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X-WR-CALDESC:Events for Solve ME/CFS Initiative
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DTSTART;TZID=America/Los_Angeles:20260922T150000
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UID:44749-1790089200-1790092800@solvecfs.org
SUMMARY:Your Story\, Your Symptoms\, Your Data: Discover unhide®
DESCRIPTION:Living with ME/CFS\, Long Covid\, and related complex chronic conditions can make it difficult to explain how you’re feeling or to know whether a treatment is truly helping. Symptoms like pain\, fatigue\, brain fog\, behavior changes\, and post-exertional malaise (PEM) can fluctuate\, making it especially challenging to remember and communicate what has changed between medical visits. \nThat’s where tracking your health over time can help. \nThe unhide® real-world data platform uses validated health surveys to collect detailed information about your health over time\, and makes it easy to visualize a large amount of information at a glance. Using the data from unhide®\, patients can better recognize patterns and trends to support conversations with healthcare providers. \nIn this webinar\, the unhide® team will demonstrate how patients and caregivers can use this resource and its research-validated tools to track symptoms\, better understand changes in symptoms and daily functioning\, prepare for medical visits\, and contribute valuable data that researchers can use to improve understanding and treatment. They’ll also explain what these scores can\, and can’t\, tell you\, and how participating in unhide® can help researchers better understand complex chronic conditions. \nHost Chief Scientific Officer Dr. Sadie Whittaker and panelists Dr. Sally Daganzo (Clinician\, Private Practice)\, Deborah L. Duricka\, PhD (Co-Principal Investigator)\, Megan L. Fitzgerald\, PhD\, (Scientific Director\, Brain Inflammation Collaborative)\, Christy Jagdfeld\, CPA (CEO of Brain Inflammation Collaborative)\, and Christina Moon (Clinical Research Associate at Brain Inflammation Collaborative) will discuss how unhide® helps patients\, caregivers\, and healthcare providers consistently capture\, share\, and learn from health data and lived experiences.
URL:https://solvecfs.org/event/your-story-your-symptoms-your-data-discover-unhide/
CATEGORIES:Long Covid,Research,Solve Together,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2026/08/unhidewebinarSept22FINAL2.png
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DTSTART;TZID=America/Los_Angeles:20261110T150000
DTEND;TZID=America/Los_Angeles:20261110T160000
DTSTAMP:20260902T225741Z
CREATED:20260902T225741Z
LAST-MODIFIED:20260902T225741Z
UID:44886-1794322800-1794326400@solvecfs.org
SUMMARY:The SIGNAL Study: Using Home-Based Treatments to Advance ME/CFS and Long Covid Research
DESCRIPTION:What if we could learn faster which ME/CFS and Long Covid treatments work—and who they work for? Join members of the SIGNAL research team for a conversation about their Solve ME/CFS Catalyst Award-winning study using real-world patient data to evaluate promising therapies for people with ME/CFS and Long Covid.  \nThe SIGNAL project is built around a device lending library through which people diagnosed with ME/CFS and Long Covid may borrow promising therapeutic devices\, shipped directly to their homes at no cost\, for a three-month lending period. While borrowing\, participants contribute standardized longitudinal data through the Brain Inflammation Collaborative’s (BIC) unhide® online health and research platform. This allows each lending cycle to be a real-world research opportunity. \nIn this webinar\, we’ll hear from Renegade Research team members–scientists and people living with ME/CFS and Long Covid–as they discuss the study’s goals\, its patient-centered design\, how results will be shared quickly to help patients\, clinicians\, and researchers make more informed decisions\, and how you can get involved.
URL:https://solvecfs.org/event/the-signal-study-using-home-based-treatments-to-advance-me-cfs-and-long-covid-research/
CATEGORIES:Long Covid,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2026/09/signal-nov-10-webinar-v1.png
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