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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221108T090000
DTEND;TZID=America/Los_Angeles:20221108T103000
DTSTAMP:20221102T204639Z
CREATED:20221102T204439Z
LAST-MODIFIED:20221102T204639Z
UID:36927-1667898000-1667903400@solvecfs.org
SUMMARY:Understanding the Biomarkers of PASC (otherwise known as Long Covid)
DESCRIPTION:The RECOVER Research Review (R3) Seminar Series will host a panel discussion titled\, “Understanding the Biomarkers of PASC” on Tuesday\, November 8th 12:00-1:30 PM EDT featuring: \n\nMichael Peluso\, MD\, University of California\, San Francisco\nMohamed Abdel-Mohsen\, PhD\, The Wistar Institute\nDavid R. Walt\, PhD\, Harvard Medical School; Brigham and Women’s Hospital \nGrace McComsey\, MD\, University Hospitals Health System; Case Western Reserve University \n\n\nThe goal of the R3 Seminar Series is to catalyze a shared understanding of the research of the scientific stakeholder community\, keep researchers up to date on insights and discoveries\, and inform the public about RECOVER and other research on PASC (otherwise known as Post-Covid or Long Covid).\n \nRegister here.
URL:https://solvecfs.org/event/understanding-the-biomarkers-of-pasc-otherwise-known-as-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/11/Recover-118.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221024T100000
DTEND;TZID=America/Los_Angeles:20221024T110000
DTSTAMP:20220908T190616Z
CREATED:20220908T180809Z
LAST-MODIFIED:20220908T190616Z
UID:36345-1666605600-1666609200@solvecfs.org
SUMMARY:COVID-19 as a Trigger for ME/CFS: Severity Biomarkers and Underlying Mechanisms
DESCRIPTION:Since the beginning of the pandemic\, SARS-CoV-2 has been suspected of causing chronic fatigue syndrome (ME/CFS). A well-controlled cohort study conducted by a group of researchers from Charité – Universitätsmedizin Berlin and the Max Delbrück Center for Molecular Medicine (MDC) has now shown that in the subset of patients who suffer from fatigue and exertion intolerance after mild-COVID-19\, around half of patients meet the diagnostic criteria for ME/CFS. \nTheir findings also describe differences between post-COVID ME/CFS patients and ME/CFS patients in the correlation between hand grip strength and inflammatory biomarkers. This may indicate differences in underlying mechanisms. The researchers’ findings have been published in Nature Communications. \nIn this webinar\, Prof. Dr. Carmen Scheibenbogen (Acting Director of Charité’s Institute of Medical Immunology on Campus Virchow-Klinikum and Solve M.E. Ramsay Research Grant awardee) will discuss the findings of this study\, and how the new findings may help researchers to develop specific treatments for post-Covid ME/CFS and ME/CFS. \nRegister here.
URL:https://solvecfs.org/event/covid-19-as-a-trigger-for-me-cfs-severity-biomarkers-and-underlying-mechanisms/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/09/Carmen-S-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221013T120000
DTEND;TZID=America/Los_Angeles:20221013T130000
DTSTAMP:20220927T171943Z
CREATED:20220927T171943Z
LAST-MODIFIED:20220927T171943Z
UID:36420-1665662400-1665666000@solvecfs.org
SUMMARY:Long Covid & Fatiguing Illness Recovery Program
DESCRIPTION:Research Update \nFeaturing: \n\nAvindra Nath\, MD (Clinical Director of National Institute of Neurological Disorders and Stroke – NIH; Chief of the Section of Infections of the Nervous System – NIH; Director of the Translational Neuroscience Center – NIH) Article: https://academic.oup.com/brain/article/145/7/2555/6621999\nHector Bonilla\, MD (Associate Professor of Medicine and Infectious Diseases – Stanford University Medical Director – ME/CFS Clinic – Stanford University) Article: https://pubmed.ncbi.nlm.nih.gov/35195253/\nAnna Nordvig\, MD (Assistant Professor of Neurology and Neuroscience – New York Presbyterian/ Weill Cornell Memory Disorders Program) Article: https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awac270/6672950\nPanelist: Michelle Haddad\, PhD\n\nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nRegister here.
URL:https://solvecfs.org/event/long-covid-fatiguing-illness-recovery-program-3/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/09/Echo-1013.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221007
DTEND;VALUE=DATE:20221009
DTSTAMP:20220829T205415Z
CREATED:20220829T205323Z
LAST-MODIFIED:20220829T205415Z
UID:36247-1665100800-1665273599@solvecfs.org
SUMMARY:ME/CFS + Long Covid International Conference 2022
DESCRIPTION:The Finnish Association of Orthopaedic Manual Therapy (FIAOMT) is hostng an international conference of ME/CFS and Long Covid – Treatment and Rehabilitation is held in Tampere Finland (also online) on 7-8 October 2022. The conference presents current information about ME/CFS and Long Covid. \nThis two-day conference will review the challenges of understanding the pathophysiology\, risk factors\, clinical presentation\, treatment and rehabilitation of post COVID-19 condition (Long COVID) and ME/CFS (myalgic encephalomyelitis/ chronic fatigue syndrome). Bringing together top researchers\, clinicians and therapists working in this field we can better understand the underlying mechanisms and identify potential treatments. \nLearn more here.
URL:https://solvecfs.org/event/me-cfs-long-covid-international-conference-2022/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/08/Hoito-ja-kuntoutus-MECFS-Long-COVID9.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221003
DTEND;VALUE=DATE:20221004
DTSTAMP:20220906T221240Z
CREATED:20220906T221240Z
LAST-MODIFIED:20220906T221240Z
UID:36340-1664755200-1664841599@solvecfs.org
SUMMARY:Long Covid Stakeholder Meeting
DESCRIPTION:The National Center for Health Research is hosting a national conference on October 3 featuring Long Covid healthcare professionals and patient advocates about effective treatments and interventions for Long Covid\, as well as research that is needed or underway. \nSpeakers and panel discussions will include topics such as autoimmune diseases\, challenges for caregivers\, overlap of Long Covid and ME/CFS\, Long Covid in children\, and the role of VA medical centers\, among others. \nPlease register by emailing Ashley at info@center4research.org. Please indicate if you are planning to attend a) in person or b) remotely\, and if in-person if you would like to request travel funds.
URL:https://solvecfs.org/event/long-covid-stakeholder-meeting/
LOCATION:Online
CATEGORIES:Conference,Long Covid
ATTACH;FMTTYPE=image/jpeg:https://solvecfs.org/wp-content/uploads/2022/09/Oct-3-LC-Conference.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220921T080000
DTEND;TZID=America/Los_Angeles:20220921T150000
DTSTAMP:20220912T183631Z
CREATED:20220912T183613Z
LAST-MODIFIED:20220912T183631Z
UID:36349-1663747200-1663772400@solvecfs.org
SUMMARY:Aila Health Presents Free Virtual Long Covid Summit
DESCRIPTION:Our friends at Aila Health are hosting a free Long Covid Summit on Wednesday\, September 21 8 AM – 3 PM PT to bring together specialists\, longhaulers\, caregivers\, advocacy organizations\, researchers and health system leaders to shed light on invisible illness and why Long Covid needs more attention. \nSolve M.E. Vice President of Advocacy and Engagement Emily Taylor will join to present Long Covid Advocacy and Policy. \nLearn more and register here.
URL:https://solvecfs.org/event/aila-health-presents-free-virtual-long-covid-summit/
LOCATION:Online
CATEGORIES:Conference,Long Covid
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/09/Long-Covid-Summit_Shareable-Posts.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220908T120000
DTEND;TZID=America/Los_Angeles:20220908T130000
DTSTAMP:20220831T223158Z
CREATED:20220829T234716Z
LAST-MODIFIED:20220831T223158Z
UID:36253-1662638400-1662642000@solvecfs.org
SUMMARY:Pediatric Post-COVID Conditions
DESCRIPTION:Long COVID & Fatiguing Illness Recovery Program \nPresenters include: \n\nPeter C. Rowe\, MD Director of the Chronic Fatigue Center at Johns Hopkins Children’s Center Professor of Pediatrics at Johns Hopkins University School of Medicine\nKatherine Rowe\, MD\nCharles W. Lapp\, MD\nAmanda Morrow\, MD\nLaura Malone MD\, PhD\nElla Eastin\n\nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nRegister here.
URL:https://solvecfs.org/event/pediatric-post-covid-conditions/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/08/Untitled-design-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220908T100000
DTEND;TZID=America/Los_Angeles:20220908T230000
DTSTAMP:20220829T234000Z
CREATED:20220829T234000Z
LAST-MODIFIED:20220829T234000Z
UID:36251-1662631200-1662678000@solvecfs.org
SUMMARY:Long Covid Congressional Panel
DESCRIPTION:Solve M.E. is continuing our event series with the Global Interdependence Center with a congressional panel on September 8 at 10 am PT/ 1 pm ET.  \nThis Zoom webinar will feature Congressmen Bergman and Beyer\, authors of the COVID-19 Long Hauler Act\, as well a discussion of Long Covid Policy with patient\, medical\, and organization experts
URL:https://solvecfs.org/event/long-covid-congressional-panel/
LOCATION:Online
CATEGORIES:Long Covid
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/Webinars.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220811T120000
DTEND;TZID=America/Los_Angeles:20220811T130000
DTSTAMP:20220810T233030Z
CREATED:20220810T233030Z
LAST-MODIFIED:20220810T233030Z
UID:36115-1660219200-1660222800@solvecfs.org
SUMMARY:Long Covid & Fatiguing Illness Recovery Program
DESCRIPTION:Physical Activity and Post-COVID Conditions \nCourtney Matrunick\, PT\, DPTNeurological Physical Therapist and Certified Aquatic Therapist – UNC Health Care &Heidi Greata PT\, DPT Vestibular Physical Therapist – UNC Hospital \nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nRegister here.
URL:https://solvecfs.org/event/long-covid-fatiguing-illness-recovery-program-2/
LOCATION:Online
CATEGORIES:Long Covid
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/08/Screen-Shot-2022-08-10-at-16.27.17.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220728T123000
DTEND;TZID=America/Los_Angeles:20220728T123000
DTSTAMP:20220609T175449Z
CREATED:20220606T224022Z
LAST-MODIFIED:20220609T175449Z
UID:35301-1659011400-1659011400@solvecfs.org
SUMMARY:Solve M.E. Research Team at IACFS/ME 2022 Conference
DESCRIPTION:Join Solve M.E.’s research team at this year’s IACFS/ME for a special presentation by Solve M.E.’s Kate Mudie\, as well as a poster session\, during the 2022 Virtual Scientific Conference from July 27 – 30\, 2022! \n\nPresentation: Do people with joint hypermobility represent a subgroup of myalgic encephalomyelitis/ chronic fatigue syndrome?\n\nPoster Session: Baseline Characteristics of a Large\, Longitudinal Cohort of ME/CFS Patients \n\nMeeting events include workshops\, Keynote lecture by famed immunologist Akiko Iwasaki\, PhD (Yale University\, USA)\, Plenary Lecture by innovative ME/CFS clinician-researcher David Systrom\, MD (Harvard Medical School\, USA)\, and oral/ poster presentations of original research from around the world. Anyone with an interest in myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS)\, fibromyalgia\, COVID-19\, Long Covid\, post-acute sequelae of SARS-CoV-2 infection (PASC)\, dysautonomia\, and related disorders is welcomed to attend. \nRegister here.
URL:https://solvecfs.org/event/do-people-with-joint-hypermobility-represent-a-subgroup-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome/
LOCATION:Online
CATEGORIES:Long Covid,Research
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/06/Webinars-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220727T120000
DTEND;TZID=America/Los_Angeles:20220727T130000
DTSTAMP:20220606T224247Z
CREATED:20220606T224247Z
LAST-MODIFIED:20220606T224247Z
UID:35304-1658923200-1658926800@solvecfs.org
SUMMARY:ME/CFS and Long COVID Federal Advocacy Update
DESCRIPTION:Join a special presentation by Solve M.E.’s Emily Taylor during the 2022 Virtual Scientific Conference from July 27 – 30\, 2022! \nMeeting events include workshops\, Keynote lecture by famed immunologist Akiko Iwasaki\, PhD (Yale University\, USA)\, Plenary Lecture by innovative ME/CFS clinician-researcher David Systrom\, MD (Harvard Medical School\, USA)\, and oral/ poster presentations of original research from around the world. Anyone with an interest in myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS)\, fibromyalgia\, COVID-19\, Long Covid\, post-acute sequelae of SARS-CoV-2 infection (PASC)\, dysautonomia\, and related disorders is welcomed to attend. \nRegister here.
URL:https://solvecfs.org/event/me-cfs-and-long-covid-federal-advocacy-update/
LOCATION:Online
CATEGORIES:Conference,Long Covid,Research
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/06/Emily-IACFSME.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220721T100000
DTEND;TZID=America/Los_Angeles:20220721T110000
DTSTAMP:20220609T204520Z
CREATED:20220531T232752Z
LAST-MODIFIED:20220609T204520Z
UID:35209-1658397600-1658401200@solvecfs.org
SUMMARY:New Hope for Diagnosing and Treating Post-Infection Illnesses: Lessons Learned from HIV/AIDS
DESCRIPTION:In this special webinar\, Dr. Steven Deeks (Professor of Medicine-in-Residence at the University of California\, San Francisco) will be hosted by Solve M.E. Medical Advisor Dr. David Hardy (former Director of Division of Infectious Diseases at Cedars-Sinai Medical Center\, Los Angeles\, and Professor of Medicine at David Geffen School of Medicine\, University of California\, Los Angeles). The two long-time researchers and clinicians (practicing doctors) and veterans of the battle against HIV/AIDS\, will discuss how current studies on Long Covid\, informed by knowledge gained in other fields\, could help develop improved ways to diagnose and treat the broader challenge of post-infection illnesses\, such as ME/CFS. \nSince the beginning of the COVID-19 pandemic Dr. Deeks has re-focused his clinical care and research activity on this urgent need. He is now a member of the Board of Directors for the UCSF-based amfAR Institute for HIV Cure Research and a principal investigator for the NIH’s RECOVER study. In their conversation\, Drs. Deeks and Hardy will discuss the emerging scientific and medical findings\, reflect on their HIV/AIDS experience and the importance of patient engagement in research and advocacy\, and discuss the prospects for treatments and therapies. \nRegister here.
URL:https://solvecfs.org/event/lessons-learned-from-hiv-aids-new-hope-for-treating-post-infection-diseases/
LOCATION:Online
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/HardyDeeks.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220610T080000
DTEND;TZID=America/Los_Angeles:20220610T210000
DTSTAMP:20220525T201906Z
CREATED:20220525T201906Z
LAST-MODIFIED:20220525T201906Z
UID:35182-1654848000-1654894800@solvecfs.org
SUMMARY:2022 INIM Conference
DESCRIPTION:Join the Institute for Neuro-Immune Medicine (Nova Southeastern University) on Friday\, June 10th for their annual 2022 INIM Conference.\n\n\n\nThe Institute’s clinicians and researchers will discuss research and the various clinical approaches to ME/CFS and Long Covid. Patients\, caregivers\, family members and friends are welcome to attend.\n\n\nRegister here.
URL:https://solvecfs.org/event/2022-inim-conference/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/jpeg:https://solvecfs.org/wp-content/uploads/2022/05/2022-INIM-Conference.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220607T110000
DTEND;TZID=America/Los_Angeles:20220607T120000
DTSTAMP:20220524T001451Z
CREATED:20220511T000248Z
LAST-MODIFIED:20220524T001451Z
UID:35036-1654599600-1654603200@solvecfs.org
SUMMARY:Long Covid and Children
DESCRIPTION:The Global Interdependence Center – Solve Long Covid Initiative Program Series: Session III: Long Covid and Children. \nThe Global Interdependence Center\, in partnership with the Solve Long Covid Initiative\, is conducting a year-long webinar and conference series exploring the pandemic’s long-term healthcare\, policy\, and economic impact\, specifically the implications of Long Covid. \nThis program will feature speakers Megan Carmilani\, Founder of Long Covid Families\, Dr. Peter Rowe\, Director of the Children’s Center Chronic Fatigue Clinic and Professor of Pediatrics\, Johns Hopkins\, and Stewart Gittelman\, Former CEO of Advanced Care\, Inc. (ACI)\, and Trevor Gittelman\, a myalgic encephalomyelitis (ME/CFS) patient. \nRegister here.
URL:https://solvecfs.org/event/long-covid-and-children/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/GIC-Rowe-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220524T090000
DTEND;TZID=America/Los_Angeles:20220524T100000
DTSTAMP:20220524T002131Z
CREATED:20220524T002131Z
LAST-MODIFIED:20220524T002131Z
UID:35157-1653382800-1653386400@solvecfs.org
SUMMARY:Leveraging EHR/Real World Data to Understand PASC
DESCRIPTION:Join the National Health Institutes (NIH) RECOVER Research Review (R3) Seminar Series\, “Leveraging EHR/Real World Data to Understand PASC\,” by registering here: http://ow.ly/sZep50Jg45C.  \nThe goal of the R3 Seminar Series is to catalyze a shared understanding of the research of the scientific stakeholder community within the RECOVER Consortium. Working and learning together while keeping each other up to date on their latest insights accelerates discoveries. Some sessions will also inform the public about RECOVER and other research on PASC.  All sessions will be recorded and posted to recovercovid.org. \nThe next seminar of the series is Tuesday\, May 24 12:00-1:30 PM EDT. It will be a panel discussion titled\, “Leveraging EHR/Real World Data to Understand PASC.” Panelists for the seminar will be: \n\nMelissa Haendel\, PhD\, University of Colorado Anschutz Medical Campus\nChristopher Chute\, MD\, DrPH\, MPH\, Johns Hopkins University\nRainu Kaushal\, MD\, MPH\, Weill Cornell Medicine; New York-Presbyterian Hospital\nThomas Carton\, PhD\, MS\, Louisiana Public Health Institute\nJosh Fessel\, MD\, PhD\, National Center for Advancing Translational Sciences (NCATS); National Institutes of Health\nRachel Hess\, MD\, MS\, University of Utah School of Medicine
URL:https://solvecfs.org/event/leveraging-ehr-real-world-data-to-understand-pasc/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/Screen-Shot-2022-05-23-at-17.21.01.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220519
DTEND;VALUE=DATE:20220520
DTSTAMP:20220517T205140Z
CREATED:20220302T010059Z
LAST-MODIFIED:20220517T205140Z
UID:33477-1652918400-1653004799@solvecfs.org
SUMMARY:Signature Event: Long Covid: Research\, Policy and Economic Impact
DESCRIPTION:The Global Interdependence Center\, in partnership with the Solve Long Covid Initiative\, is continuing our conference series exploring the pandemic’s long-term healthcare\, policy\, and economic impact\, specifically the implications of long haul COVID or long COVID. Together\, we invite you to join us for the signature event of this series\, an in-person conference in New York City on Thursday\, May 19\, 2022. \nThe purpose of our conference is to raise awareness of Long Covid by examining the science and research behind it and we hope can join us through one of our registration options\, including in-person or virtual attendance. For those joining us in person\, we are delighted to provide a Patient Rest Area on site at the event. This quiet space will be a rest area for patients who need to step away for flare-up/sensory overload equipped with cots/chairs/blankets. \nSession topics of the conference will include: \n\nA special report from the Solve Long Covid Initiative\nDefining/diagnosing Long Covid\nThe economic recovery and the policy response\nScientific research\nOutlook for the labor force and labor market challenges\nThe human experience\nIndustry specific implications for:\n\nHealth insurers and health care\nPharmaceuticals\nPolicymakers and government officials\n\n\n\nLearn more and register here. \nSpecial thanks to our sponsor\, Responsum Health\, a customized\, uniquely individualized chronic disease patient platform\, for providing streaming services for this event. 
URL:https://solvecfs.org/event/signature-event-long-covid-research-policy-and-economic-impact/
CATEGORIES:Advocacy Month 2022,Conference,Long Covid,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/GIC-sig-event.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220512T120000
DTEND;TZID=America/Los_Angeles:20220512T130000
DTSTAMP:20220505T171352Z
CREATED:20220505T171219Z
LAST-MODIFIED:20220505T171352Z
UID:34994-1652356800-1652360400@solvecfs.org
SUMMARY:Long COVID & Fatiguing Illness Recovery Program ECHO
DESCRIPTION:History of ME/CFS \nLucinda Bateman\, MD\nMedical Director\, Provider\, & Research expert in the diagnosis and treatment of ME/CFS.\nFounder and Chief Medical Officer of the Bateman Horne Center of Excellence \nA CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. \nTo register: Click Here
URL:https://solvecfs.org/event/long-covid-fatiguing-illness-recovery-program-echo-2/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/05/Untitled-design-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Krasnoyarsk:20220412T130000
DTEND;TZID=Asia/Krasnoyarsk:20220412T140000
DTSTAMP:20220401T222237Z
CREATED:20220309T205636Z
LAST-MODIFIED:20220401T222237Z
UID:33569-1649768400-1649772000@solvecfs.org
SUMMARY:Long Covid: Research\, Policy and Economic Impact (Session II)
DESCRIPTION:Solve Long Covid Initiative\, in partnership with the Global Interdependence Center\, is conducting a year-long webinar and conference series exploring the pandemic’s long-term healthcare\, policy\, and economic impact\, specifically the implications of long haul COVID or long COVID. \nThis program\, in partnership with the Solve Long Covid Initiative\, will feature speakers Katie Bach\, a Nonresident Senior Fellow at Brookings\, and Melissa Smallwood\, a Graduate Student Researcher\, College of Global Futures. Our speakers will participate in a live audience Q&A moderated by Emily Taylor\, Vice President of Advocacy and Community Engagement at Solve M.E. \nOver the next twelve months\, GIC and SLCI will bring together world-class immunologists\, medical experts\, policymakers\, and economists to explore critical insights into defining\, diagnosing\, optimizing treatments\, and healthcare policies for long COVID and analyzing its impact on U.S. and global labor markets. \nLearn more and register here.
URL:https://solvecfs.org/event/long-covid-research-policy-and-economic-impact-session-ii/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
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BEGIN:VEVENT
DTSTART;TZID=UTC:20220215T150000
DTEND;TZID=UTC:20220215T160000
DTSTAMP:20220107T001148Z
CREATED:20211209T174806Z
LAST-MODIFIED:20220107T001148Z
UID:31571-1644937200-1644940800@solvecfs.org
SUMMARY:Using Data Analysis to Study ME/CFS and Long Covid: Session 2
DESCRIPTION:We expanded our Ramsay Grant Program in 2021 by launching the new Stupski Awards\, which support research using data from the Registry. These webinars feature the 2021 Stupski Award recipients\, Efthymios Kalafatis and Jennifer Stone\, PhD\, who will discuss their research and answer your questions. \nJennifer Stone\, PhD\nAustralian National University \nDr. Stone will discuss her Stupski-supported project\, which uses advanced analytic methods to compare important demographic and clinical characteristics in people with ME/CFS to Long Covid controls and healthy controls. \nDr. Stone recently received her PhD in clinical epidemiology from Australian National University. She has co-authored several journal articles using data and modeling to uncover causes of disease. Jennifer earned her BA and MPH from the University of Queensland. \nSession II\nFebruary 15\, 2022\n3 pm PT\nPlease click here to register.
URL:https://solvecfs.org/event/using-data-analysis-to-study-me-cfs-and-long-covid-session-2/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
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BEGIN:VEVENT
DTSTART;TZID=UTC:20220210T120000
DTEND;TZID=UTC:20220210T130000
DTSTAMP:20220127T175259Z
CREATED:20220127T175259Z
LAST-MODIFIED:20220127T175259Z
UID:32994-1644494400-1644498000@solvecfs.org
SUMMARY:Long COVID & Fatiguing Illness Recovery Program ECHO
DESCRIPTION:(continuing on the 2nd Thursday of each month) \nNeurocognitive Manifestations of PASC \nMichelle Haddad\, PhD\nAssistant Professor\, Department of Rehabilitation Medicine Emory University School of Medicine \n  \n\n\n\nFamily Health Centers of San Diego\, the ECHO Institute\, University of Washington\, and University of Colorado have collaborated to provide a CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of SARS-COV-2 infection (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. This large-scale national monthly ECHO webinar series will offer didactic presentations by subject matter experts\, examples of emerging best practices and models of care\, and a facilitated Q&A. This program is open to all healthcare professionals and all Long COVID and ME/CFS patient-lived experience experts interested in learning more about the treatment of Long COVID and ME/CFS.
URL:https://solvecfs.org/event/long-covid-fatiguing-illness-recovery-program-echo/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20220209
DTEND;VALUE=DATE:20220212
DTSTAMP:20220119T204914Z
CREATED:20220119T204833Z
LAST-MODIFIED:20220119T204914Z
UID:32849-1644364800-1644623999@solvecfs.org
SUMMARY:Autoimmune Encephalopathy Secondary to Infectious Disease:  A New Perspective on the Pathogenetic Interaction of the Immune System\, Infection\, Stress and Chronic Disease
DESCRIPTION:From the conference website:\n“This landmark leadership conference is sponsored by Georgetown University and The Foundation for Total Recovery. Guest speakers from around the world will include distinguished specialists from Oxford\, Columbia\, Duke\, and even the leading medical center in the Middle East—Sheba Medical Center in Israel. Plan to join us\, as we have an exciting three days scheduled. This conference is a critical and long-overdue rethink of how we approach ME/CFS\, neuropsychiatric disorders\, PANS/PANDAS\, chronic Lyme\, fibromyalgia\, and even long-haul COVID-19. \nWe believe the treatment of these diseases needs to be viewed through a different lens—that of immune dysregulation resulting in neuroinflammation. We have to give up our belief that these are standalone diseases—especially if we want the best outcomes for patients. \nThis is a radical paradigm shift\, but we need it badly. We hope as practitioners\, patients\, and caregivers you will join us for this discussion as we discuss the future of diagnostic\, treatment\, and recovery for these patients.\nThe goals of this conference are three-fold: \nFirst\, we will explore the role of genetic and epigenetic factors that predispose an individual for immune dysregulation.  \nSecondly\, we will analyze the current evidence for infection-mediated immune dysregulation as it relates to Fibromyalgia\, ME/CFS\, neuropsychiatric illnesses\, Post-Lyme syndrome\, PANS/PANDAS\, and the post COVID-19 long haul syndrome (Long Covid).  \nThirdly\, we will examine current and new diagnostic testing procedures and treatment options for these conditions.”\n\nSolve M.E. will host a virtual booth at this event. Please stop by to say hello!
URL:https://solvecfs.org/event/autoimmune-encephalopathy-secondary-to-infectious-disease-a-new-perspective-on-the-pathogenetic-interaction-of-the-immune-system-infection-stress-and-chronic-disease/
CATEGORIES:Conference,Long Covid
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BEGIN:VEVENT
DTSTART;TZID=UTC:20220127T110000
DTEND;TZID=UTC:20220127T120000
DTSTAMP:20220125T182836Z
CREATED:20211227T221549Z
LAST-MODIFIED:20220125T182836Z
UID:31856-1643281200-1643284800@solvecfs.org
SUMMARY:Ampligen: A General Overview and the Plan for ME/CFS & Long Covid
DESCRIPTION:For the second installment in our clinical diagnostics and treatments webinar series\, Solve M.E. welcomes two leaders from bio-pharma company AIM ImmunoTech to discuss their plans for clinical studies of their investigational drug Ampligen\, in ME/CFS and Long Covid. In addition\, Drs. Lapp and Gottschalk will share insights from real-world use of Ampligen to treat patients with ME/CFS and Long Covid. \nAmpligen (Rintatolimod)\, is a drug that modulates the immune system and has anti-viral activity. It has been studied in clinical trials since the late 1980s\, and although it has been endorsed by countries outside the USA specifically for treating people with ME/CFS\, it does not have FDA approval. AIM has recently updated its plans for developing the drug in ME/CFS and Long Covid. \nThe application of Ampligen for both diseases is yet another example of how ME/CFS research can benefit people with ME/CFS and Long Covid\, and why the study of both is crucial to each community. \nJoin Solve President and CEO Oved Amitay in conversation with Thomas K. Equels\, M.S.\, J.D. (Chief Executive Officer\, AIM)\, and David R. Strayer\, M.D (Chief Scientific & Medical Officer\, AIM) to learn more about their plans for Ampligen and how the community may get involved. Dr. Charles Lapp (Medical Director\, Hunter-Hopkins Center) will discuss his use of Ampligen as a treatment for both ME/CFS and Long Covid\, and Dr. Gunnar Gottschalk (Executive Director/PI\, Simmaron Research Inc)\, will share data on the use of Ampligen in people with ME/CFS. \nRegister for the webinar here. \nDo you have a question for our panelists? Submit it to us at SolveCFS@solvecfs.org \nTo view the first webinar in our clinical diagnostics and treatments webinar series\, “Immune-Based Prediction of Long Covid and Implications for ME/CFS “ featuring Dr. Bruce Patterson\, click here.
URL:https://solvecfs.org/event/ampligen-a-general-overview-and-the-plan-for-me-cfs-long-covid/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
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BEGIN:VEVENT
DTSTART;TZID=UTC:20220121T110000
DTEND;TZID=UTC:20220121T130000
DTSTAMP:20220119T173516Z
CREATED:20220119T173516Z
LAST-MODIFIED:20220119T173516Z
UID:32827-1642762800-1642770000@solvecfs.org
SUMMARY:Understanding Long COVID Across Communities of Color\, Including Those Hardest Hit by COVID
DESCRIPTION:The National Institutes of Health (NIH) is hosting a listening session\, “Understanding Long COVID Across Communities of Color\, Including Those Hardest Hit by COVID” on Friday 1/21 from 2PM – 4PM EST. \n\n\nThe event will be hosted by the NIH RECOVER Initiative and the Initiative’s Clinical Science Core (CSC) at NYU Langone Health.This Listening Session is part of a series of ongoing engagement activities that enable the RECOVER Initiative to hear from and better understand affected communities’ experiences\, needs\, and priorities — and\, in this case\, specifically\, how Long COVID is affecting communities of color. Recognizing that communities of color are disproportionately affected by COVID-19\, it is likely that they similarly might experience a disproportionate burden of Long COVID. \n\nTune into this link the day of the event: https://videocast.nih.gov/ 
URL:https://solvecfs.org/event/understanding-long-covid-across-communities-of-color-including-those-hardest-hit-by-covid/
LOCATION:Online
CATEGORIES:Long Covid
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220121T100000
DTEND;TZID=America/Los_Angeles:20220121T110000
DTSTAMP:20220107T001640Z
CREATED:20211130T142746Z
LAST-MODIFIED:20220107T001640Z
UID:22804-1642759200-1642762800@solvecfs.org
SUMMARY:Using Data Analysis to Study ME/CFS and Long Covid: Session 1
DESCRIPTION:We expanded our Ramsay Grant Program in 2021 by launching the new Stupski Awards\, which support research using data from the Registry. These webinars feature the 2021 Stupski Award recipients\, Efthymios Kalafatis and Jennifer Stone\, PhD\, who will discuss their research and answer your questions. \nEfthymios [Themos] Kalafatis\nData Scientist/Machine Learning Engineer \nKalafatis will discuss tracking his ME/CFS symptoms and analyzing the data and how that led to his Stupski-funded project\, which applies powerful machine learning and text analysis methods to better understand symptoms\, identify potential associations with treatments and life events and examine models of temporal patterns. \nKalafatis has over 20 years of data and text mining experience and holds a patent on a methodology that uses machine learning\, network analysis and natural language processing for medical research. He has applied artificial intelligence techniques to research ME/CFS and natural language processing methods to analyze patient records. Themos has a BA from the University of Portsmouth and a MSc from the University of East Anglia. \nSession I\nNEW DATE: January 21\, 2022\n10-11 am PT\nPlease click here to register.
URL:https://solvecfs.org/event/using-data-analysis-to-study-me-cfs-and-long-covid-session-1/
LOCATION:Online
CATEGORIES:Long Covid,Webinar
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BEGIN:VEVENT
DTSTART;TZID=UTC:20220119T090000
DTEND;TZID=UTC:20220119T100000
DTSTAMP:20220119T174555Z
CREATED:20220119T174555Z
LAST-MODIFIED:20220119T174555Z
UID:32833-1642582800-1642586400@solvecfs.org
SUMMARY:Long COVID Clubhouse: Patients meet Researchers with Consuli Conversations
DESCRIPTION:Long COVID Clubhouse: Patients meet Researchers with Consuli Conversations. Join us on #ClubhouseApp\n Wednesday\, 1/19\n 9:00 am PT\n We’ll be speaking to #doctors #researchers & #patients\n #longcovid #longhaulers #covidsymptoms\n Search for room: Long COVID: Patients meet Researchers
URL:https://solvecfs.org/event/long-covid-clubhouse-patients-meet-researchers-with-consuli-conversations/
LOCATION:Online
CATEGORIES:Long Covid
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20211215T090000
DTEND;TZID=America/Los_Angeles:20211215T100000
DTSTAMP:20220107T001511Z
CREATED:20211213T141506Z
LAST-MODIFIED:20220107T001511Z
UID:22899-1639558800-1639562400@solvecfs.org
SUMMARY:Emily Taylor Interview with WYPR's Midday
DESCRIPTION:Solve M.E. Vice President of Advocacy and Community Engagement Emily Taylor joins WYPR’s Midday host Tom Hall on Wednesday\, December 15\, from 12-1 pm ET / 9-10 am PT for a live radio conversation about our efforts to assist survivors with Long Covid and other post-infection chronic diseases. Also joining the conversation will be Long Covid Alliance member Chimére L. Smith.  \nListen to the interview here.
URL:https://solvecfs.org/event/emily-taylor-live-interview-with-wyprs-midday/
CATEGORIES:Long Covid,Media,Solve M.E. Leadership
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20211206T110000
DTEND;TZID=America/Los_Angeles:20211206T120000
DTSTAMP:20220107T001420Z
CREATED:20211130T151838Z
LAST-MODIFIED:20220107T001420Z
UID:22819-1638788400-1638792000@solvecfs.org
SUMMARY:Immune-Based Prediction of Long Covid and Implications for ME/CFS
DESCRIPTION:Dr. Bruce Patterson is the CEO of IncellDx\, where he is developing a new paradigm for predicting\, identifying\, and treating people with Long Covid. \nDr. Patterson’s published scientific work suggests that Long Covid patients can be diagnosed reliably by analyzing patterns in cytokines- different types of proteins produced by a person’s immune system. Identifying a Long Covid immune system “fingerprint” may lead to a better understanding of the disease and to new treatment approaches that address the underlying causes. \nIn this webinar\, Dr. Patterson will describe his recent findings in COVID-19 and different pathogens that impair the immune system’s ability to function effectively\, and their implications for other diseases\, including ME/CFS. \nDr. Patterson made significant contributions to the diagnosis of HIV/AIDS and previously served as medical director of diagnostic virology at Stanford University School of Medicine.
URL:https://solvecfs.org/event/immune-based-prediction-of-long-covid-and-implications-for-me-cfs/
CATEGORIES:Long Covid,Webinar
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