FDA Patient-Focused Drug Development Public Meeting for Long Covid

Online

The US Food and Drug Administration (FDA) is hosting a virtual public meeting on Patient-Focused Drug Development for Long Covid on Tuesday, April 25th, 2023, from 10 a.m. to 4:00 p.m. ET.  It will be conducted with live translation in both English and Spanish. Patient-Focused Drug Development meetings are important and infrequent opportunities for patients to provide […]

Effects of Long Covid and ME/CFS on Sleep

Online

Many individuals who have had COVID-19 experience long-term symptoms that have a major impact on their lives. One of the most common symptoms is sleep disturbance. After more than six months from the time of infection, about 60% of people self-report lingering sleep difficulties, even if they had a mild course of acute COVID-19. Unrefreshing […]

Federal Policy: How to Make an Impact with Support Long COVID and a National Taskforce

Online

Join Solve M.E., Marked By Covid, and Long COVID Alliance for an interactive discussion on key COVID policy actions: the National Task Force on the COVID-19 Pandemic Act (S.1489) and Long COVID Support Act (S.2560). This event will detail the bills, their importance for the COVID and Long Covid patient community, and next steps for […]

The Patient-Doctor Partnership: Optimally Treating People with Long Covid and ME/CFS Across the US

Solve welcomes three medical providers who will share their experience with treating Long Covid, ME/CFS, POTS, and dysautonomia patients across rural, urban, and suburban settings. Dr. Melanie Hoppers (co-founder and Chief Medical Officer at Physicians Quality Care, in Jackson, TN), Dr. William Pittman (co-director of the UCLA Long COVID Program), and Dr. Tiffany Walker (Principal […]

Changes in the Gut Microbiome in ME/CFS and Long Covid

Solve Ramsay Research Grant winner David Esteban, PhD, (Assoc. Professor of Biology, Vassar College) will discuss ongoing work in his lab determining whether there is a link between changes in the gut microbiome and disease in ME/CFS and Long Covid. The collection of bacteria in the gut, known as the gut microbiome, produces many small […]

Symptom Management and Patient Empowerment Through The Long Covid Wearable Study

The lived experiences of people with ME and Long Covid have shown that activity management, or pacing, can be an effective method of reducing symptom severity. However, pacing is difficult to implement. Many people living with energy-limiting conditions have utilized wrist-worn wearables, or activity trackers, to help implement pacing. To validate the value of using […]

Comparing immunological signatures between Long Covid and ME/CFS

**Webinar date changed to May 8, 2024** Dr. David Putrino and Dr. Jamie Wood, of the Icahn School of Medicine at Mount Sinai, have conducted several landmark studies on Long Covid. Their extensive research has led them to suspect that the immune responses of people with Long Covid differ in important ways from the immune […]

Covid Vaccinations: Efficacy, Options, and Special Considerations for Chronic Illness

People with chronic illnesses often have compromised immune systems or ongoing health issues that can affect how they respond to vaccines. The effectiveness and potential side effects of vaccines may differ for these individuals compared to the general population. Individuals with chronic illnesses may be at a higher risk of experiencing adverse reactions to vaccines. […]

Solve Author Series: Dr. Peter Rowe Discusses “Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment”

Orthostatic intolerance (OI) describes a group of circulatory disorders whose symptoms are characterized by a dramatic drop in blood flow to the brain when people are sitting for long periods or standing still. It is often associated with other acute issues, such as substantial drops in blood pressure, tachycardia, dizziness, fainting, or other long-term problems, […]

Skeletal Muscle Fatigue and Post-Exertional Malaise in Patients with Long Covid and Implications for ME/CFS

On Thursday, October 3, 2024, Solve M.E. will host a free educational webinar featuring Assistant Professor Rob Wüst from the Vrije Universiteit (Amsterdam, Netherlands), who will discuss skeletal muscle fatigue and post-exertional malaise in patients with Long Covid and the implications for ME/CFS. Dr. Wüst received a Solve M.E. Ramsay Research Grant in 2022 to […]

ICUE Webinar: Uniting Voices, Amplifying Impact: National Organizations Collaborating to Support Our IACC Communities

Please join us for the final, culminating webinar of the Infection-Associated Chronic Conditions Understanding and Engagement (ICUE) project, where we will discuss the findings and results from the project as well as on-going efforts to collaborate across the IACC community on advancing awareness, clinical care, patient support and research. During this webinar, you will hear […]

The Future of IACCI and Long Covid Research: ME/CFS and the Unfinished work of the COPVS Task Force

**NEW TIME AND DATE!** In 2021 the National Institutes of Health (NIH) launched the RECOVER Initiative, a patient-centered, integrated, adaptive research network created to study Long Covid. Included in the RECOVER Initiative infrastructure was the Commonalities with Other Post-Viral Syndromes Task Force. The Task Force included Solve President and CEO Emily Taylor, Dr. Leonard Jason […]

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