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DTSTART;TZID=America/Los_Angeles:20241003T090000
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UID:40947-1727946000-1727949600@solvecfs.org
SUMMARY:Skeletal Muscle Fatigue and Post-Exertional Malaise in Patients with Long Covid and Implications for ME/CFS
DESCRIPTION:On Thursday\, October 3\, 2024\, Solve M.E. will host a free educational webinar featuring Assistant Professor Rob Wüst from the Vrije Universiteit (Amsterdam\, Netherlands)\, who will discuss skeletal muscle fatigue and post-exertional malaise in patients with Long Covid and the implications for ME/CFS. \nDr. Wüst received a Solve M.E. Ramsay Research Grant in 2022 to study muscle pain\, post-exertional malaise\, and treatments for pain and malaise in patients with diseases like Long Covid and ME/CFS. He found that\, at the physiological and molecular levels\, post-exertional malaise differs from general fatigue. These differences have big implications for how physical therapy affects patients with Long Covid or ME/CFS. \nDr. Wüst will update us on his studies of these two central symptoms of Long Covid and ME/CFS—post-exertional malaise and general fatigue and answer questions from attendees. \nTime: 9 am PT / 12 pm ET \nDate: Thursday\, October 3 \nRegister here: https://us02web.zoom.us/webinar/register/WN_LRCE4Xg9SWa2dpWppLHJwg \n*The content provided by Solve M.E. in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.*
URL:https://solvecfs.org/event/skeletal-muscle-fatigue-and-post-exertional-malaise-in-patients-with-long-covid-and-implications-for-me-cfs/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/09/WustWebinar.png
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241009T100000
DTEND;TZID=America/Los_Angeles:20241009T110000
DTSTAMP:20260727T100959
CREATED:20240828T233108Z
LAST-MODIFIED:20240918T220436Z
UID:40900-1728468000-1728471600@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Caregiving (Pt. 1 of 4)
DESCRIPTION:ME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nTopics and dates for the series are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care\n• January 15: Research \nThe first webinar in our series focuses on the multifaceted challenges faced by those caring for severe ME/CFS patients and emphasizes the impact of chronic illness on entire support systems. A panel of experienced caregivers will explore navigating healthcare systems\, coping with ambiguous loss\, and maintaining healthy relationships. The panelists will provide valuable insights into balancing self-care with caregiving responsibilities and offer practical strategies for maintaining mental well-being. This event aims to provide caregivers with tools and support for their crucial roles. \nJoin BHC Deputy Executive Director and Education Director\, Tahlia Rushcioni as she moderates a panel of experienced caregivers with unique insights to share with the community. \nPanelists:\nGalen Warden\, mother to an adult son with Severe ME\nAmy Mooney\, mother to a teen daughter with Severe ME\nKim Moy\, wife to a husband with Severe ME\nKyle Kitzmiller\, husband to a woman with Severe ME (American science communicator Dianna Cowern aka YouTuber “Physicsgirl”) \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-caregiving-pt-1-of-4/
CATEGORIES:Advocacy,Research,Webinar
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241011T090000
DTEND;TZID=America/Los_Angeles:20241011T100000
DTSTAMP:20260727T100959
CREATED:20240918T204343Z
LAST-MODIFIED:20240918T204343Z
UID:40996-1728637200-1728640800@solvecfs.org
SUMMARY:ICUE Webinar: Uniting Voices\, Amplifying Impact: National Organizations Collaborating to Support Our IACC Communities
DESCRIPTION:Please join us for the final\, culminating webinar of the Infection-Associated Chronic Conditions Understanding and Engagement (ICUE) project\, where we will discuss the findings and results from the project as well as on-going efforts to collaborate across the IACC community on advancing awareness\, clinical care\, patient support and research. \nDuring this webinar\, you will hear from ICUE project leadership from the COVID-19 Longhauler Advocacy Project\, Patient-Led Research Collaborative\, and Solve M.E.\, as well as leading experts in IACC education\, clinical care\, and research. At the conclusion of the presentations\, we will take questions and answers. \nThis webinar is an opportunity to learn and identify ways to engage and collaborate. Patients\, clinicians\, researchers\, and various other stakeholders all have vital roles to play\, both independently and collaboratively\, in advancing the understanding and management of IACCs. By working together\, we can raise awareness to advance patient-centered research\, enhance clinical care\, and improve educational outreach\, ultimately leading to better health outcomes for all affected individuals.  \nWe look forward to your participation in this important discussion. Please confirm your attendance by October 10th and join us in our efforts to advance the understanding and management of IACCs. Your involvement is crucial\, and we hope to see you there. \nUNITING VOICES\, AMPLIFYING IMPACT: COLLABORATING TO SUPPORT OUR IACC COMMUNITIES\nFriday\, October 11\, 2024\n9 am PT /12 pm ET \nRegistration link:\nhttps://us06web.zoom.us/webinar/register/WN_JOGSRf0ZQsu0ueVkp2HuWw#/registration \n 
URL:https://solvecfs.org/event/icue-webinar-uniting-voices-amplifying-impact-national-organizations-collaborating-to-support-our-iacc-communities/
CATEGORIES:Advocacy,Long Covid,Research,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/09/icue-graphic.png
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