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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250722T150000
DTEND;TZID=America/Los_Angeles:20250722T160000
DTSTAMP:20250626T213218Z
CREATED:20250626T213218Z
LAST-MODIFIED:20250626T213218Z
UID:42085-1753196400-1753200000@solvecfs.org
SUMMARY:The ADDRESS-LC Trial: Studying the Impact of Bezisterim on Brain fog and Fatigue in People with Long Covid
DESCRIPTION:In this webinar\, we’ll be joined by panelists Michael Peluso\, MD (Assistant Professor of Medicine\, University of California\, San Francisco) Ezra Spier (Creator\, Long Covid Studies)\, Penelope Markham\, PhD (Senior Vice President\, BioVie) who will discuss the latest updates on Long COVID research and the ADDRESS-LC trial. The ADDRESS-LC trial was designed to assess the potential impact of bezisterim on cognitive impairment/brain fog and fatigue in individuals with Long COVID and is currently recruiting people 18-64 diagnosed with Long Covid. Attendees will learn more about the requirements for participation and how to join the trial. \nIn this discussion led by Solve M.E. President and CEO Emily Taylor\, the panelists will also share how the lived experience of patients has informed the development and conduct of the trial and the importance of patient-researcher collaboration. \nDate:\nTuesday\, July 22\, 2025\nTime:\n3:00 pm PST / 6 pm EST \nRegister here. \n  \n 
URL:https://solvecfs.org/event/the-address-lc-trial-studying-the-impact-of-bezisterim-on-brain-fog-and-fatigue-in-people-with-long-covid/
CATEGORIES:Long Covid,Research
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2025/05/UPDATEDADDRESS-LC.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250429T150000
DTEND;TZID=America/Los_Angeles:20250429T160000
DTSTAMP:20250424T221623Z
CREATED:20250407T214650Z
LAST-MODIFIED:20250424T221623Z
UID:41868-1745938800-1745942400@solvecfs.org
SUMMARY:Investigating Immune Dysfunction and T-Cell Exhaustion via Single Cell Immune Profiling in ME/CFS and Long COVID
DESCRIPTION:Join us for a webinar on April 29 from 3-4 pm PT / 6-7 pm ET with Solve Ramsay Research Grant winners Liisa K. Selin\, MD\, PhD\, and Anna Gil\, PhD (viral immunologists from the Univ. of Massachusetts Chan Medical School)\, Roshan Kumar\, PhD (clinical stage global biotech company HiFiBiO Therapeutics)\, and the labs’ patient representatives Megan L. Fitzgerald\, PhD\, and Rivka Solomon\, MS. \nThese two collaborating labs are studying dysregulated immune cells of ME/CFS and Long COVID patients. Their research goals include: gaining insights into the underlying immune mechanisms of these illnesses (including via antigen discovery); better understanding patient subgroups; and finding diagnostic biomarkers and therapeutic innovations. \nThe two labs received funding from the Patient Led Research Collaborative to collaborate on their current project analyzing T cells from ME/CFS and Long COVID patients both functionally and at a single-cell level. \nAlso at this webinar moderated by Solve CEO Emily Taylor\, the Selin Lab will summarize their paper “Identification of CD8 T-cell dysfunction associated with symptoms in ME/CFS and Long COVID and treatment with a nebulized antioxidant/anti-pathogen agent in a retrospective case series.” \nRegistration is free. Sign up here:\nhttps://us02web.zoom.us/webinar/register/WN_mlr1fE3_RdKztSL3JIfSWQ
URL:https://solvecfs.org/event/investigating-immune-dysfunction-and-t-cell-exhaustion-via-single-cell-immune-profiling-in-me-cfs-and-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2025/04/SelinGilWebinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250121T100000
DTEND;TZID=UTC:20250121T110000
DTSTAMP:20250113T182537Z
CREATED:20240829T000158Z
LAST-MODIFIED:20250113T182537Z
UID:40917-1737453600-1737457200@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Research (Pt. 4 of 4)
DESCRIPTION:**NEW DATE: Tuesday\, January 21 @ 10 am PT** \nME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nTopics and dates are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care \nNEW DATE:\n• January 21: Research \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-research-pt-4-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/SevereMEResearchTwitter_1.11.24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241218T100000
DTEND;TZID=America/Los_Angeles:20241218T110000
DTSTAMP:20241203T172519Z
CREATED:20241111T193438Z
LAST-MODIFIED:20241203T172519Z
UID:41153-1734516000-1734519600@solvecfs.org
SUMMARY:The Future of IACCI and Long Covid Research: ME/CFS and the Unfinished work of the COPVS Task Force
DESCRIPTION:**NEW TIME AND DATE!** \nIn 2021 the National Institutes of Health (NIH) launched the RECOVER Initiative\, a patient-centered\, integrated\, adaptive research network created to study Long Covid. Included in the RECOVER Initiative infrastructure was the Commonalities with Other Post-Viral Syndromes Task Force. \nThe Task Force included Solve President and CEO Emily Taylor\, Dr. Leonard Jason (Professor of Psychology at DePaul University and the Director of the Center for Community Research)\, and other well-known ME/CFS experts and played a crucial role in fostering collaboration among researchers\, clinicians\, and patient advocates. It also facilitated the exchange of knowledge and identified common data elements\, treatment strategies\, and diagnostic criteria. This multidisciplinary approach was essential for advancing our understanding of post-viral illnesses and developing effective interventions. \nThe Task Force concluded that Long Covid researchers can learn from ME/CFS efforts to identify key symptoms\, provide explicit criteria for when a symptom meets the threshold for being considered a problem\, and employ tactics to ensure that consistent information is elicited from patient interviews across settings. \nThe Task Force published a paper on their findings in December 2023 and was then disbanded by NIH. However\, there is clearly still a need to educate care providers\, researchers\, and the public about the connection between ME/CFS and Long Covid. \nIn this webinar\, Emily Taylor and Dr. Jason will discuss their findings and what they signal for the future of research on ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). The session will conclude with the launch of an important advocacy action.
URL:https://solvecfs.org/event/the-future-of-iacci-and-long-covid-research-me-cfs-and-the-unfinished-work-of-the-copvs-task-force/
CATEGORIES:Advocacy,Long Covid,Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/11/500LennyJasonCOPVSIG121824.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241204T100000
DTEND;TZID=America/Los_Angeles:20241204T110000
DTSTAMP:20240909T173412Z
CREATED:20240828T235832Z
LAST-MODIFIED:20240909T173412Z
UID:40914-1733306400-1733310000@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Medical Care (Pt. 3 of 4)
DESCRIPTION:ME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nTopics and dates are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care\n• January 15: Research \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-medical-care-pt-3-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/SolveBHCWebinarSeriesDatesIG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241113T100000
DTEND;TZID=America/Los_Angeles:20241113T110000
DTSTAMP:20241112T184500Z
CREATED:20240828T235023Z
LAST-MODIFIED:20241112T184500Z
UID:40911-1731492000-1731495600@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Legal Rights (Pt. 2 of 4)
DESCRIPTION:ME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nThe second webinar in our series focuses on the multifaceted legal considerations faced by people with Severe ME and those who care for them. \nA panel of legal experts will share information on the topics of guardianship\, conservatorship\, power of attorney\, Social Security Disability Insurance (SSDI)\, Supplemental Security Income (SSI)\, and more. \nThe panelists will offer practical strategies for determining which legal protections are right for you\, successful application for different forms of disability benefits\, and what to do if disability claims are denied. \nJoin Solve M.E. President and CEO Emily Taylor as she moderates a panel of attorneys with valuable insights to share with our community. \nTopics and dates are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care\n• January 15: Research \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances. \n 
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-legal-rights-pt-2-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/Legal1_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241011T090000
DTEND;TZID=America/Los_Angeles:20241011T100000
DTSTAMP:20240918T204343Z
CREATED:20240918T204343Z
LAST-MODIFIED:20240918T204343Z
UID:40996-1728637200-1728640800@solvecfs.org
SUMMARY:ICUE Webinar: Uniting Voices\, Amplifying Impact: National Organizations Collaborating to Support Our IACC Communities
DESCRIPTION:Please join us for the final\, culminating webinar of the Infection-Associated Chronic Conditions Understanding and Engagement (ICUE) project\, where we will discuss the findings and results from the project as well as on-going efforts to collaborate across the IACC community on advancing awareness\, clinical care\, patient support and research. \nDuring this webinar\, you will hear from ICUE project leadership from the COVID-19 Longhauler Advocacy Project\, Patient-Led Research Collaborative\, and Solve M.E.\, as well as leading experts in IACC education\, clinical care\, and research. At the conclusion of the presentations\, we will take questions and answers. \nThis webinar is an opportunity to learn and identify ways to engage and collaborate. Patients\, clinicians\, researchers\, and various other stakeholders all have vital roles to play\, both independently and collaboratively\, in advancing the understanding and management of IACCs. By working together\, we can raise awareness to advance patient-centered research\, enhance clinical care\, and improve educational outreach\, ultimately leading to better health outcomes for all affected individuals.  \nWe look forward to your participation in this important discussion. Please confirm your attendance by October 10th and join us in our efforts to advance the understanding and management of IACCs. Your involvement is crucial\, and we hope to see you there. \nUNITING VOICES\, AMPLIFYING IMPACT: COLLABORATING TO SUPPORT OUR IACC COMMUNITIES\nFriday\, October 11\, 2024\n9 am PT /12 pm ET \nRegistration link:\nhttps://us06web.zoom.us/webinar/register/WN_JOGSRf0ZQsu0ueVkp2HuWw#/registration \n 
URL:https://solvecfs.org/event/icue-webinar-uniting-voices-amplifying-impact-national-organizations-collaborating-to-support-our-iacc-communities/
CATEGORIES:Advocacy,Long Covid,Research,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/09/icue-graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241009T100000
DTEND;TZID=America/Los_Angeles:20241009T110000
DTSTAMP:20240918T220436Z
CREATED:20240828T233108Z
LAST-MODIFIED:20240918T220436Z
UID:40900-1728468000-1728471600@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Caregiving (Pt. 1 of 4)
DESCRIPTION:ME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nTopics and dates for the series are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care\n• January 15: Research \nThe first webinar in our series focuses on the multifaceted challenges faced by those caring for severe ME/CFS patients and emphasizes the impact of chronic illness on entire support systems. A panel of experienced caregivers will explore navigating healthcare systems\, coping with ambiguous loss\, and maintaining healthy relationships. The panelists will provide valuable insights into balancing self-care with caregiving responsibilities and offer practical strategies for maintaining mental well-being. This event aims to provide caregivers with tools and support for their crucial roles. \nJoin BHC Deputy Executive Director and Education Director\, Tahlia Rushcioni as she moderates a panel of experienced caregivers with unique insights to share with the community. \nPanelists:\nGalen Warden\, mother to an adult son with Severe ME\nAmy Mooney\, mother to a teen daughter with Severe ME\nKim Moy\, wife to a husband with Severe ME\nKyle Kitzmiller\, husband to a woman with Severe ME (American science communicator Dianna Cowern aka YouTuber “Physicsgirl”) \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-caregiving-pt-1-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/CaregivingTwitter9.16.24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241003T090000
DTEND;TZID=America/Los_Angeles:20241003T100000
DTSTAMP:20240923T183251Z
CREATED:20240923T183251Z
LAST-MODIFIED:20240923T183251Z
UID:40947-1727946000-1727949600@solvecfs.org
SUMMARY:Skeletal Muscle Fatigue and Post-Exertional Malaise in Patients with Long Covid and Implications for ME/CFS
DESCRIPTION:On Thursday\, October 3\, 2024\, Solve M.E. will host a free educational webinar featuring Assistant Professor Rob Wüst from the Vrije Universiteit (Amsterdam\, Netherlands)\, who will discuss skeletal muscle fatigue and post-exertional malaise in patients with Long Covid and the implications for ME/CFS. \nDr. Wüst received a Solve M.E. Ramsay Research Grant in 2022 to study muscle pain\, post-exertional malaise\, and treatments for pain and malaise in patients with diseases like Long Covid and ME/CFS. He found that\, at the physiological and molecular levels\, post-exertional malaise differs from general fatigue. These differences have big implications for how physical therapy affects patients with Long Covid or ME/CFS. \nDr. Wüst will update us on his studies of these two central symptoms of Long Covid and ME/CFS—post-exertional malaise and general fatigue and answer questions from attendees. \nTime: 9 am PT / 12 pm ET \nDate: Thursday\, October 3 \nRegister here: https://us02web.zoom.us/webinar/register/WN_LRCE4Xg9SWa2dpWppLHJwg \n*The content provided by Solve M.E. in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.*
URL:https://solvecfs.org/event/skeletal-muscle-fatigue-and-post-exertional-malaise-in-patients-with-long-covid-and-implications-for-me-cfs/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/09/WustWebinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240910T120000
DTEND;TZID=America/Los_Angeles:20240910T130000
DTSTAMP:20240724T232804Z
CREATED:20240724T232700Z
LAST-MODIFIED:20240724T232804Z
UID:40840-1725969600-1725973200@solvecfs.org
SUMMARY:Solve Author Series:  Dr. Peter Rowe Discusses "Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment"
DESCRIPTION:Orthostatic intolerance (OI) describes a group of circulatory disorders whose symptoms are characterized by a dramatic drop in blood flow to the brain when people are sitting for long periods or standing still. It is often associated with other acute issues\, such as substantial drops in blood pressure\, tachycardia\, dizziness\, fainting\, or other long-term problems\, including ME/CFS and Long Covid.  \nIn his new book\, Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment\, Peter Rowe\, MD\, (Director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center and member of Solve M.E.’s Research Advisory Council) provides an overview of OI and its causes\, diagnosis\, symptom management and more.  \nIn this installment of our author spotlight series\, Solve President and CEO Emily Taylor talks to Dr. Rowe about his indispensable new guide for those diagnosed with the disorder\, their families\, and physicians. \nGuided by decades of research on managing and treating OI patients\, Dr. Rowe will provide illustrative case studies to help explain the disease and answer questions from attendees. \nPurchase a copy of Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment via Johns Hopkins University Press or Amazon. \nTuesday\, September 10\, 2024\n12-1 pm PT / 3-4 pm ET\nRegister here:\nhttps://us02web.zoom.us/webinar/register/WN_8pUWIfiqSvaL_d8gByvbUg
URL:https://solvecfs.org/event/solve-author-series-dr-peter-rowe-discusses-living-well-with-orthostatic-intolerance-a-guide-to-diagnosis-and-treatment/
CATEGORIES:Long Covid,Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/07/Rowe-Webinar-Sept.-2024-IG-500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240702T130000
DTEND;TZID=America/Los_Angeles:20240702T140000
DTSTAMP:20240624T163929Z
CREATED:20240612T232500Z
LAST-MODIFIED:20240624T163929Z
UID:40591-1719925200-1719928800@solvecfs.org
SUMMARY:Covid Vaccinations: Efficacy\, Options\, and Special Considerations for Chronic Illness
DESCRIPTION:People with chronic illnesses often have compromised immune systems or ongoing health issues that can affect how they respond to vaccines. The effectiveness and potential side effects of vaccines may differ for these individuals compared to the general population. Individuals with chronic illnesses may be at a higher risk of experiencing adverse reactions to vaccines. This can make them hesitant to receive the vaccine and necessitates a careful evaluation of risks and benefits. \nTo help inform our community\, Solve is hosting the free webinar\, “Covid Vaccinations: Efficacy\, Options\, and Special Considerations for Chronic Illness.” Solve President & CEO Emily Taylor and Solve Chief Scientific Officer H. Tim Hsiao\, PhD. will talk to infectious disease epidemiologist and science communicator Jessica Malaty Rivera\, M.S. (Chair\, Committee of Scientific and Medical Advisors\, Vaccinate Your Family) and distinguished physician Melanie Hoppers\, M.D. (Medical Provider\, Bateman Horne Center) about the complex issues surrounding Covid vaccination for those with ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses. \nThis comprehensive session will delve into: \n• The effectiveness of Covid vaccinations in preventing Long Covid and other long-term symptoms.\n• An overview of the different types of Covid vaccines currently available.\n• Insights into how vaccine manufacturers address the special needs of individuals with chronic illnesses during vaccine development.\n• Expert advice on how people with ME/CFS\, Long Covid\, and other infection-associated chronic conditions can make informed decisions about Covid vaccination. \nOur experts will provide valuable information\, answer your questions\, and offer practical guidance tailored to those with chronic health conditions. Don’t miss this opportunity to gain clarity and confidence in your vaccination choices. \nThis event is funded in part by an educational grant from Novavax. \nRegister here:\nhttps://us02web.zoom.us/webinar/register/WN_-vcECdI4QImGHEJpSJOo-Q
URL:https://solvecfs.org/event/covid-vaccinations-efficacy-options-and-special-considerations-for-chronic-illness/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/06/CovidVaccinationsWebinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240510T090000
DTEND;TZID=America/Los_Angeles:20240510T120000
DTSTAMP:20240429T164702Z
CREATED:20240429T164557Z
LAST-MODIFIED:20240429T164702Z
UID:40388-1715331600-1715342400@solvecfs.org
SUMMARY:World ME Day: Bridging Borders – Global Voices from the World ME Alliance
DESCRIPTION:Solve is a proud co-founder of the World ME Alliance and we invite you to join us this year for the World ME Day event Bridging Borders – Global Voices from the World ME Alliance! \nSolve M.E. President and CEO and World ME Alliance Co-Chair Emily Taylor will represent Solve as one of the many nonprofit organizations from across the globe showcasing our work to build a #GlobalVoiceForME. \nTune in on May 10th at 9am PT\, 12pm ET\, 5pm BST\, 6pm CEST. \nRSVP on Facebook here: https://www.facebook.com/events/974991507395331/ \nThis event will be livestreamed\, allowing individuals from around the world to tune in\, in real-time. The event will be available to watch afterward on Facebook. \nOr you can register here to join us for the event on Zoom (limited spaces): https://worldmealliance.org/2024/04/register-for-our-live-event-bridging-borders-global-voices-from-the-world-me-alliance/ \nEmily will be joined by speakers from around the world\, including South Africa\, Czechia\, Italy\, France\, and more! \nWith the World ME Alliance\, Solve is bridging borders\, forging connections\, and building toward a better future for people with ME. \n 
URL:https://solvecfs.org/event/world-me-day-bridging-borders-global-voices-from-the-world-me-alliance/
CATEGORIES:Advocacy,Conference,Research,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/04/WorldMEAllianceEvent_5.10.24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240508T123000
DTEND;TZID=America/Los_Angeles:20240508T133000
DTSTAMP:20240507T205214Z
CREATED:20240409T224442Z
LAST-MODIFIED:20240507T205214Z
UID:40225-1715171400-1715175000@solvecfs.org
SUMMARY:Comparing immunological signatures between Long Covid and ME/CFS
DESCRIPTION:**Webinar date changed to May 8\, 2024** \nDr. David Putrino and Dr. Jamie Wood\, of the Icahn School of Medicine at Mount Sinai\, have conducted several landmark studies on Long Covid. Their extensive research has led them to suspect that the immune responses of people with Long Covid differ in important ways from the immune responses of other people. If so\, these differences (called immunological signatures) may explain why some people develop Long Covid symptoms and hopefully lead to the development of new therapies. To find this information\, the team uses a wide range of cutting-edge technologies to compare blood and saliva samples from people with Long Covid with those from healthy participants. \nBecause both Long Covid and ME/CFS are post-acute infection syndromes (and have similar symptoms)\, the team also wants help from people with ME/CFS to find immunological signatures for ME/CFS. Similarities between the ME/CFS and Long Covid signatures may lead to therapeutic options for anyone with a post-acute-infection syndrome. \nIn this webinar\, Dr. Putrino and Dr. Wood will explain their ongoing research and the current study\, which has high potential to generate new knowledge and to help people diagnosed with ME/CFS or other post-acute infection syndromes. \nRegister here: https://us02web.zoom.us/webinar/register/WN_GY4b1ezER7udraoDjGTD8g \nThe Solve Together Real-World Data Platform (ST-RWD) will soon begin to refer consented ST-RWD users who have relevant profiles to be considered for participating in this study that compares ME/CFS and Long Covid. If you are interested\, please consider joining ST-RWD via https://solvecfs.org/research/solve-together/ by April 30\, 2024. You can also email us at research@solvecfs.org if you have any questions.
URL:https://solvecfs.org/event/comparing-immunological-signatures-between-long-covid-and-me-cfs/
CATEGORIES:Long Covid,Research,Solve Together
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/04/MAY-8-Putrino-Webinar-IG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240429T130000
DTEND;TZID=America/Los_Angeles:20240429T140000
DTSTAMP:20240430T005000Z
CREATED:20240409T175152Z
LAST-MODIFIED:20240430T005000Z
UID:40219-1714395600-1714399200@solvecfs.org
SUMMARY:Symptom Management and Patient Empowerment Through The Long Covid Wearable Study
DESCRIPTION:The lived experiences of people with ME and Long Covid have shown that activity management\, or pacing\, can be an effective method of reducing symptom severity. However\, pacing is difficult to implement. Many people living with energy-limiting conditions have utilized wrist-worn wearables\, or activity trackers\, to help implement pacing. To validate the value of using wearables to implement pacing\, Scripps Research is launching The Long Covid Wearable Study. This one-year study will gather survey and wearable data in a bid to better manage symptoms and empower study participants to manage their health. \nIn this webinar\, Julia Moore Vogel\, PhD\, (Senior Program Director at Scripps Research and Principal Investigator of the Long Covid Wearable Study) will share more details on the study (including the inclusion criteria)\, explain how you can join the study using your Solve Together account\, and answer questions from attendees. \nIf you are enrolled in the Solve Together Real-World Data Platform (ST-RWD)\, you can easily join this study based on your ST-RWD account. We will send relevant instructions through the ST-RWD platform messaging system by May 6th\, 2024\, on how to join this study directly from your ST-RWD dashboard. \nIf you are not a current user of the Solve Together RWD Platform\, you can learn more about what the platform has to offer on this webpage (https://solvecfs.org/research/solve-together/). You can also email us at research@solvecfs.org if you have any questions. \nWatch a recording of the webinar here:
URL:https://solvecfs.org/event/symptom-management-and-patient-empowerment-through-the-long-covid-wearable-study/
CATEGORIES:Long Covid,Research,Solve Together,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/04/Scripps-Webinar-IG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240228T113000
DTEND;TZID=America/Los_Angeles:20240228T123000
DTSTAMP:20240212T235042Z
CREATED:20240201T174614Z
LAST-MODIFIED:20240212T235042Z
UID:39774-1709119800-1709123400@solvecfs.org
SUMMARY:Webinar: Hydrogen Water Dosing Study for ME/CFS: A New Clinical Trial
DESCRIPTION:Free radicals are molecules with one or more unpaired electrons in their outer shells. They tear holes in cell membranes\, releasing an overabundance of even more free radicals and preventing proper cell functionality.   \nAntioxidants are molecules stable enough to donate an electron to a rampaging free radical and neutralize it\, containing the damage it can cause. Some studies indicate that the antioxidant systems of ME/CFS patients cannot effectively contain an abundance of free radicals\, causing inflammation\, mitochondria and blood vessel damage\, and other symptoms of ME/CFS.  \nHydrogen-enriched water is an effective antioxidant with the power to absorb free radicals. In this webinar\, Fred Friedberg\, PhD\, (Research Professor at Stony Brook University School of Medicine)\, will discuss his current ongoing clinical trial “Hydrogen Water Dosing Study for ME/CFS\,” designed to explore the potential benefit of the over the counter (OTC) supplement hydrogen water\, for the symptoms of ME/CFS. \nRecruitment for Dr. Friedberg’s study is being conducted on the Solve Together platform.  \nFor more information or to join\, use the QR code below\, click this link\, or email us at research@solvecfs.org. \nIf you are already a Solve Together participant\, you will automatically be considered in eligibility screening for this and all future studies and should hear from us within two  weeks of each study announcement.\n \n \nRegister here.
URL:https://solvecfs.org/event/webinar-hydrogen-water-dosing-study-for-me-cfs-a-new-clinical-trial/
CATEGORIES:Research,Solve Together,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/02/Feb-28-Friedberg-Webinar_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240122T130000
DTEND;TZID=UTC:20240122T140000
DTSTAMP:20240116T233355Z
CREATED:20240109T015707Z
LAST-MODIFIED:20240116T233355Z
UID:39715-1705928400-1705932000@solvecfs.org
SUMMARY:Changes in the Gut Microbiome in ME/CFS and Long Covid
DESCRIPTION:Solve Ramsay Research Grant winner David Esteban\, PhD\, (Assoc. Professor of Biology\, Vassar College) will discuss ongoing work in his lab determining whether there is a link between changes in the gut microbiome and disease in ME/CFS and Long Covid. The collection of bacteria in the gut\, known as the gut microbiome\, produces many small molecules that can affect the immune\, nervous\, and gastrointestinal systems. In several other diseases\, microbial products of the amino acid tryptophan have been linked to symptoms or disease severity. \nIn this webinar\, Esteban will discuss his work to measure the amounts and activity of these important molecules in people with ME/CFS and Long Covid. Recruitment for Dr. Esteban’s study is being conducted on the Solve Together platform\, for more information or to join\, visit SolveTogether.org or email us at research@solvecfs.org. \nThis event is funded in part by an educational grant from Novavax.
URL:https://solvecfs.org/event/changes-in-the-gut-microbiome-in-me-cfs-and-long-covid/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/01/Jan-22-Gut-Microbiome-Final_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231211
DTEND;VALUE=DATE:20231214
DTSTAMP:20231026T192224Z
CREATED:20231018T191426Z
LAST-MODIFIED:20231026T192224Z
UID:39407-1702252800-1702511999@solvecfs.org
SUMMARY:Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID
DESCRIPTION:NIH ME/CFS Research Roadmap Webinar Series\nAugust – December 2023\nThis virtual webinar series is part of a larger effort to develop a Research Roadmap for ME/CFS\, which will identify research priorities to move the field toward translational studies and clinical trials. \nSave the date for two NIH ME/CFS events in December 2023! Additional details will be provided via the NIH ME/CFS listserv. \n\nNIH ME/CFS Young and Early Investigators Conference\nDecember 11\, 2023\nBethesda\, MD (in-person and virtual)\nAdvancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID\nDecember 12-13\, 2023\nBethesda\, MD (in-person and virtual)
URL:https://solvecfs.org/event/advancing-me-cfs-research-identifying-targets-for-intervention-and-learning-from-long-covid/
LOCATION:Online
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/NIHStudyVolunteers.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231207T120000
DTEND;TZID=America/Los_Angeles:20231207T130000
DTSTAMP:20231122T145559Z
CREATED:20231114T164759Z
LAST-MODIFIED:20231122T145559Z
UID:39491-1701950400-1701954000@solvecfs.org
SUMMARY:The Patient-Doctor Partnership: Optimally Treating People with Long Covid and ME/CFS Across the US
DESCRIPTION:Solve welcomes three medical providers who will share their experience with treating Long Covid\, ME/CFS\, POTS\, and dysautonomia patients across rural\, urban\, and suburban settings. Dr. Melanie Hoppers (co-founder and Chief Medical Officer at Physicians Quality Care\, in Jackson\, TN)\, Dr. William Pittman (co-director of the UCLA Long COVID Program)\, and Dr. Tiffany Walker (Principal Investigator for the Post-COVID Clinic Grady Hospital\, Emory University School of Medicine) will share how integrating a broader understanding of associated post-infection diseases has informed their care\, and offer insights into how patients and caregivers can best work together to create an optimal treatment experience. \n  \nThis event is funded in part by an educational grant from Novavax.
URL:https://solvecfs.org/event/the-patient-doctor-partnership-optimally-treating-people-with-long-covid-and-me-cfs-across-the-us/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/11/dec-7-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231019T080000
DTEND;TZID=America/Los_Angeles:20231019T090000
DTSTAMP:20231018T185555Z
CREATED:20231018T185555Z
LAST-MODIFIED:20231018T185555Z
UID:39404-1697702400-1697706000@solvecfs.org
SUMMARY:ME/CFS RESEARCH ROADMAP WEBINAR SERIES
DESCRIPTION:Tomorrow’s NINDS ME/CFS Research Roadmap webinar at 11AM ET will focus on how ME/CFS impacts the immune system\, current research\, knowledge gaps\, and future research opportunities. \n\n\n \n\n\nRegister here.\n\n\n \n\n\nA recording of the first session\, focusing on the nervous system\, is available here.
URL:https://solvecfs.org/event/me-cfs-research-roadmap-webinar-series/
LOCATION:Online
CATEGORIES:Research
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/10/MECFS-Research-Roadmap.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231004T110000
DTEND;TZID=America/Los_Angeles:20231004T120000
DTSTAMP:20230914T220524Z
CREATED:20230914T220524Z
LAST-MODIFIED:20230914T220524Z
UID:39221-1696417200-1696420800@solvecfs.org
SUMMARY:
DESCRIPTION:Join Solve Senior Director of Research Leslie E. Phillips\, PhD for a walkthrough of our new patient-centered data platform\, Solve Together! In this webinar\, we’ll share information about joining the platform\, share tips for maximizing built-in tools for participants\, and answer your questions. \nSolve Together is fully accessible by smartphone and will allow participants to track symptoms\, connect wearables\, download reports for doctor visits\, link electronic health records\, and expend less time and energy on participation through short\, infrequent surveys and passive data collection. \nStay tuned for additional webinars in the Solve Together series. \nRegister here.
URL:https://solvecfs.org/event/39221/
LOCATION:Online
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/09/Solve-Together-Basics-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230825T100000
DTEND;TZID=America/New_York:20230825T140000
DTSTAMP:20230823T162155Z
CREATED:20230815T233629Z
LAST-MODIFIED:20230823T162155Z
UID:39067-1692957600-1692972000@solvecfs.org
SUMMARY:NIH ME/CFS Research Roadmap Series: Nervous System
DESCRIPTION:The first ME/CFS Research Roadmap webinar will take place on August 25\, 2023\, from 10:00 am – 2:00 pm ET. Focusing on how ME/CFS impacts the nervous system\, presenters will describe current research\, knowledge gaps\, and future research opportunities in this area. There will be Q&A sessions during which attendees can ask questions and contribute ideas. Researchers\, clinicians\, advocates\, those living with ME/CFS\, and anyone invested in or impacted by ME/CFS are encouraged to attend. The webinar will be recorded and posted online after the event for future viewing.\n\n\n\n\nPlease visit the webinar series event page for details about the agenda and speakers\, and upcoming webinars. Registration information is forthcoming. Learn about the overall roadmap process\, including information on how you can provide input\, on the NANDSC Research Roadmap Working Group page. Please note that in order to best accommodate this comprehensive effort\, the final research roadmap will now be presented at the NANDS Council meeting on May 15-16\, 2024.\n\nRegistration is not required. Please join at this Zoom link with the passcode 616680.
URL:https://solvecfs.org/event/nih-me-cfs-research-roadmap-series-nervous-system/
CATEGORIES:Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/08/Screen-Shot-2023-08-15-at-16.37.09.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230427T110000
DTEND;TZID=America/Los_Angeles:20230427T120000
DTSTAMP:20230405T222038Z
CREATED:20230405T221942Z
LAST-MODIFIED:20230405T222038Z
UID:38161-1682593200-1682596800@solvecfs.org
SUMMARY:Effects of Long Covid and ME/CFS on Sleep
DESCRIPTION:Many individuals who have had COVID-19 experience long-term symptoms that have a major impact on their lives. One of the most common symptoms is sleep disturbance. After more than six months from the time of infection\, about 60% of people self-report lingering sleep difficulties\, even if they had a mild course of acute COVID-19. Unrefreshing sleep is also part of the diagnostic criteria for ME/CFS\, along with other overlapping symptoms such as post-exertional malaise (PEM) or “brain fog.” \nTo probe deeper into the topic of sleep\, we are pleased to invite you to a webinar on the Effects of Long Covid and ME/CFS on Sleep\, featuring  SleepScore Lab’s neuroscientist\, Dr. Elie Gottlieb. The presentation will cover a range of topics including: \n\nThe connection between Long Covid\, ME/CFS\, and sleep disturbances.\nThe neurological and cognitive aspects of sleep and how brain changes/disruptions may be bi-directionally associated with Long Covid and ME/CFS.\nUnrefreshing sleep vs. quality sleep and why people with ME/CFS or Long COVID might experience the former.\nThe evidence-based methods to improve sleep and how SleepScore Lab’s improvement program addresses them.\n\n The presentation will be followed by a live Q&A. \nRegister here.
URL:https://solvecfs.org/event/effects-of-long-covid-and-me-cfs-on-sleep/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/April-27-Sleepscore-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230425T100000
DTEND;TZID=America/New_York:20230425T160000
DTSTAMP:20230301T234226Z
CREATED:20230301T234226Z
LAST-MODIFIED:20230301T234226Z
UID:37888-1682416800-1682438400@solvecfs.org
SUMMARY:FDA Patient-Focused Drug Development Public Meeting for Long Covid
DESCRIPTION:The US Food and Drug Administration (FDA) is hosting a virtual public meeting on Patient-Focused Drug Development for Long Covid on Tuesday\, April 25th\, 2023\, from 10 a.m. to 4:00 p.m. ET.  It will be conducted with live translation in both English and Spanish. \nPatient-Focused Drug Development meetings are important and infrequent opportunities for patients to provide direct input to the FDA\, as well as for the FDA to obtain patient and patient representative input on several aspects related to a disease. ME/CFS was one of the earliest diseases to benefit from the concept of including patients in this process\, approximately a decade ago. \nThis meeting will focus on Long Covid\, how it affects daily life\, symptoms that matter most to patients\, current approaches to treating Long Covid\, and considerations for clinical trial participation. \nSolve M.E. encourages individuals in our community with Long Covid\, family members\, advocates\, caregivers\, and other stakeholders to participate in the live webcast. Register here and find more information on the discussion questions and meeting format\, and find more information on FDA’s website. \nPatients or caregivers who are willing to share their experiences as part of a panel conversation are asked to indicate their willingness as part of registration. They will then be directed to send a short summary of their responses to the discussion questions to PatientFocused@fda.hhs.gov.
URL:https://solvecfs.org/event/fda-patient-focused-drug-development-public-meeting-for-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Research
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/03/Untitled-design-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Shanghai:20230221T100000
DTEND;TZID=Asia/Shanghai:20230221T130000
DTSTAMP:20230216T234324Z
CREATED:20230131T184624Z
LAST-MODIFIED:20230216T234324Z
UID:37499-1676973600-1676984400@solvecfs.org
SUMMARY:Solve M.E. and BIO co-host "Long Covid: What Will It Take To Accelerate Therapeutic Progress?"
DESCRIPTION:Solve M.E. and The Biotechnology Innovation Organization (BIO) will co-host a three-hour virtual event “Long Covid: What Will It Take to Accelerate Therapeutic Progress?” on Tuesday\, February 21 from 10:00 AM – 1:00 PM PT (1:00 – 4:00 PM ET).  \nOur goal is to convene stakeholders to advance research and development to diagnose and treat Long Covid\, ME/CFS\, and other post-infection diseases. By increasing awareness among drug developers to the unmet needs of our communities\, we hope to inspire these industry players to study these diseases and create therapeutic breakthroughs.  \nThe session will establish a knowledge base of emerging research in Long Covid and existing body of data in other post-infection diseases (such as myalgic encephalomyelitis/chronic fatigue syndrome\, dysautonomia\, mast cell activation\, and others). The session also will feature solution-oriented perspectives from government\, academic\, and industry researchers\, patient groups\, funding sources\, and policymakers.  \nHosts: \n\nOved Amitay\, R.Ph.\, M.Sc.\, President and CEO of Solve M.E. Christopher Austin\, MD\, CEO-Partner\, Flagship Pioneering\nCartier Esham\, PhD\, Chief Science Officer\, Biotechnology Innovation Organization (BIO)\n\nOpening Remarks: \n\nUS Senator\, Tim Kaine\nRachel L. Levine\, M.D.\, Admiral\, U.S. Public Health Service\, U.S. Department of Health and Human Services\n\nSpeakers: \n\nAkiko Iwasaki\, PhD\, Sterling Professor of Immunobiology (Microbial Diseases)\, Yale School of Medicine\nBruce Patterson\, MD\, CEO & Founder\, IncellDx\nChristopher Austin\, MD\, CEO-Partner\, Flagship Pioneering\nDavid Putrino\, PhD\, Associate Professor\, Rehabilitation and Human\nJulie Gerberding\, MD\, MPH\, CEO\, Foundation for the National Institutes of Health\nKatie Bach\, MBA\, Nonresident Senior Fellow\,Brookings Institution\nLisa McCorkell\, MPP\, Co-Founder\, Patient-Led Research Collaborative\nMargaret Koziel\, MD\, SVP\, Chief Medical Officer\, Axcella Therapeutics\nPriti Patel\, MD\, MPH\, Senior Advisor for Post-COVID Conditions\, Centers for Disease Control and Prevention\nRachel L. Levine\, M.D.\, Admiral\, U.S. Public Health Service\, U.S. Department of Health and Human Services\nSeth Lederman\, MD\, Co-Founder\, CEO & Chairman\, Tonix Pharmaceuticals\nThomas Equels\, M.S.\, J.D.\, CEO\, AIM Immunotech\nWalter Koroshetz\, MD\, Director\, National Institute of Neurological Disorders and Stroke (NINDS)\n\nSolve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics\, treatments\, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)\, Long Covid and other post-infection diseases.  \nBIO is the world’s largest advocacy association representing member companies\, state biotechnology groups\, academic and research institutions\, and related organizations across the United States and in 30+ countries.
URL:https://solvecfs.org/event/solve-m-e-and-bio-co-host-long-covid-what-will-it-take-to-accelerate-therapeutic-progress/
CATEGORIES:Long Covid,Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/01/Sample-Bio-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221215T100000
DTEND;TZID=America/Los_Angeles:20221215T110000
DTSTAMP:20221213T200457Z
CREATED:20221102T213657Z
LAST-MODIFIED:20221213T200457Z
UID:36932-1671098400-1671102000@solvecfs.org
SUMMARY:Challenges in Ensuring Equity In the Study and Treatment of ME/CFS and Long Covid
DESCRIPTION:Co-presented by Peter Rowe\, MD (Professor of Pediatrics\, Director\, Johns Hopkins Children’s Center Chronic Fatigue Clinic) and Camille Broussard\, MD\, MPH (Assistant Professor in the Division of Adolescent and Young Adult Medicine at Johns Hopkins School of Medicine)\, this webinar will explore the dissonant results of epidemiologic studies that suggest Latinx and Black individuals have a higher risk of ME/CFS and Long Covid than Whites\, while ME/CFS and Long Covid clinic populations in different countries are disproportionately composed of White individuals. We will look at the course of one young Black ME/CFS patient\, Jailyn Mercadel\, RN\, and hear from her about her experiences with the healthcare system. Dr. Broussard will then lead a discussion of the possible causes of the dissonant clinical and epidemiological findings\, and make suggestions for a more equitable approach to studies and clinical care. \nRegister here.
URL:https://solvecfs.org/event/challenges-in-ensuring-equity-in-the-study-and-treatment-of-me-cfs-and-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/11/RoweBroussard-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221024T100000
DTEND;TZID=America/Los_Angeles:20221024T110000
DTSTAMP:20220908T190616Z
CREATED:20220908T180809Z
LAST-MODIFIED:20220908T190616Z
UID:36345-1666605600-1666609200@solvecfs.org
SUMMARY:COVID-19 as a Trigger for ME/CFS: Severity Biomarkers and Underlying Mechanisms
DESCRIPTION:Since the beginning of the pandemic\, SARS-CoV-2 has been suspected of causing chronic fatigue syndrome (ME/CFS). A well-controlled cohort study conducted by a group of researchers from Charité – Universitätsmedizin Berlin and the Max Delbrück Center for Molecular Medicine (MDC) has now shown that in the subset of patients who suffer from fatigue and exertion intolerance after mild-COVID-19\, around half of patients meet the diagnostic criteria for ME/CFS. \nTheir findings also describe differences between post-COVID ME/CFS patients and ME/CFS patients in the correlation between hand grip strength and inflammatory biomarkers. This may indicate differences in underlying mechanisms. The researchers’ findings have been published in Nature Communications. \nIn this webinar\, Prof. Dr. Carmen Scheibenbogen (Acting Director of Charité’s Institute of Medical Immunology on Campus Virchow-Klinikum and Solve M.E. Ramsay Research Grant awardee) will discuss the findings of this study\, and how the new findings may help researchers to develop specific treatments for post-Covid ME/CFS and ME/CFS. \nRegister here.
URL:https://solvecfs.org/event/covid-19-as-a-trigger-for-me-cfs-severity-biomarkers-and-underlying-mechanisms/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/09/Carmen-S-Webinar.png
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221013T120000
DTEND;TZID=America/Los_Angeles:20221013T130000
DTSTAMP:20220927T171943Z
CREATED:20220927T171943Z
LAST-MODIFIED:20220927T171943Z
UID:36420-1665662400-1665666000@solvecfs.org
SUMMARY:Long Covid & Fatiguing Illness Recovery Program
DESCRIPTION:Research Update \nFeaturing: \n\nAvindra Nath\, MD (Clinical Director of National Institute of Neurological Disorders and Stroke – NIH; Chief of the Section of Infections of the Nervous System – NIH; Director of the Translational Neuroscience Center – NIH) Article: https://academic.oup.com/brain/article/145/7/2555/6621999\nHector Bonilla\, MD (Associate Professor of Medicine and Infectious Diseases – Stanford University Medical Director – ME/CFS Clinic – Stanford University) Article: https://pubmed.ncbi.nlm.nih.gov/35195253/\nAnna Nordvig\, MD (Assistant Professor of Neurology and Neuroscience – New York Presbyterian/ Weill Cornell Memory Disorders Program) Article: https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awac270/6672950\nPanelist: Michelle Haddad\, PhD\n\nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nRegister here.
URL:https://solvecfs.org/event/long-covid-fatiguing-illness-recovery-program-3/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/09/Echo-1013.png
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220728T123000
DTEND;TZID=America/Los_Angeles:20220728T123000
DTSTAMP:20220609T175449Z
CREATED:20220606T224022Z
LAST-MODIFIED:20220609T175449Z
UID:35301-1659011400-1659011400@solvecfs.org
SUMMARY:Solve M.E. Research Team at IACFS/ME 2022 Conference
DESCRIPTION:Join Solve M.E.’s research team at this year’s IACFS/ME for a special presentation by Solve M.E.’s Kate Mudie\, as well as a poster session\, during the 2022 Virtual Scientific Conference from July 27 – 30\, 2022! \n\nPresentation: Do people with joint hypermobility represent a subgroup of myalgic encephalomyelitis/ chronic fatigue syndrome?\n\nPoster Session: Baseline Characteristics of a Large\, Longitudinal Cohort of ME/CFS Patients \n\nMeeting events include workshops\, Keynote lecture by famed immunologist Akiko Iwasaki\, PhD (Yale University\, USA)\, Plenary Lecture by innovative ME/CFS clinician-researcher David Systrom\, MD (Harvard Medical School\, USA)\, and oral/ poster presentations of original research from around the world. Anyone with an interest in myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS)\, fibromyalgia\, COVID-19\, Long Covid\, post-acute sequelae of SARS-CoV-2 infection (PASC)\, dysautonomia\, and related disorders is welcomed to attend. \nRegister here.
URL:https://solvecfs.org/event/do-people-with-joint-hypermobility-represent-a-subgroup-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome/
LOCATION:Online
CATEGORIES:Long Covid,Research
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/06/Webinars-3.png
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220727T120000
DTEND;TZID=America/Los_Angeles:20220727T130000
DTSTAMP:20220606T224247Z
CREATED:20220606T224247Z
LAST-MODIFIED:20220606T224247Z
UID:35304-1658923200-1658926800@solvecfs.org
SUMMARY:ME/CFS and Long COVID Federal Advocacy Update
DESCRIPTION:Join a special presentation by Solve M.E.’s Emily Taylor during the 2022 Virtual Scientific Conference from July 27 – 30\, 2022! \nMeeting events include workshops\, Keynote lecture by famed immunologist Akiko Iwasaki\, PhD (Yale University\, USA)\, Plenary Lecture by innovative ME/CFS clinician-researcher David Systrom\, MD (Harvard Medical School\, USA)\, and oral/ poster presentations of original research from around the world. Anyone with an interest in myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS)\, fibromyalgia\, COVID-19\, Long Covid\, post-acute sequelae of SARS-CoV-2 infection (PASC)\, dysautonomia\, and related disorders is welcomed to attend. \nRegister here.
URL:https://solvecfs.org/event/me-cfs-and-long-covid-federal-advocacy-update/
LOCATION:Online
CATEGORIES:Conference,Long Covid,Research
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/06/Emily-IACFSME.png
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220721T100000
DTEND;TZID=America/Los_Angeles:20220721T110000
DTSTAMP:20220609T204520Z
CREATED:20220531T232752Z
LAST-MODIFIED:20220609T204520Z
UID:35209-1658397600-1658401200@solvecfs.org
SUMMARY:New Hope for Diagnosing and Treating Post-Infection Illnesses: Lessons Learned from HIV/AIDS
DESCRIPTION:In this special webinar\, Dr. Steven Deeks (Professor of Medicine-in-Residence at the University of California\, San Francisco) will be hosted by Solve M.E. Medical Advisor Dr. David Hardy (former Director of Division of Infectious Diseases at Cedars-Sinai Medical Center\, Los Angeles\, and Professor of Medicine at David Geffen School of Medicine\, University of California\, Los Angeles). The two long-time researchers and clinicians (practicing doctors) and veterans of the battle against HIV/AIDS\, will discuss how current studies on Long Covid\, informed by knowledge gained in other fields\, could help develop improved ways to diagnose and treat the broader challenge of post-infection illnesses\, such as ME/CFS. \nSince the beginning of the COVID-19 pandemic Dr. Deeks has re-focused his clinical care and research activity on this urgent need. He is now a member of the Board of Directors for the UCSF-based amfAR Institute for HIV Cure Research and a principal investigator for the NIH’s RECOVER study. In their conversation\, Drs. Deeks and Hardy will discuss the emerging scientific and medical findings\, reflect on their HIV/AIDS experience and the importance of patient engagement in research and advocacy\, and discuss the prospects for treatments and therapies. \nRegister here.
URL:https://solvecfs.org/event/lessons-learned-from-hiv-aids-new-hope-for-treating-post-infection-diseases/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/HardyDeeks.png
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END:VCALENDAR