmiller\, husband to a woman with Severe ME (American science communicator Dianna Cowern aka YouTuber “Physicsgirl”) \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-caregiving-pt-1-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/CaregivingTwitter9.16.24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241003T090000
DTEND;TZID=America/Los_Angeles:20241003T100000
DTSTAMP:20260717T004811
CREATED:20240923T183251Z
LAST-MODIFIED:20240923T183251Z
UID:40947-1727946000-1727949600@solvecfs.org
SUMMARY:Skeletal Muscle Fatigue and Post-Exertional Malaise in Patients with Long Covid and Implications for ME/CFS
DESCRIPTION:On Thursday\, October 3\, 2024\, Solve M.E. will host a free educational webinar featuring Assistant Professor Rob Wüst from the Vrije Universiteit (Amsterdam\, Netherlands)\, who will discuss skeletal muscle fatigue and post-exertional malaise in patients with Long Covid and the implications for ME/CFS. \nDr. Wüst received a Solve M.E. Ramsay Research Grant in 2022 to study muscle pain\, post-exertional malaise\, and treatments for pain and malaise in patients with diseases like Long Covid and ME/CFS. He found that\, at the physiological and molecular levels\, post-exertional malaise differs from general fatigue. These differences have big implications for how physical therapy affects patients with Long Covid or ME/CFS. \nDr. Wüst will update us on his studies of these two central symptoms of Long Covid and ME/CFS—post-exertional malaise and general fatigue and answer questions from attendees. \nTime: 9 am PT / 12 pm ET \nDate: Thursday\, October 3 \nRegister here: https://us02web.zoom.us/webinar/register/WN_LRCE4Xg9SWa2dpWppLHJwg \n*The content provided by Solve M.E. in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.*
URL:https://solvecfs.org/event/skeletal-muscle-fatigue-and-post-exertional-malaise-in-patients-with-long-covid-and-implications-for-me-cfs/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/09/WustWebinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240910T120000
DTEND;TZID=America/Los_Angeles:20240910T130000
DTSTAMP:20260717T004811
CREATED:20240724T232700Z
LAST-MODIFIED:20240724T232804Z
UID:40840-1725969600-1725973200@solvecfs.org
SUMMARY:Solve Author Series:  Dr. Peter Rowe Discusses "Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment"
DESCRIPTION:Orthostatic intolerance (OI) describes a group of circulatory disorders whose symptoms are characterized by a dramatic drop in blood flow to the brain when people are sitting for long periods or standing still. It is often associated with other acute issues\, such as substantial drops in blood pressure\, tachycardia\, dizziness\, fainting\, or other long-term problems\, including ME/CFS and Long Covid.  \nIn his new book\, Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment\, Peter Rowe\, MD\, (Director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center and member of Solve M.E.’s Research Advisory Council) provides an overview of OI and its causes\, diagnosis\, symptom management and more.  \nIn this installment of our author spotlight series\, Solve President and CEO Emily Taylor talks to Dr. Rowe about his indispensable new guide for those diagnosed with the disorder\, their families\, and physicians. \nGuided by decades of research on managing and treating OI patients\, Dr. Rowe will provide illustrative case studies to help explain the disease and answer questions from attendees. \nPurchase a copy of Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment via Johns Hopkins University Press or Amazon. \nTuesday\, September 10\, 2024\n12-1 pm PT / 3-4 pm ET\nRegister here:\nhttps://us02web.zoom.us/webinar/register/WN_8pUWIfiqSvaL_d8gByvbUg
URL:https://solvecfs.org/event/solve-author-series-dr-peter-rowe-discusses-living-well-with-orthostatic-intolerance-a-guide-to-diagnosis-and-treatment/
CATEGORIES:Long Covid,Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/07/Rowe-Webinar-Sept.-2024-IG-500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240702T130000
DTEND;TZID=America/Los_Angeles:20240702T140000
DTSTAMP:20260717T004811
CREATED:20240612T232500Z
LAST-MODIFIED:20240624T163929Z
UID:40591-1719925200-1719928800@solvecfs.org
SUMMARY:Covid Vaccinations: Efficacy\, Options\, and Special Considerations for Chronic Illness
DESCRIPTION:People with chronic illnesses often have compromised immune systems or ongoing health issues that can affect how they respond to vaccines. The effectiveness and potential side effects of vaccines may differ for these individuals compared to the general population. Individuals with chronic illnesses may be at a higher risk of experiencing adverse reactions to vaccines. This can make them hesitant to receive the vaccine and necessitates a careful evaluation of risks and benefits. \nTo help inform our community\, Solve is hosting the free webinar\, “Covid Vaccinations: Efficacy\, Options\, and Special Considerations for Chronic Illness.” Solve President & CEO Emily Taylor and Solve Chief Scientific Officer H. Tim Hsiao\, PhD. will talk to infectious disease epidemiologist and science communicator Jessica Malaty Rivera\, M.S. (Chair\, Committee of Scientific and Medical Advisors\, Vaccinate Your Family) and distinguished physician Melanie Hoppers\, M.D. (Medical Provider\, Bateman Horne Center) about the complex issues surrounding Covid vaccination for those with ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses. \nThis comprehensive session will delve into: \n• The effectiveness of Covid vaccinations in preventing Long Covid and other long-term symptoms.\n• An overview of the different types of Covid vaccines currently available.\n• Insights into how vaccine manufacturers address the special needs of individuals with chronic illnesses during vaccine development.\n• Expert advice on how people with ME/CFS\, Long Covid\, and other infection-associated chronic conditions can make informed decisions about Covid vaccination. \nOur experts will provide valuable information\, answer your questions\, and offer practical guidance tailored to those with chronic health conditions. Don’t miss this opportunity to gain clarity and confidence in your vaccination choices. \nThis event is funded in part by an educational grant from Novavax. \nRegister here:\nhttps://us02web.zoom.us/webinar/register/WN_-vcECdI4QImGHEJpSJOo-Q
URL:https://solvecfs.org/event/covid-vaccinations-efficacy-options-and-special-considerations-for-chronic-illness/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/06/CovidVaccinationsWebinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240429T130000
DTEND;TZID=America/Los_Angeles:20240429T140000
DTSTAMP:20260717T004811
CREATED:20240409T175152Z
LAST-MODIFIED:20240430T005000Z
UID:40219-1714395600-1714399200@solvecfs.org
SUMMARY:Symptom Management and Patient Empowerment Through The Long Covid Wearable Study
DESCRIPTION:The lived experiences of people with ME and Long Covid have shown that activity management\, or pacing\, can be an effective method of reducing symptom severity. However\, pacing is difficult to implement. Many people living with energy-limiting conditions have utilized wrist-worn wearables\, or activity trackers\, to help implement pacing. To validate the value of using wearables to implement pacing\, Scripps Research is launching The Long Covid Wearable Study. This one-year study will gather survey and wearable data in a bid to better manage symptoms and empower study participants to manage their health. \nIn this webinar\, Julia Moore Vogel\, PhD\, (Senior Program Director at Scripps Research and Principal Investigator of the Long Covid Wearable Study) will share more details on the study (including the inclusion criteria)\, explain how you can join the study using your Solve Together account\, and answer questions from attendees. \nIf you are enrolled in the Solve Together Real-World Data Platform (ST-RWD)\, you can easily join this study based on your ST-RWD account. We will send relevant instructions through the ST-RWD platform messaging system by May 6th\, 2024\, on how to join this study directly from your ST-RWD dashboard. \nIf you are not a current user of the Solve Together RWD Platform\, you can learn more about what the platform has to offer on this webpage (https://solvecfs.org/research/solve-together/). You can also email us at research@solvecfs.org if you have any questions. \nWatch a recording of the webinar here:
URL:https://solvecfs.org/event/symptom-management-and-patient-empowerment-through-the-long-covid-wearable-study/
CATEGORIES:Long Covid,Research,Solve Together,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/04/Scripps-Webinar-IG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240228T113000
DTEND;TZID=America/Los_Angeles:20240228T123000
DTSTAMP:20260717T004811
CREATED:20240201T174614Z
LAST-MODIFIED:20240212T235042Z
UID:39774-1709119800-1709123400@solvecfs.org
SUMMARY:Webinar: Hydrogen Water Dosing Study for ME/CFS: A New Clinical Trial
DESCRIPTION:Free radicals are molecules with one or more unpaired electrons in their outer shells. They tear holes in cell membranes\, releasing an overabundance of even more free radicals and preventing proper cell functionality.   \nAntioxidants are molecules stable enough to donate an electron to a rampaging free radical and neutralize it\, containing the damage it can cause. Some studies indicate that the antioxidant systems of ME/CFS patients cannot effectively contain an abundance of free radicals\, causing inflammation\, mitochondria and blood vessel damage\, and other symptoms of ME/CFS.  \nHydrogen-enriched water is an effective antioxidant with the power to absorb free radicals. In this webinar\, Fred Friedberg\, PhD\, (Research Professor at Stony Brook University School of Medicine)\, will discuss his current ongoing clinical trial “Hydrogen Water Dosing Study for ME/CFS\,” designed to explore the potential benefit of the over the counter (OTC) supplement hydrogen water\, for the symptoms of ME/CFS. \nRecruitment for Dr. Friedberg’s study is being conducted on the Solve Together platform.  \nFor more information or to join\, use the QR code below\, click this link\, or email us at research@solvecfs.org. \nIf you are already a Solve Together participant\, you will automatically be considered in eligibility screening for this and all future studies and should hear from us within two  weeks of each study announcement.\n \n \nRegister here.
URL:https://solvecfs.org/event/webinar-hydrogen-water-dosing-study-for-me-cfs-a-new-clinical-trial/
CATEGORIES:Research,Solve Together,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/02/Feb-28-Friedberg-Webinar_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240216T140000
DTEND;TZID=America/Los_Angeles:20240216T150000
DTSTAMP:20260717T004811
CREATED:20240131T224155Z
LAST-MODIFIED:20240214T063942Z
UID:39761-1708092000-1708095600@solvecfs.org
SUMMARY:Caregiving\, Grief\, and Self-Care: Healthy Coping Through Change\, and Loss
DESCRIPTION:In our Caregiver Corner webinar series\, Stephanie Harrison\, founder of The New Happy\, joins Solve M.E. to help you cultivate greater well-being by sharing her unique perspective as a caregiver fused with her expertise in applied positive psychology. \nIn this session\, and in honor of National Caregivers Day (February 16)\, Stephanie will cover the topic of grief. As with patients\, sometimes being a caregiver means grieving losses caused by living with a debilitating disease. From changing relationships and missed opportunities to coping with regret\, Stephanie will discuss tools for managing these difficult feelings and finding hope—and even joy—through times of change and loss. \nStephanie’s interdisciplinary approach to studying happiness is based on hundreds of academic studies and original research that informs The New Happy philosophy that true\, lasting happiness comes from being of service to others. \nNo registration is required. Join at this link.
URL:https://solvecfs.org/event/caregiving-grief-and-self-care-healthy-coping-through-change-and-loss/
CATEGORIES:Advocacy,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/01/CaregiverFebUpdateFRIDAY_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240122T130000
DTEND;TZID=UTC:20240122T140000
DTSTAMP:20260717T004811
CREATED:20240109T015707Z
LAST-MODIFIED:20240116T233355Z
UID:39715-1705928400-1705932000@solvecfs.org
SUMMARY:Changes in the Gut Microbiome in ME/CFS and Long Covid
DESCRIPTION:Solve Ramsay Research Grant winner David Esteban\, PhD\, (Assoc. Professor of Biology\, Vassar College) will discuss ongoing work in his lab determining whether there is a link between changes in the gut microbiome and disease in ME/CFS and Long Covid. The collection of bacteria in the gut\, known as the gut microbiome\, produces many small molecules that can affect the immune\, nervous\, and gastrointestinal systems. In several other diseases\, microbial products of the amino acid tryptophan have been linked to symptoms or disease severity. \nIn this webinar\, Esteban will discuss his work to measure the amounts and activity of these important molecules in people with ME/CFS and Long Covid. Recruitment for Dr. Esteban’s study is being conducted on the Solve Together platform\, for more information or to join\, visit SolveTogether.org or email us at research@solvecfs.org. \nThis event is funded in part by an educational grant from Novavax.
URL:https://solvecfs.org/event/changes-in-the-gut-microbiome-in-me-cfs-and-long-covid/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/01/Jan-22-Gut-Microbiome-Final_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231211
DTEND;VALUE=DATE:20231214
DTSTAMP:20260717T004811
CREATED:20231018T191426Z
LAST-MODIFIED:20231026T192224Z
UID:39407-1702252800-1702511999@solvecfs.org
SUMMARY:Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID
DESCRIPTION:NIH ME/CFS Research Roadmap Webinar Series\nAugust – December 2023\nThis virtual webinar series is part of a larger effort to develop a Research Roadmap for ME/CFS\, which will identify research priorities to move the field toward translational studies and clinical trials. \nSave the date for two NIH ME/CFS events in December 2023! Additional details will be provided via the NIH ME/CFS listserv. \n\nNIH ME/CFS Young and Early Investigators Conference\nDecember 11\, 2023\nBethesda\, MD (in-person and virtual)\nAdvancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID\nDecember 12-13\, 2023\nBethesda\, MD (in-person and virtual)
URL:https://solvecfs.org/event/advancing-me-cfs-research-identifying-targets-for-intervention-and-learning-from-long-covid/
LOCATION:Online
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/NIHStudyVolunteers.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231207T120000
DTEND;TZID=America/Los_Angeles:20231207T130000
DTSTAMP:20260717T004811
CREATED:20231114T164759Z
LAST-MODIFIED:20231122T145559Z
UID:39491-1701950400-1701954000@solvecfs.org
SUMMARY:The Patient-Doctor Partnership: Optimally Treating People with Long Covid and ME/CFS Across the US
DESCRIPTION:Solve welcomes three medical providers who will share their experience with treating Long Covid\, ME/CFS\, POTS\, and dysautonomia patients across rural\, urban\, and suburban settings. Dr. Melanie Hoppers (co-founder and Chief Medical Officer at Physicians Quality Care\, in Jackson\, TN)\, Dr. William Pittman (co-director of the UCLA Long COVID Program)\, and Dr. Tiffany Walker (Principal Investigator for the Post-COVID Clinic Grady Hospital\, Emory University School of Medicine) will share how integrating a broader understanding of associated post-infection diseases has informed their care\, and offer insights into how patients and caregivers can best work together to create an optimal treatment experience. \n  \nThis event is funded in part by an educational grant from Novavax.
URL:https://solvecfs.org/event/the-patient-doctor-partnership-optimally-treating-people-with-long-covid-and-me-cfs-across-the-us/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/11/dec-7-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231024T120000
DTEND;TZID=America/Los_Angeles:20231024T130000
DTSTAMP:20260717T004811
CREATED:20230829T180429Z
LAST-MODIFIED:20230929T042408Z
UID:39118-1698148800-1698152400@solvecfs.org
SUMMARY:Power of Community: Infection Associated Chronic Conditions Patient Advocacy Coalition Initiative Webinar
DESCRIPTION:Witness the power of community on Tuesday\, October 24 at 12PM ET / 9AM PT as the IACC- Patient Advocacy Coalition (IACCPAC) Initiative team presents findings from a new report about the needs and priorities of the infection-associated chronic conditions community. \nThis national webinar is part of the IACCPAC Initiative\, led by Solve M.E.\, the Long Covid Alliance\, COVID-19 Longhauler Advocacy Project\, Dysautonomia International\, and Patient-Led Research Collaborative\, with support from the CDC Foundation through the Infection Initiated Chronic Conditions Understanding and Engagement (ICUE). \nDuring our webinar\, we’ll present findings from our workshop sessions and identify a roadmap that we hope will strengthen support for individuals experiencing IACC through strategic collaboration. \nKey topics to be covered during the webinar include: \n\nCommunity Voices: Hear directly from those living with infection-associated chronic conditions\, sharing their experiences and perspectives.\nPriority Areas: Discover the most urgent needs and concerns identified by our community.\nFuture Goals: Learn about our collective vision for advancing research\, awareness\, and support for IACCs.\nAction Steps: Find out how you can get involved and make a difference in the lives of those affected by IACCs.\n\nRegister here.
URL:https://solvecfs.org/event/power-of-community-infection-associated-chronic-conditions-patient-advocacy-coalition-initiative-webinar/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/09/IACCPAC-October-Webinar-Graphic-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231004T110000
DTEND;TZID=America/Los_Angeles:20231004T120000
DTSTAMP:20260717T004811
CREATED:20230914T220524Z
LAST-MODIFIED:20230914T220524Z
UID:39221-1696417200-1696420800@solvecfs.org
SUMMARY:
DESCRIPTION:Join Solve Senior Director of Research Leslie E. Phillips\, PhD for a walkthrough of our new patient-centered data platform\, Solve Together! In this webinar\, we’ll share information about joining the platform\, share tips for maximizing built-in tools for participants\, and answer your questions. \nSolve Together is fully accessible by smartphone and will allow participants to track symptoms\, connect wearables\, download reports for doctor visits\, link electronic health records\, and expend less time and energy on participation through short\, infrequent surveys and passive data collection. \nStay tuned for additional webinars in the Solve Together series. \nRegister here.
URL:https://solvecfs.org/event/39221/
LOCATION:Online
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/09/Solve-Together-Basics-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230825T100000
DTEND;TZID=America/New_York:20230825T140000
DTSTAMP:20260717T004811
CREATED:20230815T233629Z
LAST-MODIFIED:20230823T162155Z
UID:39067-1692957600-1692972000@solvecfs.org
SUMMARY:NIH ME/CFS Research Roadmap Series: Nervous System
DESCRIPTION:The first ME/CFS Research Roadmap webinar will take place on August 25\, 2023\, from 10:00 am – 2:00 pm ET. Focusing on how ME/CFS impacts the nervous system\, presenters will describe current research\, knowledge gaps\, and future research opportunities in this area. There will be Q&A sessions during which attendees can ask questions and contribute ideas. Researchers\, clinicians\, advocates\, those living with ME/CFS\, and anyone invested in or impacted by ME/CFS are encouraged to attend. The webinar will be recorded and posted online after the event for future viewing.\n\n\n\n\nPlease visit the webinar series event page for details about the agenda and speakers\, and upcoming webinars. Registration information is forthcoming. Learn about the overall roadmap process\, including information on how you can provide input\, on the NANDSC Research Roadmap Working Group page. Please note that in order to best accommodate this comprehensive effort\, the final research roadmap will now be presented at the NANDS Council meeting on May 15-16\, 2024.\n\nRegistration is not required. Please join at this Zoom link with the passcode 616680.
URL:https://solvecfs.org/event/nih-me-cfs-research-roadmap-series-nervous-system/
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/08/Screen-Shot-2023-08-15-at-16.37.09.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230814T120000
DTEND;TZID=America/Los_Angeles:20230814T130000
DTSTAMP:20260717T004811
CREATED:20230613T202305Z
LAST-MODIFIED:20230809T235120Z
UID:38684-1692014400-1692018000@solvecfs.org
SUMMARY:Caregiver Corner: Resilience Tools for Difficult Times
DESCRIPTION:In this webinar series\, Stephanie Harrison\, founder of The New Happy\, joins Solve M.E. to help you cultivate greater well-being. She will share her unique perspective as a caregiver fused with her expertise in applied positive psychology. Her interdisciplinary approach to studying happiness is based on hundreds of academic studies and original research that informs The New Happy philosophy that true\, lasting happiness comes from being of service to others. \nIn this session we will be covering science-backed tools that you can use to help you stay resilient. From small daily practices to longer-term perspective shifts\, you will walk away with useful suggestions that can be put into practice right away. \nRegister here.
URL:https://solvecfs.org/event/caregiver-corner-2/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/06/New-Caregiver-Corner-date.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230725T140000
DTEND;TZID=America/Los_Angeles:20230725T150000
DTSTAMP:20260717T004811
CREATED:20230706T184146Z
LAST-MODIFIED:20230706T185822Z
UID:38919-1690293600-1690297200@solvecfs.org
SUMMARY:The Future of Symptom Tracking: Exploring STAT Health's Revolutionary In-Ear Device That Measures Blood Flow to Head
DESCRIPTION:Solve M.E. is excited to host STAT Health CEO Daniel Lee for a conversation about their innovative in-ear wearable device. We’ll discuss how the STAT in-ear wearable measures blood flow to the head\, tracks changes in heart rate and blood pressure trend when users stand up. Designed to empower individuals with ME/CFS\, Long Covid\, and POTS\, this device can help people better understand common symptoms such as dizziness\, fainting\, and brain fog. \nRegister here.
URL:https://solvecfs.org/event/the-future-of-symptom-tracking-exploring-stat-healths-revolutionary-in-ear-device-that-measures-blood-flow-to-head/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/07/STAT-Health-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230721T120000
DTEND;TZID=America/Los_Angeles:20230721T130000
DTSTAMP:20260717T004811
CREATED:20230706T200638Z
LAST-MODIFIED:20230706T200638Z
UID:38930-1689940800-1689944400@solvecfs.org
SUMMARY:July Advocacy Cafe
DESCRIPTION:Advocacy Cafe is a community-favorite event that brings you more stories\, inspiration\, and conversations to connect and empower our advocates. This month’s session will take place 7/21 at 12 pm PT/ 3 pm ET and feature a conversation with Solve M.E.’s Emily Taylor about our appropriations process. \nPlease note — no registration is required. Join at this link.
URL:https://solvecfs.org/event/july-advocacy-cafe/
LOCATION:Online
CATEGORIES:Advocacy,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/Advocacy-Cafe.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230525T100000
DTEND;TZID=America/Los_Angeles:20230525T110000
DTSTAMP:20260717T004811
CREATED:20230517T190057Z
LAST-MODIFIED:20230517T190057Z
UID:38466-1685008800-1685012400@solvecfs.org
SUMMARY:Stem Cell Therapy As a Potential Treatment for Long Covid
DESCRIPTION:Solve is hosting the Hope Biosciences Research Foundation (HBRF) for a webinar on Thursday\, May 25 at 10AM PT. HBRF has conducted three FDA-authorized studies in mesenchymal cell therapy for COVID-19 prevention and treatment\, and two studies in Long Covid.  \nJoin Solve President Oved Amitay and HBRF founder Donna Chang for a comprehensive discussion of findings and more information about a Long Covid study that is currently enrolling\, as well as the potential for future studies in ME/CFS. \nRegister here.
URL:https://solvecfs.org/event/stem-cell-therapy-as-a-potential-treatment-for-long-covid/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/05/Hope-BIO-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230427T110000
DTEND;TZID=America/Los_Angeles:20230427T120000
DTSTAMP:20260717T004811
CREATED:20230405T221942Z
LAST-MODIFIED:20230405T222038Z
UID:38161-1682593200-1682596800@solvecfs.org
SUMMARY:Effects of Long Covid and ME/CFS on Sleep
DESCRIPTION:Many individuals who have had COVID-19 experience long-term symptoms that have a major impact on their lives. One of the most common symptoms is sleep disturbance. After more than six months from the time of infection\, about 60% of people self-report lingering sleep difficulties\, even if they had a mild course of acute COVID-19. Unrefreshing sleep is also part of the diagnostic criteria for ME/CFS\, along with other overlapping symptoms such as post-exertional malaise (PEM) or “brain fog.” \nTo probe deeper into the topic of sleep\, we are pleased to invite you to a webinar on the Effects of Long Covid and ME/CFS on Sleep\, featuring  SleepScore Lab’s neuroscientist\, Dr. Elie Gottlieb. The presentation will cover a range of topics including: \n\nThe connection between Long Covid\, ME/CFS\, and sleep disturbances.\nThe neurological and cognitive aspects of sleep and how brain changes/disruptions may be bi-directionally associated with Long Covid and ME/CFS.\nUnrefreshing sleep vs. quality sleep and why people with ME/CFS or Long COVID might experience the former.\nThe evidence-based methods to improve sleep and how SleepScore Lab’s improvement program addresses them.\n\n The presentation will be followed by a live Q&A. \nRegister here.
URL:https://solvecfs.org/event/effects-of-long-covid-and-me-cfs-on-sleep/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/April-27-Sleepscore-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230330T110000
DTEND;TZID=America/Los_Angeles:20230330T120000
DTSTAMP:20260717T004811
CREATED:20230316T000937Z
LAST-MODIFIED:20230321T200001Z
UID:38021-1680174000-1680177600@solvecfs.org
SUMMARY:How to Make an Impact at the FDA's Drug Development Meeting for Long Covid
DESCRIPTION:On April 25th\, 2023\, FDA is hosting a virtual public meeting on Patient-Focused Drug Development (PFDD) for Long Covid. This meeting will provide FDA the opportunity to obtain initial patient and patient representative input on the aspects of Long Covid\, including how Long COVID affects their daily life\, the symptoms that matter most to patients\, their current approaches to treating Long Covid\, and what they consider when determining whether or not to participate in a clinical trial. \n\n\n\n\nAhead of the FDA’s PFDD for Long Covid\, Solve M.E. will host a webinar on March 30th from 11- 12 pm PT / 2-3pm ET to help educate our community about this important event. \nThis is a unique opportunity to share stories of living with Long Covid\, as well as experiences with treatments\, with important decision-makers at the FDA. Though Solve is not involved in the planning of the PFDD meeting\, we have invited two former FDA officials who are experts in this area to help prepare our community for this important day. \n\nJames Valentine\, JD\, MHS\, has worked the last 15 years as a champion for the patient voice as part of the regulatory process.  James previously worked at the FDA where he was a patient liaison\, helping to incorporate the patient voice into medical product review across the FDA’s various medical product centers and review divisions.  There\, he helped to develop and launch the Patient-Focused Drug Development initiative.\nLarry Bauer\, RN\, MS\, worked at the NIH for 17 years in clinical research\, followed by a position at the FDA as a Regulatory Scientist in the Center for Drug Evaluation and Research’s Rare Diseases Program\, a group he co-founded and worked for 10 years\, where he advanced rare disease drug development. In private practice\, James and Larry have worked with many patient organizations to ensure their community’s voices were heard by decision-makers.  Relevant to the upcoming PFDD meeting\, both Larry and James were involved in these FDA-led PFDD meetings in their time at the Agency\, and since leaving have been a resource to the majority of patient communities participating in FDA’s sister externally-led PFDD program.\n\nThe hoped outcome of the meeting is to improve the development of new drugs in the research pipeline and inform the context in which regulatory decisions will be made for new drugs for Long Covid. \nDuring the webinar on March 30th\, we will be covering the following topics: \n\nBackground on FDA & Drug Development\nIntroduction to Patient-Focused Drug Development & Role of Patient Voice\nOverview of the PFDD Meeting\nGuide to Participating in the Meeting\nLogistics\, Format\, & Tips\n\nIt doesn’t matter where you live or where you are in your journey\, what matters is your story. \nRegister here.
URL:https://solvecfs.org/event/how-to-make-an-impact-at-the-fdas-drug-development-meeting-for-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/03/Webinars-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230329T100000
DTEND;TZID=America/Los_Angeles:20230329T110000
DTSTAMP:20260717T004811
CREATED:20230228T040819Z
LAST-MODIFIED:20230301T004824Z
UID:37834-1680084000-1680087600@solvecfs.org
SUMMARY:CDC Update: Recent Strides in Long Covid
DESCRIPTION:In this webinar\, Solve M.E. President Oved Amitay welcomes Dr. Elizabeth Unger\, chief of Chronic Viral Diseases Branch at Centers for Disease Control and Prevention\, and her CDC colleagues to share updates and progress on The School-Based Active Surveillance Project (presented by Anindita Nanda Issa\, MD)\, the Long Covid Fatiguing Illness Recovery Program (ECHO) (presented by Jennifer Cope\, MD\, MPH)\, and initial findings from the Multi-site Study of Post-COVID conditions (Medical chart abstraction project) (presented by Miriam Nji\, MD\, MPH). \nRegister here.
URL:https://solvecfs.org/event/cdc-update-recent-strides-in-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/02/CDC-Webinar-Updated-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Shanghai:20230221T100000
DTEND;TZID=Asia/Shanghai:20230221T130000
DTSTAMP:20260717T004811
CREATED:20230131T184624Z
LAST-MODIFIED:20230216T234324Z
UID:37499-1676973600-1676984400@solvecfs.org
SUMMARY:Solve M.E. and BIO co-host "Long Covid: What Will It Take To Accelerate Therapeutic Progress?"
DESCRIPTION:Solve M.E. and The Biotechnology Innovation Organization (BIO) will co-host a three-hour virtual event “Long Covid: What Will It Take to Accelerate Therapeutic Progress?” on Tuesday\, February 21 from 10:00 AM – 1:00 PM PT (1:00 – 4:00 PM ET).  \nOur goal is to convene stakeholders to advance research and development to diagnose and treat Long Covid\, ME/CFS\, and other post-infection diseases. By increasing awareness among drug developers to the unmet needs of our communities\, we hope to inspire these industry players to study these diseases and create therapeutic breakthroughs.  \nThe session will establish a knowledge base of emerging research in Long Covid and existing body of data in other post-infection diseases (such as myalgic encephalomyelitis/chronic fatigue syndrome\, dysautonomia\, mast cell activation\, and others). The session also will feature solution-oriented perspectives from government\, academic\, and industry researchers\, patient groups\, funding sources\, and policymakers.  \nHosts: \n\nOved Amitay\, R.Ph.\, M.Sc.\, President and CEO of Solve M.E. Christopher Austin\, MD\, CEO-Partner\, Flagship Pioneering\nCartier Esham\, PhD\, Chief Science Officer\, Biotechnology Innovation Organization (BIO)\n\nOpening Remarks: \n\nUS Senator\, Tim Kaine\nRachel L. Levine\, M.D.\, Admiral\, U.S. Public Health Service\, U.S. Department of Health and Human Services\n\nSpeakers: \n\nAkiko Iwasaki\, PhD\, Sterling Professor of Immunobiology (Microbial Diseases)\, Yale School of Medicine\nBruce Patterson\, MD\, CEO & Founder\, IncellDx\nChristopher Austin\, MD\, CEO-Partner\, Flagship Pioneering\nDavid Putrino\, PhD\, Associate Professor\, Rehabilitation and Human\nJulie Gerberding\, MD\, MPH\, CEO\, Foundation for the National Institutes of Health\nKatie Bach\, MBA\, Nonresident Senior Fellow\,Brookings Institution\nLisa McCorkell\, MPP\, Co-Founder\, Patient-Led Research Collaborative\nMargaret Koziel\, MD\, SVP\, Chief Medical Officer\, Axcella Therapeutics\nPriti Patel\, MD\, MPH\, Senior Advisor for Post-COVID Conditions\, Centers for Disease Control and Prevention\nRachel L. Levine\, M.D.\, Admiral\, U.S. Public Health Service\, U.S. Department of Health and Human Services\nSeth Lederman\, MD\, Co-Founder\, CEO & Chairman\, Tonix Pharmaceuticals\nThomas Equels\, M.S.\, J.D.\, CEO\, AIM Immunotech\nWalter Koroshetz\, MD\, Director\, National Institute of Neurological Disorders and Stroke (NINDS)\n\nSolve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics\, treatments\, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)\, Long Covid and other post-infection diseases.  \nBIO is the world’s largest advocacy association representing member companies\, state biotechnology groups\, academic and research institutions\, and related organizations across the United States and in 30+ countries.
URL:https://solvecfs.org/event/solve-m-e-and-bio-co-host-long-covid-what-will-it-take-to-accelerate-therapeutic-progress/
CATEGORIES:Long Covid,Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/01/Sample-Bio-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230123T120000
DTEND;TZID=America/Los_Angeles:20230123T130000
DTSTAMP:20260717T004811
CREATED:20221031T215217Z
LAST-MODIFIED:20221031T215217Z
UID:36829-1674475200-1674478800@solvecfs.org
SUMMARY:Meghan O’Rourke On Her NYT Bestseller  The Invisible Kingdom: Reimagining Chronic Illness
DESCRIPTION:Meghan O’Rourke will join us on Monday\, January 23\, 2023 at 12 PM PT to discuss her New York Times bestseller The Invisible Kingdom: Reimagining Chronic Illness\, which is a finalist for the National Book Award in nonfiction. \nMeghan is recipient of numerous literary awards\, including a Guggenheim Fellowship\, a Radcliffe Fellowship\, a Lannan Literary Fellowship\, and the Union League Prize for Poetry from the Poetry Foundation. She is also editor of The Yale Review. Her writing has appeared in The Atlantic Monthly\, The New Yorker\, and the New York Times. \nRegister today for the chance to win a free signed copy of The Invisible Kingdom! \nRegister here.
URL:https://solvecfs.org/event/meghan-orourke-on-her-nyt-bestseller-the-invisible-kingdom-reimagining-chronic-illness/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/10/Meghan.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221220T100000
DTEND;TZID=America/Los_Angeles:20221220T110000
DTSTAMP:20260717T004811
CREATED:20221214T003117Z
LAST-MODIFIED:20221214T003117Z
UID:37305-1671530400-1671534000@solvecfs.org
SUMMARY:Long COVID Technology
DESCRIPTION:As we approach the end of the year\, we are also wrapping up a stellar\, year-long webinar partnership with the Global Interdependence Center that has explored the pandemic’s long-term healthcare\, policy\, and economic impact\, specifically the implications of Long Covid. \nThe final installment in the series\, “Long Covid Technology\,” will take place on December 20. This webinar will explore the impacts technology has had on Long Covid developments with speaker Amy Proal\, Ph.D.\, Microbiologist/Research Team Coordinator at PolyBio Research Foundation\, Miguel Antonatos\, MD\, founder of Text2Med\, Harry Leeming\, founder of Visible\, and Andrew Rosenberg\, founder of Responsum Health. \n \nRegister here.
URL:https://solvecfs.org/event/long-covid-technology/
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/Webinars.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221215T100000
DTEND;TZID=America/Los_Angeles:20221215T110000
DTSTAMP:20260717T004811
CREATED:20221102T213657Z
LAST-MODIFIED:20221213T200457Z
UID:36932-1671098400-1671102000@solvecfs.org
SUMMARY:Challenges in Ensuring Equity In the Study and Treatment of ME/CFS and Long Covid
DESCRIPTION:Co-presented by Peter Rowe\, MD (Professor of Pediatrics\, Director\, Johns Hopkins Children’s Center Chronic Fatigue Clinic) and Camille Broussard\, MD\, MPH (Assistant Professor in the Division of Adolescent and Young Adult Medicine at Johns Hopkins School of Medicine)\, this webinar will explore the dissonant results of epidemiologic studies that suggest Latinx and Black individuals have a higher risk of ME/CFS and Long Covid than Whites\, while ME/CFS and Long Covid clinic populations in different countries are disproportionately composed of White individuals. We will look at the course of one young Black ME/CFS patient\, Jailyn Mercadel\, RN\, and hear from her about her experiences with the healthcare system. Dr. Broussard will then lead a discussion of the possible causes of the dissonant clinical and epidemiological findings\, and make suggestions for a more equitable approach to studies and clinical care. \nRegister here.
URL:https://solvecfs.org/event/challenges-in-ensuring-equity-in-the-study-and-treatment-of-me-cfs-and-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/11/RoweBroussard-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221129T100000
DTEND;TZID=America/Los_Angeles:20221129T110000
DTSTAMP:20260717T004811
CREATED:20221102T210847Z
LAST-MODIFIED:20221102T210847Z
UID:36930-1669716000-1669719600@solvecfs.org
SUMMARY:Long Covid in the Media
DESCRIPTION:Solve M.E. is continuing our event series with the Global Interdependence Center with a panel on November 29 10AM PT.  \nThe sixth installment of the GIC Solve Long Covid Initiative Program Series will explore the impact and coverage of Long Covid in the media. Join us virtually with speakers\, Cynthia Adinig\, Long Covid Advocate and Equity Policy Advisor\, Sandhya Kambhampati\, data reporter on the Los Angeles Times Data Desk\, and Fiona Lowenstein\, Founder of Body Politic. This event will also feature Meghan O’Rourke\, author of the New York Times bestseller “The Invisible Kingdom: Reimagining Chronic Illness.”
URL:https://solvecfs.org/event/long-covid-in-the-media/
LOCATION:Online
CATEGORIES:Long Covid,Media,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/Webinars.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221122T100000
DTEND;TZID=America/Los_Angeles:20221122T110000
DTSTAMP:20260717T004811
CREATED:20221031T214904Z
LAST-MODIFIED:20221031T214904Z
UID:36826-1669111200-1669114800@solvecfs.org
SUMMARY:Fiona Lowenstein\, Dona Kim Murphey and  The Long Covid Survival Guide
DESCRIPTION:For people living with Long Covid\, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms\, and with doctors continuing to work toward a cure\, people experiencing Long Covid are often left with more questions than answers. The Long Covid Survival Guide is the first patient-to-patient guide for people living with Long Covid—with expert advice on getting diagnosed\, dealing with symptoms\, accessing resources and accommodations\, and more.  \nEditor Fiona Lowenstein (award-winning journalist\, producer\, speaker\, and the founder of Body Politic) will join us on Tuesday\, November 22 at 10 AM PT to talk about the book. They’ll be joined by contributor Dona Kim Murphey\, a board certified clinical neurophysiologist who co-authored with Dr. David Putrino a Survival Guide chapter on diagnosis. \nWhether you’re a caregiver or a person with Long Covid\, ME/CFS\, or another associated condition\, this webinar will include relevant information about how to take care of yourself and what comes next. Register today for the chance to win a free signed copy of The Long Covid Survival Guide! \nRegister here.
URL:https://solvecfs.org/event/fiona-lowenstein-dona-kim-murphey-and-the-long-covid-survival-guide/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/10/Fio-Dona.png
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221114T100000
DTEND;TZID=America/Los_Angeles:20221114T110000
DTSTAMP:20260717T004811
CREATED:20221031T214538Z
LAST-MODIFIED:20221031T214538Z
UID:36823-1668420000-1668423600@solvecfs.org
SUMMARY:Ryan Prior On The Long Haul and  How Patients Can Change the World
DESCRIPTION:In his new book\, The Long Haul: Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever\, CNN journalist and ME/CFS patient advocate Ryan Prior writes about how chronically ill communities predicted the Long Covid crisis\, and how patient voices should shape the medical system of the future. \nIn this webinar hosted by Solve M.E. VP of Advocacy and Engagement Emily Taylor\, Prior talks about The Long Haul and how getting Long Covid treatments right could help revolutionize care for all complex\, chronic illnesses. Join us Monday\, November 14 at 10 AM PT. Register today for the chance to win a free signed copy of The Long Haul! \nRegister here.
URL:https://solvecfs.org/event/ryan-prior-on-the-long-haul-and-how-patients-can-change-the-world/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/10/Ryan.png
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