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UID:42597-1760454000-1760457600@solvecfs.org
SUMMARY:The Unified Platform: Advancing Research Across ME/CFS\, Long Covid\, and Other Chronic Conditions
DESCRIPTION:Chronic illnesses such as myalgic encephalomyelitis (ME) and Long COVID\, which lack clinical biomarkers\, present challenges around diagnosis\, symptom reporting\, and monitoring. That’s why the unhide® Solve Together Unified Platform–which is participant-led with continuous digital data collection–offers some advantages over traditional site-based clinical research models.  \nThe easy-to-use\, secure platform allows patients to contribute data through symptom surveys\, validated assessments\, wearable devices\, and health history to support research across 30+ related conditions. It also uncovers hidden connections between inflammation\, chronic illness\, and overall health.  \nThe Unified Platform enables patients and caregivers to: \n\nTrack symptoms and visualize health patterns over time\nConnect wearable data for more complete insights\nDownload and print customized reports to have better conversations with healthcare providers\nContribute to cross-disease research initiatives\nOptionally receive invitations to participate in clinical trials and studies\nIdentify ways to determine relationships between brain inflammation and mental health symptoms such as brain fog\, difficulty concentrating\, memory issues\, sleep problems\, mood changes\, anxiety\, and depression\n\nParticipants may contribute data across multiple domains: validated surveys (dysautonomia\, PEM\, fatigue\, function)\, daily symptom and treatment logs\, device/sensor data (Apple Watch\, Fitbit\, Garmin)\, and electronic health records (EHRs).  \nIn this webinar\, Solve CEO Emily Taylor\, Brain Inflammation Collaborative (BIC) co-founder and CEO Christy Jagdfeld\, Principal Investigator and lived experience expert Megan L. Fitzgerald\, PhD\, and platform architect and caregiver to a person with ME/CFS Chris Nowak (CareEvolution) will discuss how the unhide® Solve Together Unified Platform facilitates partnerships\, successfully improves patient-provider communication\, enables robust recruitment and multidimensional data collection\, and serves as a catalyst for better health among all who are impacted by neuroinflammation.  \nVisit unhidenow.org to learn more or enroll. \nRegister for the webinar here: https://us02web.zoom.us/webinar/register/WN_ATe5-nbxSsy89D8TcXIInw
URL:https://solvecfs.org/event/the-unified-platform-advancing-research-across-me-cfs-long-covid-and-other-chronic-conditions/
CATEGORIES:Long Covid,Research,Solve Together,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2025/08/UnifiedPlatformWebinar.png
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240508T123000
DTEND;TZID=America/Los_Angeles:20240508T133000
DTSTAMP:20260717T052409
CREATED:20240409T224442Z
LAST-MODIFIED:20240507T205214Z
UID:40225-1715171400-1715175000@solvecfs.org
SUMMARY:Comparing immunological signatures between Long Covid and ME/CFS
DESCRIPTION:**Webinar date changed to May 8\, 2024** \nDr. David Putrino and Dr. Jamie Wood\, of the Icahn School of Medicine at Mount Sinai\, have conducted several landmark studies on Long Covid. Their extensive research has led them to suspect that the immune responses of people with Long Covid differ in important ways from the immune responses of other people. If so\, these differences (called immunological signatures) may explain why some people develop Long Covid symptoms and hopefully lead to the development of new therapies. To find this information\, the team uses a wide range of cutting-edge technologies to compare blood and saliva samples from people with Long Covid with those from healthy participants. \nBecause both Long Covid and ME/CFS are post-acute infection syndromes (and have similar symptoms)\, the team also wants help from people with ME/CFS to find immunological signatures for ME/CFS. Similarities between the ME/CFS and Long Covid signatures may lead to therapeutic options for anyone with a post-acute-infection syndrome. \nIn this webinar\, Dr. Putrino and Dr. Wood will explain their ongoing research and the current study\, which has high potential to generate new knowledge and to help people diagnosed with ME/CFS or other post-acute infection syndromes. \nRegister here: https://us02web.zoom.us/webinar/register/WN_GY4b1ezER7udraoDjGTD8g \nThe Solve Together Real-World Data Platform (ST-RWD) will soon begin to refer consented ST-RWD users who have relevant profiles to be considered for participating in this study that compares ME/CFS and Long Covid. If you are interested\, please consider joining ST-RWD via https://solvecfs.org/research/solve-together/ by April 30\, 2024. You can also email us at research@solvecfs.org if you have any questions.
URL:https://solvecfs.org/event/comparing-immunological-signatures-between-long-covid-and-me-cfs/
CATEGORIES:Long Covid,Research,Solve Together
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/04/MAY-8-Putrino-Webinar-IG.png
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240429T130000
DTEND;TZID=America/Los_Angeles:20240429T140000
DTSTAMP:20260717T052409
CREATED:20240409T175152Z
LAST-MODIFIED:20240430T005000Z
UID:40219-1714395600-1714399200@solvecfs.org
SUMMARY:Symptom Management and Patient Empowerment Through The Long Covid Wearable Study
DESCRIPTION:The lived experiences of people with ME and Long Covid have shown that activity management\, or pacing\, can be an effective method of reducing symptom severity. However\, pacing is difficult to implement. Many people living with energy-limiting conditions have utilized wrist-worn wearables\, or activity trackers\, to help implement pacing. To validate the value of using wearables to implement pacing\, Scripps Research is launching The Long Covid Wearable Study. This one-year study will gather survey and wearable data in a bid to better manage symptoms and empower study participants to manage their health. \nIn this webinar\, Julia Moore Vogel\, PhD\, (Senior Program Director at Scripps Research and Principal Investigator of the Long Covid Wearable Study) will share more details on the study (including the inclusion criteria)\, explain how you can join the study using your Solve Together account\, and answer questions from attendees. \nIf you are enrolled in the Solve Together Real-World Data Platform (ST-RWD)\, you can easily join this study based on your ST-RWD account. We will send relevant instructions through the ST-RWD platform messaging system by May 6th\, 2024\, on how to join this study directly from your ST-RWD dashboard. \nIf you are not a current user of the Solve Together RWD Platform\, you can learn more about what the platform has to offer on this webpage (https://solvecfs.org/research/solve-together/). You can also email us at research@solvecfs.org if you have any questions. \nWatch a recording of the webinar here:
URL:https://solvecfs.org/event/symptom-management-and-patient-empowerment-through-the-long-covid-wearable-study/
CATEGORIES:Long Covid,Research,Solve Together,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/04/Scripps-Webinar-IG.png
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DTSTART;TZID=America/Los_Angeles:20240228T113000
DTEND;TZID=America/Los_Angeles:20240228T123000
DTSTAMP:20260717T052409
CREATED:20240201T174614Z
LAST-MODIFIED:20240212T235042Z
UID:39774-1709119800-1709123400@solvecfs.org
SUMMARY:Webinar: Hydrogen Water Dosing Study for ME/CFS: A New Clinical Trial
DESCRIPTION:Free radicals are molecules with one or more unpaired electrons in their outer shells. They tear holes in cell membranes\, releasing an overabundance of even more free radicals and preventing proper cell functionality.   \nAntioxidants are molecules stable enough to donate an electron to a rampaging free radical and neutralize it\, containing the damage it can cause. Some studies indicate that the antioxidant systems of ME/CFS patients cannot effectively contain an abundance of free radicals\, causing inflammation\, mitochondria and blood vessel damage\, and other symptoms of ME/CFS.  \nHydrogen-enriched water is an effective antioxidant with the power to absorb free radicals. In this webinar\, Fred Friedberg\, PhD\, (Research Professor at Stony Brook University School of Medicine)\, will discuss his current ongoing clinical trial “Hydrogen Water Dosing Study for ME/CFS\,” designed to explore the potential benefit of the over the counter (OTC) supplement hydrogen water\, for the symptoms of ME/CFS. \nRecruitment for Dr. Friedberg’s study is being conducted on the Solve Together platform.  \nFor more information or to join\, use the QR code below\, click this link\, or email us at research@solvecfs.org. \nIf you are already a Solve Together participant\, you will automatically be considered in eligibility screening for this and all future studies and should hear from us within two  weeks of each study announcement.\n \n \nRegister here.
URL:https://solvecfs.org/event/webinar-hydrogen-water-dosing-study-for-me-cfs-a-new-clinical-trial/
CATEGORIES:Research,Solve Together,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/02/Feb-28-Friedberg-Webinar_500.png
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